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About 3bears2

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  1. I am going to see an oral surgeon on Friday. Maybe he will know something. I will bring the list with all of your suggestions on them. No I have not had any recent tests. Everyone sends me away and says that they don't know what it is. :( That is why I need your help so badly. I see a specialist in SF in 3 weeks 5 hours away. I saw and ENT and he said no one in our town can help me. I want to cry most of the time.


    My brother died 2 weeks ago and my son was told some very sad news this weekend regarding one of his friends. So my stress level has been very high.


    I always appreciate your help.

  2. I have had celiac under control for years now. A month ago I got some strange sores on the back of my tongue that seem to move around my mouth. The last week the sores at the side of my tongue have gotten really sore and very raw and almost bloody. I am not sleeping from the pain.  I have seen countless doctors and nobody knows what it is and I have used many different topical rinses and meds, Nothing has helped and now it is more sore. A fourth of the side of my tongue is very soft and cracked and bloody to the touch. I am just so sad and cry a lot from discouragement. My dentist friend thinks that it is celiac related. I just don't know how to get it better. Any ideas for helping are very much appreciated. The dentist friend told me to take a B vitamin so I am and no change. I feel so sad. and need your advice.

  3. He is 10 and has had  white bumps on the front and back of his leg for 2 years. We had him seen and and the pa at the derm.'s office said she did not know what it was but thought it was an immune response and that it would go away. Well of course they have not gone away and are getting quite worse. Most of the bums are white like little marbles under his skin. They are oval in shape and about the size of pencil erasers. Some are bigger. They are grouped together right behind his knee on one leg and then he has a few on the knee cap. A few are red on the back of his knee. They feel very raised and hard to the touch. He says they itch. They look quite funny as well. What do you think this is? Any advice would be helpful.


    I have confirmed celiac. Ds did not test positive. But has always had very sensitive skin. He carries an epipen because his skin is so sensitive. 


    What do you think this could be and how do I treat the itch? We will go back to the derm. this week and will not see that useless pa.

  4. I am wondering if I react to the gums or am wondering what it could be. I seem to do better with rice cakes than most all gluten-free breads right now. I am kind of bumming and need advice on what to eat instead of breads, like for breakfast.


    My symptoms are very wormlike poops that don't stop in the morning. I'll have to go about 5 times in an hours time. This is within the first 3 hours of the day. I could really use some encouragement and advice. I have already gone dairy, gluten-free and soyfree. I need my friends to help me figure this one out.

  5. My celiac is pretty much under control most of the time. Is it normal to have to poop every few minutes for about a half hour period? My mom says this happens to her but she just sits on the toilet. She doesn't have celiac disease. It is just really annoying expeciall when I have to be to the swimming pool at 7am with my kids. I need to get up at 5:30 to get the poop out before I drive. Or at the end of their practice I have to go several times. So frustrating. Today I had to go 4 times before we got in the car. I had a speck of fetta last night. It could be that as dairy cheese seems to bother me. I also had some bacon last night. Maybe it was the fat. I hate not knowing the cause.

  6. Please avoid sugar, dairy, food dyes until he is better. Please read a book like Celiac for Dummies so you understand about cross contamination. It took me 2 years to get better. These things make my son react. Chocolate can be bad too. I hope he is better soon. We do a lot of Jamba Juice they have dairy free options for treats.

  7. I attended a teacher training today and the trainer said that there is no research that supports autism and the gluten-free diet. So help me out. What do you think and know? Oh how I'd love to send her some information to debunk her teaching. I know of several kids that have benefited from eating gluten-free, my own. But I need information pertaining just to autism. If you have any websites for me to send to this presenter, I'd really appreciate it. She belongs to a CA autism organization and teaches this information all over the state so I'd really like to set her straight. Please help me do so. :)