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About jenvan

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    Lynne took this picture! :)

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    Hit up our local group - Gluten Free Indianapolis!
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    Indianapolis, Indiana

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  1. Mild is bad enough! Basically all my joints hurt at times, tendonitis, TMJ, random muscle spasms. I think sticking to a low-starch, paleo-type of diet is helping. I hope you test out ok! I think finding a good rheumy is very important.

    Yikes...sorry to hear... :(

    Hi there ... I deleted the first one. So much for rushing ... :P

    My daugher's ANA was 1:80 at age 10. All tests came back negative. And 1:640 at age 18. All tests came back negative again.

    So, we were told that there is nothing to treat her for. Just to keep an eye on her and if she gets very sick to bring her back.

    Hope this helps. Marcia

    Yeah, that is probably the situation I'm in too...

  2. Hi Everyone,

    I have been pretty much lurking on this site since I've been diagnosed in June. I am impressed with what a supportive comminity I've found! I've been doing ok, or so I thought, with coping, but recently have been getting depressed as the reality (ie, this is for life) sets in. Struggling with the diet somewhat, as I'm making my meals and my family's meals, which are different (they are vegetarian, which I was until I started eating meat because I didn't really have anything else to eat! I hate legumes! And veggie dogs/burgers and other veggie substitutes have gluten for the most part.)

    Anyway, that part is going 'ok' but I have gained weight since I started this diet. I was at normal weight before, which I thought was good since I'm hypothyroid. I'm eating normally, have even cut back a bit but still am gaining weight. I assume this is because more nutrients are getting through? Has anyone else experienced this weight gain and does it keep on and on and do I have to keep eating less and less? I do karate 3-4x a week which is a tough workout and I walk my dog every day. I feel that I am doing a lot of activity physically and I am very busy during the day and never sit down...what gives??? So I'm double depressed about the diet and then the weight gain on top of all the difficulties of following the diet.



    This weight gain is pretty common--yes, your body is absorbing more nutrients, fat etc now as you are healing. I was also at a healthy weight pre-diagnosis, so gaining weight was not in my plan ;) I did gain a bit, but have pretty much lost what I put on. Partly, I went a little too crazy with the gluten-free carbs in the beginning, trying everything. It helped me to limit those carbs and I've tried to pare down some portion sizes too.

  3. Thanks Marcia for the input. I wonder how much these numbers can change for individuals...ie. if mine could go back or up down again in the near future. Hmph. I'm glad she is doing alright...but sort-of doesn't sound quite good enough yet... :unsure:

    Nancym- So you did have a follow-up... I haven't had that yet. I think I am going to take this to my internist. I remember you getting diagnosed with AS now. Glad it's only mild...

    Thanks ! Hope there are some others out there...

  4. Some of my favorites are below:

    The gluten-free trading post http://www.food4celiacs.com/ An entire store in WI where everything is gluten-free. Huge selection and they turn orders around pretty fast. Great way to try new yummies.

    The gluten-free pantry http://www.food4celiacs.com/ Their own products and mixes are good (skillet meals are nice too) and they carry a good selection of Shar products which can be really delicious and hard to find.

    The gluten-free mall https://www.celiac.com/catalog/index.php I don't order to often from here, as I'm not as big of a fan of the selection, BUT they have pria bars, chebe mixes and a few hard-to-finds that I love.

  5. Went to the grocery store this morning to buy safflower oil and almost walked out empty handed. They had one "frou frou" brand that was WAY expensive, and another that had added vitamin E (in the form of soy). I did one more run up the aisle and there is was...Spectrum Naturals High Heat Safflower Oil! It's expeller pressed, specially refined for high heat up to 450 degrees, and not overpriced. Hooray!!!

    I use their canola oil and shortening... I the Spectrum products.

  6. I went to my GP cause my GI can't get me in for a while.

    I have had no biopsy yet.

    So...Gp tells me my liver enzymes are high, although not int he thousands and that, thats a "whole lotta nothing"

    He said all of the things I am feeling, fever, nausea, elevated liver enzymes are all likely related to the Sprue, because sprue can so all that. Yet...he won't check my vitamin levels or help me with anything.

    Can you liver enzymes really go outta whack??

    Can I get fevers?



    I have been doing my best....

    High lever enzymes are very common with Celiacs and the vast majority of Celiacs with high enzyme levels find they return to normal after a period of time on the diet. However, what is your fever like? They may be a related issue, but if it is very high I would want to investigate it further.

  7. Hey friends...just got back some blood work and my ANA was positive. I had this tested a year ago and it was negative at this time. Results are: 1.80 with a speckled pattern detected. I know these tests are indicators and don't often tell you one way or another on disease. If you had a positive ANA what were your results and/or what did it mean? Have you been diagnosed with lupus, scleorsis etc? Thanks friends...any extra input would be great <ahttps://www.celiac.com/gluten-free/uploads/emoticons/default_wink.png' alt=';)'> I had this test done b/c of feeling very poor again. (My post on this if you want the context: http://www.glutenfreeforum.com/index.php?s...=23201&hl=) So, I don't want to make something of these tests, b/c getting a positive ANA doesn't necessarily mean you have a disease per se, but b/c of how I've been feeling I don't want to automatically discount or ignore the results either.

