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dani nero's Achievements
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Yeah, what is hard for us is people's inability to think before they talk
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Oh congratulations :-) I'm happy to hear that it wasn't as bad as you thought it might have been. I think that you did a good job. You were aware that reading about possible diagnoses online would get you more paranoid than logic dictates, and you stopped yourself. Well done :-)
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I have nightmares about accidentally eating glutinous things, then freaking out about it. I wake up feeling so relieved that it was just a dream.
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Going gluten free might have adjusted your hormone levels. For me, I never got a period naturally until I went gluten-free. My hormones were all over the place and had settled due to the diet. Could be that the change of chemistry in your body + change of prevention meathod had this result on you.
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Probiotics, vitamins, plenty of water, and stick to foods made from scratch which include healthy fats.
Let others know what you're going through to have some support, that always helps.
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Don't take it heart, and think of it as an experience which will only benefit you the future.
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Hang in there Nate and don't listen to those internet demons. They just want to make you worry and feel miserable.
Just live normally, and every time you start thinking about this just tell yourself that worrying about it won't make time go faster, and won't help you go through your days until the appointment comes. Let it be business as usual until it's time to deal with this.
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I'm not saying that you HAVE to get diagnosed, but that you should think about it and consider it NOW before you go gluten free. Because if you find out later that you should have gotten a diagnosis for any reason, things will be a lot tougher.
It's your life and it's up to you how you live it, and that is the same thing the doctors will tell you as well. They will tell you that it's your decision. I'm just saying that you should do some serious consideration, because going on a gluten free diet and detoxing now, then changing your mind later will be very hard on you.
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I also understood that you were writing them an angry email. I guess you weren't? :-) Thanks for the warning. I've learned from experience to read every last paragraph on the labels from every side of the package. This will come to you in time. Hang in there.
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Why are you mad at them? I love it when companies write the considerate message of processed in a facility that handles wheat.
Taking it out on them even though they were considerate won't make your gluten-symptoms go away.
Double probiotics and lots of water and rest. Get well soon
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No point in worrying yourself before you actually see the results.
Hopefully it'll be ok :-) Don't worry, try to relax.
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Before jumping to any conclusions and assuming that you might be having any other problems, let me point out that if you indeed have a problem with gluten, then it's not uncommon at all to start feeling poorly after the first week. It's probably just gluten withdrawal. Read this post https://www.celiac.com/forums/topic/91878-newbie-info-101/
It's an intro post for celiacs, but the information in it is useful for any person who intends to go on a gluten-free diet.
Since you're not diagnosed, you might want to consider taking the blood test or resuming your normal diet before the withdrawal symptoms develop any further. If the withdrawal period passes and you start feeling better again, it will be a real tough experience if you decide to go to a doctor, because most of the tests they will want to perform won't work if you're already gluten free. It'll all come back negative, so they'll ask you to go back to eating gluten, and you'll go through worse symptoms since you've already cleansed your body, and you'll have to go through withdrawal all over. So decide now if you'll want to be officially diagnosed or not.
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It's really up to you to find out the amount of gluten you react to. We can't figure it out for you because we can't feel what you feel after consuming cross-contaminated food.
The blood test should help you answer that question.
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Yes, it isn't unusual to start experiencing new more severe symptoms after going gluten-free.
It could also be however that you have overworked your muscles / joints since you were tired. Forcing yourself into vigorous workouts when your body isn't in shape for it can cause sport-injuries so you need to be careful and choose an activity that is kinder to the muscles and joints.
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Doctors did test for liver enzymes, and checked my thyoid and it was fine. And also i was doing the gluten diet as changing the utensils. Not using the same griddle i use to make my husband and kid food. But when i go out i always get sick and tired. Like when i tryed the gluten free pizza from dominos, i forgot all about telling them to change the pan to a clean pan.
It's gonna be a tough learning curve in the beginning but will become like second nature as time passes. If I'm about to eat at a restaurant, I first ask them about how they go about preventing cross-contamination. If they don't know what I mean, or tell me that they simply wash the pans that were used to prepare glutinous foods very well, I don't eat there.
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The thing with nuts and chocolate is that they are often produced in a factories which also processes gluten. Meaning that trace amounts of cc can be present in the chocolate. Some manufacturers don't bother mentioning these facts in the label.
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This isn't the first time I read about someone consuming considerable amounts of gluten and having a reaction different from what they were expecting. The same thing happened to someone who had been gluten free, then started eating toast for their gluten-trials. I'm not sure if their story ended with a late reaction however. Let us know if you start reacting, as I'm really curious.
Even if you're not symptomatic, you should probably still double up on probiotics and drink a lot of water.
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If accidents are happening, or if you haven't taken any safety measures to prevent your food from gluten cross-contamination, then I'm afraid that your diet has not truly been gluten-free. Being on a gluten-free diet means that your food needs to be free from even the tiniest crumb. Please read this post https://www.celiac.com/forums/topic/91878-newbie-info-101/ which will help you understand contamination prevention methods and other things.
By the way, if you're planning on doing any tests later, then you should not go on a gluten-free diet yet, because all tests will come back negative if you're already gluten-free.
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How long have you been gluten free? For many of us going gluten-free means a complete change of what we eat, meaning that you've changed the type of fuel your body is used to, and it might require some time to get used to it. Withdrawal is always tough.
I remember when I used to go through cleansing diets. The first days would be the toughest. I'd be so tired and out of energy, until the body gets used to it, then things go back to normal. Changing to a gluten-free diet is a lot more intense than a simple cleansing diet.
If the fruit is washed properly then you can't get cc from it.
But don't blame everything on CC. The intestines can get agitated, upset or bloated from many things and not just gluten.
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This makes me wonder if NCGI is hereditary.
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If you're not sure if you need to wash your own eating gear, then I think the problem might be cross-contamination. I agree with the previous posts, check the 101 post https://www.celiac.com/forums/topic/91878-newbie-info-101 for general guidlines on eating safety and cross-contamination.
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Yes I was
This is very interesting. May I ask how the doc went about diagnosing you?
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I've read posts by people who had gone on the gluten trial, meaning that they had started eating wheat toast and such daily, but had unexpected reactions. I don't remember what happened exactly, but just that they reacted differently from when they'd had a glutenation from cc.
How are you feeling now by the way?
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I'm also curious about leaky gut. I tried reading about it and didn't understand very well. Can someone simplify it?
Sharing A Home With Gluten-Eating Puppy
in Coping with Celiac Disease
Posted
Puppies lick everything. Their fur, toys, furniture, your hands and there is also the accidental lick on the lips when puppy is close and wants to pay respects. My pup usually eats james wellbeloved which is gluten free. She however got ill, and has been prescribed a special type of pet food and a probiotic paste to prevent vomiting.. both contian gluten. I'm in serious distresd as i don't want to live in a house that requires washing my hand after touching... so many things with risk of getting sick if i forget, nor do i wish to spend my days wiping and cleanig to decontaminate.
Brushing her teeth after every meal will be too difficult as well since she has to eat a teaspoon of her food every two hours.. that's 7 to 10 times a day. I dont think her tummy can handle the toothpaste .. nor do i have the time either.
Please help!
Are there any celiacs out there with such issues? How do you manage? My pup is only 9 weeks, very curious and not afraid of introducing her mouth to everything.