TLK879

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Everything posted by TLK879

  1. Hi, I was recently diagnosed with celiac. I knew I had a gluten intolerance, as well as multiple foods, but I didn't know how severe it was till years later. I'm still trying to figure out the foods I react to and what I can eat. I'm having a hard time with it. I just discovered that my favorite face wash, Origins checks and balances, has wheat in it! I've been using it for years. So, I'm assuming that I have to start from scratch and go through all my soaps, makeup, lotions, shampoos, cleaning products, etc. and find gluten-free products. Does anyone recommend a good face wash that they use or know another one by Origins that does not have gluten in it? How about makeup? I am using Bare Minerals and I'm pretty sure there is no gluten in it. I also use Cover Girl, Maybelline, Revlon, Almay, Clinique, and Victoria's Secret makeup. Does anyone know if these contain gluten or does it depend on the particular product? This is so frustrating. I'm also struggling financially, so if I could find some good gluten-free products that are decently priced that would be great. Any help or advice would be greatly appreciated!! Thanks! Tracey
  2. Hi. I was wondering if anyone has any recommendations for gluten-free, DF, soy free, yeast free, corn free probiotics and digestive enzymes? I'm currently taking digest gold w/ probiotics, and I like it, but I just realized that it has Non GMO soy oil in it. I started the GAPS diet, so I now need to avoid soy as well. I'm thinking that soy may have been a culprit this whole time without even realizing it. So, I'd like to avoid as much as I can. I am also on a tight budget, so I am looking for quality products with reasonable prices, if possible. Does anyone know of any digestive enzymes w/ probiotics in them that are free of all of these possible allergens? Any suggestions/recommendations would be greatly appreciated! Thanks! Tracey
  3. TLK879

    Frustrated!

    I'm not even sure where to start. I'm so frustrated with being sick for over 2 years now. First, every time I was tested for celiac, the tests were negative, but recently the genetic test was positive. Everything else was negative again. So, my Dr. and I think that it is likely I have celiac, but we are not sure since my diets have not been helping me. I've been tested for everything else as well and I went to 11 other doctors in hopes of finding out what is wrong with me. I really wish my problem was just avoiding gluten. The list is endless. So endless that I cannot keep track of what I react to and don't react to anymore. Even when I eat plain whole foods, non processed, I feel like I react to something at least once a day. Then, it overlaps with the next day and I have no idea what it was I reacted to. I have been avoiding gluten, dairy, corn, vinegar and most starches. I tried the GAPS diet and I just could not stick to it, as it got extremely expensive and boring. It is really hard for me to stick to eating the same foods day after day. Especially when I continue to react, which I did. Then, I get frustrated because I feel like my hard work of trying to get better is not working. I even buy all organic veggies and meats now because I am so afraid that I will react to all the pesticides and chemicals. I am extremely sensitive to everything it seems! I'm a college student and I don't work, so I really can't afford all organic food, but I'm hoping that it is worth it. I am always constipated and have a really slow digestive system, as I hardly have regular bowel movements. Maybe once every few days. I constantly feel bloated. Almost everytime I eat I get swollen. By this I mean that my face, hands, ankles, and legs swell up. I don't have any allergies, so this is not an allergic reaction. But, because I'm so extremely sensitive I think it is my immune system reacting to fight off what it thinks is foreign. ??? Of course I have the other usual intolerance symptoms as well, but the swelling thing is the most obvious. Some days I barely eat and because I reacted to something, the scale will say that I'm 2-5 lbs more the next day (because of the swelling). It is extremely difficult for me to lose weight. I do hot yoga almost daily and run and hike as well, and I eat healthy and don't eat a lot, and I am still having trouble losing weight. I think I'm ok with certain meats and veggies, but my body seems to pick and choose when it wants to react to something. It is very unpredictable. Even with the same foods. One day I will react and one day I won't. I am unbelievably stressed over all of this. I even got rid of all my makeup, products, cleaning supplies, etc. and bought all gluten free and chemical free products instead. So far, I don't notice a difference at all. I take digestive enzymes, probiotics, B12, multivitamin (Solgar), and Magnesium. This week I decided to try juicing. I tried it when I first got sick (2 yrs ago) and it didn't work because I kept reacting to all the veggies and fruits I was juicing. So, now I thought that I would try it again and juice only one ingredient at a time. All organic as well. I juiced celery last night and ate an organic banana and I became really swollen about an hour afterward. I woke up the same way. Today I tried juicing spinach and had some organic free range chicken (that I made in the crock pot). Again, I'm swelling up again. I honestly don't know what to do at this point. I thought that juicing was easier on your digestive system because you don't have to break down the foods. Is this true or could it make matters worse? I am trying so hard and because of it I am broke and having relationship problems as well. This is all making me crazy. Literally. I'm becoming obsessed because I just want to get better and nothing is working. I barely sleep because I am constantly thinking of what to do, new strategies, reading posts of the forum, etc. To make matters worse, whenever I get emotional or stressed, I crave food (as I had an eating disorder my whole life) and sometimes I end up eating things that I shouldn't be eating or too much of them anyways. I usually stay gluten free at least, but because of the frustration and depression, the food ends up winning. I don't do this a lot, but it happens occasionally. I can't control it at times. If I could find a diet that will work and I could finally start feeling better, at least it would give me hope and the motivation to not give in to food cravings. But, nothing is working. So, I end up thinking "what is the point of all of this?!" And then I end up eating chips or gluten free/dairy free ice cream, etc. I even react to nuts. I need variety in my diet or else I go crazy and start craving all types of foods. But, I don't have that privelage. I'm lucky I can eat a few foods without reacting. I don't think I have had one totally good day without reacting in over 2 years now. Even on my good days, I still have minor reactions or it feels like I am anyways. This is all so crazy. I don't understand it. I'm truly sorry that I went on and on, but I am at a breaking point and I don't know what to do. I was feeling so positive and motivated too. At least I have my hot yoga. It definitely helps me stay sane and positive (most of the time). If I didn't have that, I don't know where I'd be right now. This is embarressing, as I usually don't share all of this with people I don't know, but I really could use some support and advice right now. I'm not getting anywhere with my medical issues. I don't even know for sure that I am celiac and what foods are safe for me to eat. I really really want to be at that point. Any help would be greatly appreciated. Thank you.
  4. TLK879

