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Everything posted by Mothering3

  1. The cauliflower comes out impressively grain-like!
  2. Blend cauliflower in your food processor until it is the size of a grain. This is your couscous. Boil in salted water for about 2 minutes, until tender but not mushy. Drain and rinse with cool water. Add a few T olive oil, 1/2 cucumber chopped finely, 1 can of chick peas, 1/2 carmelized onion, 1/2 cup toasted pine nuts, 1/8 cup toasted sesame seeds, 1/4 cup soaked dried currants, finely chopped chives, cilantro, mint, and parsley, juice of one lemon, salt to taste, red pepper flakes.
  3. Tomorrow (EARLY) I see my gastro/internist/hepatologist guy. I am already diagnosed through blood test through my MD. What questions should I ask him? What tests should I request (if any)? I have had impaired liver function. Now I have been gluten-free for 3 weeks. I think I am going to decline the biopsy/endoscopy as I am not comfortable with bringing gluten back into my diet.
  4. I can't eat egg, or most grains right now. I'm going bonkers from eating the same thing over and over. Also its hard to have to make every meal from scratch. Tonight I tried making these salmon burgers that turned out pretty good. Also, I really can't afford to eat much salmon any more, so I try to figure out ways to use the canned stuff cause its so much cheaper and still good for you. (Though admittedly not as fabulously delicious as the fresh stuff, still totally good when used well) 2 cans of canned wild caught salmon, drained 1 cup brown rice (or your choice of another grain that doesn't make you sick) chopped green onions chopped onions fresh herbs (I didn't have any, but if I did, I would have added them) seasoning Blend all ingredients in the food processor. Make patties and fry in a little coconut or olive oil till crisp. My kids ate them on Udi's gluten-free bread with mayo and tomato. I ate them with a fork, with tahini dressing and avocado. You can freeze these and have quickie dinner.
  5. My favorite veggie sides are: *Roasted brussel sprouts...use a lot of oil and let them roast till the edges get slightly crispy. Season with your favorite seasoning. *Asparagus...with some olive oil, salt, and fresh herbs wrapped in parchment paper packages with the edges twisted shut. Bake at 300 for a loooong time (1-2 hours?) and they are so flavorful. *Sunchokes (Jerusalem artichokes) are really good either as chips, sliced thin and fried in oil till slightly crisp and seasoned with salt and rosemary, or steamed and mashed with potatoes and carrots. They are super nutritious. *Greens (kale, collards, mustard) cooked in a little bacon grease, and add a little water to the skillet to cook the greens thoroughly. Serve with chopped bacon, a little brown sugar and sprinkle of apple cider vinegar (This got my kids so into eating greens...they always yell "More kale please!"). *Any veggies I have, stir-fried. Simple and always good. I use some gluten-free soy sauce or fish sauce and some garlic. *Steamed or boiled beets, cold with chopped onion and cucumber, a dressing of sour cream or plain yogurt, apple cider vinegar, a little honey, salt, and dill. *Roasted fennel bulbs. They really don't need anything fancy, imo. They are good just plain. But when I'm tired, I just stir-fry. Or make the greens minus the bacon.
  6. I am on an pretty limited diet right now, so I guess boredom drove me to create this yummy breakfast. Sorry, I'm not sure the measurements so you'll have to experiment. Cook amaranth, one finely grated carrot, and 1 t ginger in coconut milk. Serve hot with a dollop of coconut cream on top. No sweetener necessary, though I admit I might have added a little honey if I was allowed to have it. Also, I was going to serve with sliced mango on top but my mango had past its prime. Enjoy.
  7. Ooh. I just found out that hepatology is actually a specialty area for internists, and the GI I am seeing that was recommended by others here, Dr. Alan Kaynard, specializes in hepatology. Hooray! Two specialists in one. Now I just have one to go.
  8. Oh yeah, I wasn't intending to stop the aspirin without talking to a doctor. I was just thinking one reason to see a neurologist is that if we could find a connection, it might make sense to stop the aspirin. Wouldn't mind having one less pill to take!
