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researchmomma

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researchmomma last won the day on February 14 2012

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  1. I also don't like heating plastic in the microwave. There are a number of things you can do.

    Cool it down completely, put it in:

    ziplock freezer bags

    any repurposed/recycled plastic container(if you don't want to spend $) I often use margarine tubs. They stack well.

    the usual plastic containers

    In the a.m. take it out of the freezer, plop into a non-plastic bowl and microwave or a pan on the stove. Then put in the pre-heated thermos(fill with hot water, put on lid while you are prepping and then dump water when you are ready to fill.

    OR you can purchase individual corningware/pyrex dishes which are micro and freezer safe.

    Good suggestions.


  2. My daughter is probably non-celiac gluten intolerant. I have been going bonkers trying to find a doctor that BELIEVEs in that in my city because of exactly what you are going through. She is gluten-free and we have seen huge improvements.

    I actually found a GI/internal Med doc that got fed up with insurance companies so he went back and got a homeopathic license so he could spend more time with his patients. He fully believes and supports Non-Celiac Gluten Intolerance. If you want, PM me and maybe I can ask his office for a reference in your city?

    I also think the allergy route is a really good one!

    It is so upsetting to me to hear your story because if something makes you physically ill, you shouldn't ingest it. Why must we/you PROVE by diagnosis that we can't have it to get colleges/universities to provide foods that all students can eat. When I was in college (ahem, 20 years plus ago), the big thing was vegetarian food. They had it. I bet you 10 years from now, most schools will have a gluten free option. I hope so.

    Good luck and let me know if you want me to contact my doctor's office.


  3. You aren't a terrible mother. If you were, you wouldn't be posting and frantically trying to figure out what your child will eat. You are feeling overwhelmed because you have a sick child that has to have a specific diet and you can't find anything he eat and you feel limited. It will get better. You are in the right place.

    What country are you in? If you are in Europe (I lived there for 2 years) you need to go to the Pharmacy. That is where they keep their gluten-free foods. I would also try www.glutenfreeonashoestring.com

    My daughter is a picky eater but loves her breads and other recipes.

    I agree with another poster who said to relax. You should put good foods in front of him and then busy yourself in the kitchen while he eats. Like it is no big deal and you expect him to eat the food. If you are stressed out and he senses that he has power by not eating, he will not eat. Or he may not feel like eating from being so sick. If you need to stick to fruits, veggies and meats for a few days, that will be a start. French fries are fine and actually not a bad food for him right now. You can make your own chicken nuggets by blending some flours if you think he would like that. There are loads of things you can do. Make sure he drinks plenty of liquids but AFTER the meal. I know you are desperate but search the forum and hang in there. It will be ok and since he isn't eating gluten, things will improve.

    It is a terrible feeling to not be able to nourish your child but you are not a bad mother.


  4. I have used them in Mexican and Chinese restaurants and were well accepted. But someone at the restaurant needs to speak English well enough to convey what they can offer.

    I would approach the manager, though.

    Thanks Lisa! We got to this sushi place a lot so hopefully they will accommodate. They were overwhelmed by my gluten questions but they don't speak the best English.


  5. In 2006, I began working on a Masters/Education. For 2 years I read every single medical article I could get my hands on about celiac disease, its affect on children and learning, and how schools work with celiac kids and their families. My classmates were sick of hearing about it! Until I put it all together for my final Action Research Project presentation. THEN, they got it. They understood. My obsession was because of my own children: 4 with active celiac, 1 with gluten intolerance/gene who acts very, very much like the children described here (thank you for sharing!).

    I would love to read this!

    My oldest children are now able to explain to me what happens when they are exposed. My eldest says she becomes angry at everyone for everything and can't stop the anger, so she isolates herself until she feels the worst affect has passed. She added that she can't think straight, is illogical and overly emotional. My next eldest says she feels like all the energy has been zapped from her (she was also anemic), that something is squeezing her until she feels like she is going to explode.

    This is exactly how my daughter reacts so far. We are new to this but had to regluten her for a test and this is EXACTLY what she said to me after one day off her gluten-free diet.

    My youngest daughter, Calli, the very editor of the Celiac Kids Club online magazine (GIG is our sponsor), now 10, is going through the stage of "It isn't fair. I HATE celiac disease!"--almost on a daily basis. She writes about her experiences, her frustrations and others' reactions to her, and things she learns about celiac disease as the celiac mouse character, Swheats, in her magazine. The magazine creation helps her understand the condition, and allows her to vent a bit, too. (We'd LOVE to have other kids, or their parents, share with us, too!)

