alucard4545

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Everything posted by alucard4545

  1. So I've been on the Gluten Free diet for about 7 months now but I still don't feel completely better. I try my very best to not get glutened, I rarely eat outside because I fear contamination. Just a quick background: Before I went on this diet my main symptoms were: abnormal bowel movements every morning + Stomach nausea. Since being on this diet my nausea symptoms seem to have disappeared completely! but not my bowel movements. Though less severe than before, I still have to pass uncomfortable bowel movements several times every morning before I'm ready to start the day. Will my insides ever heal completely so I can feel normal again? Or did my 5 and a half years of being undiagnosed damage my insides enough so that I may never be completely healed? Can anyone relate to this?
  2. The link I will post below sums up the whole situation that's going on right now with Actress/Celiac Jennifer Esposito. If you haven't heard about it already in the news or online, I would urge you to read this. I believe it is discriminatory against celiacs and people with disabilitites in general and it should not be tolerated... The link is a petition and I would strongly urge anyone to read it and sign it if they want to help get the right thing done. It doesn't take long and it is an important issue and has to do with all of us. Here it is: http://www.change.org/petitions/cbs-television-get-jennifer-esposito-back-to-work-or-release-her-from-her-contract
  3. Holy crap really? I've never heard of that before, that's pretty scary. That being said though, I didn't eat anything with cinnamon on thanksgiving. It's possible that it may have been a kitchen contamination issue, since my kitchen is not a gluten free one. My mother was the one preparing all of the food. Of coarse she knows I'm a celiac and was trying her best to make me separate food, using separate utencils and taking all the usual precautions you would take to prevent contamination. But a mistake might have been made somewhere along. I'll know better next time and just prepare my own food myself to keep in bins, while staying away from what everyone else eats. I'm sure she'll understand.
  4. to a84c72, just wanted to say that you are not alone. I actually got glutened this thanksgiving regardless of serious efforts to prevent it. I have no idea how it happened and the next day I felt sick and was absolutely frustrated and miserable. Hang in there. It will take time, but everyone will understand and accept us eventually, just like they do with pretty much all other diseases. I know we will get there.
  5. alucard4545

    Discrimination Against Celiacs?

    Exactly. It really is as simple as that, yet some people on this thread are still missing the point.
  6. alucard4545

    Discrimination Against Celiacs?

    It is dreadful isn't it? That's why I started this thread and put the link to the petition right in my first post. In the end it is up to the person to decide whether to sign it, and in my opinion it couldn't hurt. I think it is important to help a fellow celiac who has been mistreated because of her condition. We can have a voice in this.
  7. alucard4545

    Discrimination Against Celiacs?

    I could not have said it better myself. I found it a little disheartening to see some of the previous posts, especially ones that are from Advanced Community Members. People who, by the very fact that they are on this site, should have a clearer understanding that gluten free doesn't automatically mean the problem is solved for all celiacs. I too can not understand how anyone with celiac can criticize another celiac...
  8. alucard4545

    Discrimination Against Celiacs?

    Beautifully said
  9. alucard4545

    Discrimination Against Celiacs?

    I found out the segment is up on vimeo --->
  10. alucard4545

    Discrimination Against Celiacs?

    I agree with this completely. I’ve thought about it and Jennifer Esposito has had a very successful career so far. One must question why she would throw that away and risk her job on the show if this wasn’t a serious case of her being treated unfairly because of her celiac. She has even stated that CBS implied that she was not truly ill, and that it was a scheme to get a raise. To me, that alone is unacceptable and it shows the lack of awareness out there about this serious disease. Celiac disease is probably the only disease that you can tell somebody you have, and not know what type of response you will get from them. I bet that if this incident had to do with diabetes instead, there would NEVER have been any question about her actually having diabetes. It shows the level of ignorance out there when it comes to celiac, and that has to change. I would expect people, especially celiacs, to have some compassion for her in this situation.
  11. alucard4545

    Discrimination Against Celiacs?

