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celiac_father last won the day on March 11 2019

celiac_father had the most liked content!

About celiac_father

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  • Interests
    Wildlife Photography, woodworking, and Celiac Disease
  • Location
    Purcellville, Va.

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About Me

Diagnosed after 45 years of suffering and countless misdiagnoses. Only diagnosed after my son was dying at age of 2 years old of emaciation and every other symptom you can think of. Many relatives died having never been properly diagnosed and now I wish to help my family, friends and anyone suffering from this autoimmune disease.

  1. I was diagnosed as Celiac when I was 45, now I am 57. Years and years of steady decline to include ataxia and aphasia. Many of the misdiagnoses I received included, white matter brain disease, lyme disease and the worst part was my elbows covered in Dermatitis Herpetiformis while doctors performed...
  2. Just curious, were you treated for GERD as well with something like a proton pump inhibitor like Prevacid? After I was diagnosed with Celiac me and my children were all prescribed Prevacid to aid in the healing of damage to our esophagus. The PPI can cause a B12 deficiency or prevent a healing Celiac...
  3. Regarding the canker sores and fever blisters. This happens usually due to malnutrition and is common with undiagnosed Celiacs. Specifically A diet lacking in vitamin B-12, zinc, folate (folic acid) or iron. Canker sores may also occur because of certain conditions and diseases...