  9. Yeah, I should add I have 3 kids as well: 10, 5, and 2. All my pregnancies were healthy, and I had really beautiful, natural births without complication, and breastfed all my babies too. Maybe I would have been even healthier if I was gluten-free back then, but in any case, it was a great experience. I would even think about doing it again if my husband hadn't put his foot down! lol
  10. Its true that pregnancy puts stress on certain systems of the body. However, it is also 'what our bodies are designed for'. (I put quotes, because I don't intend to imply that everyone is "meant" to get pregnant and have kids...I believe we are "meant" to live diverse lives.) So really it is a stress that could be compared to the stress of rigorous excercise. Yes rigorous exercise can stress systems of our body. Like pregnancy, it can even cause injury or illness. But also *not* using our bodies that way, when they were designed for such activities also takes its toll in certain ways. There are health benefits to pregnancy, and for some people who have autoimmune diseases, their disease goes into remission during pregnancy and breastfeeding. (There are also people who have their disease triggered...) So I would definitely not rule pregnancy out. Also, I have to say that in my own experience, having babies was such an incredibly cool experience in terms of trusting my own body and seeing what it is capable of. I think this could be an even more awesome experience if you have struggled with health challenges. (I had babies before I developed health problems.) In any case, the choice to have children should be based on whether you really want to raise children. If you do, then even your physiology needn't stop you. If you can't become pregnant, you can make your family in a different way (adoption, etc.) and I would encourage you to. If its what you really desire, don't limit yourself. And if its not really what you desire, or if you desire it only for more trivial reasons like your ego thinks it would be good to pass on your lineage or whatever...meh. Forget it. Its so much work, and anyone can have a rich life and enjoy kids without having their own. Best wishes in your discernment.
  11. I expect I will be having regular follow-ups with my doctor regarding all of this. She did discuss with me the option of seeing various specialists, including a hepatologist. She said she would refer if I wanted, but she did not know of one to recommend. She did not feel strongly that I needed to see one, but neither is she against it. She talked about the importance of choosing specialists who do understand celiac and support my choices for holistic health care.
  12. I expect I will be having regular follow-ups with my doctor regarding all of this. She did discuss with me the option of seeing various specialists, including a hepatologist. She said she would refer if I wanted, but she did not know of one to recommend. She did not feel strongly that I needed to see one, but neither is she against it. She talked about the importance of choosing specialists who do understand celiac and support my choices for holistic health care.
  13. I did have those tests done at the time of both of my TIAs and have not had any neuro symptoms since then. They did not find anything. I think they would have seen lesions if that's what was causing the activity, but I don't know. My understanding is that it is common for TIAs to not show up on a brain scan, though sometimes they do. But what defines it as a TIA as opposed to a stroke is that there is no brain damage. If there is brain damage, even slightly, it is considered a stroke. I guess sometimes there are some other signs on the scan that some activity has happened, but oftentimes there is not. Also, since I went straight to the hospital at the onset of symptoms, they could also potentially see a migraine on the scan, but did not. Migraine has not been ruled out. Migraines are typically: accompanied by a headache or visual disturbances, last an hour or more in length, come on gradually, if numbness is involved it is typically bilateral numbness. TIAs typically: come on suddenly, no headache or visual disturbances, last 1 minute-1/2 hour. come on suddenly, if numbness is involved it is typically unilateral. My episodes fit all of the criteria for TIA and none for migraine. (Also involved aphasia, common TIA symptom). But it is definitely possible to have a migraine aura with no headache that seems like a TIA, it just seems less likely than a TIA to me given my symptoms.
  14. So I was diagnosed by my holistic MD based on positive blood test. I have an appt with a GI, but will most likely not be agreeing to endoscopy/biopsy as I have already been off gluten for 10 days and am finally starting to feel better. My symptoms were kind of vague: chronic bronchitis, chronic UTIs for the past 6 months. Worst in the past 2 months or so: fatigue, malaise, nausea, no appetite, vomiting, dark urine, went from 151 lbs to 128. The first thing we found was poor liver function. Further blood work revealed Celiac. My liver ultrasound was normal, Thank You God. After a week off gluten my liver function was still bad, but I am hoping it will be better now that I am not nauseous and my tummy doesn't hurt. Also bronchitis seems to finally be going away, and UTI got better with antibiotics. SO I am a little confused as to whether I even have damage to my gut at all? Is it possible I just have liver-presenting extra-intestinal Celiac? If so, I don't know that the GI will be helpful. My Dr thought he will want to do the endoscopy which could be helpful in seeing what else it going on, but my appt for that is a month off, and do you think I am going to go back to eating gluten for a month? Hell no. I wonder if I need to see a hepatologist who understands Celiac. I know its a long shot, but anyone know of a good one in the Portland Oregon area?
  15. I'm not sure why other people on the site don't like him, but personally he did not strike me as a trustworthy source of information. He had that guruey, pyramid scheme style of communication. You know, throwing out a bunch of facts, out of context, not really developing them to make his case, etc. He obviously has some things to say that are very much true, and I certainly don't doubt that there are people who need to avoid consuming grains, as there are of any food. Grains are more commonly a problem I think, because of their relative newness. But couldn't you make a similar case for any food? Especially the part about pesticides. Like, I know that is true, but that is not just true of grains! Its in all our non-organic foods! Seems like this guy is doing one of those fear-based ________ food is eeeeeviiiiiil kind of cases. Just like the ____ food is the miracle that is going to make you invincible and immortal case. I don't buy it. I don't even think that is true of wheat, even though it is clearly bad for a number of people, even to the point of poisoning them (such as myself). I imagine there are people for whom whole wheat is a healthy source of nutrition....wish I was among them. sigh.
