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Bubba's Mom

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Everything posted by Bubba's Mom

  1. Bubba's Mom
    I add coconut oil to my morning coffee..and use it like butter on cooked veggies. I add it to my serving of soups or stews, and use it to brown meats, or fry potatoes etc. I use it to make Krispy Treats. It can be used in baking recipes. I try to get at least 3T. a day. A bit more is even better. I have a friend that just eats a spoonful a couple of times...
  2. Bubba's Mom
    Many people react badly to soy. It doesn't contain gluten, but is one of the most common allergen foods. I used to get digestive upset with soy. My reaction has gotten much worse since going gluten-free. I now get neurological issues from it too. I avoid it at all costs! It's tricky too..it's in SO many things, especially salad dressings, chocolate...
  3. Bubba's Mom
    It might be a good idea for you to get tested? You will have to eat gluten every day for a while for the test to work. If the test shows you are Celiac or gluten intolerant, maybe your family will take it more seriously? Just telling them that you *think* gluten bothers you will not make them be as careful. I know it's hard when your family doesn...
  4. Bubba's Mom

    ARCHIVED Juicing

    Bubba's Mom replied to CR5442's topic in Coping with Celiac Disease

    I've never tried juicing, but it seems like a good way to get nutrients into your body? It seems like you can add all sorts of things to boost the vitamins? I'm so glad that you feel like like you're starting to turn the corner and feeling better!
  5. Bubba's Mom
    I have a hiatal hernia too. It only occasionally gives me symptoms. Mine acts like a knot of balled up muscle just to the right of my sternum. If I push on it, or massage it I can feel it spasm and then it stops hurting. I'm wondering if you've had an endoscope? Your symptoms could be gastritus or even duodenal ulcer? * I've read that most women that...
  6. Bubba's Mom
    My blood test was negative but the GI did an endoscope to see if she could find a reason for my severe digestive issues and weight loss. I was told my damage was severe and most definately was Celiac. About 20-30% of Celiacs test negative in their blood work.
  7. Bubba's Mom
    I went off the acid meds about 6mos after going gluten-free. I could have done it much sooner..but didn't know I could. I stopped them because my gallbladder wasn't functioning properly and thought going off might help. I asked my new PCP if it was safe..and was told to try it and see what happened. It helped my GB pain and function. I was told that many...
  8. Bubba's Mom
    I'm so glad you're seeing some improvement. At least it looks like you're on the right track? It's frustratingly slow though. LOL..if I came with an owner's manual my Mom probably would have thrown it out? She didn't like clutter..and didn't like anyone telling her what to do either!
  9. Bubba's Mom
    I noticed that things seemed a lot sweeter after I went off sugar for a while too. I guess our taste buds get reset? I hope you can get things sorted out soon SkyLark. The hard part is..it seems like we have to do everything in slow motion when trying to figure out what foods we are reacting to? I don't know why our bodies don't come with an owner...
  10. Bubba's Mom
    I wonder about this too. My son is 32, and had to move back in with us just about a year ago, due to unemployment. He drinks a lot, and has gotten in trouble with the law because of it. He STILL drinks and drives! My son has a good reason for being impulsive and not learning lessons, etc. because he was in a bad auto accident when he was around ...
  11. Bubba's Mom
    I don't put egg/milk in my meatloaf. I use lean ground beef, minced onion, garlic powder, paprika, salt, pepper, and for filler I use ground up gluten-free Rice Krispies or smashed Rice Chex. Sometimes I mix a roll of Bob Evan's Naturals sausage in too. I mix it and shape it on a jelly roll sheet pan to collect any grease that cooks out, and top with a...
  12. Bubba's Mom
    About 20-30% of us test negative for Celiac by blood test, but have the disease. A good GI should know that! I went through years of mis-diagnosis and seeing various Dr.s. I was told that I had stress, and to just eat Tums, and offered various anti-depressants/anxiety meds. As a result, once I was finally DXed I was in very bad shape. I also went in...
  13. Bubba's Mom
    I second the thyroid test opinion. Thyroid issues and Celiac/gluten intolerance seem to go together quite often. I had hair loss at an alarming rate too. I didn't get bald spots..just an overall thinning. My thyroid test was normal. In my case it was a lack of nutrition due to damage in my intestine. I now take a good B complex vitamin. Biotin is...
  14. Bubba's Mom
    You may want to call the GI's office that you were referred to? If they want to do an endoscope (which is VERY likely) you need to continue to eat gluten until the tests are finished. If they tell you to go gluten-free be sure to question them, because it DOES affect the results. Once you go gluten-free it will take time to heal, and restore any nutrients...
  15. Bubba's Mom
    Some blue cheeses can be started with a gluten starter, and some specialty cheeses could be washed with a beer glaze. Most other cheeses should be OK..but check your cream cheese, cottage cheese, and sour cream for additives. Some brands are adding fillers/thickeners that shouldn't be in a good quality product. More label reading I'm afraid.... ...
  16. Bubba's Mom
  17. Bubba's Mom
    It's great that they've found out about this? It may take time to develope it into a good treatment..but isn't it wonderful that there's a chance of using something other than shots of insulin for type 1?
  18. Bubba's Mom
    Two weeks isn't very long on the diet. It may take months or longer, depending on how much damage you have in your intestine, to heal. See if you can get your Dr. to run a full vitamin/mineral blood panel? It should show if there' s a particular thing you need to supplement? In general it's good to take a gluten-free muliti-vitamin, D, Fish oil, and maybe...
  19. Bubba's Mom
    That sure could explain why so many of us react to products that should be considered "safe"? I hope they switch to the newer more accurate method of testing. Sometimes companies opt for the test that means they are in compliance, and don't need to change anything rather than public safety?
  20. Bubba's Mom
    Your description of how you're feeling is how I was about 4 weeks ago. It felt like I was just spiraling downward. I was tested for parasites..and had one that is normally not bad in healthy people, but with a damaged intestine it IS bad. It allows things you're eating to leak out into your blood stream..and you get a reaction. I took the med for it, started...
  21. Bubba's Mom
    Please don't cry. Experience tells me it will make the pain much worse. I'm SO sorry you're having to deal with this. From the book Recognizing Celiac Disease..signs, symptoms, associated disorders & complications By Cleo J. Libonati..There's a strong link between Folic Acid deficiency and migraines. She recommends supplements, as it's hard to...
  22. Bubba's Mom
    I deeply apoligize to the OP for getting off topic. It's so easy to ask and answer questions as they arise in a normal flow of conversation. I certainly didn't mean to hijack your thread.
  23. Bubba's Mom
    The way the gene reports are written can be confusing to most people, including the Dr.s that order them. I'll show you how my report looked.. The Dr. asked for Genetic Celiac Associated HLA-DQ Typing The report says: DQ alpha 1 01:03, 02:01 DQ beta 1 02:02, 06 There are alpha chains and beta chains that are linked to DQ alleles, like beads...
  24. Bubba's Mom
  25. Bubba's Mom
    Thanks Steph. I was told early on to start a food log by someone here. It was how I figured out my soy and MSG intolerance. I told my PCP I was now reacting badly to soy as well as gluten, so that info might be added to my file for future reference. After I got copies of my medical records so I could switch PCPs I found the Dr. wrote that I "had a poor...
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