tennisman

you should be manufacturing a lot of vitamin K in your stomach, or at least changing it from K1 to K2 (or vice versa, I forget.) In any case, the important thing is that your gut should be doing that for you provided you're eating enough of the right foods. If it's not, then you could be lacking the proper bacteria necessary to do so. I know small intestine bacterial overgrowth is a thing. It's also possible you have some sort of intestinal parasite. I hear they're actually common, that most people have a few, however, they aren't supposed to cause issues unless there's too many or something. Being a celiac it's possible that things that wouldn't bother most people intestinally, will bother you a lot more.

Another possibility is that you are more sensitive to gluten than you realize. Most manufactured gluten-free grain products have trace amounts of gluten that, from a recent study posted here, indicates that refractory celiacs (celiacs who don't get better being 'regular' gluten free), can actually get better by avoiding everything except meat, veggies and fruits. When was the last time you had a biopsy? If you are a refractory celiac, you will still have intestinal damage. This would  explain low vit K and vit D and any other nutritional deficiency you may still have.

 

As for the vit D, go outside in the rain and cloudy weather in shorts and t-shirt in the summer anyways. I would also double your vit D intake, especially during winter. It's obviously an issue for you if you haven't been able to put your levels up.

 

I have suffered from depression for over a decade, and I wish I had good advice for you with dealing it. My best advice is to find a medical reason for it, which you're doing :-p. It might really be as simple as you say, a vit D problem. That said, current depression medication isn't just a mask, it essentially does increase levels of neurotransmitters, however in light of the low effectiveness of anti-depressants, depression clearly isn't just low serotonin and dopamine. Some people swear by it, others notice little change or don't like the change that does happen, can often lead to apathy, which, as far as I'm concerned, is just another form of depression.

 

General depression guidelines involve excersising regularly,  and making sure you are social.

Fun fact: wellbutrin started as a smoking cessation aid, I believe it's still used as that too. Another fun fact? Smokers are less likely to be depressed than non-smokers. Maybe nicotine is good for you on some level, or maybe we should all take 'smoke breaks' and socialize a little more.

 

I've actually not been so depressed lately, and I was actually happy when I found out I was a celiac, for a little while at least, because now I could do something about my physical and emotional health.

Personally though, befor the celiac disease, my husband (then bf) helped me a lot by changing my mentality and ideology. I always felt guilty because I wasn't accomplishing, or because I tried and inevitably failed because I'd simply stay in bed or at home due to lack of motivation. (I've always been pretty up and down, not bipolar, but not constantly depressed...was probably the gluten.) I was raised with expectations that I'll have a career that will make a difference in the world, and the idea that if I weren't changing the world somehow, or excelling in some niche, I was being selfish and wasteful and lazy. Well, my bf was never raised with those expectations. He lives for what he likes, and he is guilt free when all his free time he plays video games. He works to make money so he can be happy, and he quite frankly didn't understand my ingrained ideas of achievement. I know some people, (my parents included) think I'm morally a bad person now due to the laziness, but the reality check now is that I'm not a guilt-ridden, always failing, depressed person anymore, just a generally unenthusiastic person who knows her own threshold of responsibility well.

As I get better, pushing my limits in regards to my activity levels is something I'm going to probably do. But I know when I'll get there because I'll get that desire to do something. I'm prepared for never getting that back though, but knowing I have a medical problem that all this likely stems from, gives me something that being depressed has taken away: hope. So double or triple your vit D, don't miss doses, go outside, try light therapy, try an antidepressant, try taking hydrochloric acid with that digestive enzyme, get a biopsy done, look into a more restricitive diet, get tested for SIBO, get tested for general parasites, try a no-sugar diet...there are a lot of things you can still try!

That's interesting about the intestinal parasite I have sometimes wondered if had something like that , but I haven't really looked into it much , I went to the Caribbean 5 years ago and some problems started after that , it's probably not connected but I have lately thought about if I did pick something up . My doctor ruled out refractory celiac disease in 2011 , I last had a endoscopy and biopsy at the end of 2010 , my villi was okay all the test showed was mild gastritis . Also my serology levels or test have always been normally , my gastro doctor did check again recently and said the tests were fine as usual indicating good control of the disease  It's odd why I don't absorb Vitamin D very well , I need to go to a sunny country for a few months !

