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Metoo

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Metoo last won the day on December 19 2017

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  1. My situation was similar, my rash started on my fingers, then eventually spread to my elbows, and chest/neck area! I will say after 3 months of strict gluten free my rash really did not subside much, it calmed down but hadn't really gone away. I eventually when on Dapsone for a stint...
  2. All I can recommend is to not go it alone on this. I spent 2 years trying to figure out my sensitivities and avoiding foods and products to try and calm down my reactions. After 2 years...I finally got fed up and saw a dietitian. After eliminating multiple things with the dietitian...I am now...
  3. Hello! It took me about 3 days to really start to feel a difference. After about 2 weeks it was great!! I will say though, I didn't seem to be able to completely heal and stop the DH entirely until I quit dapsone and cut iodine. It was like it just slightly lingered....I also didn...
  4. Is anyone super sensitive to cross contamination and iodine? About two weeks ago I believe I had some cross contamination....product made on same equipment as wheat, or when I sat down at a break table with crumbs with my computer....and I had a small not bad breakout. Then last week...
  5. I had DH not while pregnant but I had to cut out dairy, eggs, fish and salt. Took Dapsone and was still struggling. Then eventually cut all packaged gluten free foods...it then took 2 months for the DH to go away, only about 4 weeks for it to stop spreading though! Probably not what you...
  6. Yes mine in areas like my chest were dark pink and stayed that way for almost a month before they would fade. Some areas were more purplish though like my elbows.
  7. I have been on dapsone since January...and have tried 2 times to stop...at which point my rash blew up and the nightmare rash came back! one of those times included eating out...which should have been gluten-free but may have been cross contaminated. I have been ultra strict for more than month...
  8. Hello. I wanted to tell you I seem to be having the same problem...although I am on a lower does between 25-50 mg depending how bad I am broke out. I first cleared on 50mg in 1 week. Now though i seem to be breaking out while on Dapsone from too much salt or iodine. I ate some gluten...
  9. Hello. If you really think its DH, and the dermatologist doesn't give you another answer. Then you could ask for a dapsone trial. I had negative skin biopsies...however it was the most intensely itchy rash of my life, after being gluten free for 2 weeks and ingesting gluten it got worse....
  10. Mine after 5 weeks of gluten-free (also, low iodine/diary free/egg free), was still spreading/new breakouts. The dermatologist put me on low dose dapsone and I am now 4 days in and its starting to calm down and go away. Hopefully it will go completely away in the near future (although some areas...
  11. So I just returned from my dermatologist appointment....he treated my rash a little with Tony steroid topical shots. We talked about how this started the day after I was glutened...I asked if I had to eat a normal amount of gluten for my biopsy to show positive for DH (he said no, that it would...
  12. okay.....this answered a lot of my questions! I will try to avoid the steroid shot. It is seriously wearing me down. its like I can't' get away from the pain / itching. The other question I had was....the reaction seems to be getting worse...the more I avoid gluten. I was going to ask the...
  13. I was gluten free for 5 years....because of a rash on my hand, at the time I could get no doctor to listen to me after months, and a couple of cousins who could no longer consume gluten, I went gluten free. However the past year...I had turned into gluten light...I wasn't avoiding cross contamination...