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  1. Hi all, wanted to give an update about my ear and neuro problems. I still have only completed part of the VNG test, because apparently I have a lot of earwax, which interferes with the last portion of the test. I am a diligent Q-tip user, which is probably why I have this problem in the first place, but I have tried cleaning my ears 4 times with hydrogen peroxide and still could not complete the test when I went back to the neuro's office for a second attempt today. Pretty embarrassing, but maybe it provides a clue as to why I am having some problems.

    Of greater importance, though, is that in the meantime I had my MRI and just got the results today. The results were communicated to me by the receptionist, and she said "The doctor says they're normal". What a relief, right? Not so fast. Then I asked for a copy of the results, and my relief was quickly replaced with confusion as I saw that I have a posterior fossa arachnoid cyst that is approximately a 2"x1"x1" oval. My neuro, who I had just seen once, is unfortunately now on maternity leave (good for her; bad for me), so I am reliant on the attending physicians and feel like I'm slipping through the cracks a little, as realistically I should have received these results several days ago.

    When I got home, I did a little research online and read horror stories of people requiring brain surgery and shunts for this condition. Many people pointed to symptoms such as dizziness and vertigo. Not wanting to make myself sick with worry, I called back the doctor's office and asked to speak with a doctor to find out a little more context. (Is it big/small/common/rare? Do I need to monitor it and get another MRI at some point? etc...) The person I spoke with called me back a few minutes later and said that the doctor said that the cyst is not consistent with my neuro symptoms, to wait until I get my VNG and EEG results and then to schedule a follow-up appointment.

    I did a search on here and have seen some older questions regarding a possible relationship between celiac and this type of cyst. Does anyone know anything about this?

  2. Hi Alikae,

    I can't interpret the results for you, but your doctor *should* be able to walk through them with you. (It's a nice test of your doctor, actually.)

    Also, if you had it done by Quest Labs, they should be able to provide you with a sample report, which is helpful in explaining the various outcomes. I am waiting for my genetic test results from Quest, and I found the sample report on their website a few weeks ago. Unfortunately, I couldn't find it when I searched a few minutes ago, but I'm sure I probably just missed it. Hope this helps!

  3. Sorry for the double post, but I wanted to mention that after emailing my neurologist about my symptoms, she had someone from the office call and schedule me for a Videonystagmogram (VNG). It evaluates dizziness and vertigo. Thankfully I go in first thing on Monday morning. The test takes about two hours - yikes. Anyone have any experience with it? I wear contacts, and apparently I can't wear them during the test, which is a little frustrating. Anyway, wanted to mention this update...

  4. Hi all,

    I've previously posted about my negative blood panel and biopsy, but my doctors have told me I am definitely gluten sensitive and to go gluten-free for now. My gluten symptoms are both digestive and neurological, but for their respective spectrums of severity, my neurological symptoms are worse than my digestive symptoms. I am also waiting for my genetic test results and have an MRI and EEG scheduled in the next two weeks.

    I've been gluten-free for almost exactly a month now, and while my digestive system seems to be normalizing pretty rapidly, my neurological and some other physical symptoms are lingering, and at times they are worse. Also, they are a bit more varied. For example, I've had an ear ache off and on for the last several months (which I generally ignored due to all the gluten stuff going on), but then this week I had an intensifying of ear pressure and ringing in my ears. I've also been getting very dizzy sitting at my desk - a different type of dizzy that I believe may be a kind of vertigo. My eyes feel kind of "flashy" - they feel like they're moving more rapidly, and everything around where my eyes are focused feel like they're moving a bit. Like my eyes aren't grounded or steady in the way they usually are. These symptoms are really anxiety provoking because they interfere with my concentration and create a different kind of brain fog. Also, I've had a recurring stiffness in my neck as well as neck and shoulder aches and head pains that are more dull and smaller in area. I've also had greater sensory sensitivity - feeling overstimulated more readily, blurring of my vision at times and really vivid dreams and night sweats on a few occasions.

