jeanzdyn

I have a question regarding notifying my employer officially, with a letter from my GI doctor, that I have Celiac Disease.  They want an "outline" of restrictions, if any.  I am concerned that they will try to use it as ammunition to fire me.  I was hired because I have a CDL (commercial truck driver's license) and they think that if I cannot drive the vehicle they can fire me.  I would be required to go out alone and move trailers and hook/unhook trailers, and a host of other duties --we are NOT a trucking company, we do hearing testing.  My wish is to transition into the office and not have to travel or drive any more.  

I do not want to give them a letter from my doctor if they can use it to fire me.  All of that stated: I am not sure I want to work for them at all any longer, HOWEVER, I cannot simply quit my job,  I have no savings and am single, I have no one to provide for me, no pension, etc.  This is very complicated. 

The main thing I want to know is: can they fire me for providing them with a letter that may state that I cannot travel overnight away from home?   

21 hours ago, cyclinglady said:

As a diagnosed celiac, you can request celiac antibodies testing as a follow-up.  That's a standard level of care that your GI or GP/PCP can do.  Experts recommend testing at least once a year.  

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You might be able to go back to your GI to obtain your records.  It's worth a shot!  

 

I will tell them I want the records.  The thing is that I do not like my GI at all.  He disputes my symptoms, says they have nothing to do with Celiac Disease, yet they are on the lists of symptoms I have seen.  Also, if he doesn't think my symptoms are related to Celiac Disease, why doesn't he help me figure this out? or recommend a doctor who can look at more of my symptoms.  

On 6/6/2016 at 0:10 AM, cyclinglady said:

Your thyroid should be tested (request a full thyroid panel).  Feeling weak can be a sign of hyperthyoidism and feeling cold can be hypothyroidism and with autoimmune thyroiditis, you can swing from hypo to hyper.  

 You mentioned normal blood tests?   What does that include?  Have you been tested for celiac antibodies as a follow-up?  This would at least exclude celiac disease as a reason for your symptoms or it may confirm that you have been getting gluten into your diet.  

I hope you feel better soon.  

 

I tried to request a full thyroid panel.  The doctors won't listen to me.  I have not been tested for celiac antibodies.  I have no idea what the original gastro doctor did in the way of tests, other than the biopsy.  I have no details.  I know that I messed up there.... I don't even know where to go, now, to find a doctor who will help me.  I don't know where to find anyone who will help me at all.

10 hours ago, manasota said:

I am so impressed with you!  I thought you might just curse me out and not return to the site.  You are stronger than you know.  You have more options than you might realize.

Please keep in mind that my only goal here is to try to help you save your life--not to get you to like me.  I cannot imagine that you are happy or comfortable or relaxed living this way.  You are living beyond your means.  It's not your fault.  Society, media, everything seems to convince us we need more than we actually do need.  I assure you that, with planning and some adjustments, you can quit your job.  You can sell your house and your car.  You can rent and get a cheaper car.  It can be done.

I had the benefit of being born into a very poor family.  As a kid, we lived in a chicken coop in Michigan.  On a dirt floor.  With an oil stove.  The chickens were in a matching coop next door.  I knew how to live cheaply.  When I could no longer work, I sold my house and moved to a tiny apartment.  I gave up a very well-paying job that I worked many, many years to obtain.   My current car is a 1997 Honda.  It can be done.  You simply need to make choices about what exactly is more important to you.  You can take a job that pays much less.  You don't really need all the stuff society tells you that you do.  

Nothing is more important than your health.  Nothing.  Nothing.  Nothing.

YOU are what is most important.  YOU are worth it.

I already have a used car.... a 2008 Jeep Liberty.... my previous car was not paid off,... I owe too much to be able to fix that particular issue.

As for moving out of my own house --I have too many belongings in it.   There is no way I can transition easily.  Understand that my last 2 moves were major and it was (as always) me, all by myself moving everything that I was able to lift on my own.  There were movers for only the big furniture.   Also, my last move the movers stole things from me, -I have not recovered from that trauma..........

my best thought is  to move it all into a storage unit and walk away from everything else...... I don't know.  I can't really see a good way out of this.  I will just get sicker until I am unable to work at all, because my bosses don't believe that I am sick......."you look fine".  Not only that, I cannot find a doctor who will listen to me and test me for what I ask to be tested for.  