Can you still get Vitamin D when the sun is not out on cloudy and rainy days ?

Sorry to hear you have suffered from depression for a over a decade   I agree it's best to find the reason , I want the problems to improve but not just by themselves just in case the problem starts up again in the future than I would know what to do to fix it . I think it could be too do with Vitamin D but I'm not 100 % sure there are also many other reasons that I think could be the cause of my depression. It's very difficult to understand all the neurotransmitters and serotonin and dopamine . I have read a little bit but don't really understand.

I would like to do exercise again , but with stomach and back problems I can't really do much , and walking is difficult for me because of my anxiety problems I really don't like going out . I was thinking of getting an exercise bike as I think that might be okay for me I'm not sure really . I don't smoke but that's interesting I also heard smoking lowers your chance of getting celiac disease too late now though ! I'm not very social mainly because of my stomach hurting , but this year I have tried to go out more , but I don't really like to socialise that much

Glad you haven't been as depressed lately , that's a good way to look at it That must be difficult to have expectations like that , it's difficult for anyone to make a difference to the world . I play video games   I think it's ridiculous people could think that about you , a bad person would not come on Celiac message boards and give helpful advice ! But it's good you changed your mentality good luck in the future ! Thanks for the advice I will get the doctor's to do some of the tests , and try some of the other things . I have tried some things with the diet and did exclusion diets etc but nothing really helped , if anything I need to make my diet less restrictive 

this thread is what I've been updating in regards to my expierences with doctor's visits, symptoms and testing https://www.celiac.com/forums/topic/99439-need-help-with-tests-results-please/

 

I had to take the anti-depressent generic of Wellbutrin back in 2011/early 2012 for a little because I felt depressed, and I just couldn't seem to shake it.  I only took it for about 4 1/2 months.  I wrote this long note detailing everything, and gave it to my GP who I've seen since I was two, and he said, "It sounds like you're a bit depressed."  He specifically precribed Wellbutrin because it was not associated with weight gain, and I had lost a good amount of weight through healthy diet and exercise, and I knew gaining it back wouldn't help my depression.

 

I remember telling my doctor I didn't want to stay on it forever if I could help it, but I would take it through the winter.  I took it through February, and I was feeling sooooo much better, so I called the doctors, asked about the proper procedure for discontinuing the use of the Wellbutrin and stopped it.  Yes, the side effects of any drug are scary, but I had to weigh the pros and cons, and I had tried everything else I could think of, though I didn't realize gluten was a problem for me at that time   When I started it, I had brain zaps for a week and had trouble sleeping because it felt like I was wired, but after that first week, those side effects went away.

 

In the end, you have to choose what's right for you, but maybe sharing my expierence will help you make a decision    At that time, I had exhausted my other options to try and feel normal, but nothing was working.  Thankfully, the Wellbutrin helped level me out!

 

As far as the vitamin K, I gave my ob/gyn a list of blood tests that I'd like run, based on what another poster said.  Luckily my doctor had no problem orderering the work-up, but because Vitamin K deficiency is rare, it is not rountinely tested for in a Complete Blood Count or Complete Metabolic Profile, and it has to be asked for seperately.  Not sure if this link came up in your vitamin K searches, but here's a good one  Open Original Shared Link

 

Unfortunately, since I haven't had my levels retested yet, I don't know how these are working, but for what it's worth, these are the D and K supplements I've been taking

 

Open Original Shared Link

 

Open Original Shared Link

 

For the vitamin K1 supplement, I e-mailed the maker, and they said the product was gluten free.  My GI doctor advised me to take 5mg a day of Vitamin K.  Since I didn't want to be taking five million tablets a day, I ordered these and then only have to take 5 a day since they are 1000mcg each.  each capsule provides 1250% of your daily Vitamin K, so I had a pretty low result in that test

 

i always start out with the intent to write a short post...

 

Hope this helps!

