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About annegirl

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    Disaster Work, quilting, reading, studying food so I don't get sick!
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  1. I've had symptoms last 3 weeks after a glutening, they can definitely last a while.

    I've found that what works for my symptoms (inflamed digestive system, hurting stomach, bloating etc) is aloe vera and probiotics. I take them every morning before anything else and you can just feel it sooth. Peppermint tea is also very soothing while you recover.

    You might want to keep a food diary and see if there's anything else that could possibly be bothering you. If you were totally fine and then only had discomfort after eating what someone else made.....then I'd say you probably got cc'd somewhere along the way. You can make yourself crazy trying to nail down what it was, or you can just focus on trying to sooth and rebuild. :)

    I really hope you start feeling better! I know how much of a bummer this can be. Hang in there! :)

  2. My family was so amazing about making everything gluten free. They washed everything down, used separate cloths for anything floury etc. I feel so blessed to be so well taken care of.

    Unfortunately, I accidentally drank out of the wrong cup on Friday and it turned out my sister had eaten a sandwich while she drank out of that cup....so I spent Christmas Eve in serious pain. It built during the day and by the time we got to the sitdown prime rib dinner I couldn't eat. :( Oh well! I learned my lesson about grabbing a drink off the counter and not making sure it's mine!

    Sounds like a bunch of people had great success though! Good times!

  3. Ok. I knew that I had seen a thread that was really encouraging a while back. I searched and searched and came up with it! :)

    This thread was encouraging to me, particularly the quote I inserted below. You're doing the best that you can to stay away from gluten. I think you probably need to cut yourself a bit of a break and try and focus on something else. Whenever I get a little down about stuff or want a nice treat I get myself a nice juicy rib eye and grill it up and serve it with some mashed potatoes. Pour yourself a nice glass of wine and toast to yourself for having the self control to make it 8 months in! You're doing great.

    Continuing to feel bad when you're putting this much work into it is a bummer. You know the drill keep a food journal, elimination diet blah blah blah. :) Hope this all helps!

    It is a struggle isn't it? But "anything worth doing, is worth doing right." I get "freak outs" as I call them when going out to eat still even after 2 years gluten free and I probably will forever. BUT the one thing my hubby tells me is that if, IF I get glutened, it will pass. Yes it sucks and it's horrible, but it does pass and at that point you have to give yourself credit for trying and doing the very best you can not get glutened, but if you do, it will pass.

  4. I just usually reply with a "oh no thanks, I've got food allergies" and no one questions further. I know you want to keep personal and work life separate - but I don't think that crosses the line. Lots of people have food allergies, and you don't need to get down into the details of why and how and what you've got going on. You can always quickly follow that up with a "gosh I love your earrings/shirt/shoes/presentation" etc to keep any further questions from coming.

    Honestly, getting that out of the way will keep people from questioning further and can help to keep you from looking like a snob who doesn't want to participate in stuff like that.

  5. Sorry to hear about your intolerances. I know it is difficult to work with multiple ones.

    I would have to agree with the other posters that encouraged you to shop the "outside" of the store. At this point you're wanting to be very gentle to your digestive system. Try to go a little bland, and let things work out slowly. I would steer clear of the processed foods for now.

    I totally understand being tired. I'm single, cook my own food etc. I've found that making extra when I cook and freezing portions works nicely for those days when I don't have time or energy to cook. I have a baby crockpot that I use almost every day in the winter. You can get pretty creative with it, throw everything in the pot the night before and let it simmer while you're at work. Hopefully your fatigue will slowly work itself out, but be kind to yourself as you're healing.

    As far as thanksgiving goes, I am planning on bringing some of everything over to my folks. Milk and dairy is hard to avoid at stuff like this. I make mashed potatoes with broth (yummy!) I don't put butter on turkey, try rubbing it in olive oil. It is going to be hard to get your mind wrapped around all the modifications you will need to do and try and have a normal holiday season, but it can be done! Good luck, I promise it gets easier. As you start feeling better and getting used to your new lifestyle everything will start running smoother.