  16. He'd have to make a pretty strong case that other grains are a problem in order to convince me to go grain-free. I didn't think he made that case. It seems like what he did was talk about many diseases that can be associated with gluten intolerance (as we know), and he brought up some studies that show other grains can have inflammatory action too (which we also know...many people with Celiac cannot tolerate corn or other grains.) But seriously, I do not want to give up wheat gluten, and I am to save my health. I am currently on a diet of very restricted grains (rice, quinoa, amaranth) while I am healing, and I DO NOT wish to give up all grains forever. Whats strange to me about this video is that he does not talk about how the majority of people with celiacs get drastically better after removing wheat-gluten from their diet. If they were all needing to be grain-free, wouldn't they see no improvement until they did so? Seems fishy to me. If even trace amounts of wheat gluten make us extremely ill, how could we go on eating rice and corn every day and feeling better than ever? However, I would agree that American diets are overly grain-based. I have really tried to reduce grains in our house and eat more veggies, fruits, meats, nuts, and seeds because grains are too low in nutrients and I think we should eat smaller portions of them.
  17. I know. Don't you love when doctors diagnose an individual based on broad health data rather than the person in front of them??? I've heard this happens with celiac disease a lot. Just heard of a woman who was told by her doctor that she did not have Celiac or need to be tested for it because she was overweight, and "Celiacs are underweight". Seriously, if you are going to be an MD it is important to understand how medical statistics work. And that is not how they work.
  18. Well as far as the TIAs, they do not show up on a scan even if I have had one. They diagnosed it based on self-reported symptoms. I was curious if there is some kind of test that people do to check for Celiac-related neurological damage. I don't know if that is possible or not. Jade
  19. I got diagnosed with Celiac Disease on Friday through a positive blood test after I started having liver problems. About 3 years ago, while pregnant, I had a TIA (ministroke). They never found the cause of it, so (rather foolishly) diagnosed it as a migraine because of my age (25 at the time), and my being pregnant, even though my symptoms were classic TIA, and very atypical for a migraine. A little over a year ago, I had another. This time I was at a better hospital. They admitted me for stroke care, did way more testing, and still found nothing. They diagnosed it as a TIA, with underlying cause unknown. They put me on aspirin therapy. Now that I have been diagnosed with Celiac, I am wondering: Is there a test I could do to see if my TIAs are related to Celiac? If they are, I could probably stop aspirin therapy. Should I see a neurologist in addition to my GI? Thoughts?
  20. I am currently on a diet where I cannot have nuts, or soy. I am drinking unsweetened coconut milk beverage from So Delicious brand (I can't have sweeteners either). Rice milk might also be an option for you. Try those and see if they appeal to you.
  21. This is day 9 on a the gluten-free, and also healing/detox diet recommended by my Dr., and today is the first day that I have not felt sick in months!!! I even ate a second helping of lunch. So nice to feel full, and a WHOLE DAY without nausea! I am happy. The light at the end of the tunnel!
  22. So I just got diagnosed through a positive blood test. I have had no bowel symptoms, but did have nausea and vomiting which I think was secondary to liver problems being caused by my celiac disease. I am wondering, from other people who do not have bowel symptoms or like me have relatively "silent celiac's", how do you keep yourself safe? I know other people with celiac who get D every time they get accidental exposure. While I do not envy this symptom, it seems like it is handy in the sense that THEY KNOW. I wonder, if I don't have that symptom does it mean that I will not have to worry as much about CC/small accidental exposure, or do I need to be even MORE hypervigilant because I could be being poisoned without my knowledge? Will it still be ravaging my gut, even if I don't notice? Or is the CC/tiny occasional exposure unlikely to do serious damage if I cannot feel it? I am interested in people's opinions and experiences with this. Jade
  23. Me too, Brigit. I've been off gluten for a little over a week as part of a detox diet, but got my diagnosis yesterday and am kind of reeling. Not having a good attitude. I am teary and feel sort of bitter and on one hand it seems kind of trivial to me (come on, its just a diet) but on the other hand I am just so sad about things like not being able to eat at friends' houses anymore. And not eating my favorite bread anymore. I think I am also just weary from being sick...I was already getting teary last week about not being able to eat without getting sick, and feeling so hungry and tired. Thanks for posting. You are not alone. Hope we start cheering up together soon enough. Jade
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