    Not to lead the responses, but could these symptoms be from gluten withdrawal? I have experienced them ever since the week of my biopsy, which was preceded by a moderate gluten challenge. It's odd, though, that some (the ear pressure, dizziness/eye issues and head pain) have intensified just this week.

    I have also done some reading about TMJ/TMD, Eustachian Tube Dysfunction and Labyrinthitis. That was on a migraines board, and some also mentioned personal experiences being diagnosed with silent migraines, which I had never heard of. Any thoughts on these? My jaw has hurt on occasion but not in the last few weeks. Also, my balance is actually pretty good the vast majority of the time. I do get lightheaded pretty easily and get dizzy when I have to turn my head to talk to someone behind me.

    Thanks very much for your input. (Also, I hope I posted this on the correct board! To me this is about as pre-diagnosis as you get, sadly.)

  5. Hello everyone, I am trying to diagnose if I am gluten sensitive. So far my GP hasn't been involved, because I don't have concrete evidence to go with and would like to complete elimination diet on my own first. I am very hesitant about asking for blood tests, but have already had thyroid panel done and I do have thyroid antibodies and need have it checked once a year. So some autoimmune activity going on. I have noticed my tummy activity decreasing, having to go to the toilet 5-6 times a day, frequent diarrhoea, weight gain, depression, low energy, headaches etc. So I decided to go gluten free for 2 weeks, couldn't last that long and went off it a week later and have been having the worst time. Runny tummy, stomach aches... few days before that my housemate had the same symptoms, I think he might have had a stomach bug. Maybe i got it too? So fat I've been grain free for 3 days now, it's getting slightly better, but I also started taking probiotics yesterday as diarrhoea was driving me insane. It helped a lot. So now I'm not sure how to continue, go grain free for 30 days and start introducing them one by one to see how I react, or just start having wheat right away? I have trouble imagining going 30 days without gluten, as I also struggle with weight and am what you'd call addicted to food. I already started dreaming of sausages, and pizzas and everything I can't eat. Please, any advice or support will be appreciated.

    P.S. Even though undiagnosed, my grandma is suffering from what is a serious gluten sensitivity, the reason's it's not diagnosed is her doctor never heard of it and I am the only person who told her she might have it a few weeks back. My sister went gluten free and has very big digestion improvements. Trying to educate my parents as well, as dad has metabolic syndrome.

    Welcome to the board. I'm sorry you aren't feeling well, and this stage can be really overwhelming, especially since you don't feel like your usual self. Rather than doing a very strict elimination diet, one suggestion would be to start a food journal and monitor how you feel after meals. (Keep in mind that there will likely be a bit of variation in how quickly you respond to disagreeable foods, so try to identify trends rather than reading too much into how you feel directly after each meal.) After about 30 days, you should be able to identify whether gluten or other foods make you feel bad.

    As for your food addiction, I know that must add another layer of stress to this. However, my advice would be to try to step back, take the focus off food and shift the focus to your body's wellness. Ultimately, it's not worth it to think about the foods you can't eat...you won't feel as deprived if you focus on properly nourishing your body. When you prioritize nutritious foods in balanced quantities, the imbalances and junk fall by the wayside. Also, try to focus on the healing power of food rather than your emotional connection to it.

    Hope this helps. Best of luck!

  6. Good afternoon,

    I'm brand new to the board - so I apologize for any "obvious" questions. My husband has been suffering from symptoms that I thought could be related to some form of a gluten intolerance, so I had him ask for a blood test from his doctor. They called back and said he's "fine" and gave us two numbers - 8.3 and 289. I have no idea what these numbers mean and can't find anywhere to tell me. Is there anyone on these boards that can help me determine if his digestive troubles truly have nothing to do with gluten and we should be looking elsewhere? Are there other tests we should be requesting? Thanks for any help you can offer!

    Hi dancergirlmom,

    Welcome to the board. I am a newbie too, but since I've been immersed in the diagnosis process, I can offer some basic guidance. First, you absolutely must get a copy of your husband's lab results. Post them on the forum along with the reference ranges, and there are members who can help you interpret them.

