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  1. You had no way of knowing and the sad part is alot of people suffer for years not knowing. I am pretty sure that mine started in High school. I was anemic then and fatigued and just had more "downtimes". I was always such a happy go lucky kid before that. I didn't find out I had it until after my third boy was born. Two out of my three kids had birth defects, which I tend to wonder if it wasn't from my undiagnosed celiac disease. Who knows?, but you can't think about the past. He will adjust like the rest of us. It has been over two years for me and I am finally adjusting to my knew life. I think some people adjust easier then others. We pretty much don't eat out, which was a huge loss, but I try and think of the positives for that. We eat very simple and that is what has worked for us.

    Try to think about the future and not dwell on what could have been. Believe me, I had an experience with one of my son's surgeries and felt HUGE guilt and it ate away at me for years. It SO isn't worth that!

    GOod luck and try and encourage him and give him as much information as he needs and wants.

    Take care,

    Monica


  2. I don't eat out much at all, because I haven't had a bit of luck! I get sick 99% of the time. Just ate at PF Chang's the other day and I don't know what they did, but had the big D for the whole day and sick as a dog the day before. It really stinks to not be able to eat out. I am SO terrified of getting gluttened, from all my bad experiences, that I can't enjoy the food I am served anyway!!

    I am not much help.

    Monica


  3. I started having problems with eating in high school. AT that time, I would go days without eating hardly anything. I lost weight, but never lost my period. My family was extremely worried. I got better in College, but then had some problems one summer. I think my problem started in high school. I was anemic and fatigued.

    My problems with anorexia had seemed to be ok, but then I was really sick with celiac disease about two years ago and could hardly eat. It continued as far as feeling sick to my stomach after eating. I still never know when I will feel gross after eating. Because I have felt gross so much after eating, it has become very easy to not eat. Food isn't very appealing to me anymore and alot of times it is just so much easier to not eat and I don't even try not to eat. I think I eat enough calories, but alot of the time it is chips, chocolate, fruit, cheese and hardly any balance. I drink too much caffeine. I am also vegetarian. I am afraid of alot of food making me sick and it is so easy to not eat when there isn't anything that interests me. I can totally relate. I am not underweight right now, but I was for two years. I also ended up being very weak, miserable and having to have Iron infusions. So I try and drink Ensure when I don't feel like eating. I don't want to be sick and I have 3 little boys that need a mommy that is with it!

    I would say introduce fruits, veges, ensure and realize that you should eat to be healthy.

    Take care and good luck,

    Monica


  4. I started having problems with eating in high school. AT that time, I would go days without eating hardly anything. I lost weight, but never lost my period. My family was extremely worried. I got better in College, but then had some problems one summer. I think my problem started in high school. I was anemic and fatigued.

    My problems with anorexia had seemed to be ok, but then I was really sick with celiac disease about two years ago and could hardly eat. It continued as far as feeling sick to my stomach after eating. I still never know when I will feel gross after eating. Because I have felt gross so much after eating, it has become very easy to not eat. Food isn't very appealing to me anymore and alot of times it is just so much easier to not eat and I don't even try not to eat. I think I eat enough calories, but alot of the time it is chips, chocolate, fruit, cheese and hardly any balance. I drink too much caffeine. I am also vegetarian. I am afraid of alot of food making me sick and it is so easy to not eat when there isn't anything that interests me. I can totally relate. I am not underweight right now, but I was for two years. I also ended up being very weak, miserable and having to have Iron infusions. So I try and drink Ensure when I don't feel like eating. I don't want to be sick and I have 3 little boys that need a mommy that is with it!

    I would say introduce fruits, veges, ensure and realize that you should eat to be healthy.

    Take care and good luck,

    Monica


  5. THanks for the recipe. I will definitely try it. We are very frustrated eating gluten free and being vegetarian. I feel like I am so unhealthy now. I know it shouldn't be that way, but I had so much trouble finding food that agreed with me, that I pretty much gave up and eat whatever is available and already made! We will finally be in our new house and so I am planning to cook again.

    Thanks,

    Monica


  6. I feel for you. I haven't eaten meat ever in my life, but now that I can't eat SO many things and I am so sick of the stuff I do eat after two years, I have seriously considered it. I just wouldn't have a clue how to cook it. Plus, I am scared my body wouldn't know what to do with it. Beans don't seem to agree with me very well and that is what I have been eating alot of the past two years. Goodluck trying it and let us know how it goes.