  8. Now we're doing the "will she / won't she" dance with regard to taking the meds. The pulmonologist says the liver enzymes have to be three times normal limit . . . . allergist says 2 times normal limit before declining to administer INH. One more liver function panel . . . . then we'll see. She's about as tired of this as it gets . . . . . I think she just wants there to be a decision made -- one way or the other -- and be done with it.

    We'll see tomorrow . . . . . . .

    Another good bk to ck out is the queen of clean's. I use mostly natural products... vinegar too and scrub with mix of borax and baking soda. I have really liked 7th generation's laundry detergents, we use them. and I love Ecover's stain remover stick. Works great! I buy these through a co-op b/c they aren't cheap, but wild oats etc stores carries them.

  9. Do you think I should try to do the treatment for adrenal fatigue before I spend tons of money going to doctors that might not be able to diagnose me? Does it take a long time to feel a difference?

    However I just want this figured out. I guess I should go back to my gastroenterologist. I have yet to meet a family doctor who really knows much about celiac disease. I went back to him about a year and a half after I was diagnosed with some other stomach pains and he said it was probably just IBS. And thus gave me medicine for it. Other than that I haven't been back.

    Thanks for the input gals!

    I would go to a doctor and get it cked out. Other ideas: gastritis or ulcer. So you don't have any pain? What about any dizziness?

  10. Thanks fiddle-faddle :)

    I dont have hmo, we have a ppo. I just had my eyes checked about a year ago and nothing was covered with the optometrist, I havent been to an opthamologist since I was under my dad's insurance before I was married :ph34r: I havent been in contacts for about a year. It was unbearable, I wore temp ones and I would rub out my contacts in my sleep which became quite costly because when I woke up they would be dried up in my bed.

    Im always tired lately, after my daughter goes to bed I get on the net, clean my house up a bit so it can be ready for showing since we are selling it. We have been up at the hospital also quite a bit. Plus my darn nora roberts book is keeping me up;) Im also knitting up a storm for winter with my daughter's hat, scarf, slippers, and mittens. She also needs a new sweater made. There isnt enough hours in the day.

    I cant remember the name of the contacts I had but they did have a high water content in them. Thanks for the info, I will check and see if its covered at least for the appointment with the opthalmologist.

    I had my lupus gene checked out about three years ago and it was inactive then, I havent had it tested since. My mom has it also and my sister but their's so far isnt active either. Their is only two endo's in this area. One is a regular endo and is a jerk, He really is clueless and out of date. The other one is strictly reproductive.

    I'll call my insurance company tomorrow before making an appointment with the derm about an opthalmologist. He is really good, my dad has been seeing him for years.

    I better get to bed, tomorrow is a full day schedule as it is before calling around :)

    Good night :)

    I feel for you Autumn...its frustrating. My tests for sjogren's came back negative too. Mine also get worse when I'm tired. Let us know what you find... Oh, now I haven't been to an opthamologist. I do go to a dermo, but I addressed my eye issues with my internist.

  11. Now THOSE are some yummy looking recipes! I don't have saffron threads, do you think it would would be ok if I just shredded a $20 bill and stirred it in? :P

    Thanks for the recipe!

    Ha ha--yeah...I mean saffron is pretty expensive, so shredding some cash would have the same effect :lol: You could sub tumeric for the saffron, or just leave it out altogether. Maybe try some basil or fresh parsley. Possibilities are endless :P

    I was supposed to have relatively minor surgery to repair a hernia. (Note - I'm too old to do flips and toe touches on the trampoline :( .) When the doctor got in there it was "more extensive" than she had thought, so it was a 2 hour surgery, a 3-1/2 inch incision and major PAIN. I'll be missing two weeks of work rather than one, since I'm not quite up to teaching PE right now. Heck, I can't even get up long enough to bake cookies right now.

    Yikes--sorry to hear it turned out to be a bigger deal. I hope you aren't in too much pain and that you heal quickly!