You want it capped off? today is another crappy day that was an ok day, but is now in the crapper.  I had to wait for someone else, before I could begin my evening, so there was 45 minutes of my time wasted, and on top of that (yes there's more)  - there was no hot water when I got in the hotel shower.  the water never got warm.  I had to dry off, get dressed, get a key to another hotel room -a block away, to take a shower.  I am just. plain. done.  If I had my way I would go home and curl up in a ball and stay there forever.

The thing is: I cannot just quit my job.  I have no savings. I have a mortgage, car payment, and other payments.  I really don't know what to do.   This job, it's like indentured servitude --I am not near home enough for job hunting, or for regular doctor appointments.  I know that I need to get out of this situation, because it is definitely no win.  My employer wants me well, but they really do not understand that taking a week off fixes absolutely nothing, and only stresses me out more.

I have made contact with one employment agency in person, and I plan to email another and see if we can get the ball rolling without me actually going into their office, at least for the next 3 weeks....... 

I had a run in with HR at work today.  The HR woman's son has gluten "sensitivity" or allergy or something, but NOT celiac disease.  She tried to tell me that I am being unreasonable!  I said that I cannot eat in restaurants because of cross contamination.  I walked out on her.

I sent her an email and explained that she really does not understand what I am talking about.  I am extremely distressed by this turn of events.   I have been having a lot of issues and I believe that my Celiac disease has gotten much worse in just the last month.  I am forced to travel for work and it's killing me --the stress, the restuarants, the poor nutrition because we change hotels daily and I cannot bring perishable food items with me.

I have real problems.  I was diagnosed with Celiac Disease by biopsy in 2011.  I have considered myself to be gluten free for over 4 years, with the unfortunate condition that I am forced to travel for work -almost constantly.  This makes it very difficult to maintain gluten free, when it becomes necessary to eat in restaurants or starve.  An additional complication is the hours I must work, which sometimes mean I am getting up at 3:00am and other times not going to bed until after 11:00pm.    Some of my symptoms have never truly improved, as I am still suffering from fatigue, which was only every moderately better, and is now extreme fatigue.  I have acid stomach, and frequently loose stools.  I started having hot flashes with great frequency about 7 months ago, and an additional symptom of being cold all the time.  Even during a hot flash I have learned that my body temperature is below 97 degrees, as it is nearly 24 hours a day.  My doctor seemed to be heading in a direction of discovery, but when blood tests came back "normal" he abandoned any exploration of my current symptoms and told me that I am depressed and he gave me an antidepressant, which I do not want and will not take. 

An additional symptom that is newer for me is a feeling of weakness.  one day last week I simply shut down almost entirely.  I just collapsed into a chair and stayed there for over an hour.  my boss took notice and I think that he was alarmed.  (I could not just go home, firstly because I was afraid to drive right then, and second because I am forced to travel for my job and I was not anywhere near home. This would also be a primary reason why I would not want to go to an emergency room.)  I have never lost weight from the celiac disease or from being gluten free, almost the opposite --I am hungry too much of the time, despite over-eating. 

I am not depressed, I am unhappy because there is still something wrong with me, but I cannot get any of my doctors to listen to me.

I am trying a different doctor tomorrow.  Losing hope fast.

Low body temperature?  Thyroid? any other ideas would be appreciated..... losing hope fast.

I have noticed more skin tags since my diagnosis of Celiac Disease and going gluten free.  A doctor has asked me if anyone in my family is diabetic, because "diabetics have skin tags and dark patches"..... my mother had the same --dark patches and skin tags but NO diabetes in the family.  I find the mention of insulin resistance and skin tags very interesting.  In addition I have started to crave sugar.... not sure what that means.....

I do not take meds for depression and I do not want to, or need to.  I have these downward spirals periodically, but not regularly enough to call for meds.  I know the reasons for the downward spiral, and there is not a whole lot I can do about it, except to let it come and this too shall pass.

I am all alone in the world.  No one cares about me.  My worst problem lately is the amount of travel for work and the huge difficulty of having a pleasing meal, that is warm food, and having that meal also be gluten free.  At home I have no problem, out on the road,... I am tired of eating flavorless crap,... it is very difficult to bring anything that requires refrigeration, because we check out of hotels and move every day,... there is no way to keep things cold enough all day long in a hot car.  I am not made of money.  Small towns don't have gluten free options.  I am over 50 and there are NO job options available to me --- no one wants to hire an old lady who they think will leave in a few years.  (I am going nowhere---I am flat broke, not a nickel to my name, where would I be going?)  

