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mtdewpeg

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Posts posted by mtdewpeg

  1. After my inr went to 5.8 my GP took me off of the warafarin for 3 days.My blood was retested and it was all the way down to 1.5. Thick again. My GP put me on 10mg warafarin. I get it rechecked this thursday. My Dr. had sent me to a blood dr., but all he seems to care about is the iron problem. after the 3 ferritin infusions it was much better. he said to come back in 3 months. I hate it when doctors don't want to listen to everything we have to say. I live 24x7 worrying about getting another clot. Next time could be alot worst. having been diagnosed celiac on top of this is pretty much more than i can handle. My husband has ALS (Lou Gehriggs disease) and i don't know how much longer i will have him. sorry about whining like this, but how much can a person take?

  2. After my inr went to 5.8 my GP took me off of the warafarin for 3 days.My blood was retested and it was all the way down to 1.5. Thick again. My GP put me on 10mg warafarin. I get it rechecked this thursday. My Dr. had sent me to a blood dr., but all he seems to care about is the iron problem. after the 3 ferritin infusions it was much better. he said to come back in 3 months. I hate it when doctors don't want to listen to everything we have to say. I live 24x7 worrying about getting another clot. Next time could be alot worst. having been diagnosed celiac on top of this is pretty much more than i can handle. My husband has ALS (Lou Gehriggs disease) and i don't know how much longer i will have him. sorry about whining like this, but how much can a person take?

  3. I had my blood drawn today to to if my blood is thin enough. as mentioned above the warafin doesn't seem to be absorbing. I got a call from my dR. office this afternoon. they wanted to know if I am having any symptoms of bleeding? I said no and asked why. she said my blood is too thin now. my count went from 1.5 to 5.8 in two weeks. in over 4 months we couldn't hardly get the count to go up. now after being gluten free for only 1 week it really thinned out. i have to stay off of the warafin and get it rechecked friday morning.the dr will let me know friday afternoon what mg of warafin i need to be on.i deffinately think this disorder is related to celiac.

  4. I was told at the ER about 11/2 years ago that i had a blood clot somewhere in my body after a special blood test result came back. they did a ct scan of my chest and it wasn't there. i was discharged. This was way before being diagnosed with celiac. I had left knee replacement in aug of 2011. A couple weeks later I was so sick I went to the ER.They found a small blood clot in my lung. They said it came from the surgery, but I DO NOT think so. I have been on warafin ever since. They can't get my tpinr ? in the theraputic level. my dr keeps upping my dose. he keeps asking if I am skipping my med? I AM NOT !!!! I have had absorption problems with pills for several years and now I realize it is from the celiac. I was just diagnosed about 3 weeks ago. It scares me to death that I will get another blood clot since I am not absorbing well.

    I deffinately think blood clots are related to celiac.

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