artmeg55
-
Posts
21 -
Joined
-
Last visited
artmeg55's Achievements
-
-
I have the same issues that the rest of you are noting and the fatigue is overwhelming at times. I can’t seem to tell if taking extra calcium with D helps or not, but I do seem to feel better in the summer when it’s warmer. The joints in my hips are so sore sometimes it is hard to go to sleep so I've been taking a lot of Motrin. Now that the weather is better, it’s a lot easier to get outside and exercise; I keep telling myself that will help. Part of it too is that I am rapidly approaching menopause; starting it? With periods getting erratic after decades of timeliness, that is taking its toll on me physically. Wish there was a way around it. Any ideas?
-
The important thing to remember is that you're worth it! I look at these items as staples that are necessary items. Personally I do not care for Rice Crispies or corn flakes. They get too soggy and taste like mush. This may sound crazy, but I keep a box of baby rice cereal for mornings that I need to get out extra early. It's not bad with milk, a shake of cinnamon, and a squeeze of honey.
If you have a Trader Joe's near you, their prices are about the best that I've found for gluten-free cereal; these are the cereals that I like best: Enviro Kids Peanut Butter Panda Puffs and Enviro Kids Koala Krisp, Puffins-the plain and cinnamon-these come in a larger box and are great. Don't let the kid names fool you. These cereals are all good. My 6'2" son watches to see them on sale and will buy them for me at his super size grocery store. since some of the larger chain stores do carry more gluten-free products. You may want to try Red Mill products. They make a hot ceral mix called "Mighty Tasty gluten-free Hot Cereal". Yes that is really the name! And it's not bad, but it takes 10 minutes to cook. If you think it's expensive, remember that one bag lasts a long time (much longer than a box of cereal), and it's very nourishing. Also, Mr. Ritts Bakery in Philadelphia makes a pancake and waffle mix that is a pleasant change from cereal in the morning. They also have bags of a variety of flavored gluten-free cereals that are good and priced sensibly.
-
The ideas presented on carrying lists are great, but I tend to double-check, so I like to read the labels on everything. Someone posted here about a year ago to look for single-ingredient foods especially when eating out. That's really helped me alot!
In the ongoing attempt to try to stay healthy, I started eating Stoneyfield yogurt. It seemed like a good thing to do to eat the 5 active yogurt cultures, but what happened was that for some reason it made me very bloated, uncomfortably. It took a while for this reaction to happen, but as soon as I stopped eating yogurt, I felt much better. Any ideas???? Yogurt is such a quick and healthy food I'd like to re-add back to my "diet" to keep the weight on.
-
Wow, I guess we are all gluten-free normal!!! THE MOST IMPORTANT THING IS DON'T ANY OF YOU HAVE BABY WIPES????!!!??? At my house, we never stopped buying them even after the children were old enough to deal with the bathroom alone. Believe me, they are a lifesaver even for adults. My doctor recommends using them during a colonoscopy prep. When I tell friends this before their procedure, they are grateful afterwards. Baby wipes make you feel sssssooooo much cleaner with less effort or rubbing with the nasty, rough stuff. They also carry well in little zip-lock baggies.
-
I still think lunch at work is the toughest gluten-free meal to plan. My favorite lunches are leftovers...I try to make enough of whatever we are having for dinner and just pop some into a microwave save container to reheat. Also, I like to make a batch of gluten-free soup and freeze individual containers. Annie's makes a good gluten-free mac and cheese that is micowaveable if you're in a hurry. gluten-free pasta reheats well and makes a good lunch too.
-
Guess that I don't have to blame impending menapause anymore!
-
One more thought. Miss Robens online store has gluten-free products besides food. Check there for some you may like.
Open Original Shared Link
Meg
-
There has been ongoing controversy regarding caffeine vs. the de-caffination process as to which is worse. Personally, I choose to stick with herbal teas that are caffeine-free. Once you choose a flavor you like or enjoy a variety as I do, they are lots of choices. I find tea to be very soothing and it's wonderful with honey. My doctor prescribed Prevacid for me and coffee is on the list of foods to avoid, so I do.
