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MelindaLee

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Posts posted by MelindaLee


  1. Biocare glutenzyme and other related products, anyone got any experience with these? Are they helpful, anyone swear by them, or are they a waste of money?

    I'm not sure what brand my sister had...but, I accidentally got "glutened" when at a family function(by a well meaning relative who thought oatmeal was "safe"). My sister happened to have some of these along, and I tried one. It did help to minimize my symptoms. I would never use them and intentionally eat gluten, but it was nice to not have too much stomach/gi upset since we were away from home for the weekend. As a side note, my usual reaction is a migraine several days later. I did not get the migrain, either.


  2. Do you by any chance use alcohol-free mouthwash? Crest Pro-Health will do this to people (not to mention it's cross-contaminated by gluten).

    Thanks for the idea, but, no, I didn't use mouth wash. I think we have decided that it is a reaction to the vaccine. It has pretty much went away at this point, though I still have some transient numbness in my tongue and gums.


  3. I haven't had any problems with my good non-stick pans int he 9+ months that I have been gluten-free (I didn't replace them). {They are the ones that you are supposed to be able to use metal in (not that I ever would) so I know they are a more durable surface.} Given it's paula dean, I would assume it is high quality and should be fine.

    Never underestimate the power of a good lecture...your son will never do THAT again! :D


  4. Jack,

    I hope your mom can learn to support you! I feel bad for you...my whole house went gluten-free because I am celiac, dx 9 mos ago, and they all eat just fine! Mom just need to learn to help you, and maybe, she would feel better, too! (If you are celiac most likely one of your parents are too!)

    You noted something about acne in one of your posts. Both of my ds get acne when they are exposed to gluten. That is my oldest son's primary symptom. I don't think it's a coincidence.

    You need to know you sound like an amazing young man. You are taking a lot of responsibility for your own health, despite your mom's position. I would be proud to have you for a son! You should be proud of yourself! I believe you will go far in this world. You are obviously commited to getting good grades and willing to work hard.

    I truly believe your difficulty concentrating will improve with your diet, as well. I get very "foggy" when I am exposed to gluten. It will take days for these feeling to go away.

    Keep up the great work! Maybe suggest some foods mom could buy for you. I found Thai Kitchen has gluten free instant noodle type dishes similar to ramen noodles. They are labeled gluten-free. Or maybe she can buy you some glutino pizza's and such. Just bake them on a pan with tin foil to protect you from any gluten that was previously on the pan. You could even get your own toaster oven big enough for a frozen pizza. This could be where you bake your things and NO ONE else uses it!

    Best wishes!


  5. I also have psoriasis and psoratic arthritis. My arthritis is gone since going gluten-free, I am off all medications. But I still have occational bouts of the psoriasis on my scalp, it has never been terrible, but it hasn't really changed with the gluten-free diet. Everyone, however, responds differently. I have had corn allergies in the past. I seem to tolerate it okay at this point. It is possible that it would improve with eliminating corn, but I don't have much motivation to elimiate that, too! :rolleyes:


  6. Are there any "safe" restaurants in your area? could you suggest that they order from one of these places so that there are options for you?

    I must admit I am spoiled. I have amazing co-workers who go out of there way to ensure that I have things when we have "pig outs". (Including bring ingrediant lists from products, just in case they missed something) At first I was very leary, but they have truly learned what is safe and how to keep it that way. They call me to find out if there are gluten-free products similar to what they were going to bring. When we order out, I am the one who gets to choose. They have now all learned what places nearby are safe. I hope your co-workers can come to the same place. But you might have to speak up so they understand.


  7. 1. Do all Frito-Lay Doritos contain Gluten?

    NO, many of the Doritos are okay. Avoid the nacho for sure, and a few of the spicier ones (I don't eat these, so I don't recall which) I know the ranch is okay for sure.

    2. Do Kellogg's Rice Krispies and their treats have Gluten?

    All Kellogg's rice krispies have the barley malt, so, not good. There is a rice crispie that is gluten free....Enviro Kids???(I think)

    3. Who makes the BEST Gluten-Free BREAD? BAGELS?

    Udi's gluten-free bread is great as is Rudi's. Rudi's is superior (IMHO) when you are toasting, as in grilled cheese. I like Udi's bagels best. I like Kinnikinnik's hammburger buns as well. Udi's says they will have some coming out soon, so we will have to see when that happens. Udi's has $1 off coupons on their web site as does Rudi's. Just google it.

    4. Where can I order Gluten-free entree's (if anywhere) for

    less than $6.00 an entree.

    I have found Amazon has a good amount of gluten-free products. I get my pasta's through them as well as Kind bars. Both have free shipping. Glutino has some good frozen dinners. I have also found Thai Kitchen has some good "add hot water" noodle meals. I find these in the asian meal aisle (by the LaChoy meals) I even found some (Thai Kitchen as well)that are similar to Ramen, but I didn't try them as I sent them off to my college son. I can get these for about $1.55 each, the Ramen style were cheaper.

    Also, pizza. In our stores a gluten-free pizza, small one....$12? Is that

    even reasonable?

    Glutino has good individual size pizza's for about $5 each here. Udi's has frozen crusts which are pretty good as well. You could add your own toppings. Most Pizza sauces are fine, just double check the label.