    My daughter did not test positive for Celiac but she is gluten sensitive obviously. I hope she will read the magazine even though it is geared for Celiac Disease. That is great that your daughter is doing that!


  6. I have been to both countries and you should have no issues if you bring the restaurant cards. Europe is much more savvy about Celiac and Gluten Intolerance than the US. I agree with BabsV about Greece, it should be great there. They serve mostly grilled meats and veggies and the servers were very nice and will most likely be helpful.

    I think he will be OK, especially if he brings some snacks of his own.

    I think plane food is disgusting in general so we bring our own food anyway.

    Good luck!


  7. RETIRED/BORED HUSBAND

    After I retired, my wife insisted that I accompany her on her trips to Target.

    Unfortunately, like most men, I found shopping boring and preferred to get in and get out. Equally unfortunate, my wife is like most women - she loves to browse.

    Yesterday my dear wife received the following letter from the local Target:

    Dear Mrs. Harris,

    Over the past six months, your husband has caused quite a commotion in our store. We cannot tolerate this behaviour and have been forced to ban both of you from the store. Our complaints against your husband, Mr. Harris, are listed below and are documented by our video surveillance cameras:

    1. June 15: He took 24 boxes of condoms and randomly put them in other people's carts when they weren't looking.

    2. July 2: Set all the alarm clocks in Housewares to go off at 5-minute intervals.

    3. July 7: He made a trail of tomato juice on the floor leading to the women's restroom.

    4. July 19: Walked up to an employee and told her in an official voice, 'Code 3 in Housewares. Get on it right away'. This caused the employee to leave her assigned station and receive a reprimand from her Supervisor that in turn resulted with a union grievance, causing management to lose time and costing the company money.

    5. August 4: Went to the Service Desk and tried to put a bag of M&Ms on layaway

    6. August 14: Moved a 'CAUTION - WET FLOOR' sign to a carpeted area.

    7. August 15: Set up a tent in the camping department and told the children shoppers he'd invite them in if they would bring pillows and blankets from the bedding department to which twenty children obliged.

    8. August 23: When a clerk asked if they could help him he began crying and screamed, 'Why can't you people just leave me alone?' EMTs were called.

    9.. September 4: Looked right into the security camera and used it as a mirror while he picked his nose.

    10. September 10: While handling guns in the hunting department, he asked the clerk where the antidepressants were.

    11. October 3: Darted around the Store suspiciously while loudly humming the ' Mission Impossible' theme.

    12. October 6: In the auto department, he practiced his 'Madonna look' by using different sizes of funnels on his chest.

    13. October 18: Hid in a clothing rack and when people browsed through, he yelled 'PICK ME! PICK ME!'

    14. October 22: When an announcement came over the loud speaker, he assumed a

    fetal position and screamed 'OH NO! IT'S THOSE VOICES AGAIN!'

    15. Took a box of condoms to the check out clerk and asked where the fitting room was?

    And last, but not least:

    16. October 23: Went into a fitting room, shut the door, waited awhile, and then yelled very loudly, 'Hey! There's no toilet paper in here.'

    One of the clerks passed out.

    That was GREAT.


  8. The blood test is notorious for false negatives, There 30% failure rate on the blood test to not diagnose people who do infact have celiac.

    The endoscope if your doctor did not take enough biopsies or take them incorrectly can give you a false negative.

    I too went gluten free 2 years ago for a month. It didn't help at all.

    This time I went truely gluten-free. I realized last time that I did NOT do a good job of being gluten free, and thats probably why I didn't see results. This time after 3 weeks I felt like a new person!!! I have a negative blood test...but I know I have celiac. There is no doubt in my mind now. After 2 months gluten-free, a piece of pizza makes me break out in a horrible rash on my hand.

    There aren't any other specific gluten related diseases.

    There may not be another other "specific gluten related DISEASES" but Non-Celiac Gluten Intolerance can wreak havoc on the body including digestive, neurologic and skin issues. Just my two cents.


  9. It was hard because she was diagnosed right before Christmas break started.

    I cook well-rounded dinners (meat, veggie, starch, with a glass of milk) so she isn't missing much there. It's the breakfast (cereal, waffles) that she misses, and eating lunch like the rest of her friends. I'm racking my brain to think of different lunches (yesterday, rice spaghetti and garlic toast; today summer sausage, cheese, crackers, and a jello/fruit cup).

