Why don't you ask your doctor for a dapsone prescription? It COMPLETELY cleared me up. It also takes the burning and itching away...GONE!!! I took it daily for many years but now I only take it if I have an accident and get glutened. I can usually start to feel the familiar burning and redness on my elbows and butt if I ingest gluten, but since I ALWAYS have dapsone on hand I just take one and poof its gone. Hope this helps you...sounds like you are suffering way too much.