Meg
-
Three nutritionists have told me that skin care products do not cross-over (will not make you sick). But I just can't bring myself to buy anything with wheat in it for myself. I would not even consider any lipstick with wheat as an ingredient. Try Estee Lauder's Intense Lip Creme. I like the Amour Rose. It has long lasting color wihout dyeing or drying out your lips. Even though it seems more expensive than the drug store variety, it lasts longer since you use less. As a school teacher, I do not find much time to re-apply lipstick during the day, so give this one a try.
Meg
-
Thanks for the tip! I'm going to get some and try it too. Wish I had some right now! That's the great thing about this message board, getting and sharing advice!
Meg
-
73. Force fluids, and then force more fluids. My new favorite is Twining's lemon and ginger tea. Its' caffeine free too so it won't keep you awake. The lemon is perky and the ginger's good for the stomach.
Meg
-
Betty Hagman's flour works out pretty well for most recipes as a substitute for wheat flour. You can but it from Miss Robens online store.
-
celiac3270,
Please send me your list too!
Thanks! Meg
megfierro@comcast.net
-
Last Saturday, I dragged my family with me to Mr. Ritts Bakery in Philadelphia. At first they did not plan on being very excited, but they were when I was! Mr. Ritts Bakey ONLY bakes gluten-free and I am thrilled with everything that I bought which included lemom poppyseed muffins, orange almond biscotti, and blueberry waffles. That means that all of the tempting treats there we can eat safely! What an amazing find. There were so many choices it was hard to narrow my selections to what would fit in the cooler that I brough along. This great little bakery just a block from South Street in Philadelphia if you're close enough to visit and if not, they'll ship to you. Visit their website, it's well worth it! Mr. Ritt's Bakery • 709 E. Passyunk Avenue Philadelphia, PA 19147• 215-627-3034 • info@mrritts.com
Open Original Shared Link. They are very friendly and helpful too! Next visit, I'm bringing home a cake!
Does anyone else have good shopping/buying tips?
-
I agree that "The Gluten Free Bible" is worth every penny. It's an indispensable reference for gluten-free living. The magazine "Living Without" is good, but the book is a handy, concise guide that covers just about everything.
-
It's comforting (sort of) that many of us have similiar responses to accidental gluten consumption, but I find tired thing to be really annoying. At the first sign of distress I try to drink as much water as possible. It helps to keep my body digesting the bad stuff. I usually console myself that the sooner it passes, the sooner I'll feel better. If it happens to be afternoon and not evening (the normal time for bad reactions), I recommend eating a light meal anyway-not skipping the meal. It seems to keep my stomach on a better cycle and proper nutrition is so important for us. (I am underweight still, no matter how hard I try to consume calories.) What's hard for the non-gluten-free to comprehend the exhaustion. It feels like a truck just ran over you, but satisfying sleep is impossible following an episode and a long day at work the following day is simply inevitable. Relaxing (or trying to) with a cup of tea helps my sanity on bad days.
-
When i accidently eat something or something i eat gets contamintaed, i end up getting sick i always get really tired and i can usually spend the rest of the time that my stomach hurts sleeping and i was wondering if this is normal and happens to anyone else
<{POST_SNAPBACK}>
-
I was pretty excited to hear the npr report. Maybe I'm behind the times, but the best news for me was that labelling requirements are changing in January. Those "hidden" wheat and gluten drive me crazy, especially eating out. Even better news...If you have not discoved the "Gluten Free Bible" by Jax Lowell--it's amazingly comprehensive. According to the author, the Center for Celiac Disease at the University of Maryland reports that as many as 1 in 132 individuals in the US may have celiac. That's significant enough that we should be taken seriously!
-
I too would like to know the answer to this question. When I am cooking, I ALWAYS prepare anything gluten-free first and/or separately. I have heard that prepared foods unless prepared in a totally gluten-free factory are not realy gluten-free. So is there a truly gluten-free place. Sure not at my home!
-
What really bugs me is when I KNOW that I have been careful and cautious of what I eat and I still get symptoms. I usually blame "modified food starch." If the FDA couls be made to mandate accurate detailing of accurate food ingredients, we could avoid such matters. But until then, we will suffer the consequences. It would be so easy (but so boring) to maintain a diet of single ingredient foods.