    She is an overly emotional child who takes EVERYTHING to heart. She wants to be famous in Hollywood. 'Nuff said, right?

    We found a great recipe for sugar cookies for the holiday. They taste like "normal" cookies.

    Eventually, we will all be gluten free here. It's just a naturally healthy way of living and then she won't feel like the lone duck - at least not at home. I have to wait until the rest of us go through our testing first though. I think once that it's all said and done she will adjust okay.

    I told her that I wish she didn't have these problems, but being Christian I also told her that God is probably getting ready to use her for something better in the future. Maybe she will be a turning point for someone in a similar situation? I can honestly say there is something about this little girl that is special - everyone who has met her has said they feel such a warmth when she's around.

    Needless to say, I don't sleep much anymore. I have had to go back to testing her blood sugar twice a night because of the lows.

    Thanks for the kind words. Time to keep plugging away. I'm going to find a Boston Cream doughnut if it kills me!

    I sent you a personal note on some donut info and other stuff. Wow, I can relate to the waffle thing. My 12 yo girl is addicted to Eggos. Pamela's makes an amazing pancake and baking mix. I had friends over and they had no idea that they were gluten-free. So get some of that or Better Batter (online).

    Do you have a thermos for her lunches? I make homemade soups and chilis and freeze them and heat them up for her lunches. I always have a few Healthy Choice Chicken and Rice soup (need to add a little salt) just in case I need something quickly for her. Salads are good for lunch too. We are still working on the lunch thing but it is working out OK now. Sometimes I give her a rice cake, turkey and cheese and ler her put together a 'sandwich".

    I also make gluten-free Lasagna. I use rice lasagna noodles and I don't boil them before. Just layer them and bake. They turn out great and then I freeze them individually for lunches. Also chicken legs are good.

    My friend gave me some good advice. She said "just get her over the shock of changing her diet. Spend a little extra to get her the gluten-free muffins in the freezer section and the Udi's White Bread (which is really good toasted). Just a note I made some really good gluten-free blueberry muffins the other day. They are GOOD.

    Cereals: Chex cereals Honey Nut, Fruity Pebbles and Cocoa pebbles to name a few. Not the healthiest though but my daughter likes them.

    You will get lots of great advice. You are in the right place!

    Oh, and you son should be tested too if he hasn't already.

    Welcome!


  10. I have been having symptoms for a few years now, off and on, that I saw my dr for a few times. She told me it was IBS, I tried the treatments she suggested including probiotics, lots of fluids, and fiber. I returned to her prior to the holidays and she ran more aggressive blood work and sent me for an abdominal u/s to rule out any organ issues (gallbladder particularly). All was fine, when I went to my follow up appt with her, she told me I have Celiac Disease- based on my celiac blood panel, and has me seeing a GI doc. I cannot get into this particular GI doc for another 6 weeks, but I am trying to see another GI doc that specializes in Celiac, based on a friend's recommendation.

    I am trying to wrap my head around all the information I have been researching. My primary dr said I may not need an intestinal biopsy because my Celiac panel numbers are so high, that there is no room for question. However I have read that a biopsy is necessary to make the diagnosis. I do NOT have any nutrient deficientcies and my iron levels have never been low. Here are my lab results: I am abnormal on 4 of the 6 tests, the reference range in ().

    IgA- 228 (70-400)

    Endomysial Ab IgA- POSITIVE

    Deamidated Gliadin Abs IgA- >150 (0-19)

    Deamidated Gliadin Abs IgG- 24 (0-19)

    t-Transglutaminase IgA- 84 (0-3)

    t-Transglutaminase IgG- 2 (0-5)

    Does anyone have insight on these numbers and what they mean? The GI doc won't answer any questions until my visit and they suggested NOT changing my diet until I have the appt with him.

    I feel overwhelmed. I want to get my two children tested as well, for piece of mind.

    Do those numbers mean I absolutely have Celiac- if I had an intolerance to gluten only, I would not have a strong immune response (as in the case of Celiac), is this correct?

    To help you better understand your test results and your Celiac diagnosis, I recommend the book Healthier Without Wheat. Irish Heart on this Forum recommended it to me and I read it less than a day! It will explain why you are CLEARLY Celiac with this blood work.

    Definitely get your children tested. Just know that a diagnosis is not always easy.

    Others with more experience will chime in but I HIGHLY recommend that book (thank you IH).

