dani nero

On 6/2/2022 at 2:09 AM, shadycharacter said:

They don't always hide in the bed, sometimes they hide in narrow cracks som distance away from the bed (they can make themselves very flat) and only come out to feed at night. 

Hi Shady, 

It has been a year since I posted. Your bed bugs suggestion scared the heck out of me, but thankfully, no bed bugs. I appreciate the scare you gave me though, since in the end, the culprit WAS bird fleas, and I find that less traumatising since they are unable to live in houses like bed bugs do. I'm simply very sensitive to insect bites, and the problem was solved by removing bird nests and giving our doggos monthly tick/flea preventative pills. 

I feel it is super important to mention that the needle-like itch was caused by something else, my liver wasn't doing it's job because I was drinking too little water!! I associated the itch with gluten, not good. So pls if anyone gets a needle-like stingy itch at night, it may be gluten related, but just in case it's not, it will never hurt to drink water and be safe.

4 hours ago, Scott Adams said:

If the hives are caused by an allergy, antihistamines will usually make their size, redness and itchiness dissipate within an hour or two.

I'm so lost then. I got three new blisters today, and the ones from the day before got watery. I now have about 22 in total and look like a ladybird.

But thanks for taking the time to help guys.

Hi knitty kitty! Just fish and salt. 

I am now on another antihistamine, day 2.

Anyone with allergies know how long antihistamines take to stop blisters from popping? 

3 hours ago, shadycharacter said:

You won't like this idea, but have you thought of bed bugs? Not everyone get a rash from their bites, so the bites only show on some people. The bites often appear in clusters, like three in a row. 

Hi Shady! 

Yes, I look under my mattress, dog bedding and my sheets daily. There is nothing 

Are you taking probiotics?  If not, you might not have enough bacteria culture in your intestines for healthy digestion,  specifically now that you're on a new diet. I have the same issue on and off. Probiotics always solves them.

Damage from gluten often means the healthy bacteria usually living in people's intestines are gone. They are as important  as vitamins. The one I take contains about 3 million bacteria cultures, the more the better. It takes about a month for the probiotics to replenish and start working.

Sorry if you already know this!

Hi Marina, 

When I went gluten free, my body took 6 months to detox. Horrible 6 months. I was weak, sluggish, had awful tummy pains, rashes and my mental health was poo. You might still be detoxing as well. Not sure if the period varies  from person to person.

As for your anxiety, your intestines are adjusting to your new diet and take time to adapt. Some intestinal nerves are directly hooked to the brain, meaning your brain takes a dip whenever your intestines struggle for any reason.

I learned early on from the people here that taking probiotics is imperative. You can't go without them. I can't recommend mine since I dont live in the us, but I'm sure you'll get plenty of recommendations here. You have no idea how much you need them to help your gut heal.

I'm sorry you feel isolated,  but from personal experience (thought might not apply to you), feelings of isolation intensify with an anxious state of mind. When your anxiety passes, you'll come out a stronger person, and you'll feel that solving your isolation situation will be a a small feat, easy, instead of being a wall.  You'll conquer the world when you're better ❤ In the meantime, feel free to vent. People here understand your hardships and relate to you.

The anxiety and panic you're feeling are a temporary uncomfortable experience but they will pass. Just remember that you feel this way because your body is going through some health difficulties. The world is not falling apart, you just feel it is.

As for your thyroid, I think many celiacs can have thyroid problems so it's a possibility. Just like intestines, thyroid health is  directly responsible for anxiety and sluggishness. Get it checked, but even if your thyroid is ok, doesn't mean it can't dip from time to time. I've done several thyroid tests throughout the 10 years I've been gluten free, and sometimes they come back normal, sometimes low. That isn't a cause for concern and won't need any medication but just keep in mind that a thyroid dip might make you anxious and sluggish sometimes.

Hope I didn't forget anything, and that you will get well soon ❤

Hi Scott and thanks for the welcome back!

