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lc1333

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Posts posted by lc1333

  1. wow, i'm sorry to hear about all of the stupid doctors out there...

    as time goes by and i am feeling so much better, i have been reading more about celiac and the various symptoms and so many of them click, it just makes so much sense now...

    and it's really weird to eat and not feel the food moving through my system like a firey torpedo

    just a repeat of my last doctor's visit for y'alls enjoyment...

    decided to give the gluten free diet a shot after talking to y'all, other docs, and nutritionists

    went to a follow up today to discuss the results of going gluten free, this is a synopsis of the conversation:

    doc: so how are you feeling?

    me: so much better, could i have celiac disease?

    doc: no, because you had negative blood work

    me: oh, ok, not even with a positive biopsy?

    doc: no, because you had negative bloodwork

    me: i heard that you can have a false negative and still have celiac if you have a positive biopsy

    doc: no, because the blood tests are much more accurate these days, you are probably just gluten intolerant

    me: ok, do you think i should be concerned about my kids, they've had many of the same symptoms i had

    doc: oh, you have to get them tested

    me: oh, really, why?

    doc: because you had a positive biopsy

    me: oh, so if they have positive bloodwork then they have celiac disease, even without a biopsy?

    doc: well yeah, but a biopsy IS the gold standard, but because you had a positive biopsy, you can assume that if they have positive bloodwork that they have celiac disease

    me: oh, ok

    doc: it's very important that you get them tested, because if they do have celiac and it goes untreated they could have long term health problems like fatty liver and other problems

    me: oh, so could my results showing fatty liver be because of longterm (35 yrs) untreated celiac disease?

    doc: no, because you had negative bloodwork, but if the gluten free diet is working for you, you should stay with it, but it is difficult and expensive, so just having an intolerance is better because you don't have to be so strict...because if you did have celiac and weren't diligent enough it can cause long term health problems like fatty liver...

    hmmm....i think i may actually be losing my mind...

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