    You're welcome. I was glad to post it because it angered me as well.
  12. I gotta say I'm very disappointed with the fact that there are virtually no dating sites for people following the gluten free lifestyle. Considering the fact that there are millions of us and the fact that today's internet age has dating sites for practically everything, I was expecting to find at least one good one, but I didn't. Does anyone else share this frustration? I think a Celiac dating site would be another great way to connect with fellow gluten free people and potentially find a gluten free partner. *If anyone knows of anything that I'm missing, please let me know, I'd appreciate it* Note: I'm aware of the singles with food allergies website but it isn't as good as it looks, the search to look for locals doesn't seem to work or be very comprehensive, so the site pretty much becomes useless.
  13. Well it's great to see someone trying and being productive. Good luck with it.
  14. Goya Maria cookies are gluten free? Cool. Gotta try that.
  15. I personally would love to see a feature length documentary made about celiac disease. I searched online and have only found short documentaries about it which were good, but would really only be helpful to brand new celiacs. I think a good full length celiac documentary would show things that usually aren't seen. For example, lots of us know about the testing requirements to determine a food as gluten free, but I've never seen footage of this testing? How does it all work? look like? cost? ect. I would imagine many things being covered in the documentary like the above example, the under diagnosis of celiac, the recent "trendiness" of the diet due to certain celebrities who have been revealed as gluten free, all sorts of information. It could make for a good piece of work, and be effective at further spreading awareness about this growing condition. If a movie like this doesn't already exist, I hope it gets made soon.
  16. I understand what you're saying and it's an interesting point, but it couldn't hurt to have one available in my opinion. Especially with how celiacs are growing in number and how it's become something of a "trendy" diet.
  17. Okay. Then I guess I was sensitive to one of the other ingredients. I take a gluten free daily multi anyway so I don't really need it.
  18. So I recently emailed glaceau after noticing some curious sounding ingredients on Vitamin Waters. I asked about gluten and this was the response: thank you for your interest in glac
  19. I emailed Dove recently about their gluten free status and just thought I'd share the response: In response to your email regarding DOVE CHOCOLATE. Thank you for your email. The ingredient statement on each wrapper is the best source for this information. The Food Allergy & Anaphylaxis Network advises consumers to rely on ingredient labels, not lists that can become outdated when products change. Please feel free to contact us at 1-800-627-7852 if you have any specific product questions. Have a great day! Your Friends at Mars Chocolate North America
  20. Oh and it was "Modified Food Starch" on the waters label that I was concerned about to begin with. I know that if the starch contains Wheat, then it must be stated in parenthesis, but I don't think that applies to Rye or Barley, so it's tricky.
  21. I gotta say though, I drank a vitamin water and didn't feel too good the next day. It may not have been gluten but vitamin water does have a lot of ingredients so perhaps it was something else. I guess this is one that people will have to try and see how it feels for them. Me personally, I'm gonna stay away from it.
  22. I emailed Hersheys asking which of their products are gluten free? Here's the response I received: Thank you for contacting The Hershey Company. Our product label includes an accurate listing of the ingredients in our products. However, on occasion, the list of ingredients can change. We encourage you to check the ingredient label on the package before you make a purchase. This label provides accurate, current information about all the ingredients in the package. If you should have questions concerning additional products, please call us at 800-468-1714. A representative will be glad to assist you with any questions you may have. We appreciate your loyalty as a consumer. Timothy Consumer Representative
  23. So I emailed General Mills about their gluten free status, curious as to how strictly they handle gluten. This is the response I received: Dear Valued Consumer: Thank you for contacting us about gluten in General Mills products. General Mills offers several products that are labeled gluten-free. Please check the package label for the gluten-free statement on the front/side/back of the package. Only products that can be verified to be gluten free will be declared as gluten free on the label. It is important to check the product label each time you purchase a product because it has the most accurate information about the product in the package. Because we constantly strive to improve our products′ quality and nutritional value, the most up-to-date product information is on the package the product is purchased in. For that reason, we do not distribute product information lists as they could quickly become outdated. A current list of products on the market that are gluten free can be found by visiting www.glutenfreely.com. It is important to check the package label before purchasing for the gluten-free statement on the front/side/back of the package to verify that the package you choose is gluten free. For products not labeled gluten free, we will always declare gluten containing ingredients if they are added to the product. If the ingredient declaration lists wheat, oats, barley, rye, or derivatives of these grains, then the product contains gluten. Examples of derivative ingredients include: malt, barley malt, organic malt, semolina, Durham, triticale, and spelt. We do not include gluten containing ingredients in the ′Natural Flavors′ or ′Spices′ on the product ingredient list. If there are gluten ingredients in our products, those ingredients are always clearly listed. If there are no gluten- containing ingredients listed in the product ingredient label, but the product does not make a gluten free claim, it is because we cannot fully assure that this product is gluten free. While we have not added gluten-containing ingredients, factors such as sourcing, conditions of manufacture, etc. do not allow us to provide the full level of assurance that a gluten free claim requires. Additional information regarding gluten may be obtained by contacting your health care professional or one of these organizations. Celiac Sprue Association/United States of America, Inc. PO Box 31700 Omaha, NE 68131-0700 402-558-0600 Or toll free: 877-CSA-4-CSA (877-272-4272) www.csaceliacs.org Celiac Disease Foundation 13251 Ventura Blvd. #1 Studio City, Ca. 91604 Phone: (818)990-2354 Fax: (818)990-2379 www.celiac.org We hope this information is helpful. Sincerely, Amanda Peach Consumer Services
  24. Okay. Thanks for the replies.