Yes, that's what the nurse told me to do as well. She prescribed an antihistamine (desloratadin) to test if what I have is an allergy. I unfortunately responded to it with a severe reaction, so I scheduled another talk with her. I'll be sure to ask about Benadryl. 

I got another three on tummy last night. With this speed of popups, I doubt the blisters are bites, since I am yet to see a single insect lurking about.

The new food I introduced was just a different brand of smoked-fish instead of the one I usually get, which makes me doubt it's the type of food itself, and more like kitchen contamination ....  if it's DH that is.

You said that DH blisters are full of puss. Sorry this will be a gross question, but must the pu be thick and opaque :') lol .. or can it be watery?

It hit me just now though that I consume A LOT of iodine. My thyroid gets lazy sometimes, and my diet includes iodine-rich foods. Afaik iodine causes DH to flare extra, if antibodies are present in the body. 
If it's an allergy and not DH, can iodine be a trigger too? 

I forgot, I took some pics

first one my right hip, when they start to heal at the end

second one on back

third one left hip just last night, starting to turn red

Hi guys, 

It has been a decade since I posted here! I stopped using this forum because a was literally spending whole days reading and writing here, which was getting in the way of studies and so on. Full on addiction :') 

It's been so long, so I'll have to introduce myself again! I'm a self-diagnosed celiac with no symptoms before the diet except for not getting any periods. I was misdiagnosed with a hormone imbalance at 16 and was on hormone meds until the whooping age of 32. I got so tired of the garbage side-effects of the meds, so did some research and found a certified medical-paper online, linking celiac to the absence of monthly periods. I tried going super gluten-free and never missed a period since, and by super, I mean 0 gluten in the house and new cookery, hygiene products and so on. 

I only went to one doctor after going gluten-free but two years after. She supported my theory and said there was no point in testing since I've been on the diet for a long time. She did suggest that I eat gluten again if I wanted an official diagnosis, but not a must as long as I'm feeling better, and there's  no harm in continuing the diet. She did refer me to a nutritionist to make sure I was getting all the nutrients I needed. 

I had a dry, burny and crusty rash with tiny little blisters on my hand around the time I started the diet. They would itch like crazy and wake me up at night. I shared the pictures here and found that others have experienced the same type of rash. I cut iodine to help it go away which worked, and I only got it once again during these 10 years. 

The biggest issue I had over the years was severe depression from time to time. I used to think I got depressed whenever glutened due to hormone changes, but was diagnosed with bipolar disorder last year. I'm thanking god day and night because I don't go through that anymore. 

I'm posting here now because I am experiencing .. insect-bitey type of blisters. I live next to a forest and occasionally get bird fleas in the garden. THey don't lay eggs anywhere except bird nests, but they do bite when hungry. I am terrified at the thought of them so check my dogs and house for any hitchhikers, and haven't seen any. Two weeks ago, I tried eating something new and got 5 bites on tummy, one bite on each foot, and two on my back. A few days later I got three on my right hip. I thought it was over but found three new bites on my left hip last night– Almost identical to the ones on the other hip. I initially thought they were flea bites, but there weren't any, and my husband is fine. My husband suggested that it might be some type of allergy, and it hit me then that I had tried a new food a day before the first bites showed. 

What is confusing is that they look nothing like dh, which is why I've been calling them bites. I thought perhaps if I describe them here, someone might recognize them. They look like mosquito bites. Start as colorless flat bumps, then turn into red hive-y bumps with no fluid. They stay flattish bumps, and develop into wide watery blisters after a day or so. That is when they itch the most. A few show up at a time. Like 4-5 each time. 

Before getting any, the whole body itches at night.. like needle stings! So annoying I want to crawl out of my skin. It keeps me awake, and can only sleep when it stops in the morning. There is no burning, dryness, crusting or skin breaking. There is a good distance between each, and the itch gets mild when the bumps show up. Like milder than the tiny rash I had before, and even milder than any insect bite, to the point I don't mind having them.