    Second, here is a list of what should be checked for blood test-wise:

    Anti-gliadin (AGA) IgA

    Anti-gliadin (AGA) IgG

    Anto-Endomysial (EMA) IgA

    Anti-Tissue Transglutaminase (tTG) IgA

    Deamidated Gliadin Peptide (DGP) IgA and IgG

    Total serum (IgA)

    From what I have seen, it appears that the EMA IgA involves a more sophisticated test of the antibodies, but I'm sure some of the experts in the group can correct me/offer additional insight. You should be able to check your husband's lab results against this list to determine how thorough they are. (However, since you only quoted two numbers, it seems clear that some additional testing may be in order.)

    Hope this helps!

  7. Hi all,

    After getting a negative biopsy but mixed blood test results, I want to move forward with the genetic testing. (I'm hoping to find that i don't have the genes and can comfortably proceed with a NCGI label.)

    However, I've seen some discussion about different genes being considered by different countries...I'm in the US and am seeing my doctor tomorrow. Does anyone have any advice about the specific test to request, including any specific genes and/or testing processes and/or companies/labs?

    Also, I would like to be tested for nutrient deficiencies; which nutrients should be tested? My magnesium and B12 were normal several weeks ago, but I want a more comprehensive check.

    Thank you so much!

    Well, I was really in a pinch when I posted this but was able to do some additional research that I wanted to share. In fact, it came from celiac.com, so it was my oversight!

    The information was under Ten Facts about Celiac Disease Genetic Testing (link is here: https://www.celiac.com/articles/21567/1/Ten-Facts-About-Celiac-Disease-Genetic-Testing/Page1.html)

    "The absence of any portion of the high-risk genetic patterns DQ2 and DQ8 nearly excludes the possibility of celiac disease with an approximate accuracy of 99.9%. However, there is a big caveat about relying on "negative celiac genetic testing". To definitively declare you have negative celiac genetic tests requires that the laboratory test for and report the presence or absence of the entire HLA DQ genetic pattern, including both alpha and beta subunits. The DQ genetic patterns DQ2 and DQ8 have two subunits but some laboratories only test for the beta subunit. This DQ typing is complicated and difficult to understand even by physicians and scientists. I have written an updated detailed review that appears in the Spring 2008 issue of Scott-Free newsletter published by celiac.com."

    So what I took from that is that I should request the genetic testing, which I did today during my appointment, and to help ensure a credible lab result, it's critical to ask that the lab test for both the alpha and beta subunits...to confirm the presence or absence of the entire HLA DQ genetic pattern. If the lab can't do that, then ask your doctor to find a lab that can. If there are other genes that others on here are aware of, please fill me in. I will continue my research and will append this posting if I find something of interest to others.

    Also, for those who have been assisting me with my diagnosis process (@ravenwoodglass, @skylark, @rosetapper and several others), I wanted to update you that today I had blood drawn for: total IgA serum, anti-endomysial (EMA) IgA and Vitamin D. I hope to determine whether I have an IgA deficiency. Also, I don't expect my EMA IgA test to be meaningful since I am now gluten-free, but since I only had anti-gliadin IgA tested before, it's more a point of curiosity. Plus, between eating some gluten pre-biopsy, and eating out way too much to successfully avoid all gluten, it is a half-hearted attempt to double-check my blood test.

    My doctor was surprisingly receptive to doing the genetic testing and is going to code it so that my insurance understands it is important to evaluate (and will therefore cover it). She's also going to test me for SIBO (at my request). She mentioned that it is key to have a credible clinic/hospital perform the SIBO breath test because the results are subject to rampant diagnosis errors...interesting tidbit.

  8. Hi all,

    After getting a negative biopsy but mixed blood test results, I want to move forward with the genetic testing. (I'm hoping to find that i don't have the genes and can comfortably proceed with a NCGI label.)