    Monica


  7. 1. Family that don't understand or believe you have celiac disease.

    2. Never being able to eat out without getting sick.

    3. I miss going to social events that all revolve around food.

    4. Traveling is a pain in the butt!

    5. I hate it that I am a vegetarian too!

    6. THat I am STILL sick over 50% of the time, even though I am gluten free and not sure why I remain sick to some degree. Wheat makes me even more violently ill!

    7. I can't stand making 5 different meals every meal for my family of 5 and washing my hands 100 times in the process.

    8. I am SOOOOOOOOOOOOOO sick of everything I eat. I just want someone to make me a meal and it be different and taste good.

    I am sure there are a thousand other things, but thanks for this thread.

    Oh, and now I am pregnant and just want to eat a real cracker with cheese!!!!

    Monica


  8. I also have a 3 year old with celiac. He doesn't act interested in our food most of the time. HE doesn't know any different as to what he eats. He is picky in some ways. He loves Peas. He will eat bowls of them at a time. Loves spaghetti, Pamela's pancakes, gluten-free toast, PB&J on Kinnikinnick brown bread. He also likes gluten-free pizza. He hates bananas, cooked carrots. Sometimes he will eat yogurt, but not very much. He can be very frustrating. Some days he hardly eats at all, but then he will make up for it on another day. My son is underweight and very small, but he has always been this way and is very normal otherwise. Healthy and happy, so I think it is just him.

    I don't know if this has helped at all. Also my older two kids ate the worst at age 3, so it might just be the age.

    Monica


  9. I don't think that celiac's usually have a problem with beans. Maybe in the beginning. It does sound like you are eating quite a bit of meat. It isn't good to eat too much and it doesn't have any fiber. I think you are probably eating more then would be recommended. Of course everyone is different and what one person can tolerate, maybe you can't. Nuts and peanut butter also have protein and soy yogurt, etc.

    Monica


  10. It has only been 5 days and my son was definitely lactose intolerant for about 6 months. I have him alot of organic soy formula and soy yogurt for months, because he didn't tolerate or want everything. Now it has been about 2 years on the diet and he eats everything that is gluten free. He eats dairy fine now.

    I would give it more then 5 days and take him off of dairy. The diet isn't bad for him. There are plenty of other foods for him to eat. HE may have something else, but at least take him off dairy and see how he does and be sure you are gluten free.

    Monica


  11. My mom was just taking this and weaned off of it, because it quit working after a few weeks. Anyway, My doctor wanted me to take it. HE sort of gave me a hard time, like it would "fix" all my problems!! I told him I was trying natural stuff, which he did give me some advice reguarding probiotics, etc. It must make doctors feel badly to have prescribed something they were SO confident about and then have no "treatment" for their patients!

    Monica


  12. I have a three year old too right now. He is my third and I am pregnant right now too. He is definitely a challenge right now. The worst part is that he isn't ready to give up his nap, but some days he needs one, but then he keeps coming out of his room at night when he has one. He will just wonder around upstairs being kind of loud.

    They will definitely act up for attention that is for sure. So maybe try and give her some quality time each morning, where she feels important and keep her on a schedule, with regular naps and eating. Make sure she is getting enough sleep. I would put her in time out in her room if she has done something. I find that if I put mine in time out where I can see him, he will do everything possible to annoy me. LIke being loud, etc. I think they need to be out of sight when they are throwing a fit or it will make you angry with her.

    Just some suggestions. My 3 year old is in a really stubborn phase too, but it does get better eventually. Plus, first children seem to be pretty strong willed.

    Hang in there.

    Monica


  13. I would question Van's waffles. If this has been a staple in her diet almost everyday. THere have been MANY people on here that have been gluttened and sickened from their waffles. I don't know if they test them or not. They make alot of wheat products too. Maybe some other people will let you know what they think. I don't eat Van's waffles, because so many people said they reacted to them.

    Otherwise, I don't know what would be causing her levels to be elevated still.

    Monica


  14. I too am pregnant. I have three boys named Bryce, Braden(Brady) and Connor. I am really having a hard time coming up with a boys name that fits with theirs.

