lc1333

Thanks for the response.  I'm wondering if it is some random ingredient in there, not related to gluten.  I mean, if they say they are gluten free then I do trust them, and other products that are labelled gluten free have never bothered me.  It's just this one thing.  I made the mistake of buying the great big bag of hashbrowns when I saw they are gluten free - I got all excited.  Then I felt like it would be wasteful to not eat them, so I tried using different kids of oils to see if maybe the oil was making be sick, but no matter what I tried I kept getting sick.  

I'll look into that preservative.  My daughter does make home style potatoes that are really good, maybe I'll try to make the actual shredded style just to see how it works.

Thanks again!

I live in Oregon and they are all over around here, they are great!!  So much better than regular corn tortillas, almost like the real thing!!!

Orida Hash Browns ----So the bag says they're gluten-free, but every time I eat them I get sick, kinda like a mild gluten reaction, but sick enough to persuade me to not eat them.  I've tried cooking them using a variety of oils, but no matter what I do, I get sick about 3 hours later - stomach cramps, bathroom visits, that sort of thing...nothing like an all out gluten reaction, but annoying...

Anybody else experience that?  Any ideas?

Thanks, y'all,

I'm feeling better today.  It's really hard to completely change your lifestyle around food, I know that everyone here has had to do just that.  It's frustrating how pivotal food is in our lives...and demoralizing when we can't participate in our lives the way we used to.  I wish I was raised and used to the whole "just don't eat anything processed" lifestyle, but I wasn't, I was raised in a McDonald's practically, so this shift, while good for me, is really hard.

Thanks for your sympathy, it helps...

Linda

ugh...before i figured out that gluten is my nemesis i ate out all the time.  now, there's nowhere that has fast food that i can eat...i ate at subway yesterday morning, I've always had good luck with them...they get out the meat from the bottom of the stack, same with the cheese and all that...yesterday i went to subway for breakfast.  last night by 10 pm the cramping started...then the hot flashes and the sweating...the cramps were so bad i thought i was going to have to go to the hospital...worst episode in over 2 years...then i was stuck in the bathroom for 2 hours dying...needless to say, there was nothing left in my system - anywhere!  it was so bad...and i can't think of anything i ate that wasn't gluten-free other than if the subway was cross-contaminated...i'm so bummed...i like eating out, and today, i'm still queasy, my gut is still grumbly, had to leave work early...

i know i'm whining, but damn i hate this!  i want to go back to eating whatever the hell i wanted and not knowing what was causing all of my symptoms...i'm pouting...

thanks for listening

So, I'm gonna request my test results from my doc, I'm really curious now...

Thank you all for your input, it's been really helpful!!!!  

Thank you all for the responses.  I don't know if my mother has one copy or two.  I also had a very positive biopsy and complete resolution of symptoms which is why my doc diagnosed celiac.  Oh, and that was a couple of years ago.  I just found out about the gene thing the other day.  The other thing that concerns me is that I have four children who also tested negative blood work wise.  They have not been biopsied, but my daughter had a ton of symptoms that resolved after she went gluten free.  In fact, she feels so much better that she said she will never do a gluten challenge for a biopsy, so she will never be officially diagnosed.  Unfortunately, one of my boys has some symptoms, but they aren't intestinal (like a lot of mine were), so he won't go gluten free even if it he were told to.  I'm kinda considering getting my kids gene tested, but I really don't know if it's necessary...

Hello all,

So in 2011 I was tested for antibodies for celiac.  Everything came out negative, but my doc did a biopsy anyway.  That came back way positive.  Then I went gluten free in Jan of 2012, and pretty much every symptom/bad thing/illness/problem I had completely went away!  My doc then diagnosed me with celiac.  Now, recently my sister did one of those gene coding things with my mom and my mom has the celiac gene, HLA DQ2.  So do y'all think it's logical that I have that gene too?  If so, why didn't I have antibodies?  My doc said (and no, I don't have too much faith in her), that if I didn't have antibodies there was no way possible to have the gene, but it looks like I probably do have the gene, but why then no antibodies.  She tested me twice for everything (I think).

Thanks,

Linda

so, my daughter received a free sample of this AST Enzymes Gluten Relief, that when take 5-10 minutes before a meal is supposed to somehow keep the gluten from irritating the system...really??? is it really that simple??? has anybody tried this stuff?? does it work???

i have diagnosed celiac, but she didn't want to wait for the testing so she just quit eating gluten and it fixed her symptoms too...

thanks

Yes, you do have to be careful with potatoes. My family thinks I am overeacting to ask at restaurants but I can't tell you how many times I have been told that there is wheat in the potatoes. The only things we would get at McDonalds are the sliced apples, maybe a side salad and a drink. I don't trust them.

Frankly, I am now terrified of McDonald's, it's in my psyche, kinda like getting food poisoning from eating something, it ruins you on it. I don't think I could bring myself to eat there if I had to...