In a nutshell it is a fact that: life is a b%$@# and then you die. 

in addition to celiac disease I am now in menopause, so everything is totally out of whack.  currently my hair growth is not that great,.... it's even less on legs and under arms.  The hair on my head had been getting healthier - stronger, but due to a current relapse of symptoms it has become weak and unhealthy again as well.

A few nights ago I had a shocking episode of diarrhea,....  It was like passing gas, but I knew that it was more.  By the time I got to the toilet I had a small mess to dispose of....   that got me to think about all of the myriad symptoms I have had lately.  Symptoms that seem to be getting worse.  Is this more than Celiac disease?  what is happening..... It is sending me down that spiral to depression. 

All of the worst of my symptoms are returning,.... severe and extreme fatigue, acid stomach nausea, a shaky feeling, achy all over, headaches, flaking skin in specific areas (nose and eyebrows)..... I cannot tell if my stomach is asking for food or not.  I am on the verge of breaking down in tears. 

Top all of that off with new nonsense from my workplace.... I have been told that, during a specific week, our department is "forbidden" from making any kind of medical appointment, as that will be viewed as avoiding a specific job.  I am in the beginning stages of worsening symptoms, and have a doctor appointment next week which was to be the start of figuring out what my body is trying to tell me.

I am so upset, I don't know if I should eat something, or sleep, I don't know what to do..... 

My job involves a great deal of travel, and maintaining a gluten free diet is very difficult --- too often there is nothing I can eat that is nutritious and that tastes good to me.

I am really struggling to deal with everything.  I manage to do laundry and pay my bills, and somehow I work on the weekdays --I don't know how I do that, because I spend the weekends doing as little as possible due to exhaustion.  How I get through a work week is a mystery to me.... I must be on autopilot.  That can't be good.

Thank you for giving me a place to vent my frustration.

I wish that I could find a doctor who cared about figuring this out and actually helping me.

I was lethargic and spent my weekends sleeping --up to 18 hours of sleep a day, both Saturday and Sunday.  After being gluten free for over 18 months I finally noticed that I was sleeping much less.  Sorry to say, but some things just take longer than others, and we are all different,.... you have to stick with the diet and give your body time to realize that it can stop fighting everything all the time.

You are not stupid! You came here and asked your questions and laid out relevant explanations.... nothing stupid there....  

I have found that taking a vitamin B12 supplement helps clear that brain fog.  In fact, when I first started the B12 it was like someone lifted a curtain! No more brain fog!

Also, by the way, thank you!! For helping me to understand that I am NOT alone in this "laziness" --but IN FACT it may be part of the healing process of being gluten free (after being sick for my entire life until recently because I never knew I had celiac disease.).

I think Diane hit it when she said other intolerance's , after going Gluten free I found I had a corn intolerance and it made me bloat and gassy .... So you may want to do a food diary. 

I think that there are other food intolerances that are "hidden" by the Celiac or the gluten intolerance.  Like your body is working so hard to combat itself, in the case of Celiac disease, that it kind of fails to alert you to other problems.  For example, I never had an issues with citrus, then suddenly, after a year of being gluten free I was (and am) allergic to citrus!  I cannot have any citrus at all because the symptoms are like torture --burning, itching --no rash or eruptions, just terrible, terrible burning itching! 

I am starting to have sensitivities to other things now (2 years gluten free).....  I really cannot help believing that my body, fighting the celiac symptoms, was "masking" other intolerances, allergies, and issues.

And:  A food diary is an excellent idea!!  I kept a food diary for 7 years and it helped me to figure out a lot of things!!

This past November I was ill.  I had digestive system discomfort with severe nausea and I had dizzy spells.  I finally tracked down the one thing I had consumed that I did not use for many years prior to this event.....  chewing gum containing ASPARTAME.  

Aspartame is nasty stuff!!  I was so sick for so many days, accompanied with the dizzy spells, which become more severe as the days passed!!

I chewed gum on 3 separate occasions, and I spit it out after only an hour or so, but that was all it took!!  I was sick for the next 3 weeks.

I feel that many of these sensitivities and symptoms and issues may be heightened by being gluten free.  If you are gluten free your body can stop attacking itself because of the gluten and now it's attention becomes riveted to other things!!  Kind of like an unending nightmare.....

Anyway, BEWARE OF ARTIFICIAL SWEETENERS!!!

itching again..... winter, so predictable....  this time I think it has to do with perhaps one of the following:

sugar

corn products

dairy (I sure hope not)

tea? caffiene?

this morning I have had my supplements, things I have taken daily for year and years with no symptoms that I am aware of.

