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About tiredofdoctors!!!
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Will NOT let this disease diminish me!!
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Louisville, KY
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Recovery From Neurological Problems
tiredofdoctors!!! replied to a topic in Related Issues & Disorders
Hi Kathy Ann . . . . would like to give you some good news with regard to my neurological status, but unfortunately, I have not found any improvement in symptoms since going gluten free. Oddly, my laboratory said that they didn't have the capacity to perform DQ1 (why I don't know), so I don't know... -
Finding A Doctor Who Really Knows Celiac
tiredofdoctors!!! replied to Gentleheart's topic in Doctors
I found the most incredible GI doctor from the oddest place -- my EYE doctor! He is very well-connected, as is his wife, with "who is good, who is not" in the medical world. If you have ANY MD's that you like or trust, or for that matter, nurses, PA's -- people who are "in the know" . . . . start... -
What Type Of Doctor Do You See Regarding Your celiac disease?
tiredofdoctors!!! replied to glutenexpat's topic in Doctors
Oh -- I forgot -- I also see a registered dietician -- she specializes in Celiac Disease -- and she is helping me to coordinate my new Celiac diet with a weight lost regime -- not an easy task, considering that I can't walk straight, have no muscular coordination (my brain just doesn't tell my muscles... -
What Type Of Doctor Do You See Regarding Your celiac disease?
tiredofdoctors!!! replied to glutenexpat's topic in Doctors
Welcome T -- you've joined a great group of people! With regard to my doctors, I see two neurologists -- my celiac is in my brain (NOT in my head!!!) . . . Lynne -
For You Law Savvy People Out There
tiredofdoctors!!! replied to NicoleAJ's topic in Coping with Celiac Disease
That is OUTRAGEOUS! I would create hell, I think. What a jerk! mmaccartney: I have gluten ataxia. There are sites (mostly because of studies done in the UK) that can explain it better than me, but here goes: there are proteins on the Perkinje cells of the cerebellum of the brain and the retinas... -
For You Law Savvy People Out There
tiredofdoctors!!! replied to NicoleAJ's topic in Coping with Celiac Disease
Quite frankly, I also think it depends upon your doctor's notes and perspective. I have applied for Social Security Disability because the gluten intolerance has affected my brain. My neurologist was the one who told me to apply. His notes are pretty strong, as well as the second neurologist I... -
Itchy Ears
tiredofdoctors!!! replied to happygirl38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes! I thought I was the only one who had that! I was so embarrassed, I wouldn't tell anybody! My rheumatologist actually diagnosed me with psoriatic arthritis based on my ears! He said that he could lift the skin -- it was silvery, and it bled underneath. They itch like crazy!!!!! The only... -
Elevated Iga
tiredofdoctors!!! replied to lbsteenwyk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had an elevated IgA, too. I had "outrageously high" IgG antigliadin antibodies (per my neuro doc) for quite some time; since being gluten free, my IgG's have gone down to 12 (only 1 over normal range), and My IgA is within normal limits now. I've been tested for RA, Lupus, everything -- don't... -
Chapstick Brand
tiredofdoctors!!! replied to minibabe's topic in Gluten-Free Foods, Products, Shopping & Medications
Karen, you rock! ((((((((hugs))))))) Lynne