    However, I've seen some discussion about different genes being considered by different countries...I'm in the US and am seeing my doctor tomorrow. Does anyone have any advice about the specific test to request, including any specific genes and/or testing processes and/or companies/labs?

    Also, I would like to be tested for nutrient deficiencies; which nutrients should be tested? My magnesium and B12 were normal several weeks ago, but I want a more comprehensive check.

    Thank you so much!

  9. I would personally be very skeptical about the validity of all your test results because you were not eating enough gluten to make them valid. Also, the fact that they did not do the total serum IgA. It is significant the your DGP IgG was significantly higher than your IgGA, but you did not give us the range the labe used in calling that result negative.

    You have no doubt read on here that the recommended gluten cosumption is three to four slices of bread daily for an adult for at least 2-3 months sbefore either blood or biopsy testing. Nora takes it even further and mesures out how many grams of gluten you should take for your particular body weight. IMHO, the "challelnge" you did prior to oyour biopsy (for one week!) did not accomplish much, if anything. Instead of being gluten 'heavy' before testing for two months, you were gluten "light'.

    I think you should just give the diet a strict trial for three months and see how you go.

    As for the neurological symptoms, yes, I would think they would be definitely related to the little bit of gluten you were consuming for a week. The feeling drunk sensation may well be gluten ataxia, and the weakness, fatigue , anxiety, depression and brain fog are all classic neurological symptoms of gluten sensitivity. If you are not celiac (and that has not been ruled out) you are at the very least gluten sensitive. .

    Thanks very much, Mushroom. I hadn't read the 3-4 slices of bread on here, but then again, I was a little surprised when my doctor said that I could eat just a slice of bread a day...I am pretty small, so I didn't know what would be appropriate. Of course, at the time, a slice of bread felt like an enormous quantity, so I was extremely conflicted about things, especially since some folks have talked about permanent damage from the challenge itself.

    In addition to going to the neurologist and sticking with a strictly gluten-free diet, I have been contemplating the following action plan:

    - getting total IgA tested, which should not ever change, right?

    - try to have zonulin levels checked (but is this commercially available? i am near dr. fasano's celiac clinic, so perhaps they could test it??)

    - doing the genetic test

    - testing the igG and igE of other foods, (and igE for gluten)

    - doing enterolab stool test

    - getting screened for SIBO since it seems like an easy test

    Alternatively, I've also wondered if this could be non-celiac intestinal permeability, because this was all preceded by two years of full-time grad school and full-time work...I've wondered about the effect of all that stress on the general health of my digestive system. I was thinking about going strictly gluten-free for about six months, focusing on healing my gut, and then trying to reintroduce gluten to see what happens.

    What do you think?

  10. Kelly, in my opinion you should attempt the gluten-free diet for at least a month, keeping a food journal, and see how you feel. Then reintroduce gluten and compare. I would also evaluate the amount of caffeine and water you're drinking and consider taking probiotics and an Omega-3supplement.

    Some of what you've described could very well be as a result of high gluten sensitivity, and since you've already gone through the testing, it seems like your next best option is to attempt the diet. I know it is intimidating, but there are so many naturally gluten-free dishes out there, and just think of how therapeutic it could be for your system. Being married, having kids and working full-time certainly make the situation a bit more complicated, but I hope you have your family's support, and you will be more productive and have more to give if you are feeling better! As for cost, look at ethnic cuisines such as Mexican, Indian and stir-fries (just make sure you use a gluten-free stir-fry sauce). Also, rice and potatoes are still on the menu...just watch the glycemic index of the foods you eat to make sure things stay balanced.

    Hope this helps. Good luck! You can get to the bottom of this!

  11. Well, I finally got my biopsy results today, and they are negative. So, now I need to decide if I believe them!

    Here is where I've been...(I am so sorry for the lengthy post, but I just want to make sure I'm including the important points.)