    Frustrated!

    Thank you. I will. I've just been so busy, I haven't had a chance.
  5. TLK879

    Frustrated!

    Thank you so much. I appreciate all the advice. Like I said, I'm doing a little better the past two days, but still minor swelling I think. It's hard to tell, because I am swollen so much. The swelling is just a part of the food reaction. It doesn't seem like many people have as bad a problem of this as I do though. ?? So, juicing can be bad even though it is easier to digest? Why would juicing as opposed to cooking the veggies be worse? It's weird. Maybe cause it goes into your body much quicker and its a shock to your body? I have no clue. I will try the B-complex and see if it helps. Irishheart, you are so right. Everything you said is exactly what I do and I shouldn't, but I just can't help it. I'm so frustrated. I just want to get to the point where I have some control over my reactions and I feel like I'm on the right track at least. I haven't really found that yet. Is it important to get all organic meats? I'm so afraid of every little chemical or hormone or additive, etc. in the regular foods. If I react to the meat and its not organic, maybe I wouldn't have reacted to it if it was organic. How would I know then, you know? But, if it really isn't much different, then I won't waste my time and money buying organic. Any opinions would be great. If I am that inflammed and super sensitive, is it really possible that I could be reacting to almost everything that I put into my body? It just seems so crazy and unrealistic. I'm still unsure if I'm reacting to the organic chicken that I'm eating (plain), but if I am it is pretty minor. Just annoying, because not one day goes by without some kind of reaction. I will try to stick with the basic basic foods, as I am doing now for as long as I can. Thank you again for your help! I love this forum. It helps so much
  6. TLK879

    Frustrated!

    What if I just took 2 mulit-vitamins instead of 1 per day? Or, does it really make a difference that I buy individual vitamins that I may be deficient to? Like I said, I will do whatever it takes in order to get better, but I will try to save money in every way possible. I am also deficient on Vitamin D. Does this cause a lot of problems as well? Thanks.
  7. TLK879

    Frustrated!

    Thank you. How much B complex should we be getting per day? Does the B complex include B12 or do you always have to get B12 separately? I'm already broke financially, so I would like to save wherever possible.
  8. TLK879

    Frustrated!

    Thank you both. I am feeling a little better today. I just ate the leftover chicken and some spinach/celery juice (freshly juiced). There is no soy in any of the supplements I am taking. And I don't think it is in any of the products/makeup I am using either, but I will double check. Can you recommend a good brand of B vitamin complex to take? I have been using Solgar for multi-vitamin and Magnesium as they are free of all allergens. What is is called exactly? Thanks for all your help.
  9. TLK879

    Frustrated!