    Good luck!

  6. I would definitely try going off soy. I never have believed it was the super health food like so many others did. Especially with it being genetically modified and round-uped within an inch of its life I think it's best to stay away. :)

    Yeah, soy and corn are hard to stay away from in combination with gluten....but after a little bit it will become second nature! There are chips (natural Kettle brand) that are soy free, you can find soy free chocolate, and I just make my own mayonnaise.

    Good luck!

  7. OMG. I'm still sick almost 4 weeks later from a tiny crumb of crouton in my salad. I really hope your symptoms don't last long! That was some serious glutening!

    I would definitely find a guilty pleasure that is gluten free for emergencies next time! :) There are some awesome donut recipes out there that are gluten-free.

  8. Iodized salt has dextrose in it to keep it from clumping. You might want to check and see if you have a sensitivity to corn instead of the iodine.

    As for fresh chicken and dried beans - those should be salt free, unless the chicken you get is injected with any type of solution. You might check with the butcher to be safe.

    Real salt is iodine free. I actually have my own little S&P shakers that I carry with me because of the dextrose in table salt. :)

    Good luck!

  9. Hey! Sorry you're having a rough time. I know it can be a bummer.

    What I'd recommend doing is learning how to create your own goodies. Google "Elana's Pantry" for some great gluten/dairy free recipes for cookies/cakes/muffins etc. Next time your friends invite you for tea, go and bring a plate of goodies with you!

    Same goes for snacks. Try: fruit leather, nuts, raisins, dried cranberries, chips, chocolate, gluten free pepperoni sticks if you can find them, homemade cookies and cake. Honestly, the processed gluten-free stuff is fairly yucky and expensive. It's better to learn how to make it yourself. As you can see from my signature I'm fairly limited, so I know how hard it can be!

    Honestly, we just have to learn to keep our chin up and make lemonade out of these life lemons. I know it's hard, I was in training on a military facility all last week and ended up eating nothing but little packets of tuna and wilted lettuce because the kitchen didn't realize that white flour came from wheat. :P Yeah, I was near tears some days just because I was so hungry and frustrated. But you know, we have the opportunity to be healthy!

    And another thing, this might just be my bad attitude.....but I figure I'm limited enough in what I eat. So if I want to have something like chips, I eat them. :) I've lost 55 pounds since Feb so it's not like I have a weight issue. I figure I'm restricted enough as it is. If all else fails, go out and buy yourself a big juicy ribeye and some shrimp. Grill the rib eye, sautee the shrimp in a bit of olive oil/garlic/fresh lemon juice and serve with fresh broccoli and a baked potato. :) That's my go to meal when I feel sorry for myself. ;)

    Good luck! :)

  10. I got nailed but good with a crouton crumb in a salad on Sept 20th. I was sick sick for 4 days, throwing up, couldn't eat a thing etc. My stomach felt inflamed and sore with a weird burning sensation that is hard to describe.

    Now I'm over 2 weeks out from the initial glutening and I'm still having issues. I can't eat very much at a time, I suddenly will get nauseous in the middle of eating. My stomach bloats a tiny bit every time I eat, especially if I eat fruit. I'm still dealing with D, though it's not bad by any means.

    Does anyone have any suggestions to heal my gut up some? I'm really getting a little tired of this! Not to mention hungry... :) Does anyone else have reactions that last this long??

  11. You all should give Trio bars a try. I love them, and they're much yummier than Lara Bars. They have three seeds, nuts and fruits in them.

    As far as airplane food, I just flew and packed a baggie of sliced peaches and a baggie of chicken to eat with gluten free crackers. I also have salad dressing in little carry on size toiletry containers, fruit strips, nuts, chips, apples, salt and pepper (dextrose in table salt), CHOCOLATE!! They've never blinked. :) The little tuna packets are great too. I get the ones packed in olive oil to avoid the soy broth (this is saving me from 4 days of starvation right now!). You can also get little packets of peanut butter and almond butter to put on apples or gluten free crackers etc. I try to make sure I have a good combination of protein and carb options so I don't get too hungry. Oh! Hormel has a gluten free pepperoni stick that is nice too. I got a big bag at Costco.