I have had water.  I was hungry, so I ate some sweet potato "pancakes" with butter and brown sugar.  

It appears that the itching is dissipating after 72 hours of suffering.....  so now I am not sure how to proceed.....  I will drink more water throughout the day, and see if the itching continues to go away.....   My current plan is to probably have some ground sirloin and rice for dinner, maybe with some cheese....

Please, God, please let the itching go away. please.

Hi all,

 

I was diagnosed with celiac on October 1st of this year, and have been gluten free ever since. I've de-glutened my home, and have only eaten out 3 times since my diagnoses (I don't think I was cc'd but you never know).

 

Anyway, I have a terrible problem with itchy skin. It's not DH, as there is nothing wrong with the area of skin that suddenly itches. It can pop up anywhere (and does): mostly my arms, legs, wrists, chest, sides, pretty much wherever I have skin except my scalp.

 

It comes on completely randomly - my routine doesn't change. I work from home, so I'm here 90% of the time. It can strike if I'm home, asleep or awake, out and about, doesn't matter. Like I said, there is nothing wrong with my skin when it starts to itch - no redness, rash, bumps, scrapes, sores, lumps, discolorations, scales, flakes, lesions or infections. Nada!

 

Sometimes the itch may start light, like something brushed my skin. I'll unconsciously itch or rub it. Apparently, the itch gets really mad when I do that and then explodes into an extremely painful, prickly itchy sensation. It feels like millions of tiny pinches. I try as hard as I can not to scratch it, but if I don't, the painful prickles become so bad I involuntarily jerk whatever appendage is itching.

 

Once it was so bad and in so many places at once it woke me up and after trying slathering on thick moisturizer all over, I was forced to shower and scrub head to toe with a loofah.

 

I've tried anti itch creams, I use Cetaphil Moisturizer Cream, and I lotion up every time I get out of the shower. I tried icing the area. Sometimes I slap the area really hard for very temporary relief.  I only have Benedryl Allergy in my medicine cabinet, but have used that as a last resort.

 

This is driving me CRAZY!! I can't take it anymore. I've been gluten-free for 12 weeks now, it can't still be the gluten...can it?

 

Anyone else experience this? Any suggestions or advice before I scratch myself down to the bone?

At last! I am NOT ALONE.  I have these exact symptoms you describe, tonalynn.  Drives me insane!!  no one understands or believes me.

I was diagnosed with Celiac Disease in November 2011.  I have been 99% gluten free for 2 years.  1 year ago I had the itching, but it turned out that I now have a citrus allergy, so eliminating citrus made the itching go away.  But now the itching is back and it's making me crazy.  

I don't know whether to call a doctor, or which doctor to call!!!  Allergist? Gastroenterologist? GP?  will one doc refer me back to one of the others...... is it worth even trying to call a doctor in the first place!  What else am I allergic to now!  they are slowly taking all foods I love away from me,.....   I worry that I may have liver disease, but there is no problem detected with standard blood work.

It's so bad that I want to just go outside in the cold (it's about 4 degrees Fahrenheit here) because it feels like the cold would make the itching stop, but the cold hurts so much too......

Today I have not eaten anything so far.  I did take my morning supplements, which I have taken for years and all are gluten free.  I am pondering not eating anything today, but my stomach is growling, and I have no will power when it comes to sitting around and not eating.....   

Questions in my mind today:  is it sugar?  I consumed very little sugar yesterday and still itch.   Caffiene? maybe. I had coffee yesterday.  Now I am afraid to even drink tea.  I have had no citrus, that is for sure!  

I sympathize with you!  I understand completely, what you have described!  YOU ARE NOT ALONE!!  and you are not crazy.

crazy, burning and itching, won't go away, no matter what, and there is not any kind of skin eruption or rash or anything to see..... not anemic, liver panel fine, no other blood work reveals anything wrong,........ this has been my life in the winter for so many years.

Well, I finally saw the allergist. After I told him what I like to eat and what I had already known I was allergic to he tested me for things I like to eat. And he also tested me for the things I already knew I was allergic to. (I wonder what that will cost me...)

Apparently I have sensitivity to eggs and nuts. Two things that never seem to have bothered me --ever, at all. So I am more unhappy

now that I know this!

Here I was, happy that I could at least eat eggs and nuts. Now I have to avoid them, at least for a few weeks.