  12. Thanks for the info. I have tried "the recipe" ;) and a couple of others, but I'm sure there are other yummier ways to prepare it. I figure if it's been around for a thousand years somebody must have figured out a way to cook it so it tastes good! It sure does make a difference if you forget to rinse it :blink:

    My favorite way to prepare the grain is to simmer till fluffy in broth with spices. Then I make a spicy sauce with peppers, onion and garlic, put that on top of the quinoa and then sauteed shrimp on top :) This isn't exacty what I do, but a good recipe below:

    Good Basic Quinoa

    4 med. yellow onions, chopped

    1 large red pepper, chopped

    3 garlic cloves, minced

    ½ tsp of sea salt

    2 tablespoons olive oil

    2 cups of rinsed Quinoa

    4 cups of chicken stock

    Saffron threads


    Add finely chopped onions, minced garlic, and salt to olive oil in wok and sauté until onions are slightly brown. Then add chopped red pepper and continue to sauté until onions are caramelized. Add stock, saffron threads, cayenne to taste (1/4 tsp, pinch--depending on how spicy you want it) and rinsed quinoa and bring to a simmer. Simmer till fluffy. (I also let the quinoa sit on the stove for a bit after its finished cooking, with towel under the lid to absorb any remaining moisture.

    Pepper Sauce

    3 whole red bell peppers (roasted and skinned)

    1 cup of tomato sauce

    3 cloves of roasted garlic

    1 tablespoon minced fresh basil

    5 drops of Tabasco sauce or to taste

    1 teaspoon salt

    ground black pepper to taste

    Roast the red bell peppers and the garlic in a preheated oven that is set on broil. Slightly spray the peppers with a non stick vegetable spray such as pam, place the peppers under the broiler at least 4 to 5 inches below the heating coils. Carefully watch the peppers and turn as needed (once the peppers begin to char slightly). Once the peppers are fully roasted place them in a bowl and cover with plastic wrap for 15 minutes, this will allow the peppers to continue to cook which will help loosen the skin.

    Uncover the bell peppers and run them under cold water to cool. Remove the skin from the bell peppers. Place the peeled peppers in a food processor or blender and puree until silky smooth (puree for at least 2 minutes, doing so will result in a very very smooth puree).

    Combine all ingredients together EXCEPT for the basil and ground black pepper, and simmer for 20 minutes. Add the basil and simmer another 5 minutes. Taste the pepper sauce and adjust the seasoning as need.


    Ragout over Quinoa

    2 tablespoons olive oil

    1 yellow onion, cut into julienne strips

    4 cloves garlic, minced

    2 teaspoons paprika

    1 teaspoon ground cumin

    2 red bell peppers, roasted, peeled and seeded, then cut into julienne strips

    2 green bell peppers, roasted, peeled and seeded, then cut into julienne strips

    2 fresh poblano chili peppers, roasted, peeled and seeded, then cut into julienne strips

    1 cup chicken stock

    Salt and freshly ground black pepper

    6 large chorizo sausages

    Meanwhile, make the ragout: In a large saucepan over medium heat, warm the olive oil. Add the onion and saut until it begins to turn golden, 3-4 minutes. Add the garlic and continue to saut for 1-2 minutes longer. Stir in the paprika and cumin and cook for 1 minute. Add all the bell peppers, the chilies and the chicken stock and cook uncovered, stirring occasionally, until the mixture thickens, 10-15 minutes. Season to taste with salt and pepper.

    While the peppers are cooking, place the sausages on the grill rack about 3 inches above medium-hot coals, or arrange them on a broiler pan and place in the broiler at about the same distance from the heat source. Grill or broil, turning often, until cooked throughout, 8-10 minutes.

    To serve, spoon the quinoa onto a warmed platter or individual plates and arrange the sausages on the quinoa. Top with the pepper mixture and serve.

  13. As if the latent TB weren't enough . . . . .

    Prior to Ashley getting married, she started developing nausea and vomiting - quite severe. We all knew (or thought) that it was due to the BCP's they were trying . . . (No, she's not pregnant -- should have prefaced that!)

    However -- the doctor's office called her today and said that she was ineligible to take the INH due to her labwork. They said that the doctor wants to talk with her about it, and that she (the doctor) will call later today. They did not specify WHAT it was, but alluded to her liver panel . . . . . My daughter doesn't drink -- and the only thing that I DO know that she has had wrong was an abscess of her gallbladder because of a botched Belly Ring that she (we) had done on her 16th birthday. Her liver function panels have been normal since then, though . . . .

    I am scared and frustrated. I am going to ask my daughter if she will sign for the physician to speak with me directly -- that way I can get some better information and ask a few additional questions. I am not saying that my daughter isn't capable or intelligent, it is just that she is only 20, and I don't know that she knows to ask the questions that need to be asked. Any suggestions?????????????


    Wow, I missed all this over the weekend! Wow wow... Will be lifting up Ash tonight. And now this other mysterious news? Prayers of sanity and courage and trust for you right now. Call if you need to...

  14. Ever had it where you feel like you can't catch your breath for a few seconds?

    I ate something (carl budding) and then shortly there after had something like that today.

    I am also severly sleep deprived, been averaging 5 to 6 hrs a night for a long time. Can that do that??

    And...I also have a kiwi sized ovarian cyst....


    I get those, we call them PVCs...just some irregular beats. Mine happen to me when I get run down...and I noticed you need to get some sleep !