I will take a look at your thread after writing this post

It's good the Wellbutrin made you feel better

I never use to be worried about the side effects , but my sister had some tablets and maybe it made her illness start up , it's difficult to prove but it makes me worry more about side effects now . My doctor once said if someone takes a tablet for stomach pains and complains of stomach pains after taking the tablet stomach pain will be listed as a side effect even though the stomach pains started before they had taken the tablets ! Just so the medicine company can cover themselves . I was prescribed some tablets for depression and anxiety last year but didn't pick them up because I read the side effects online and was put off , and I had just started to go to counselling again so was hoping that would help . Some other tablets my doctor gave me 2 different tablets one to help pain and help with sleeping problems and the other to help with pain and anxiety and depression but I didn't take either , but I have different types of treatment to try for the pain which are not tablets Than I have some other tablets for a urology problem , my doctor who prescribed them said there was a slight chance they work but I should try them , the person at the chemist said it's very rare for someone my age to be given these tablets and they will cause a bunch of problems so I would rather not risk it . I have tried many times to start taking them but just get a bad vibe whenever I go near them . But for depression I still have lots of things to try and even more now with the suggestions you and cavernio have made  For anxiety I don't really as many things to try . But also I had some problems with my back and stomach Celiac related for the last 8 years ( back 8 years and stomach 5 ) maybe these problems are the real cause of both the anxiety and depression ?

Thanks for the link on Vitamin K , I will have to ask my doctor next time . I don't know if I have a problem with Vitamin K but when looking there were a few problems that it can cause , which I have been having and the doctor's don't know the cause of the problem .

Hopefully your Vitamin levels will have improved when you get retested That would have been a lot of Vitamin K tablets to take !

I usually try to write longer posts , this time I think my post is a bit longer

Thanks Again

yeah I'm not big on putting extra things in my body if they aren't needed.  I had one bad expierence, so I don't like to take anything unless it is absolutely necessary    when I had vit/nutrient testing done this February, I was deficient in Vitamins D and K, and low in potassium.  For Vitamin D, my doctor told me to take 2000 iu a day, and I will be getting retested in May. 

 

HCL plus pepsin is not a pharmaceutical prodcut, but instead is the hydrochloric acid found in your stomach and pepsin is an enzyme, both of these things are essential to breaking down food, but most importantly protein.  If your body is having trouble digesting protein, it goes back to that other post I made about:

Low stomach acid --> reduced absorption of essential amino acids--> neurotransmitter (serotonin, norepinephrine) deficiency--> depression

 

if you can't adequately digest protein due to low stomach acid, then the way I see it is, the protein isn't being completely broken down into the needed amino acids, then neurotransmitters are thrown off and then depression sets in... 

 

i bought these tablets Open Original Shared Link

because the second review stated "This is a wonderful, 1 tablet dose for those with low stomach acid. Has dramactically increased my nutrition absorption, as based on blood work. Highly recommemded!"

 

it would be worth a try, if nothing else seems to be working and you want to avoid the pharmaceutical route

Sorry you had a bad experience  I do have some tablets I am suppose to take but i'm frightened of the side effects , but i'm also worried about what could happen if the problem gets worse as it's kinda difficult knowing what's best to do . How did you get vitamin K tested ? As I have some symptoms of vitamin K deficiency but my doctor's don't know how to test it . Hope your vitamin D levels will be improved when you retest.

I will look at getting some HCL plus pepsin , my Mum got something for me recently I haven't tried it yet , it might be similar , it is something to help with digestion I think . Thanks for the link , I will try and get some .

Thanks again for the advice

Hi tennisman

 

I take Lamberts Vit D 1000iu per day available through Amazon (or quality health food store). I think it is a good one and I definitely feel better with taking it. 

Like you, I am in the UK and struggling to remember what sunshine looks like!

 

Additional thought - have you had your thyroid function checked. I would say that low thyroid = feeling low/depression.

Might be worth checking just in case.

Hope you feel better soon (and hope we get a beautiful summer).

Hi Lady Eowyn . I will have a look for them tablets . That's good you feel better taking it

Don't think I have had my thyroid checked , I will ask my doctor to check . 

Thanks , and hopefully we will get plenty of sunshine over the next few months !

I was low on Vitamin D also. Doc had me taking 1000 units of D a day.  After a year I was still low so he switched me to 2000 units a day.

 

There was a news story about vitamin D pills not being marked correctly recently.  They said some of the vit D pills were very low on the actual D content vs the marking on the label.

Hopefully I can get a tablet with a higher does from the doctor , my GP did mention the other day about some different supplements that I might absorb better . That story is interesting , the tablets I had are from the hospital and my doctor said there the top brand . I wondered also about just vitamin D tablets as mine are calcium and vitamin D , I wonder if it makes any difference .

tennisman, if you think your depression could be related to vit. D have you tried light therapy yet?