    - had an appendicitis scare in late July but appendicitis was eventually ruled out, and i was put on a full liquid diet for 3 weeks; I got terrible guidance, so I was eating anything that I didn't have to chew, including hot oat bran cereal, which made me really bloated; I began keeping a food and lifestyle journal as I resumed my normal diet, and I pinpointed gluten as a possible culprit...by then it was early November.

    - gluten light from around the beginning of November until I had my blood test the first week of January, so that was about two months off gluten except for incidental exposure and a few crackers here and there

    - blood results were:

    tTG Ab, IgA: 4.9

    Gliadin Peptide Ab, IgG: 72.5

    Gliadin Peptide Ab, IgA: 2.3

    Note that they didn't test my total IgA, so I have no idea if I have a deficiency.

    - stayed extremely gluten light until about a week before the biopsy.

    - the week before the biopsy, reintroduced gluten during a moderate version of the gluten challenge; basically, I ate equivalent of a piece of bread each day, a little more in the days just preceding the biopsy. by the time the biopsy arrived, my stomach was terribly bloated, I was having neurological symptoms and felt depressed and very fatigued.

    - biopsy results indicate no parasites, no celiac sprue but DO indicate mild, patchy gastritis...they further tested for atrophy, metaplasia or dysplasia (all negative) and no Helicobacter were identified (which I take to mean I don't have H. Pylori?).

    The results also state that they "the classic changes of untreated celiac sprue and the more recently described early or mild changes of untreated celiac sprue are not identified." Before the biopsy, I talked to my doctor about whether the gluten-light diet would undermine the results, but she said the lab could look for early signs of celiac...so I take this last note as a positive sign that they did in fact look for early signs.

    Complicating things a bit is the fact that, since the biopsy, I'm unsure of how to interpret my "recovery". Over the course of the last week, I've been feeling very weird neurological symptoms that I have never experienced before. For example, I've had a slightly drunk feeling/feeling of taking OTC cold medicine at times, and also a random weakening of my grip in my left hand. Not at a particular time of day, not during a particular activity, just a sudden weakness accompanied by fatigue. I've also been incredibly anxious. I did experience quite a few mental/neurological symptoms when I previously ate gluten -- anxiety, depressed mood and really bad brain fog -- but I haven't had neurological symptoms that were also so physically manifested before...

    I apologize for such an incredibly lengthy post, but does anyone have any general thoughts about the accuracy of my blood and biopsy results? Also, what do you make of my neurological symptoms? Do they seem like a result of my gluten challenge, or does it sound like something else (like carpal tunnel)? I saw my GP about the neuro symptoms last week, and she said I should see a neurologist after I got my results...Of course, my concern is that there is something else undiagnosed, and I know I can't rely solely on neurologists...so I really appreciate any thoughts you may have on my results or these latest symptoms.


  12. I had my endoscopy last Monday, so it is nice and fresh in my mind. I, too, was quite anxious. I think the stress of the gluten uncertainty made me feel more unlucky/superstitious, so I was afraid that the risks would somehow become reality for me. And then I was beating myself up for being scared - I hate feeling wussy.

    Anyway, that tells you that I was very nervous, so hopefully it will be a relief to hear that it was not a big deal at all. I did get faint when they put in the IV -- low blood pressure is in my family -- so they had to monitor that for a few minutes before administering the anesthesia, but that was the only mildly irregular aspect. My experience was very similar to that of Avalon. However, I was asleep for the entire thing and did not feel anything. When it was done, I woke up in a recovery room with the sectioned off beds, and then it was just a few minutes before I was up to get on my dopey way...

    After what you've gone through, this will be a breeze. Good luck! You will be fine!!

  13. Hello,

    I'm still waiting for my biopsy results...and I'm trying to eat strictly gluten-free, but I've eaten out the last two nights, and though I have done my best to order my food gluten-free and without contamination, I woke up yesterday with a finger rash that further intensified last night. This is a rash that I had for several months right before I pinpointed gluten as an issue, and then it steadily went away entirely when I went gluten-light.