  8. I've been having a lot of swelling and pain over the weekend. I am working at the beach and worked a lot over the weekend, putting in 8-9 hour shifts on my feet with only a 20 minute break. I've been bloated and swollen for the past 3 years but it's gotten progressively worse. Last night my hands were filled with fluid as well as my legs and feet, and could barely walk when I went home. I had a hard time sleeping as the pain was so great, and this morning I was in a lot of pain but I went to work and I barely made it through the day. I could hardly stand the pain in my legs and feet and the swelling and pain was too much for me; I could hardly walk and I was crying in pain, so my manager is cutting my hours in half and she sent me home early tonight.

    I started a gluten-free diet last weekend and when I weighed myself yesterday, the scale showed I'd lost 5 pounds by cutting out wheat.

    I hope you will find some relief with the gluten-free diet. My main symptom was an arthritis type of pain which was from joint inflammation. Once on the gluten-free diet, my inflammation has went away and I no longer have to take anti-inflammatories. I hope you will find the same relief!


  9. My tongue has been numb since Saturday. Not total numbness-can't move it, it wouldn't hurt if I bit it kind of numbness; but more like if you spray cloroseptic on your tongue kind of numbness. Here is my train of thought: When I am exposed to gluten, I get atypical silent migrains. My left arm, and lips and nose go numb for about 15-20 minutes. Friday I was at the dr for a yearly physical. I was advised to have the DTaP because they are finding a reoccurance of pertussis (whooping cough) and arerecommending this for adult. So, I agreed. The injection site was sore for a couple days (not unusual with the tetanus part of the vaccine), and a welt is still there. Any reason to believe that a injected vaccine could contain gluten? The doctor doesn't think so. These are not typical migraine symptoms for me, and they never last this long. I am waiting for a call from my neurologist...but there are so many intelligent people out here...I thought I would get your thoughts.


  10. gluten-free diets are not fun or easy, but it can be very tolerable. Some of it is the mind set. You are right, it took me a bit to get over the convenience of eating anything, anywhere I wanted. I still miss the pretzels at the mall, though I admit that I never bought them much before, as I don't need the calories,(but now that I "can't" vs "I shouldn't" it seems to feel differnt). I order things on Amazon, which others here have mentioned. I found a lot of their gluten-free foods are part of their free shipping. I love Kind bars, and I can get them cheaper here than anywhere else. I hear Walmart carries Heartland brand pasta that is gluten free. Breads seem to be the most difficult, but still are not undoable. *you can do it* (those are supposed to be my pompoms! :D )


  11. Just make sure it 'is' a migraine and not Antiphospholipid Syndrome ( APS) or Hughes Syndrome which affects 1:100, and is an autoimmune disease of the blood making it thick and sticky and causing migraines and strokes.Autoimmune diseases like to come in groups. Once you have one you are more likely to have others.

    http://www.apsfa.org/

    http://www.hughes-syndrome.org/

    YouTube. The stroke victim here was in her 20s...

    Do you get less migraines if you have a trial of Heparin injections ?

    Thank you for sharing this. I have never heard of this, and I appreciate being educated on it.


  12. If I remember correctly (and please correct me if I am wrong) but this isn't the first time you two have had issues like this. I understand as some have pointed out, that there is a learning curve, and those who don't have to worry about the diet sometimes forget, but it seems there might be something else going on here. My DH, though support, hasn't always been very thoughtful at times. However, after a couple reminders, he has gotten much more thoughtful about things. He is likely to worry if I will be able to get something to eat if we are contemplating going to a particular restaurant, or if I offer to pick up pizza for the family on the way home. Even my 9yr old DD thinks to say, "don't drink my soda I was eating __(something gluteny)" or such. I also agree as some have mentioned, that sometimes it's the way we react to their needs. Overall, thouhg, it's important that your Girl Friend is supportive and understanding when you need special accomodations. As long as you aren't expecting that eveything be your way, all the time, hopefully you two will come to some kind of understanding. Any good relationship is about the give and take. Ideally, in a relationship, we never worry about our wants/needs because our partner does that. We strive to fulfill their every need. If we each do that for each other...we are both well taken care of! Good luck, Jason!


  13. I've never made, or even tried these (I also do not like green olives! :D ), but would assume(from looking at the recipie) the flour is just a binder to hold the ingrediants together. I would think an all purpose blend would work. I don't think you would need to add xanthum. I'm thinking a cube of ham might be good...or the sausage idea. I would make your mix...try one or two and see if the cheese mix works. You can always make adjustments from there. There were recipes flying around at Christmas time of a sausage/cheese/bisquick kind of ball thingy...it might be similar it it's not wrapped around something.


  14. Udi's Bagels (nuked and then toasted) fills that fresh out of the oven baked bread craving I get at times. I really like Schar's cibatta rolls, too. Both you have to warm to get the right texture, though. Rudi's gluten-free bread is awesome for a grilled sandwich...it even gets nice and soft like regular bread. Kinnikinnik's Hamburger Buns are pretty good, too...for when you just want a nice juicy burger on a bun!


  15. Bob's Red Mill's Mighty Tastey Hot Cereal is the one I found to be the closest to Cream of Wheat. I too loved to eat this before going gluten-free. One word of caution, even with gluten-free oatmeal, if I eat too much, I feel not so well. It's not the same as eating gluten, but just not feeling so well. Once I stop for a few days, I can eat it again. Glutenfreeda has prepackaged instant oatmeal as well. I find it needs more water than the 2/3 of a cup it calls for. I like mine a bit creamier...so it needs more water (or milk) and cooked longer to get to that consistency. Happy Eating!! :lol:

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