Thanks for the advice Peeptoad , I haven't tried light therapy before thanks for the suggestion

My anxiety and depression went away gluten free and return when glutened.  Perhaps you just need a little more time on the gluten-free diet, or learning about what not to eat.  I hope that you feel better soon.

 That's good your anxiety and depression went away . I been on the gluten free diet for almost 10 years . I found slowly after been diagnosed depression and anxiety got worse I remember the 1st time I really felt depressed was a year and a half after I was diagnosed but than it started getting worse slowly year by year . Than in winter of 2008 it became a lot worse . It's difficult to know what causes it I blame celiac disease or the gluten free diet and I think other illness I have and stressful events make it worse . I have found when I have been somewhere sunny for a week or so I did feel less anxious and depressed so it could just be the vitamin D deficiency causing the problems . Thanks

are you presently gluten free? thoroughly gluten free?  The vitamin D, what supplement are you taking?  Remember, natures way of getting Vit D is through sunlight on skin.   Get outside between 10 and 2, with at least 20/30 % of your skin uncovered, for 20 minutes or so....not so long you start to turn pink.  good luck

I have been gluten free since May 2003 and have always stuck with diet 150 %. I have been taking Adcal vitamin D , I think it has 400 units of vitamin D taken twice a day . Unfortunately living in england we haven't got much sunshine lately , it rained most of last summer and now we have snow , we need some sun for a couple of months ! Thanks  

Hi tennisman,

 

when I went for my EGD, I was diagnosed with GERD and a hiatal hernia.  Still waiting on my biopsy results, but I had a positive DGP igG score.  I had kind of suspected I had some kind of acid reflux but had never been diagnosed with it.  thankfully, I am happy to report that in only about three weeks gluten free, it has improved substantially.  In another post someone suggested reading the book Why Stomach Acid is Good for You by Jonathan Wright.  I finished it last week, and it is an awesome book!!!!!!!!!!!!!!!!  

 

there was a table on why the author thinks depression occurs closer to the back of the book as follows:

 

Low stomach acid --> reduced absorption of essential amino acids--> neurotransmitter (serotonin, norepinephrine) deficiency--> depression

 

if you read it, the correct pH of your stomach acid is invaluable to how you assimilate nutrients.  if you are unable to absorb nutrients correctly, then it sets off a chain reaction.

 

Before my EGD, my GI doctor offered a prescription of Prilosec since I had thought I had some sort of acid reflux.  He said sometimes that can help get rid of symptoms.  I am of the mind set, I don't want to mask symptoms, I want to get to the root of the problem and get rid of it.  Gluten-free has gotten me off to a good start minus any harsh medications that limit my stomach acid, and after reading the book, the only way I will ever agree to take those meds would be a Heidelberg capsule test to really test how much stomach acid I am producing.  Most people with GERD under produce stomach acid rather than overproduce it, so why would I want to make even less??  Yes, I am assuming I under produce it 

 

maybe a simple HCL with pepsin tablet is your answer?  I bought Bluebonnet brand off of Amazon.

Hi powerofpositivethinking , glad gluten free diet has helped your acid reflux  , I will look into the book thanks .

That's interesting about the table , I have read similar things before . 

I agree it's best o get to the root of the problem and treat that . I don't usually take tablets as the side effects scare me ! It seems tablets are not good always they should make some that should overproduce it .

What are HCL pespin tablets ?

I know Anxiety and Depression are quite common illnesses but I have read many article's etc about people with celiac disease having double the risk of getting these conditions . Do we get a different form of Anxiety and Depression ? I know vitamin deficiency especially vitamin D can cause depression , and lots of Celiac's have vitamin D deficiency .

I have had depression and anxiety since the end of 2008 , I think it's mainly due to my health problems , my sister's health problems and 1 or 2 other things . I really don't know how to fix my anxiety and depression I have been to family counselling and had counselling by myself which helps a bit . I also have taken many vitamin D supplements since 09 but my level just won't go up much .

I did wonder about self help workbooks for anxiety and depression anyone tried these ? I'm just worried the anxiety and depression is caused by celiac disease or the problems I mentioned above I just don't understand how I can fix these problems as I can't change what has happened with celiac disease or the other problems that I mentioned above if they are the cause of the anxiety and depression which i'm 99 % sure they are . It's very frustrating having physical pain due to complications of celiac disease and than these anxiety and depression problems on top are very difficult to deal with too.