I am terrified that they are some kind of insect bite. If it's dh, I can relax because I know .. it's not an insect lol, and I know how to get rid of it. 

Can anyone relate to this? Hoping for some good news... insect free :')

Any chance your symptoms fit with those of dyshidrotic eczema and not true DH?

It does look a lot like it which is confusing. The rash however also appears in my nose and scalp, and reacted when I've overdosed on sals and iodine.

I don't know if I touched any metals which might contain nickel at the same time as a overdosing took place though.

I'd like to upload a photo of my current (and severe) DH outbreak on my face and neck to show what the scarring can look like, but I don't know how to upload photos. How is this done? The photo is on my iPhone and filed in my download file on my computer. Any help?

Rosetapper are you diagnosed?

So far I've been controlling my rash through iodine and sals limitation.. but it would be possible that it "just happened" that the other irritants were limited at the same time (if it is eczema) which helped control the rash. I also get a coldsore-like blister in my nose that itches when I get a full rash outbreak by the way.

Aren't there any diagnosed members who wish to post pictures ;-( I feel that this thread might be causing more speculation than a point of reference.

Just a thought. I get a rash similar to this. It seems to come after a 'trigger' of some sort and is mostly worse in warmer months (the sun tends to make it worse). If it only occurring on your hands and feet, or just hands, it could be dyshidrotic eczema. The first time I got it, I was about 21 and it took YEARS to clear up. Here are some links to pics:

http://www.skinsight.com/adult/dyshidroticDermatitis.htm

http://dermnetnz.org/dermatitis/pompholyx.html

Some of the pics look a lot like mine! I also get them in my scalp though, not my feet.. My blisters don't join either and can surface even in the winter.. It also burns when exposed to sals. It's scary to be confused once again, but thanks for the reference (i'll keep it in mind if my rash develops into something else)

On 6/17/2012 at 3:19 PM, dani nero said:

I thought that a thread containing a collection of the different shapes and forms of DH could be helpful to people looking for something to compare their own rashes with. So go ahead and post your rashes here to help others find a point of reference. Please add associated symptoms and a short history.

I am however doubtful of this idea being a good one because some people might add photos that are not related and confuse people who are new to all this. I hope it will be ok and if it's not then it's ok to delete this thread and I apologize in advance ?

Since I haven't seen a rash that is milder than mine I think that it's actually a proper coincidence that mine is the first one ?

These images were taken when the rash was in it's mildest form. It has sadly developed since these photos were taking, and gets pink swollen bumpy areas under the blisters. It is also starting to spread to the next finger and on the webbing between my fingers.

The rash used wake me up at night with a blistery, throbbing, itching, and burning finger when I used to consume gluten. Now it mostly burns whenever it shows up with very mild itching. The water in the blisters is clear.

Important: Please note that I'm self-diagnosed, meaning this rash is based on my own speculations based on my symptoms all put together.

This is a more recent picture of how the rash developed since the previous pictures. I now get reddish patches with dry flaky skin that appear before, with, and after the blisters. They don't show very well in the pic however due to being lubricated:

Jane, IMG_2601 looks exactly like mine does now, except mine gets more dry skin around it.

I thought that a thread containing a collection of the different shapes and forms of DH could be helpful to people looking for something to compare their own rashes with. So go ahead and post your rashes here to help others find a point of reference. Please add associated symptoms and a short history.

I am however doubtful of this idea being a good one because some people might add photos that are not related and confuse people who are new to all this. I hope it will be ok and if it's not then it's ok to delete this thread and I apologize in advance 😉

Since I haven't seen a rash that is milder than mine I think that it's actually a proper coincidence that mine is the first one 🙂

These images were taken when the rash was in it's mildest form. It has sadly developed since these photos were taking, and gets pink swollen bumpy areas under the blisters. It is also starting to spread to the next finger and on the webbing between my fingers.

