squirmingitch

I don't know everything about it but I know a good deal. You're embarrassing me Colleen.
 
Okay, down to business. 60% of the time, those with dh test negative on the celiac blood panel. That brings us to the question of whether ...

Mine hasn't either. It really tics me off b/c he only allows you to email him through his website & unless you take a screenshot of what you wrote, you have no record of the communication AND it also asks if you wish a reply to what...

Thanks cyclinglady! I emailed mine 2 weeks ago but re-emailed again yesterday b/c he had not yet signed on & he's a DOCTOR! I will keep after him until he does. We need to keep on top of this & hound them about it. With the l...

EMAIL YOUR US REPRESENTATIVE TODAY IN SUPPORT OF THE GLUTEN IN MEDICINE DISCLOSURE ACT OF 2019
Please personalize the sample letter pasted below. Email this letter to
your local representative. A state-by-state directory is...

I can attest that I have issues with constipation as well.  Constipation alternating with diarrhea.

@docaz
Great point about what the biopsies actually reveal.  
My family keeps records of all our medical history going back more than 25 years.  It is our right to our records and it has been so helpful when changing do...

Duodenal biopsies that show signs of inflammation for various diseases and often misdiagnosed by inexperienced pathologists. I am not saying that this is the case here but when my kids where diagnosed, I did call up the pathologist. I...

I’m sorry but this makes no sense.  You have to be on a  gluten containing diet to test for Celiac.  1 donut before a blood test is not enough .  
 
“
Prior to blood testing we recommend 12 weeks of eating glu...

Thanks for the follow-up!  Your post will surely help another DH sufferer.  
I hope your husband recovers fast.

Just want to update everyone! Thanks everyone so much for the comments. We recently went to a gastroenterologist who specializes in celiac. He did an endoscopy & confirmed that my husband does in fact have celiac along with the DH...

Still it is a positive and is worth some investigation.  The algorithms say positive, not weak positive or high positive.  Not all celiacs have high numbers.  And there is no correlation (oddly enough) to the result and the severity of...

I do not get it.  You have a positive dual antigen.  The result was 26 and the range was 0 to 19 (is my math off?)   Did they go forward and order the TTG IgA and DGP IgA?  Even so, you still had a positive on the DGP IgG.  Your GI s...

Can you post the test results?  (It is your right  really to have them in your possession).    Why?  I test positive to only the DGP IgA test on the complete celiac panel.  I have never had a positive TTG or EMA which is odd and this ha...

Yes, funny but that list is a bit on with something, those are common issues people can develop sensitivities or intolerance issues with. Heck the coffee can upset damaged intestines. I developed a corn allergy and whey allergy, lactose...

Cross reactivity is an old internet myth.  I consume things like corn, dairy and yeast.  I have healed per repeat intestinal biopsies.  
Now, some celiacs have additional food intolerances or allergies.   I do.  Mine happens to be...

I blended my food the first weeks after my gluten challenge. As my body had problems on many levels digesting foods. I liquified whole foods veggies into soups and fruits into smoothies adding nut butters or  as my proteins. Those without ...

Hi--and thank you.       I will be sticking to  foods with all or mostly natural ingredients.  I gave up on aspertame  a number of years ago to somewhat  lesson the volume of tinnitus I have--among other things.  Can't believe I didn't...

Have anyone considered the following besides recommended  medication?  
1.  Cleansing with water after urinating (like a rinsing bottle given in the hospital after childbirth)
2.  Local Vaginal estrogen cream to improve ski...

Whether it is a tiny amount or a huge amount, the body will react and start building antibodies.  Symptoms are not always consistent.  Take each day as it comes and avoid gluten 100%.  You can heal!  

Lol. Glad to hear there will be positives too! 
It feels absolutely crappy to be lying around when my boys could be living life with me. And it feels horrid to be needing time off work to sleep. 
I'm seeing my dr this a...

It's okay, we ARE here to hold your hand for any future pity parties. Oh & just so you know.....it's quite possible, sooner or later, you will have a teary melt down in the middle of the grocery store. Who of us hasn't? I did twice...

It has been my only gluten experience since I went gluten-free. Ironically, I had spoken to the waitress, who had arranged a clean chicken breast to be cooked separately for my salad. I FORGOT TO ASK ABOUT THE DRESSING! 
But ...

Hi Keight,
Some other things to try are boron and lemon juice.  Boron helps bones absorb calcium.  Lemon juice with meals helps our GI tract absorb iron.  I suggest taking a 1000 IU vitamin D pill daily (Naturemade brand is go...

This is the place to have a pity party!  ?
I am sorry that you had a gluten exposure.  The first year after a celiac disease diagnosis is tough.  What other illness requires the patient to treat themselves?  
I am con...

You know what you just did there? You had a little pity party. OK, they're allowed. I think all of us have had at least 1 & many of us had several. 
You're in the early stages of learning all the ropes yet. You made a mistake b...