    So now I'm wondering if I accidentally got glutened. Also, does this look like DH? The pictures aren't the best, but the bumps are raised and rather like hard pimples. If it doesn't resemble DH, does it look like an allergic response?

    I just finished my gluten challenge less than a week ago, so could this actually be a delayed reaction to that gluten as it makes its way out of my system? I felt like I had done such a good job ordering my food the last two nights, but alas, this could be gluten-free-newbie naivete since so much is outside of my control at a restaurant.

    Thank you for checking out these pictures and sharing your thoughts! (P.S. The photos exaggerate the redness a bit, so they are not quite that red in person.)



  14. I'm sorry that I can't help with all of your questions, but my understanding of IgG in general is that it is less sensitive and remains elevated for a while after consumption of the triggering food.

    As a result, it's unclear how immediately it would respond to consumption of those foods just before testing. However, I would think that reasonably recent (and probably somewhat steady) consumption of those foods would help boost the accuracy of your results. I say that because, in my experience, I had gone on a gluten light diet for almost two months yet still had antigliadin IgG levels of 75 (positive is >25). Hopefully it is reassuring that nora_n was able to get positive results for foods that she wasn't consuming...

    Hope this helps, and good luck! I only had the IgG test done for gluten, but now I'm realizing how important it is to have a broad range of foods tested.

  15. Hi Lynn, I am new here too, but based on everything I've read, you can expect varying symptoms and varying time frames for when they kick in.

    If you eat gluten with other things, then there may be more of a delay (presumably because there is a bit of a buffer?), while just gluten would likely cause symptoms more quickly.

    Speaking for myself, when I was doing the elimination diet, it was unclear how far to take it (did I need to be concerned with sauces, cross-contamination, etc). Also, the varying time delays made it more difficult to gauge my reactions to what I had eaten. I asked my doctor for a more scientific way of conducting the diet, but she didn't have any recommendations.

    I think it boils down to this: you may have other intolerances that are creating some noise in your observations, but if you remove gluten and feel better, but then reintroduce it and feel worse, you have a gluten issue and should decide how you'd like to proceed in evaluating it further.

    Hope this helps! Good luck with getting to the bottom of this.


  16. Hi all,

    I am waiting for my endo/biopsy results, and I have been researching ways to promote healing in my gut. (At a minimum, I have intestinal permeability and gluten sensitivity, so going gluten-free for six months is a definite.)

    Dr. Weil recommends the following as a natural treatment for those with celiac (link is: http://www.drweil.com/drw/u/ART02955/Celiac-Disease.html):

    "In addition to avoiding gluten, Dr. Weil recommends treating the leaky gut symptoms often associated with the body's response to these proteins. Moderate use, if not avoidance, of alcohol and non-steroidal anti-inflammatories (like Ibuprofen and Naproxen) is important. Also, make sure you're eating plenty of fiber. Take a probiotic supplement containing Lactobacillus GG or Bacillus coagulens. And follow an anti-inflammatory diet, including essential fatty acids like fish oil and GLA, and minus any gluten-containing foods, of course.

    In addition, you might try supplementing with glutamine, an amino acid that helps maintain intestinal metabolism and function and seems to benefit patients who have had intestinal injury from serious insults such as chemotherapy and radiation."

    My question is this: has anyone taken glutamine? If so, have you noticed any benefits? I'm a little nervous about taking it, because I'm afraid that I may have celiac-related liver damage, and the packaging says that those with cirrhosis of the liver should not take it. Now, there's no way I have cirrhosis of the liver, but since I'm concerned that intestinal permeability leads to liver damage, I'm curious about anyone's take on this or their experience.

    Also, does anyone have any thoughts on taking gluten enzymes? While I realize they are in no way a substitute for a gluten-free diet, since I'm coming off the gluten challenge, I'm curious if they might assist with digestion of the lingering gluten in my system. Also, it seems like those with celiac use enzymes to assist when they eat out and fear they may have been glutened. Any thoughts on that?