The rash used wake me up at night with a blistery, throbbing, itching, and burning finger when I used to consume gluten. Now it mostly burns whenever it shows up with very mild itching. The water in the blisters is clear.

Important: Please note that I'm self-diagnosed, meaning this rash is based on my own speculations based on my symptoms all put together.

Here are some things that I have found to help with my anxiety. I'm not saying that they will work for everybody, but they definitely help me.

1) Taking walks.

2) Listening to music

3) Smoking marijuana (in moderation of course)

4) Listening to music and smoking marijuana

5) Thinking about people who care about you ( I don't know why but it works)

6) Writing

7) Exercise in general

I wouldn't do that, ever. It's bad enough as it is to feel anxiety, so why add to it and make two problems out of one by doing something that is both illegal and harmful. This is not the way.

Hello,

First of all, I just have to say that I love being a part of this forum and learning SO many things about Celiac Disease that I never knew before (even though I've had it my whole life). All of your posts have been an inspiration to me in expanding my knowledge about my own tolerances, diet, etc. Thank you so much.

But now I would like to start a topic. I know many members on this forum get more symptoms along the lines of GI, but I'm actually asymptomatic (on surface, anyway) in that area. What I AM very sensitive to is cognitive/mental ability...if I'm glutened, one of the symptoms I know I've been suffering along steadily is panic attacks. Sometimes they're minor and I can easily control them, but other times I just can't it...they take control of me instead.

I just eliminated something from my diet which it turns out I cannot have, but thought I originally could (I had no idea that mainstream cereals contained malt or malt flavoring in them!). It's been 3 days and I'm already feeling more alert and focused than I have in a very long time, but I still had a bad panic attack today. And yesterday, I was supposed to be somewhere for school but couldn't go b/c I had a BAD panic attack right before I got in the door. My body was shaking, I couldn't see straight, I was still paniky...my friend had to drive me back to campus!

So, here are my questions...

1) Does anyone on here seem to notice a correlation between panic attacks (if they have them) and getting glutened?

2) If so, then how long does it take for the panic attacks to go away? I don't expect them to go away overnight, but I would like some insight. I'm a college student with a very busy, rigid schedule, and I can't keep on getting spontaneous panic attacks that are bad enough to send me home or excuse myself. And, if the problem is gluten (which I feel that it is), than I'm not about take medication for it and mess up my system more.

Thank you to all of you once again for your support...

You'll find that countless people get panic attacks because it is a major symptom. I became gluten-free 100% three months ago, but was doing a not too strict gluten free diet for years before since I thought I was only sensitive.

I used to become a different person when I was having a panic attack. I would think everyone was against me, that the whole world would crumble down on me and that everything was just wrong. I would scream at my husband and believe or do things that I would never naturally believe or do. I've not had a full-fledged episode like that ever since I went gluten free. Now I just get anxiety, and if it escalates to depression I start suspecting CC. If I ever get a panic attack again I'll know that I ate something I shouldn't have.

I also found that panic attacks aren't a long lasting symptom like anxiety.

The way you described your symptoms sound pretty much like me except that my vision remains fine and I just turn into a monster haha. So hopefully it will not come back unless you eat something that contains gluten.

I am also a uni student by the way, and if I get CC and feel poorly, I just text one of my classmates and ask them to record the lecture for me. Of course my classmate would have to ask for permission to record it (that's how it is in sweden). This method has never failed me. The only problem I have is keeping up with deadlines and producing work that matches my actual skill-level. I haven't figured out how to cope with that yet, but if you have then please let me know how you deal with deadlines ;-)

By the way, here in sweden, some students actually EAT their sandwiches in class.. they probably contaminate their desks or something. If it's the same over there make sure you wash your hands before even touching your face. I keep some wet wipes in my bag all the time in case I can't get to the toilet.