  12. Heck yes to your ribeye and sweet potato - that's my ultimate treat meal too! :)

    Careful with the clothing budget though - I've been gluten free for 18 months. I too used to be a 16/18. I lost a quick 40 pounds in 5 months, then over the next year it slowly went down another 15 pounds. I'd been stabilized, or so I thought, at a size 8 for almost 3 months, and suddenly I just dropped another 5 pounds. At my current weight, 5 pounds is almost another clothing size. Luckily I've just been buying clearance stuff as I need it (I work from home so having only 2-3 outfits is okay), because I have no idea where I will stabilize. You too may be surprised to find your body's not done! :)

    >sigh< I'm discovering that. :P I bought the clothes, got glutened and lost 5 pounds, and now I'm traveling for 2 full weeks and with the food options available I'm gonna lose more. I'm at a government facility and had made arrangements for food, but when they asked if I could have plain white flour with a "wheat" allergy (they didn't know what gluten was) I decided to buy some packs of tuna and am gonna rock the tuna and salad with my own dressing for 2 weeks. My poor clothes. :P

    What I'd like to know is why are you all losing weight and I am GAINING? I have never had a weight problem in my life (I'm 49) and lately I am seeing the scale creep up and up! It is just a little scary. :o Terri O

    As far as gaining goes...are you eating many of the gluten free processed foods and replacements? Those usually have less nutrition and more calories than their gluteny counterparts. I have so many allergies/intolerances that I just have to eat whole foods. That might help!

  13. I get extreme reactions to eating gluten as well. It doesn't sound exactly the same - but I get itransient intussusception, I've had it 5 times and its very similar to being in labour. Agonising isn

    t the word - It's so bad I can't talk. Anyhow - if it *is* that then yes- its dangerous and you need to let your specialist know. It can be life threatening and is considered a medical emergency - the kind where you call an ambulance....I know Dr google is dangerous-but maybe read up and see if your symptoms match...

    I looked it up....and though hard to see many symptoms it seems like the type of pain comes in "waves" where my pain is a constant. Almost like my stomach and intestines are completely contracted and never release.

    Thanks for the idea and I will continue researching!

  14. You're right! Finding ways to pamper yourself really make a difference. I've lost 53 pounds since Feb and went from a size 18/16 to a size 8 - I just went and bought a whole new closet full of clothes (never done that before!!). It was so nice to try something on and have my sister say it was too big, get a smaller size. :D

    My most favorite pamper is a ribeye with a baked sweet potato. :) Life ain't all bad when you can have steak.

  15. I've been gluten free since Fenruary 1, 2011. I know I've had a couple little cc things, but with my other allergies I just tend to only eat what I cook so I've been fine.

    Last Tuesday I went to lunch with 3 people I was working with, so I ordered a salad with no croutons (brought my own dressing). Long story short, one of the last bites I took I crunched into a tiny crumb of crouton. It was done so I hoped I would be fine and went on with my day.

    Fast forward 6 hours and my stomach is bloating and cramping like there is no tomorrow. Excrutiating pain. I ended up actually throwing up (haven't done that in 12 years) and was physically unable to eat for 4 days after (lost 5 pounds). I had stomach pain, cramping, bloating, but in addition I had a an extreme sort of burning and feeling of inflammation in my guts. I just had a friend die after a long bout with Crohn's and I'm a little freaked out that my extreme reaction and inability to eat for so long after could indicate something in addition to Celiac. I'm doing better now, but am still eating light and haven't totally regained my strength.

    My reaction was extreme enough to get both my parents to ask me to go to a specialist to see if I had something else wrong. We're not big doctor people. More the "rub some dirt in it" and move on type, so that might give an idea of how bad a week it was.

    Does this sound at all familiar to anyone? Am I (and my folks) unnecessarily worried?