    A few of the doctors checked my thyroid a couple times and it was ok. No, I haven't heard of salicylates or amines intolerances? Do you have those? I'll look it up. Thanks for the info.
  10. Hi. I was wondering if any of you know which makeup remover towelettes are safe to use (gluten-free and chemical free). I have been using Pond's towelettes as well as the cheaper version (Equate facial cleansing towelettes). I don't see any obvious gluten ingredients in them, but it looks like a lot of harsh chemicals. Are they ok to use? If not, are there any suggestions on an alternate brand that is reasonably priced? Shopping for all gluten free, chemical free products really gets expensive and since I am a college student I am on a pretty tight budget. Any suggestions would be greatly appreciated! My goal is to use all safe and non-irritating products and get rid of any product that could be preventing my healing process. Thanks! Tracey
  11. Hi. I have been reading through several posts about Bath and Body Works and Victoria's Secret products, but the posts are years old and I'm still confused about whether or not they are safe (gluten free, harsh chemical free). I am currently using Desert Essence body lotion since I am trying to only use the least harmful products (I am extremely sensitive to everything it seems), but I already have so many lotions, body washes, body spray's, etc. from both BBW and VS. I would hate to waste them. And I really like both of them, especially VS. I was just wondering how many of you still use these products, if you have reacted to them, and whether or not anyone knows for sure if they are gluten free. Just in case I ever want to go back to using the ones that I have already bought. For right now, since I am highly sensitive and still trying to feel better, I will continue to avoid them. Unless many of you know that they are pretty safe to use. ?? Any suggestions or advice would be greatly appreciated. Tracey
  12. Hi. I am going through my OTC medications and I'm trying to figure out which ones are safe or not. Has anyone found any generic OTC drugs that are for sure gluten free? Which generic brands are the safest? I have Kroger Acetaminophen and the ingredients look safe, but I can't be sure. Does anyone know if Kroger is safe for Acetaminophen and Ibuprofen? I also heard that Kirkland is gluten free, but I'm not positive. Does any one know for sure? It would be extremely helpful if everyone could start a list of the OTC medications that they use that are gluten free. I'm hoping I can find some generic ones since brand names are so much more expensive. Any suggestions would be greatly appreciated! Thanks! Tracey
  13. Hi. I was wondering if you ever got a response back from Almay. I have been using the Almay intense i-color eyeliner and eyeshadow for years and I love the colors. But, if they have gluten and are adding to my reactions I don't want to keep using them. Thanks!
  14. Hello. I was hoping that I could get some advice from all of you on a good gluten free/Sodium Laureth Sulfate free face wash. I have oily/combination skin and my skin is pretty sensitive and prone to acne. I've been reacting to so many foods and products that I'm pretty sure that I need to avoid SLS, but I am not positive. It is hard to keep up with what I react to and what I don't. Also,I have not been able to find a shampoo/conditioner that hasn't bothered my scalp (tingly,sensitive,itchy). I bought the Loreal Sulfate free/gluten-free shampoo and conditioner and the first few days were ok, but now my scalp feels like it is getting irritated again. I just ordered the Giovanni tea tree shampoo and conditioner so I'm hoping that I will be able to tolerate it. My favorite face wash of all time (that I'm still using until I can find something to replace it)is Origins cheeks and balances. It has hydrolyzed wheat protein in it, so I'm assuming that I can't use it. Is this true? I've read some mixed reviews about whether or not this is really harmful in a product. I know it says wheat, but it is one of the last ingredients on the list. If I can still use it, please let me know, as I love my facewash. I'm not sure if it is bothering me because I have been using it for so long. As far as I know it isn't, but I don't want to keep glutening myself. I would rather avoid everything and anything that could possibly cause a reaction. I also looked into Cetaphil but it has SLS in it. Has anyone had a problem with it because of this? Any opinions, suggestions, advice would be greatly appreciated! Thanks!