If anyone has any on advice that would be great ?

Thanks

The ones that really make me mad are the parents who take their kids off the gluten-free diet or let them cheat. Especially the parents who have read all the info and know there is no cure but feed them gluten still!

Wow that's crazy , I feel sorry for the kids

It's more of a head shaker for me. Just like my uncle who had lung cancer and still smokes, and a diabetic friend who eats a bunch of sweets.... Just not smart... and it makes them seem...weak to me.

I know it's there choice but it's disgraceful making themselves ill and risking the future for the sake of food . I agree I believe most Celiac's are strong because sticking to the diet can be tough at times . I shouldn't laugh but sometimes I hear people on simple diets complain about there diet is hard us Celiac's have things 10 x worse than any diet . celiac disease just annoys me lots stupid disease .

Tonight I feel so angry because yesterday I read on a different site a idiot who apparently has celiac disease and didn't stick to the gluten-free diet for years . I have read so many stories of dingbats who think there so cool by not sticking to the gluten-free diet and than suddenly they want to stick to it. Makes me so angry I know it's there choice and I will admit this is really about my frustrating health problems , it annoys me so much , I have been ill for 7.5 years I stuck to my diet 1000 % since day one and have problem after problem and than I read comments about people who apparently have celiac disease don't stick to the diet and are fine health wise These people should be ill and going through bad pain and tests , not people who take the gluten-free diet seriously ! Rant over !

Anyone else get annoyed by Celiac's who think the gluten-free diet doesn't apply to them ?

Sorry to hear that a84c72 . It's horrible and frustrating when people think we are picky or on a fad diet . I hope things will improve soon

After being gluten-free for almost 10 years I usually think is it worth it sticking to the diet I think no but really we have too It does suck and sometimes it can really make you upset but things will improve and hopefully you will be happy soon

Having celiac disease is not easy but it is probably the easiest autoimmune disease to have. You should visit Mark's Daily Apple.

I would not agree with that it depends how much celiac disease affects your health , some people go gluten-free and are fine while others go gluten-free and still have lots of problems either way it's not an easy disease to have from my experience.

Have you tried Cider ? It's a nice drink and usually the same price as beer.

Gastritis just started for me in August. I've been gluten-free for 15 mos. I've also taken soy, dairy, peanuts, refined sugar, corn, most fruits, and tomatoes/peppers out of my diet. No relief yet...and no known cause.

Sorry to hear that , hopefully you can find a way to fix the problem soon . Does Gastritis cause back pain as well ?

If the green isn't constant, what did you eat? Thats probably what did it. For example, eating too many blueberries can cause it to go really dark or eating to much spinage can cause it to go green.

I don't think I ate anything that could have caused it , but I did drink lime squash just by itself I'm not sure if that could have caused it .

Get your gallbladder when you go to the other doctor checked.

As long as your poo isn't white (sign of colon cancer) or black (sign of bleeding in upper intestine) you're okay.

I will ask my doctor about the gallbladder .

It was very very dark brown I don't think it was black. Than at the weekend it was very dark green , online it says green could be an infection ?

Thanks

Could be gallbladder? If it's low functioning it can cause those symptoms. An ultrasound will show if you have stones, but you would need a HIDA scan to guage the level of function you have.

It also sounds like gastritis..but the cause is the big question. I developed it myself and don't know why.

I will ask my doctor to do the gallbladder tests .

My last Endoscopy in late 2010 showed mild gastritis the doctor said all Celiac's have some gastritis not sure if that is right though . Does gastritis cause you problems or have you found a way to treat the symptoms ?

Thanks

9 days ago I started getting new and different stomach pains , the pain is almost like my stomach is being pinched and it reallys really tight and quite hard. Also last week I started getting back pains pretty much the same pain that has started in my stomach ( and possibly pain in the kidneys ). Than on friday I noticed the colour of my stools became very dark and and than a different colour over the weekend . Than since yesterday I have been burping lots.

I have been to see my GP doctor and he said I need to go back to my Gastro but that's gonna be a few weeks I think . I also did a urine test at the doctors it's been sent to the lab because of traces of protein .

