psychologist2b

My back problems were put down to bone pain rather than muscle pain. My stomach pain I have thought could be muscle pain as it would always get bad when I did stomach muscle exercise to help my back. Sounds like your having a bad time with spasms That's interesting about back and stomach problems being connected. I don't think that's my problem though as my back pain started in 2005 and my stomach pain started in 2008 , surely they would have started at the same time if they were connected ? Sounds like it must be hard to tell the difference.

I have been to see a couple of osteopath's , 1 was really helpful , 1 was a really stupid person and 1 osteopath saw me for a couple of months before they reliased treatment was not working lol. Thanks for the reply and advice

Be aware that with Celiac Disease your Potassium can drop down low due to Malabsorption, which DOES casue mauscle spasms. I didn't relialize why my feet were cramping when I walked at the mall. it was soooo painful I had to sit on the floor. I was taking tumbling/gymnastics classes and I had a trainer. I went the the ER a few times (before I knew about Celiac) and every time my potassium was very very low. They would hook me up to an IV to give me fluids and potassium or give me this huge potassium pill. I was really sick. A potassium supplement (Gluten free) couldn't hurt right?

The problem really sucks. Good luck with the elimination diet and I hope you can find out what is wrong, and get better soon I have been doing an elimination diet with my dietitan at the moment , I had to avoid potatoes for 3 weeks ( so far had 18 days without potatoes ) after a few days the pain seemed to improve but a few days later it got really bad again. I will try and see an allergist Thanks for the reply and advice

Good luck with the elimination diet...i think it will really help and seeing an allergist/immunologist will help as well :-)

I got results from my food allergy blood work. I am allergic to nightshade veggies...which includes potatoes! NASTY potatoes. Um try eliminating all related nightshades. It doesn 't make sense to only eliminate potatoes when there is a possiblitiy of cross reaction to other veggies in that nightshade family, which are tomatos, chillies (ALL of them), eggplant, and tobacco plant. Do a google search on nightshade vegetables. Also try cutting out other grains and also cut out preservatives. I am deathly allergic to Xanthan GUM and Carageenan, food additives. I go into anaphylactic shock :-( BUT what cause the pain in the right side of my stomach and my lower abs was the RICE and the stupid sunflower seeds and pumkin seeds (Gluten free on the label). Honestly the only things that I can eat and feel good with are pure whole organic foods. I have been working with my allergist for four months now and I know. You just need a food diary to make notes about what symptoms u have and document them with the foods that you are eating. When I re-introduced potatos, my left ear began to drain and it really hurt! ...Among other thing. And cut back on dairy and those nasty soy, almond and rice milk products. Too many additives including Xanthan Gum...etc. Strawberries cause a pseudo-inflammatory response also. Consider cutting back on Lectins...

Thanksall, for your advice. OMG I took out ALL halides to include iodine, and chlorine & fluoride(use reverse osmosis water) and I cannot have salycilates either! So strange. Xanthan gum puts me in anaphylactic shock and i end up injecting the epi-pen but since I cut out all xanthan gum I have had NO problems with anaphylaxis :-) Halides will trigger DH. I got desparate today and started the Dapsone again :-/ Can't handle this rash. I have done everything recommended for the rash...my dr.initially gave me 3 weeks of amocicillin and it did NOT touch the rash! ONLY Dapsone was clearing it up...after 2 weeks of Dapsone it was almost healed...but WOW expect the worse when you decide to quit Dapsone Oh Em Gee!!! Sooo miserable...10 gaping craters will turn into 50!And they WILL NOT go away. The UV light and red light therapy to help however. Red light therapy is expensive but it helps the healing process.Thank you all soooo much, again. Great to have the support (& offer it to ;-)

Would you mind sharing the specific reactions(s) you experience?

As of about a year and a half ago, I've started to react to other grains. In these cases, the reactions are tightness in my throat and something on the right side of my neck under the jawbone that swells up.

I'd be very interested in knowing if other people experience similar reactions. Unfortunately all too often, people just post that they "react to other grains" without saying whether it is a typical gluten-type reaction or something else.

Thanks!

I get gluten symptoms when I eat any amount of rice. I get bad lower abdominal pain, mmega-gas, headaches, fatigue, bowel problems but in addition the lymph nodes under my chin swell up and look like a golf ball and i get a dermatitis rash over each side of the jaw over the lymph nodes. My daughter and friend took photos of my jaw dermatitis, so to get a better view I tilted my head back in the photo...As I looked at the pics I noticed my chin and I didn't know what it qwas at first! OMG I was considering plastic surgery until i realized the correlation and what it actually was! It goes away after about a day...and last time it happened when my friend made gluten-free pancakes (with water, organic) with rice flour :-( Miserable! Two pancakes put me in bed for a week at least. And also when I first got put on the elimination diet by my allergist, he told me to begin with rice and chicken LOL! Ummm I found out pretty fast that my body cannot tolerate rice. Rice threw me into serious hypoglycemia! My blood sugar dropped to 50 on a regular basis until I cut out ALL rice & other grains. I don't understand it, but I know rice is NOT my friend :-/

Yes I have been in bed all day with that exact same problem. I have been seeing an allergist & found out I have food allergies & intolerance. I tried to reintroduce other grain (i.e rice), and that pain you are describing has persisted since then (a week ago). I also have diarrhea with undigested food and my DH sores flared up with fluid in them, and my lymph nodes under my chin swelled up like a golf ball. I cannot have ANY grains...in fact i am starting all over again with the elimination diet. I'm starting with Peas this time and I'm blending them since my stomach isn't digesting food :-( I went to Mayo clinic for the pain on the right side of my stomach and the doctors said it was sludge in my gallbladder, but i think it's a reaction in the duodenum to grains or whatever I may not be tolerating. Try an elimination diet. Try one food for 3 days and then introduce a new food for 3 days and so on, and maybe consider seeing an allergist? I know that pain is miserable!

:)My rash has lasted for over 2 months. It burned soooo bad and itched, oozed, bled...it's nasty. I have it on my scalp, face, neck, upper back, lower back, arms. I tried Dapsone, but I felt fatigued so I stopped. The DH flared up when I stopped the Dapsone; the amount of sores quadrupled! I tried corticosteroid creams which helped the itch and burn, tons of anithistamines which don't really do much and protopic ointment. I got so tired of feeling like a walking disease that I decided to ZAP the DH with both red light therapy and UV therapy...I noticed that when I stopped tanning, the rash got worse as well...I began tanning again in a regular bed, daily for about 5-7 minutes and add the red light bed (back to back) for 10 minutes. My DH is so much better already. It's been 4 days and the rash is totally drying out and healing. For over 2 months this nasty rash burned sooo bad and itched, oozed all over my sheets and shirts, etc...and 4 days of light therapy is clearing the disgusting thing! I was going to post pics but I haven't figured that out yet. Anyway, if any of you haven't tried phototherapy, I highly recommend it

It's nice to know that other people can't eat any grains at all. I can only eat a few whole foods and I'm worried that in the future I won't be able to eat them, either. I have the terrible blister rash (over 2 months now). I tried Dapsone, but felt very fatigued so I stopped it and the rash multiplied unbelievably. And if I avoid all grains and the nightshades which I am allergic to (blood test), I still feel bad...just not as bad. I was hoping that seeing an allergist would help, but he didn't know what else to do after a couple of months and referred me to a dermatologist. So, now I am just miserable, eating a few fruits and vegetables and chicken with this ridiculous oozing rash all over :-( Sooooo burned out and sick of being sick.