  16. Honestly, I didn't even try it. I just got some vodka and made my own. I have noticed that I don't get quite so violently ill with corn now that I've taken some probiotics and healed my gut a little. I still think I have depression issues and some fatigue when I eat it, so I know how hard it is to nail that down sometimes.

    I'm very sensitive to xanthan gum as well, so if I were you I'd just bite the bullet, give what you have away and start over! :)

    Good luck!

  17. I totally understand the freaking out, and not wanting to eat something different. I have several other intolerances on top of gluten that make it very difficult, if not impossible, to eat what others do.

    I really honestly hope this doesn't come across as harsh or mean. I come from a more tough love family so take this with all the love in the world, because I know what you're going through.

    I have a degree in Culinary Arts. Family get togethers (at least once a week) are always centered around food. I have had to "suck it up" and find ways to eat enjoyable everything free food. We got dealt a hand that makes life a little different, but it could be worse! It could be cancer, heart disease or a variety of other diseases that require multiple hospital visits and lots of medication. You have the opportunity to stay healthy by "only" changing your diet. I have a friend with lupus that wishes her lot was as "easy" as ours.

    As you work through your grieving process you're going to have to tell your sad feelings to put on their big girl underwear and "take it like a man" (say it to myself all the time). ;) It's time to go find some "happy thought" food that you enjoy. Try new recipes, try new ingredients. Definitely if you haven't already, read Gluten Free Girl and Gluten Free Girl and the Chef. She has an extremely positive attitude and some great recipes!

    As far as this activity, I would tell the boss to go ahead and make normal chicken parmesan. I don't see any reason (unless you have other food allergies....sorry if you do!) that you can't make a GREAT gluten free version. Corn pasta I found to be much yummier than even wheat pasta (before I couldn't eat corn), I've heard Udi's bread is ok (can't because of corn and I think soy), you can use that for the crumbs. This way you're not eating anything "different" but you have the peace of mind that you won't get sick.

    Just remind yourself every time you start getting sad that at least YOU have CONTROL over what you feel like. You could totally go back to the old way, feel like crud and wonder what was wrong with you. Every day you get to wake up and make decisions that directly impact your well being!

    Again, take this with all the love and understanding in the world. I can't eat hardly any gluten free goods because of my other intolerances. I travel for business. I LOVE LOVE LOVE food and cooking. My family is all about food. Oh, and I can't drink the nectar of life COKE! :) But still, I feel great. Life is good. I'm alive. :)

    Hang in there! I hope it goes well for you. :)

  18. What are all the corn derived products that you react to, just out of curiosity?

    Xanthan gum has been known to cause some pretty intense gastro symptoms in a lot of people (along with the other gums alike guar and arabic).

    Colorings and preservatives have been known to do the same, especially annatto.

    So I wonder if perhaps you aren't reacting to some of the other foods and actually not corn, perhaps?

    Just speculating while trying to think of a reason why you would react to more processed corn and not less processed corn. A very quirky thing. Hope you figure it out. :-)

    I react to xanthan gum, caramel color, cornstarch....and the list goes on. Basically every name that corn runs under I will react to. That's why this is so strange. I will get sick on something, research back and find a derivative of corn somewhere, but it appears that the whole corn is fine.

    My level of reaction also seems to depend on the time of the month. There are times when things just get BAD. >sigh< I wish I understood this all better. There's got to be a very interesting reason....

  19. The weight loss is for sure getting off gluten. Once I went off (Feb 1) I started losing weight like crazy. I'm down 43 pounds and going strong. :) My theory is that my body was storing all these toxins because I would gain weight for no reason and so quickly! Now with it falling off it's like my body just realized it could release it all.

    Congratulations on the good things....and I hope you get the negative effects worked out soon!

  20. I have horrible reactions to things derived from corn like xanthan gum, caramel color etc. But I never did react horribly to things like popcorn so last night I decided to try a corn tortilla to see if I would react....and I didn't!

    Does anyone else have a problem with some parts of a product and not others? While I'm relived that I can have corn tortillas and chips again, I feel a little confused. I guess I will have to trial and error some of my other intolerances to see what I can and can't have.