  15. Hi. I've been sick for over 2 years now, and right now my Dr. thinks it is very possible that I have Celiac. The genetic blood test was positive, but the other Celiac tests, including endoscopies were negative. However, I have had a positive for a gluten intolerance as well as many many other food/chemical intolerances ((Company Name Removed - They Spammed This Forum and are Banned) test). I've also tested positive for Epstein Barr as well. I've been avoiding gluten for a little over a year, with a few minor setbacks here and there. I've also been avoiding dairy, corn and vinegar, and a few other things. I'm still not feeling well, and I do still have reactions almost everyday. Most are mild, but it is still frustrating. After 2 years, I still don't know what I react and don't react to, besides gluten, dairy, corn, and vinegar. And now I'm not even sure about those anymore since I've been avoiding them for so long. I'm currently waiting on getting more tests done (MRI of my intestines, more bloodwork, and possibly another endoscopy). My Eosinophils were high, so my Dr thinks that I may have something other than Celiac, or in addition to Celiac. He thinks I may have some kind of disorder of my intestines, since the eosinophils were high. Have any of you had the same experience in having a high eosinophil count? I would assume that a lot of you may, since eosinophils represent an allergic reaction of some kind. Isn't that normal for Celiac? Anyway, I have not cleaned out my makeup, skincare, shampoo, or any of my regular toiletries that I normally use. I'm not sure if they are all gluten-free, but I don't see anything that stands out to be gluten in the ingredients. I don't want to go nuts getting all new products unless it truly is going to harm me. It looks like there has been mixed reviews on here about whether you can get glutenized by these products. It stresses me out to think about having to find all new products and spending lots of money if it is not a necessity. I currently take Enzymedica Digest Gold w/ probiotics. I want to be in control of what is happening to my body and to heal myself and feel better. I want to get to the point where I know what I can eat without having a reaction. I don't remember what that is like anymore. I usually do well when I eat more bland (brown rice, veggies, fruit, meat), but even then I still feel like I'm reacting. And it is hard to do day after day. Especially when I'm still reacting; it makes me feel hopeless and like it is a waste. It's just a bearable, more tolerant reaction. Reacting, whether it be mild to moderate has became the norm for me, sadly. But, believe me I would do anything to not have to live like this anymore. I just don't know which route to take anymore at this point. So, what I was wondering is....what is the best diet that will heal me, make me feel better, as well as be able to figure out what I can eat? Also, something that doesn't take up a lot of time and money, as these are very limited in my life. Is there an elimination diet out there that I can just follow? What about the Paleo or GAPS diet? What are the differences and pros and cons of each? I really need to start some type of strict diet very soon, as I am out of patience, sick of feeling like crap, and really frustrated. I want my life back. Any advice, suggestions, opinions would be greatly appreciated! Thanks! Tracey
  16. Thanks! If I take digestive enzymes w/ probiotic, B12, multi-vit, and cod liver oil do you think it is too much? I'm on the GAPS intro, so I'm not sure if it will affect the diet or not. Do you think it is essential that I take all of those, or maybe just a few? Thanks!
  17. Hi, I was wondering if anyone can recommend a good B12 (preferrably sublingual) that is dairy free, soy free, gluten-free, corn free, yeast free, etc.? All of the brands I'm finding have lactose in them. Thanks! Also, feel free to recommend a good multi-vitamin as well (free of gluten, dairy, soy, yeast, corn, etc.) I'm having a hard time deciding on the best one for a good price. Thanks!
  18. TLK879

    B12

    Jenny, do you use the source naturals bilingual cherry flavored or the tablets? I'd like to order it, but I want to make sure I order the right one. Thanks!
  19. TLK879

    B12

    Thanks! What multi do you use?
  20. Thank you!! All of this helps a lot! Have you tried the Ghee or the homemade yogurt at all, or did you just avoid it because of your intolerance? I am also afraid, but kinda curious to see if I react to it. Do you think the fermented cod liver oil is a lot better than other types of cod liver oil? In other words, do you think it is worth it to spend the extra money on the quality brand? Thanks again!
  21. I was wondering if anyone knew of a good gluten-free, df, soy free, corn free, yeast free multi-vitamin. I just realized that the one I'm taking, Nature's Plus Ultra Pre-Natal has soy in it, but is free of everything else. I'm not pregnant, but I was taking it because of the extra vitamins. I'm low on D and I also have some problems with Copper, and this one didn't have copper in it. Any recommendations would be greatly appreciated! Thanks! Tracey
  22. Also, where can I buy the fermented cod liver oil, B12, and good multi-v for a decent price? I know that these are all pretty pricey, but I was wondering if you knew of any discounted websites. Thanks!