    Thank you so much for any insight you may be able to offer!

  17. Thank you, Ravenwoodglass! You have been so helpful, and I really appreciate all the great information (and comfort) the members of this forum offer.

    I have been on sublingual B compex with B12, but I may increase the dosage as I recuperate. I am not going anywhere near gluten -- am well on my way to implementing a strict gluten-free diet now that the test is over -- and it is great to hear that many of the neuro symptoms resolve for others. I noticed an almost immediate improvement once I went from a full-gluten to gluten-light diet, so I suppose it's no surprise that the gluten challenge quickly caused a recurrence of strong neuro symptoms in me. I am going to stick with the supplements, acidophilus and some moderate exercise (after I get through this dizzy/weak spell) to try to get back to equilibrium. Just trying to stay positive...!

  18. You should be well over the anesthesia's effects by now. Could it be the aftereffects of your gluten challenge? That may take a while to resolve.

    Thanks, ravenwoodglass. I do think it has to do with the gluten challenge. I went to the doctor just now because I was so concerned about the sudden weakness and neurological symptoms. She told me that I definitely have an acute virus, and it's a matter of waiting for the endo results and then taking it step by step. She also said I have a mild upper respiratory infection and to take some ibuprofen and drink plenty of fluids. She said that after the endo results are in, one of the next steps would be to go to a neurologist. If this is gluten-related neuropathy, how temporary or permanent is it?

    If I don't have celiac, will that impact how they view my neurological symptoms? I have seen some discussion about neuropathy in this forum, and it seems highly individual.

  19. Well I had my endoscopy and am waiting for the results. However, I really could use someone's advice about getting over all the mental fog caused by the anesthesia.

    I had the procedure Monday morning, then rested a lot the rest of Monday and Tuesday morning. By Tuesday afternoon, two things had happened: I was feeling more energetic, but I had also developed a cold. :( I did some moderate exercise yesterday afternoon - a DVD I know well and that is only 30 minutes - because I thought exercise would help flush out the anesthesia and perhaps help head off the cold.

    However, today I went back to work and feel mentally so out of it - extremely spacey, my eyes are having difficulty with focusing properly, and my neck just feels funny - a weak, vulnerable feeling that is very difficult to articulate.

    A lot of my gluten symptoms are neurological, but I haven't had them evaluated; now I'm afraid that the anesthesia has exacerbated my existing neurological issues. Does anyone have any input on how long it took them to feel back to normal mentally after the anesthesia? Or, any feedback on how the anesthesia may impact existing neurological symptoms?

    Since the procedure, I started doing some detox smoothies/raw salads/liquid acidophilus; could this be my system flushing out a bunch of toxins? Thank you so much for any insight/advice you may have!

  20. Just wanted to share that my interview was rescheduled for the 6th, so I reverted back to my original endo date of this coming Monday. Lots of stress with the back and forth, but I'll be happy to get it over with.

    Having gone heavier on gluten the last few days, I am already feeling such a difference. I have had bloating, tingling in both of my ring and pinky fingers, dizziness, a headache and jumpy/shaky vision and hands; I feel like I'm on an OTC cold medicine or am suffering from wildly low blood sugar...just very dazed and fatigued. Had such a hard time getting out of bed this morning. Also, my face is now noticeably puffy and getting red.

    My mood is low and I feel anxious and a little obsessive compulsive; it's so surreal being able to step back and finally understand why I haven't felt like myself. I am scared about Monday, but I'm going to follow the doctor's orders and eat the equivalent of one slice of bread per day until then. The pathologists specialize in GI issues, so she said that they are good at detecting even early signs of celiac damage (I'm really hoping this is a saving grace since I've been gluten light for several months). I shared my concerns about eating a lot of gluten in advance of this. The doctor also said she'll take 6-9 samples and from all over, though she did say that she'll focus on the duodenum. Based on reading about the many causes of false negatives, I am comforted that the endo itself ought to be thorough...it's just a matter of whether my gluten light diet has undermined the results.