When I see the allergist again I am going to ask about this. The sensitivity to eggs and nuts was at the 'low' end of their scale for sensitivity, so I want more information! I have always (ALWAYS) gotten a flu shot, every year since I was 18 and now I am suddenly sensitive to eggs! what is up with that!

Meanwhile, I still itch, but there are not any breakouts, no hives, nothing to see. Just some burning itching.... of course it is worse because I had to stop taking the antihistamine because I have a bad head cold and I really need drainage to happen.

So, I am stuck between a rock and a hard place, rubbing instead of scratching, and trying not to lose my mind... trapped indoors all winter long.....

In years past I have had horrible itching primarily on my legs. There was never anything to see, no rash, nothing. The doctors were always kind of puzzled. They would say "dry skin" --but upon examination it was not dry skin either. There never seemed to be an answer.

I did a lot of hunting for reasons, looked up a lot of things on the Internet, looking for clues or hints of what to do.

Once I found out that itching is one of many symptoms that can be related to hypo-glycemia. That led to me learning that I was ingesting an awful lot of sugar from many sources in my diet. I immediately cut back on anything with sugar listed as an ingredient. I did not use much sugar other than whatever sugar was an ingredient in some food item. Initially cutting back on sugar really did help with the itching. I got through an entire winter with less itching as a result. However this did not carry on into the next winter --despite decreased sugar intake the itching was back.

I struggled with the itching for a few more years and then decided that maybe it had something to do with wheat. I no longer recall what kind of article or website I read that led me to this decision. Anyway, what I did next was to try a 'rotation diet' --I cut out all breads and pastas for 3 or 4 days in a row --the itching went away after about 3 days. So, at that time I thought a rotation style diet was the answer and that worked for me for a couple of years.

Then I had the colonoscopy (and endoscopy) and they took the biopsy. I got the call from the gastroenterologists office about 5 days later telling me that I had sprue and then that it meant celiac disease. It was what I was afraid of and at the same time I was not at all surprised --because of that rotation diet!

Anyway, after over 20 years of rather obvious symptoms I had nearly diagnosed myself.

All that time I was afraid of having something like celiac disease, but all that time I was gradually modifying my diet too. That I why I have said that going gluten-free was not so bad. It was not that difficult for me, because I had already eliminated so many things from my diet --things that made me not feel good. But I also look at the diagnosis as a kind of a "gift" because I had a lifelong love of pasta and now I can eat rice pasta and corn pasta, and I have eaten more pasta (both rice and corn) since going gluten free than I had eaten in the 4 or 5 years before being diagnosed. (I am gluten free since January 1, 2012, by the way.)

So, that is one part of my story of my journey to the diagnosis and to a more gluten-free lifestyle and to feeling so much better.

There's a lot more --other parts of the story for me, going back at least 33 years and maybe an entire lifetime.

(I had the colonoscopy because I had reached that age when they recommend having it done -50).

I would like to suggest that maybe you should not drink soda, or anything else, out of aluminum cans. While your problems may well stem from the soda pop ingredients, they might also be connected to that aluminum can.

Long ago I found that I did not like the flavor of soda pop out of a can, but if it came out of a glass or plastic bottle the flavor seemed better to me.

The same with symptoms, some symptoms that occur when drinking liquids from a can did not occur when drinking the same brands of liquid from a glass or plastic container.

I was given a prescription of Mometasone Furoate Cream 0.1%. That helped a great deal. After 2 weeks the skin in the affected areas is still pinker than the surrounding skin, but no more itch after the second day's application. I was also advised to take an antihistamine, and have been doing that also.

I have an appointment with a dermatologist, later in January.

This started as severe itching on my stomach, above the belly button. Then it switched to the lower legs, not exactly 'symmetrical', but my lower legs are where the red 'rash' appeared and both legs are still very pink, but not itching at all at this time.

The only medications I take are for asthma, I am not on any kind of cholesterol meds, no thyroid problems at all (ever), no diabetes, the only conditions I am aware of as of this writing are the asthma and the celiac disease.

Okay, I saw the nurse practitioner, but by that time, with legs itching also, it was showing up as a serious rash and it is eczema.... but it had to manifest the rash-like red areas for that to be apparent. at first it was just a mild rash on my belly, but that cleared up as the legs (mostly below the knee on the back of the calf) began to itch.

The only medications I take are asthma meds. I have no other conditions that require prescription medicine.

I take a variety of vitamin supplements, all labelled as gluten-free.

I have an appointment to see a dermatologist in a couple of weeks.

