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GFreeMO last won the day on January 26 2013

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  1. Thanks Bart. What a wonderful doctor you found!!!!  I hear ya about the regular Tylenol making my pain worse..That couldnt be more true.  

    GP said ask gastro....I keep getting pushed around....crazy because it's just tylenol. 


    I took regular Tylenol yesterday and by night, I had D 3 times and a migraine all day today....stupid corn.

  2. Corn gives me the same symptoms as being glutened.  Really ticks me off b/c it's in every single processed food in this country.  With that said, I need some corn free pain reliever.  How would I get a RX for this so I could get it filled at a compounding pharmacy.  I asked my gastro's nurse and she said take Tylenol...it's a small amount of corn..........yeah......um...ok..tell this to my gut and my migraine.


    Anyone know?

  3. BabsV, Thank you for sharing that.  I read on here so many times that people quit eating gluten and in 2 weeks they feel great.  That is not the case with me.  Some of my celiac issues have resolved but the gut pain hasn't.  

    I am off gluten, all grains, dairy and soy.  Hopefully in time I will feel better.  I hope that I am ok with egg yolks b/c I eat hard boiled eggs every day for breakfast with fruit!

    Thanks for the tip on the water too!  

  4. Thanks, I am going to have to start writing it all down so I can notice a pattern.  I have a gluten type reaction to corn which really complicates things.  Corn is in everything.  I was first diagnosed with IBS and when my liver enzymes were elevated then finally I got them to listen to me and then I was diagnosed with celiac.  

    I'm going to dig out a notebook and start writing everything down.



  5. Does anyone here have celiac and IBS?  Is IBS caused by the damage from celiac.  It's impossible to eat both a gluten free and IBS diet since that IBS diet is based on so many things that celiacs can not eat.  SO do we just eat gluten free and suffer the effects of eating IBS trigger foods?  I have constant lower gut pain, gas and cramping, it's sore to the touch and very tender.  It feels bruised inside.  These are the symptoms that led to my celiac diagnosis but I am continuing to have problems with my gut.  

    Anyone else?

  6. My guts are killing me.  My lower right side hurts and feels swollen and bruised.  I was diagnosed with celiac at the end of Jan.  I had several slip ups between now and then.  Last week I was glutened by cc.  Had major D for 2 days and D last night.  Today I feel like a horse stepped on me.  I cant take the pain anymore.  The GI said that there is nothing else wrong but could be some IBS with the celiac.  

    I dont know what to do at this point.  I am down to unprocessed meats, fruit and veg, salt, pepper and olive oil and eggs...Water and lemonade and mint tea to drink...nothing else.  My guts are searing. :(

    I have also been running a low grade fever with isn't helping matters.  I have since I was diagnosed.

  7. I have had a similar experience as far as the symptoms that you have described..the mucus, ibs type things.  I also will run a low grade fever.  In order for me to feel better, I have had to go to whole foods only.  Nothing processed at all.  Meat, fruit, and vegetables.  Nothing else.  If I add one thing back, I have symptoms again.  I think I was having reactions to all grains.

    I hope you feel better soon.  Maybe give this a try.

  8. Thanks Josh,  I've only been at this since January.  I was previously gluten free for about a year and a half and then a doc convinced me that it was all IBS.  I ate gluten for a few months all along thinking it was only IBS.  Went to another doc and had high liver enzymes which led me to the gastro and the official diagnosis.  - I guess I just have a lot of healing to do. The fevers just really wipe me out.

  9. I had been doing so well but unfortunately, something got me.  I am going through the GI stuff, joint pain, etc.  What lingers is the DH and low grade fevers.  I will run one for several weeks after a glutening.  Does anyone else get this and is it because of inflammation or just from having an autoimmune disease?  I have a friend with lupus and one with MS and they both run these fevers.  I asked my gastro and he didn't know.  He just told me to take Tylenol.  Go eat gluten free and take Tylenol.....Boy, do I wish it were that easy!!