    Ask all your questions on this forum, there are amazing people on here ready to help you.


  11. Nope... :/ No one in my family is known to be allergic to anything. What's the "full Celiac panel?"

    Thank you for your reply:)

    My daughter too although our family has tons of autoimmune disorders and cancers that are associated with Celiac.

    Here is the panel from labcorp

    ineedlabs celiac panel

    Hope this helps. Others here can give you more info on the tests.

    I would ask what the Celiac Panel that they are ordering covers.

    Kristi


  12. I've been sick for like almost 5 months now. The first day I was sick was August 14, 2011. I get really nauseous, SUPER bloated and bad gas after I eat certain foods. I'm really annoyed because the doctor has done a blood test, and an ultra sound on me to see if I have bacteria or gall stones. She doesn't think I have an ulcer or anything to that extent because I haven't been having any other symptoms that can signify that (my bowel movements are normal). I'm starting to think maybe it's a gluten intolerance or allergy and I'm REALLY annoyed because I won't be able to test for it for a couple weeks (I've been needing to find out the answer since August so hopefully it's understandable as to why I'm so impatient!). I just want to know other people's stories if they have experiences like mine. Sometimes vomiting, nauseous, SUPER bloated (I have never felt this bloated before; way worse than typical "that time of the month" bloating) and burping a lot after i eat. It's super annoying because all these tests I have taken have come out normal. No abnormalities, no gallstones, no bacteria.

    Here are a few things I have thrown up/gotten really sick after:

    -Soup from Corner Bakery

    -Panini/ Sandwich from Corner Bakery/Panera Bread

    -Burger(s)

    -Chipotle (Just had it right now and feel really sick :( Never have felt sick after eating this before.)

    -Popcorn

    -French Toast

    -Burrito

    Probably more I can't think of.

    Any tips to hang in there until I can get more tests done?! I'm SO frustrated :/ I used to have such a big appetite and I used to be able to eat anything. I miss my old tummy. I literally woke up one morning and just started throwing up. :(

    Idk if this helps.

    But I am 20 years old, female, 5'1 and about 115 pounds. NEVER EVER BEEN SICK BEFORE :( I was the healthiest person ever :(

    I've been tested for

    -Gallstones

    -"H. Pylori AB IGG"

    -"H. Pylori AB IGA"

    -"H. Pylori AB IGM"

    have no idea what that means :/ The doctor doesn't think I have IBS or Ulcers because I don't have enough symptoms I guess! The only weird poops I have is when my poops feel "sharp." And I don't have hemorrhoids (I was tested for that too -___-) so idk why it feels sharp sometimes?

    Sorry TMI.

    I'm just a frustrated used-to-always-be-healthy/never-got-sick 20 year old college student! My sickness even conflicted with my studies last quarter :(

    Welcome to the forum. I am new here as well. I am not sure if this helps but you could call your doctor and say that you have symptoms of Celiac or Gluten Intolerance and see if they will run the blood test before you come to the office. You need the full Celiac panel. I had trouble getting for my daughter because she is gene negative for Celiac (you don't have to have the genes it is just rare to have Celiac without the genes). Anyway, I ordered them myself at www.ineedlabs.com However, you have to pay upfront and it is 200 bucks but your insurance might cover it. I would start with the doctor office first and tell them you would like to make the appt meaningful. As some wise person on this board said, remember that the doctor works for you. If you ask for a lab test, they should give it to you.

    Does anyone in your family have Celiac or gluten intolerance? This isn't a requirement to have Celiacs but it helps the argument for blood tests now.

    Good luck and keep me posted.


  13. Everyone I talk to that had no gallbladder, has had the worse problems battling stomach virus's too.

    I had mine removed due to stones. Why was yours removed if you don't mind me asking?

    ***Update*** Had to go to the ER today.. I've had two days of constant diarrhea, which made me dehydrated.. They gave me an IV and (Zofloft?spelling?) For nausea and the cramping... I really really can't wait until i see the GI now.. It seems all I am is getting worse as time passes...

    Zofran is what they gave you for nausea and vomiting. I had IVs full of it during my pregnancies. It is fab.


  14. My neighbor sat next to a woman at Sammy's Woodfried Pizza. She ordered gluten free and he said "my neighbor has Celiac, do you?". She said yes, I suffered for almost 60 years and NOW they diagnose me at the age of 70. She was so angry and bitter that she suffered her entire life and doctor after doctor told her it was all in her head. She said she feels great now though and she is happy about that!


