Could It Be? in Celiac Disease Pre-Diagnosis, Testing & Symptoms Posted December 8, 2011 · Report to Admin This is very interesting! You sound like me--starting to look at all your symptoms, collecting data and seeing how all the pieces of the puzzle start to come together. I was a mystery wrapped in an enigma for sooooo long and now, it ALL makes sense. From the gall bladder disease to the insomnia to the reproductive problems to the 90lb. loss to the chronic horrible pain I developed. It's mind-blowing. sometimes. BTW, with an aunt with celiac, your daughter now has a VALID REASON for being biopsied. Tell your doctor and do not take no for an answer. Just remember, sometimes kids do not have ENOUGH villi damage YET. This is the frustrating part of "testing" for celiac. You and your husband could also have genetic testing done. Do you have other children? Do them, too. I had mine done through Enterolab and then, for whatever reason, my new GI had me do it again through stool while he checked or other Inflammatory diseases like Crohn's. (just covering his bases, I guess? It was the same result, of course.) Crohn's is in my family as are many other autoimmune diseases. Big CLUES there. Again, regardless of the genetic markers and test results, gluten may still be the culprit. I think you already know it is. I know you are filled with nervous energy right now...but try to relax. Whatever the result, you have made your decision. Take care. Hang in there! Hey, is your printer still on ? Bring this to the doctor who said your daughter's symtpoms were not celiac symptoms....especially read the section under CHILDHOOD...epilepsy, malaise, anxiety, etc....sounding familiar?? This article is from 1998--but even so, the symptoms were RIGHT THERE!!Imagine if just one of them read a medical journal from this century once and while?? http://www.aafp.org/afp/1998/0301/p1023.html Great article! Especially in regard to epilepsy. So my SIL sent me her paperwork. Her Celiac Panel was not positive. her AGA IgA was 1.41 and less than 1.99 is considered normal. However, the doc said it was slightly positive (maybe compared to what she has seen in her practice) and her IgE was higher than normal suggestive of Chronic Fatigue. She told she saw a genetic component to the gluten intolerance (the AGA IgA I guess) and along with the IgE recommended a gluten free diet. So that put a crimp in my sails. But either way, Celiac or Gluten Intolerance, I think my daughter needs a gluten free diet. One more day of waiting, hopefully!