    A friend of ours named their baby Gunner and I didn't like it at first, but now i really like it. I think that would be another option for you, if you like it. I do think Gunther is a bit different. Everyone is SOOOOOOOO different though in what they like it is amazing. You will never find that everyone likes the name you pick. SOme will hate it and some will love it, but if they really love your child, it will grow on them and in the end I think they will like the name.

    Goodluck deciding.

    Monica


  15. I saw you listed Ore Ida tator tots. On the package it doesn't list gluten, but when you look on their website the tator tots aren't on their safe list. I have thought that I reacted to them, before I knew this. I am wondering if they forgot to put them on their website or if there is a risk for CC.

    Does anyone know this?? Who eats tator tots? I would love to be able to eat them.

    Monica


  16. common sense tells me that you probably haven't harmed your baby. I didn't know this either, but read it the other day on the internet. I have a friend that has taken it daily with all four of her babies. Aloe vera isn't good either I guess. I don't think they really know much. I know primrose oil can stimulate contractions. THis would be the only legitimate reason I would think to not take it. Surely it isn't going to cause birth defects. I am just babbling I guess, but it doesn't make much sense to me.

    MOnica


  17. If your gut tells you to go through with it, then I would. Like other's have said, it could be as simple as dairy, but I guess with bleeding, etc. it could definitely be something else going on.

    I feel for you have to go through with this colonoscopy on a six year old. My colonoscopy was scheduled late in the day too and it wasn't fun. I was starving, by the time I got in. I would wait until they can fit you into a morning appointment. Maybe they only have afternoon, because they are trying to get him in sooner. I did survive and I slept in until 10:00am the day it was done, but I was really hungry from 11:00 until 4pm.

    Take care,

    Monica


  18. I am wondering if anyone else reacts to Pamela's pancake mix. I hadn't been eating it and was sick two days in a row when I ate it again. I don't know for sure if this was it. My 3 year old has been eating it forever and isn't really growing. He doesn't have diarhea anymore, but I am just wondering if he is reacting to it, to some small degree. He hasn't had it for a few days and his BM's seem much better looking. Alot of times he seems to not be able to go. Kind of like an IBS type thing and he is gassy. It is so hard to figure these things out. I am convinced there are some foods out there that say they are gluten free and aren't. THere are some other things we eat that could be the culprit. For now I am going to see what happens if we don't eat it for a month.

    Monica


  19. My doctor prescribed it for me, but I didn't take it. My mom is taking it with Librax 3 times a day. It helped her for about a month, but from what I have seen, she still has as many problems as before, but can't wean off of it or her stomach hurts. I don't think it is the cure all at all. I haven't seen where anyone has been able to have it work for years and help them. I think it works for a few weeks and then loses it's affect. Not sure what the point of that is, but whatever.

    Monica


  20. My son is only 3 years old and has been gluten free for 2 years this May, but he is still very small. He doesn't look emaciated, but he isn't even on the charts for height I bet. He looks like he is two years old. He is so much different and thriving gluten free, but just growing very slowly. My other two kids are in the 25th percentile and not that big. He has been tested for everything, but nothing. I don't know what to tell you, but I would make sure that he is 100% gluten free (we are, but he is still small) and then get an appointment with an endocrinologist and see what they think.

    Monica


  21. I have tried apple cider vinegar when I have heartburn. I don't know if it works long term for everyone. It is very nasty and I just couldn't bring myself to drink that all the time. It only seems to work for me for about 30 minutes too. I did have bad indigestion the other night though and it helped instantly, so it must help some.

    Right now I am not suffering from heartburn as bad. I can't seem to tolerate Nexium or Prilosec. My food just seems to not digest and my stomach hurts when I take it. For now I am taking Aloe vera juice, carrot juice, flaxseed oil. Cutting back on coffee right now and trying a lowfat diet. I think fat is probably the worst thing for heartburn. I also read somewhere that staying "regular" helps. If people have constipation, they are also more likely to have heartburn. Aloe vera juice is good for digestion. As far as Carrot juice and flaxseed oil, I am using those just for my health in general. You could also try digestive enzymes taken right at meals. Also I am taking Colostrum, which has some benefits to the GI tract. Of course all herbs probably don't have "scientific" evidence for sure, but I do believe they are helping me.

    Goodluck.

    Monica