  15. Thanks for the info. Deep down I know you are right. I am mourning the whole celiac thing big time. I am slowly.. and I mean slowly coming to the realization that I will never have a relationship with food as I once did. I now simply try to make it through the day without eating something taboo. My husband is super supportive although he wouldnt be caught dead eating any of "my special foods"...LOL... I dont blame him. It has gotten somewhat easier but I still struggle everyday. What does help is this place and knowing others are struggling just like me. May everyone have a peaceful gluten-free evening... :)

    ~H

    I would get a copy of The Gluten-Free Girl book. She has a fantastic relationship with food. I think you will really enjoy the book. It is wonderful and makes me so hungry for some really good quality food and she has the recipes so you actually can. She talks about her relationship with food prior to being dxd with celiac disease and what it is like now. It is amazing.


  16. I have a few question - but they all stem from this. WHY, if celiac disease is the cause of many unexplained infertility cases, did my supposed almighty fertility doctor not think to test me for this?

    I have asked myself this time and time again. However, I do have one thought though: If 20% of infertility can be attributed to gluten intolerance, they would lose some money in infertility treatments. Well that seems too mean spirited so I will say "maybe they dont' keep up on the recent news". Even my Celiac Specialist GI is not current on her info.

    I have been avoiding gluten products for about 3 weeks, and have a test for celiac disease next week. Will the test results still be solid even though I've been avoiding gluten?

    This will effect your results. You need start eating gluten right away and it may be too late for you to have accurate testing by next week. I will need one of the more seasoned forum folks to help out with this one.

    I did the infertility route for 5 years and I will say that you need to be your own advocate (really for any difficult health issue).

    I am sure some others will help out. I am new to gluten intolerance but not new to infertility.


  17. Only at home. But it sure made him think, especially when my stepson showed up with worsening digestive issues (probably milk but the kid actually came out and said he avoids wheat products).

    Unreal B)

    My hubs is slowly coming around. He has 3 siblings. He and 2 siblings have severe GERD. They all take PPIs. One of them was diagnosed as gluten sensitive and her GERD has all but disappeared now that she is mostly gluten-free. Their dad died of esophageal cancer, had chronic heartburn and drinking a beer had him running to the bathroom. However, none of the other siblings, including my hubs will consider this gluten related. :rolleyes:

    DeNILE ain't just a river in Egypt!


  18. I have a couple questions about "chemical pregnancy" that i'm hoping you can help me with. I was 9 days late for my period (which i've never been more than a couple days late) and was getting positive results with a hpt. i also had definte pregnancy symptoms such as sore breast, nauseousness, light headed, cramping in lower abdomen and feeling spacey. when i started to have red bleeding i noticed that my pregnancy symptoms were going away. i have been bleeding off and on for 5 days (mostly when i go to the bathroom) i have seen a few very small clots but haven't passed anything like a "sac". will i pass that or just have bleeding? i currantly have a feeling of pressure in my lower area. also would i concider this as my period and use this as my guideline as when my next period will be coming? how soon can i start trying to concieve again? any info you can help me with would be much appreciated!!

    Hi, this brings back some horrible memories and I want you to know that you are not alone. I hope I can help. You had a early miscarriage (chemical pregnancy or blighted ovum). The positive pregnancy tests means you were pregnant. That is why you felt those symptoms. Because you were newly pregnant, you won't see a sac most likely. The only time I saw one was when I was about 10 weeks pregnant. This is my personal experience only.

    I am so sorry for your loss. I have had 5 documented miscarriages (probably more) and I wish ONE doctor had told me about the possibility of gluten intolerance effecting my pregnancies.

    So it is really great that you conceived. This is really good news. :) What you need to concentrate on right now is YOU. Did you get that biopsy? Do you want or need a diagnosis? You may, it is up to you. I personally, would try for the diagnosis first as it may effect how you eat during pregnancy, nursing or how you monitor your children in the future for gluten intolerance. If not, go gluten-free and that may be all you need to help you. I am not an expert on Celiac or Non-Celiac Gluten Intolerance and how it effects pregnancies but the literature shows that Celiac (and therefore most likely NCGI too) causes miscarriages. I didn't know this so I underwent infertility treatments..

    Take care of YOU first. Send me a private message if you need more information or if you want to chat on the phone. I spent five years in infertility hell so I may be able to answer some questions.

    Kristi