Gosh, how terrible! We all have our lessons to learn, don't we? The odd part is even when I THINK I'm being careful, sometimes all of my "science" backfires on me.

Hope you are feeling better now

Thanks, yeah, i'm much better now...i've really learned to never take anything for granted and to double check EVERYTHING i eat...

If you want a gluten-free pasta that looks, tastes, & feels like wheat pasta try Bi-Aglut from Italy...there are a couple of other brands that are over the top but nothing beats Bi-Aglut......

Soon green banana pasta will be making it way into our gluten-free world...

mmmmm........i'll have to try it!! thanks for the suggestion!! lovin' my mac & cheese!!!

to finish...

in excrutiating pain!! I went to the hospital and they were afraid of my intestines perforating...it was horrible!! Five hours of absolute hell!! I will never eat ANYTHING without checking the ingredients and knows for absolute certain that it is gluten-free. I was sick for three days after that, and the doc said I was lucky and to be more careful...

Oh, wow, a few months ago I was eating scrambled eggs, a piece of sausage, and a hash brown from McDonald's everyday for breakfast. I wasn't having a reaction, so I thought everything was fine, I mean really - it's just eggs, potatoes, and sausage, it'll be ok...uh, no...two weeks later I discovered my system shut down and wasn't digesting anything and I ended up in the hospital in EXCRUTIATING

I don't have it available in our area, but so very happy for you! Isn't amazing how we get excited over simple issues.

Yeah, I'm sooo excited!! They sell it online, it's like $5 a box, but I split one box into two different meals, and even those were like two servings each time. This is their website:

Open Original Shared Link

I think the link works!! Yay me!!

I DIDN'T know! Does it cook like "normal" pasta???? With corn pasta it seems to "mush" and got all gross and I haven't tried coooking the rice pasta in my pantry yet. Does it soak up the sauce like I've heard other pasta does??? I have been craving my macaroni pasta that I always make for the 4th of July and this makes me think MAYBE I can have it!

Yeah!! It does!! It cooks just like normal. I don't have to rinse it or anything! It has a normal texture, it's not gritty, or mushy, or chewy, or slimy or anything! I used it with the cheese sauce packet that comes with Velveeta shells and cheese (which is of course, gluten free!) and even my very, very, very picky son liked it more than his normal mac & cheese! I cooked it for 10 minutes and it was great!

You have to try it!! And it's available online to buy! I don't know how to put a link in a post like this but it's Open Original Shared Link

I'm sure most of you already know, but...

So after searching and searching and trying and trying, I have finally found a great gluten-free pasta!!! It's called Shar, with an umlaut over the "a." It's a corn flour and rice flour mix, and it actually tastes like normal pasta. It even doesn't have that nasty rice goop that you have to rinse off after cooking!!!

Of all the things I have been missing, mac & cheese has been one of the biggies, and now I can have it!!! YAY!!!

Just had to share!!

y'all are sooooo AWESOME!!! i'm gonna give it a try!! i might survive this!!! yay!!! THANK YOU!!!!

wow!! thanks y'all!! so there is hope!!! i'm try it out (all the different suggestions!)

my kids will be thrilled! (i can blame it on my kids, right???)

My kids accepted the change to annie's gluten-free mac and cheese, and they're pretty picky about some things, so I'd take that as a good sign. Of course, now none of us can have dairy...

they sell Annie's stuff at my local grocery store...I'll give it a try. Thanks!!!

We don't like Annie's here. It's tolerated right now because we can't find an alternative.

Next time I make mac and cheese, I'm just going to use rice noodles and velveeta. My kids like homemade better anyways; you should try it, it's really good!

And, you can make it without dairy, just use a dairy free margarine and substitute extra margarine where the dairy goes. In our opinion, it makes it taste a little richer.

Velveeta is gluten free?????

i have noticed since i quit eating gluten that if i do eat it, a large amount of it, i'm fine for about 24 hours, then the burning, churning pain starts up. the second time i ate gluten, the next day i was vomiting and thought i was going to pass out in the mall! it was as bad or worse than it ever was! and then i had a horrible headache for the next 2 days...

Almost 30 days gluten free-with only 2 mistakes (which i paid for dearly!) Last night I made my kids mac & cheese. I wanted some soooooo bad!!!! I almost gave in, but I didn't!! I was so frustrated, i almost gave and and thought, "to hell with it! i will go through the 3 days of hell to just taste it!!" but i didn't...

any suggestions on the best gluten free mac & cheese? not to mention, my mac & cheese obsessed 10 year old is bound to be gluten free within a few weeks, so I'm gonna need a replacement.

My son gets itchy when he sweats. I wish I could find the article but this is apparently common for white people who live in humid areas. It's a benign skin fungus. Washing the skin with Head & Shoulders makes it go away. Just thought people might like to try that before thinking they have your Urticaria. It's easy & harmless to try for a few days.

wow, i've never heard of that. I certainly hope that works for others too! It beats the heck out of urticaria! i'm gonna give it a try, even though i quit sweating years ago, i just break out instead.