The nurse practitioner prescribed (a corticosteroid) mometasone furoate cream, which (naturally) has a positively horrifying list of adverse reactions, not to mention ingredients that give me pause.... but I am giving it a try, having applied the second dose (one application a day). My legs still itch, but I have discovered that gently rubbing them makes them feel better for a few minutes at a time.

But I am trying to not touch the affected area too much.

I have found all of your replies interesting and somewhat helpful.... thank you all. I will return with more information as the condition changes.

I do have what appears to be a rash. I cannot figure out why though.

it itches all the time and nothing relieves it. nothing.

I have tried lotion, scrubbing, baby oil, anti-itch cream,..... nothing changes this at all.

I have been keeping track of what I eat (and drink), but since I have taken all new

foods out of the diet there has been no change. I am now going on the assumption

that the itching is not caused by anything I consume.

The only thing on my mind is shingles. I did have chicken pox as a child.

the only pictures I find of shingles look absolutely ghastly and nothing like what

my skin looks like right now.

I am wearing a t-shirt and I scratch the shirt -NOT the bare skin. However, scratch

or not it just itches all the time!!

I see a nurse practitioner on Wednesday. not soon enough for me!

I could 'buy' allergic to the cold, but I don't believe that to be my problem. Although wearing more layers of clothing to keep warm enough may have a little to do with this, in my opinion.

As for allergic to water --lord only knows what may be in the water!! any place and every place. Where I live the water that comes out of the faucets has been through the water "treatment" processing plant of the community and it sometimes smells like chlorine to me.... so

allergic to water can open a huge "can of worms".

I do not take (or need) thyroid medication, and I don't think this itching is caused by iodine.

As of this morning I would say that I do now have what may be a rash. It is still tough to even know if it is a rash because I have been rubbing the itching area (a lot) rather than scratching it. It is still driving me to distraction.

I do appreciate the input folks. Any other ideas?

I know of 2 things that I have eaten since Tuesday that are things I have not eaten in a long time....

One is fudge, I ate some chocolate fudge on Wednesday.

The other is beans,... kidney beans and black beans, which are in some chili I made, along with a can of Rotel mild.

So, I am aware that one of these, very likely the beans may be the cause of the itching -- I ate some chili on

Wednesday evening and had it for lunch on Thursday. I am now avoiding eating the chili --and it's wait and see from here....

I have an appointment with the nurse practioner at my doctor's office, but not until next Wednesday.....

So, yes, wait and see...what happens with the itching in the meanwhile.... and also paying close attention to any

other symptoms that may crop up or get worse. (I can still go to a walk-in clinic...)

One of the main reasons I was not that surprised when I was diagnosed (via biopsy) with Celiac Disease is that one of my worst symptoms was itchy skin. This was primarily in the winter, and there is never any sign of a skin ailment, other than the marks I leave from scratching that burning, itchy skin.

No dry skin --believe me, I have tried lotions and ointments and antihistamines....

There is absolutely no sign of any skin rash or blisters or anything!! But I itch and it feels like it's on fire.

This is happening right now and has been going on for 48 hours at this point.

I do not know whether to call the gastroenterologist or the regular physician.

It's driving me crazy! Is this part of the celiac disease?

Have I been gluten-ed and not realized it?

One day I will introduce myself with my story but am really finding concentrating difficult and my head is so sore and every time I move my head the room and everything spins... this dizziness is how I finally found what's wrong with me.

I have had severe weakness over the last few months (neuro symptoms for years before but the past few months have felt like I'm dying)...

Anyway i guess what I'd like to know is can celiac really make me feel this weak and this dizzy... I am too stiff to walk far and very scared!

I haven't eaten gluten for this is my 3rd day and now I have cut cheese and dairy and eggs out as I feel a reaction

I am hoping I can make the doctor tomorrow... What tests should I ask for?

I wish doctors had thought this might be the trouble before - now I feel I am allergic to everything!! What do I eat?.... Am cutting out gluten, dairy, eggs & corn...

Just don't know what to eat and am too weak to go to the shops

This is a living nightmare!

Thanks xxxxxxxxx

Keep coming back here, to the Forum! You will find that the folks here are very supportive and more than willing to answer your questions.

Don't be scared!! Try to be positive -- you can get better, especially now that you know to try dietary modifications. It is scary to wonder what you are going to eat to survive, but there are alternatives, and some of them are more delicious than the foods you can no longer have.

I will be thinking good thoughts for you Cazzzzzy!