NHyogagirl

Hi Bev,

I found another gentlemen that does support groups and am trying to set up a support meeting with him & others. If you can e-mail me your contact info that would be helpful.

Thanks,

Trish

peacefuleating@yahoo.com

Hello all,

I've been a member now for 8 months, joined when my daughter had 14" of intestine removed for a bowel obstuction on New Year's Eve. Now she can't eat a trace of gluten. She never really was supposed to eat it, by process of elimination diet, but as a pre-teen, she cheated. I've gone 100% gluten-free also sine 1/1/12 and feel much better than I did, more energy, lost 7 lbs, eat more healthy and organic foods, etc.

Anyway, I won't ramble any longer...I wanted to start a support group in Southern NH and wondering if anyone else is interested? I'm also going to start a consulting nutrition business for people that are gluten-free and newly diagnosed or don't know how to eat or cook properly. I have my degrees in Business and a BS in Natural Health.

Any thoughts or suggestions would be appreciated!

Best,

Trish

My daughter just had 14" of her intestines removed and I swear it is Celiac. Her surgeon says "no such thing". But another doc in hospital that is Integrative that trained under Andrew Weil said there are SO MANY FALSE negatives and people keep going on eating gluten and continuing to damage their intestines.

I can't get my daughter diagnosed since we have to go on gluten for 2 months and she absolutely can't do that. Just yesterday she had a reaction to seasoning on shrimp in a restaurant and was home sick all day with D and nausea.

Anyway, just wanted to post my thoughts about "false negatives" - my daughter will never get a diagnosis but we know for sure she can never eat gluten again.

Could there be gluten in something you are eating? Maybe spices, cheese, chocolates, etc?

Wow, that is too bad about the microwave! Can you cover the food before you nuke it? I usually cover with a paper towel.

Thank you for the info on sensitivity.

Hello,

Gave my 12 year old daughter ceviche yesterday. She has been 100% gluten-free since intestinal surgery on 1/1/12. Last night pain started in her belly, then nausea, then diarrhea from 3:00 on to 10:00 this morning. She is home from school "sick" again.

I know there is a lot on this forum about being "glutened" - so I called the restaurant and asked. (never thought ceviche would have gluten!) - anyway, they said there is gluten in the seasoning they used.

My question is could that small amount of gluten give her all these symptoms? I'm still trying to learn what works best for her, poor thing. She said "mom, all I want is to feel well".

Also she was in school all day yesterday with gas pains (before eating the ceviche). This was due I believe to eating Baby Bell cheese.

Thanks for any input.

From,

A confused, guilty, and overwhelmed mother

What about popcorn? My 12 year daughter old can't eat gluten due to a bowel obstruction (intussusception) surgery on New Year's Eve.

She was at a friends last night and I sent her with gluten-free snacks and she ate them all and called me to ask if she could have popcorn. For some reason my intuition said no.

Has anyone on here had any issues with digesting this after recently going completely gluten-free and/or after this type of surgery?

What shampoo do you use?

Thank you everyone for your replies and advice.

The doctors don

My daughter's Integrative doc (trained under Andrew Weil) said many many people including kids get back a FALSE negative. Glad you are taking this into your hands to start her gluten-free.

Hi,

I just joined this group today also. I posted about my 12 year old daughter and all her gluten battles including surgery on her intestines.

She had been cheating and caused her to have intussusception (bowel obstruction). Tell him if he cheats it is doing him more harm than he realizes inside his intestines. We can't see inflammatory damage.

My 14 yr old son should be eating better foods. He was allergic to wheat, eggs, and every other thing when he was younger and outgrew a lot of it. But now he is having intestinal problems - running to the bathroom with urgency after eating certain foods, primarily greasy foods. (even if made with olive oil) I just had a blood test for him with a celiac panel. Seems boys are even worse than girls with complying with the diet. It is a full time job but just keep educating him about the disease and the harm it can do if he cheats "even a little bit".

I agree with the other post - shut off the lunch account. That's one less worry. Not to say there won't be more (like if he goes to a friends house.

Hello everyone,

I just joined this group today. My 12 year old daughter went into the hospital on New Year's Eve for 6 days for surgery due to Intussusception. She had to have 12" of her large intestine removed, 4" of small intestine, appendix, and ileocecal valve. She was out of school for almost 3 weeks and has a 7" scar across her belly. I fell horrible this happened, since she had been vomiting for 3 days prior and I thought it was the stomach bug going around. Well, it was life threatening and we got to the hospital just in time. She has been on a gluten-free diet since 6 when she passed out in nurses office, Ferritin was a 6 and her celiac antibodies were high on her bloodwork. Her belly always used to hurt her. Her GI put her on a stool softner for 6 months! I said Heck no, and put her on a gluten-free diet immediately. Within one day she got better.

As a pre-teen she cheats quite frequently and usually has severe gas pains a day or two later. Not always, so because of this she did not know the gluten was doing all this damage. Anyway, 2 days before this last intussusception she had regular pizza at a friends house! Her mother knew she was gluten-free but obvioiusly it didn't concern her. I'm convinced this is part of what caused this surgery, along with a stomach polp found in her intestine during the pathology analysis.

She has to go back in for a cat-scan in Feb to check for more polps, but the doc can't test her for celiac since she has been primarily gluten-free and would have to go back on gluten for 2 months! She can't do this, so we are making our own diagnosis. I'm going gluten-free too since I have hypothyroid, always exhausted, and have had severe hair loss for 10 years. Guess it manifests itself in different ways. Just had my 14 year old son's bloodwork done this past Thursday for a celiac panel. Her new GI doc said if he has it good chance she does too. (altho the pathology report said it did not "appear" she had celiac)

If anyone has any thoughts or comments on this we would appreciate it. It seems this is an epidemic.

Thank you.