But i'm kinda worried what's going on , I did wonder because of the stool colour changes if maybe I had some kind of stomach infection but I have no D or fever or anything . I just been reading about stomach ulcer's can cause stomach and back pains ( Also seem to be having ulcer's in my mouth lately) . My pains seem quite bad at night in both the stomach and back and it's very difficult to get to sleep but once i'm alseep the pain doesn't wake me up . And when I wake up in the morning the pain is not bad but gets bad as the day goes on and than i'm just getting the stomach or back pain for almost most of the day .

Just wondered if anyone has had a similar problem , or might know what's going on ?

Thanks

David ( Tennisman)

Wow that's terrible , I hope you get results soon and I hope your doctor gets celiac disease than he might change his no big deal opinion !

I had a positive blood test for lupus but the doctor didn't think I have . I did the test with a Rheumatologist while they were trying to figure my back problems out . I looked at lupus sites I have a few of the symptoms mentioned but I doubt the doctor would diagnose me with it . I tested positive to 2 other conditions but wasn't diagnosed with either .

Hi archaeo in FL , Thanks , I hope all the tests will be over soon and we will figure out what's going on . I'm not sure if I had the Hydrodistension , I know near the end of the test they filled my bladder up with water so they could see more in the bladder i'm not if that is the same thing or similar ? That part caused bad pain , I remember the doctor saying the prostate is not relaxing and that could be causing the slow urine flow . I don't think I had a catheter . The part at the start that hurt was the local anaesthetic injection , it caused sharp pain , I also had to have the local anaesthetic injection at the start of the urodynamics test which caused the same sharp pain .

Yeh normal results is great , but it makes me think I went through the test for nothing . I worried a lot about the test it seems frustrating all the worry etc and no progress made . My doctor hasn't said anything about IC , so it's probably not the problem . I was sent to see the urologist by my Gastro doctor who thinks I have kidney stones . I have been getting non celiac related stomach pains for over 4 years now and my Gastro thinks stomach pain , blood in the urine and a slow urine flow could be caused by kidney stones but my urologist doesn't think kidney stones is the problem . I hope the urologist can figure out what is going on and if it's causing the stomach pains too .

I had to do the voiding journal as part of the urodynamics testing , I only recorded 3 days as that was the time I had between getting the letter and going for the test . That must have been a pain carrying around the plastic cover . I used an old measuring jug it was only 500ml almost overflowed once or twice ! But as I stopped the urodynamic test after I had the painful local anaesthetic injection I probably need to re schedule the urodynamic tests and maybe record everything again , did the doctor find out lots from your voiding journal ?

The catheter sounds very painful . I read online in some people it's causing excruciating pain and some people feel no pain which seems strange as it sounds very painful . I can imagine the pain being bad after , the pain I had passing urine after the Cystoscopy was very bad especially after the local anaesthetic wore off ! Did you find drinking water helped your symptoms after the catheter ? My doctor gave me some strong pain killers for before the Cystoscopy but I don't they helped much . I will look for the tablets you mentioned , and ask for the pediatric catheter.

I'm going to see the urologist later in the week and will ask questions about the local anaesthetic injections and why they were causing pain and it that was normal . I'm hoping the pain and swelling is completely gone by than ! I was going to ring the hospital because since the local anaesthetic injection for the urodynamics I have felt exhausted have a headache etc and didn't know if it was related or not . I remember my last endoscopy I had hallucinations for a few days after and the doctor found it funny :S

Thanks again for the advice and information

Hi archaeo in FL , Thanks for the reply . Did the Cystoscopy hurt without anaesthetic ? I'm not sure what hydrodistension is ? I had a Cystoscopy last week it caused sharp pain at the start and near the end of the test . I also had a lot of pain and some swelling after and just wanted to know how long it took for you to recover ? I have read online it can take anything from a few hours to a few weeks. I'm sure having celiac disease also slows down recovery times too .

I had to have a Cystoscopy because I have a slow urine flow and blood in the urine . My doctor said the Cystoscopy test results were normal . I need to have urodynamics testing have you had them tests ?

I have been looking online but it's difficult to find an answer about the local anaesthetic injection . Because for the Cystoscopy the local anaesthetic injection was very painful and I did do the start of the urodynamics testing and had the local anaesthetic injection again and it caused sharp pain i'm not really sure if that's normal or not . I tried looking online but can't really find much about the local anaesthetic injection , I only find stories about the Cystoscopy part of the test .