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squirmingitch

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squirmingitch last won the day on September 7

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About squirmingitch

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    Female
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    Gardening, birds, bees, butterflies and nature in general. Nature is a genius!
    "If there are no dogs in Heaven, then when I die I want to go where they went." ~~~ Will Rogers
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  1. squirmingitch

    Rash getting worse AFTER going gluten-free

    But armpits DO get affected! I had it in my armpits & it's, well, frankly, the pits!!!! OH yeah, dh in the armpits is not a new thing nor an uncommon thing. A gal named pricklypear1971 was on this board for many years & she helped me when I first came along. She had dh in her armpits & that was the first place it presented with her. She had it BAD in her pits! I did a search trying to find some threads where she discussed it but there were so many threads where she posted, it would be near impossible to find the right ones. I did however come across 2 threads that do discuss dh in the pits & are also good threads for you to read in general. https://www.celiac.com/forums/topic/91403-armpits-dh/ https://www.celiac.com/forums/topic/102919-i-have-so-many-questions/
  2. Big Question Did you "go gluten free" prior to the endoscopy? Boyfriend needs to brush well before you guys kiss. Drinking water will not do a thing to get rid of gluten. If he brushes well & rinses his brush well you will be safe. Your numbers were high positive, yes.
  3. squirmingitch

    Celiac Caused By Mold?

    Can you post the results of the celiac panel here? Please include the reference ranges as well b/c those vary from lab to lab. Celiac, if you carry the genetic marker for it, is often triggered to present by things like pregnancy, an accident, an illness, a major stressor (death in the family) etc... So yes, the pandemonium your body was thrown into by the mold exposure would certainly qualify as a possible trigger. Read that post by Posterboy on the celiac - liver connection. I'm not saying that's the whole answer to your liver issues but it could be or could be part of the problem. I don't drink - never did & I had elevated liver #'s before I was dx'd. My #'s were not extreme -- just mildly elevated but after I was dx'd & went gluten free, my liver numbers returned to totally normal.
  4. squirmingitch

    Celiac Caused By Mold?

    First off, a hearty congratulations on kicking the heroin addiction! My hat is off to you! Like Karen, I'm a little confused about your statement about your "celiac levels". Are you saying you have celiac disease? For how long? On the other hand, it seems like you are saying you've just been diagnosed with celiac & are wondering if celiac is caused by your exposure to the mold???? If that's what you're asking, no, mold doesn't cause celiac. Celiac is a genetic disease. However, the stress & illness your body went through by being exposed to the mold, may have been the trigger for the celiac to present itself.
  5. I agree with Tessa in every respect. Make sure he takes 6 biopsies.
  6. squirmingitch

    Advice?

    They can't test for NCGS. I gave you the tests for celiac. If you think you've been tested for celiac then you should get your records & make sure. Also, if you actually were tested for celiac, that doesn't mean you are good for life. Celiac can present at ANY age so if you get tested it doesn't mean you will NEVER present with celiac. So IF you DID get tested before, unless it was in the last 6 months or so, you should be tested again.
  7. squirmingitch

    Dapsone alternative

    I am so sorry to hear this & sorry you are still having dh symptoms. You should never have been on Dapsone for 27 years. It is only meant to carry you until the antibodies get out from under your skin & you get the diet down pat. 2 years is the usual for being on Dapsone. I am afraid you are a victim of Dapsone & this is one of my arguments against Dapsone. While taking Dapsone, the rash is not experienced & so you think you're eating gluten free & doing a good job of it. After all, the rash is not presenting right? The reality is the Dapsone is preventing the rash from screaming a warning to you that you ARE IN FACT getting glutened, cross contaminated &/or are ultra sensitive & ultra sensitive is very common for those of us with dh. But then, one day, perhaps years down the line as in your case, the day of reckoning comes. You have to get off the Dapsone but when you try to, the rash comes roaring back. Reason? Unbeknownst to you, for 27 years the antibodies have been piling up under your skin. For 27 years, you have been living without a barometer for gluten exposure. Now you pretty much have no choice but to go cold turkey & get super strict with your diet. For 27 years, you have been living without a barometer for the rash. DH is extremely sensitive to the tiniest amount of gluten. Do NOT eat out unless you feel like playing Russian roulette with gluten & the rash. OK, some suggestions. Ditch the Dapsone (according to doctors orders) & go on the Fasano diet for at least 6 months starting NOW. http://www.todaysdietitian.com/newarchives/0816p14.shtml Limit you iodine intake for 2 weeks. Here's a link for a low iodine diet, but don't eat the gluten. http://www.thyca.org/download/document/229/Cookbook1pgEng.pdf And read this: https://www.celiac.com/forums/topic/115445-relief-and-it-isnt-dapsone/?tab=comments#comment-962730
  8. squirmingitch

    Advice?

    It's possible it's gluten. Why off & on, off & on? It can do that until one day it doesn't stop. You say you've had blood tests for everything but have you had the celiac panel? You should get it. here's the full panel: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG Total Serum IgA Also can be termed this way: Endomysial Antibody IgA Tissue Transglutaminase IgA GLIADIN IgG GLIADIN IgA Total Serum IgA Deamidated Gliadin Peptide (DGP) IgA and IgG
  9. squirmingitch

    Maybe glutened by microwave at work...

    As far as I know NCGS is not covered under the ADA. Never the less, it is my opinion that you should speak up & tell your co-workers and tell your supervisor or employer. You're not asking for special treatment really. You're just asking for a clean workspace. IMO, employees making crumby messes is not hygienic and only invites vermin such as roaches & rodents. The company should be concerned about that if nothing else.
  10. squirmingitch

    Maybe glutened by microwave at work...

    Jen, are you a diagnosed celiac? If so, then you need to speak up at your work. You come under the Americans with disabilities act & that entitles you to certain protections.
  11. squirmingitch

    Maybe glutened by microwave at work...

    I can't see the microwave being the cause of any exposure to you; not with the way you protected your food with the paper towels & the lid (even loosely placed). I really just can't see the steam doing this, I just can't. Ah, just had a thought. The paper towel you put on top of your food..... was that a paper towel from work? Could that have been contaminated by gluten hands & then you placed in on top of your food? As far as crumbs on the desk, soap & water is what cleans gluten off. Not sure the wet wipes will do the trick however, you can touch gluten all day long & it's not going to hurt you UNLESS you then put those hands in your mouth without washing them first.
  12. squirmingitch

    Help Me!

    The Nima sensor gives false positives sometimes. See: https://twitter.com/GFWatchdog/status/856529478352351233
  13. Do you have any other kind of symptoms? Geez, you poor thing! That looks awful & I know it's miserable to live with. Since it's only on 1 hand, it's not likely dh. I wish I could tell you what to do for it. Have you been to dermatologists or just primary care docs? Has anyone ever biopsied it?
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