-
Ron, charlotte, and others who are thin,
I too am thin and I agree it's somewhat comforting to know that others have the same concern with this. I will be 50 on Easter and weigh about 110 at 5'7". I was down to 100 when I was diagnosed in 2003, but likely have had celiac most of my life. During this past summer, I was up to 114 and feeling better at that weight, but stress and stomach issues seem to go hand-in hand--so I'm down again. I went to a nutritionist--that helped alot, getting on a good meal plan, which required snacks, basically 6 small meals a day. That's hard for busy people. I'm a teacher so it's not like I can take a break when it's time for snack!
But what really annoys me is when people will say "Ew, you're really skinny!" When was the last time anyone walked up to someone they knew or a stranger and said, "Ew you're fat." THAT is socially unacceptable behavior. But skinny people seem to be fair game for criticism. We live in a society that is obsessed with weight-loss programs and we are the antithesis of that. We TRY to gain weight and that just seems wrong to the general population. I never wanted to be underweight as I am sure you did/do not. But the good thing is that overall I feel better on a gluten-free diet as I am sure you will too, but if my nutritionist is correct, it takes time and patience while healing. She said that I needed to be 115 before I was truly out of the malnourished zone, and I'm not there yet which undoubtedly accounts for the bouts of fatigue which I struggle to hide with minimal success.
My children are 18 and almost 21 now and fortunately have no symptoms (they do not want to be tested). They see what have gone through and are relieved that I am on the road to recovery. I spent decades in denial and hiding my problems--how pathetic! I only wish I had sought real help sooner! Don't delay testing if you have symptoms!!!!
-
If you live in Canada, you can probably order gluten-free products directly from Sterk's Bakery in Ontario. They are located at 3866 23rd Street, Vineland and their Tel is (905) 562-3086. From what I have learned, this bakery is owned by a gluten-free family. I do not have the time or energy to bake my own bread, so I buy theirs. I have to order mine from MissRobens online sine I live in Delaware. Their gluten-free Italian Bread is the only gluten-free bread that I have eaten that could pass as bread. The other stuff just tastes like cardboard. They also make pizza shells--a wonderful discovery! and rolls that are good too. I am hoping for some cakes or pastries, but these would probably not ship well. Good Luck!
-
If you are looking for good gluten-free cereals, try the EnviroKids choices. They're good for grown-ups too! I like the Gorilla Munch, which hold up well in milk as all of this brand do, the Panda puffs are peanut buttery, and my new favorite is Koala Krisp that are chocolatey. Some of the major grocery stores actually stock these (Genuardi's and Shop Rite in my area--DE) or you can buy them from Trader Joes stores and online from MissRobens. This manufacturer also makes cereal bars that are tasty too.
-
If you don't have time to make your own bread which I don't, and you live in Canada, Sterk's Bakery in Ontario has really good products. Their pizza shells are surprisingly good and the Italian bread is too. I order these online from Miss Robens. This supplier is quite good reliable, reasonable, and ships fast. I like their muffin mixes also. www.allergygrocery.com
How Do You Do Restaurants Without Making A Fuss....
in Post Diagnosis, Recovery & Treatment of Celiac Disease
Posted
My opinion on dealing with eating gluten-free in a restaurant is that you need to be very specific without being nasty. Most people are quite willing to accommodate our needs if they understand what you want clearly. For instance, when you're out to breakfast and yes you want the hash browns but not the toast, if the dish shows up with toast, either they forgot or you didn't make yourself clear. I won't eat from a dish with toast crumbs.
If you're been up front and said that you have celiac disease not let them think you're on the Atkins diet, your meal can progress smoothly. Family and friends learn your eating habits quickly and are your best supporters. Mine often chime in while I'm ordering to be certain about "no croutons" for instance. If in doubt about a salad dressing, stick to olive oil. Becoming a regular at a "safe" place makes eating out very easy. If your hamburger arrives on roll even when you asked for it on a dish, don't just eat it to be nice. If they bring it back in 30 seconds, the chances are certain that they dumped it onto another dish. Gotta be specific as to why. I still get glutened once in awhile eating out, but not nearly as often after I learned to be my own advocate!
There are unavoidable times when eating out is a necessity, like vacation or travel. I think it's worth the trouble to learn how to navigate a restaurant. There is a book listing gluten-free restaurants by state that is helpful too. I'd say be smart.
ps. I never eat in fast food places, soda or bottled water only.