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Nevadan

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  1. I have a pair of DQ1 genes. I've been gluten-free/CF for about 1 1/2 yrs. In addition to some gastro symptoms, I had peripheral neuropathy(PN) symptoms(numb toes/foot) before going gluten-free/CF. The gastro symptoms (bloating, gas, constipation) responded positively within a few days. The PN...
  2. I would like to reiterate the value of food elimination testing and keeping a food log versus various other lab testing. My experience with food intolerance testing was lots of false positives (how many false negatives I have no idea) and confusion. I did the ELISA IgG food intolerance test with...
  3. The main BrainTalk forums index is at: http://brain.hastypastry.net/forums/index.php? Scroll about 1/4 way down this very long page to find the forums for "specific neurological conditons" listed alphabetically. The "Gluten Sensitivity/Celiac Disease" forum is at: http://brain.hastypastry...
  4. I had my DNA tested at Enterolab for gluten sensitivity. They seem to look for the largest number of gene alleles (variations) compared to other labs I found. The DNA gene nomenclature is very confusing, but here's info mostly from Enterolab. The older methods of DNA analysis provided what is...
  5. I hear you on the testing costs - they add up pretty quickly. Your strategy makes excellent sense. Sorry about the redundant recommendations, but I tend to loose track of who seems familiar with which info. I find myself probably too often trying to educate re "not celiac disease - just gluten...
  6. Claire, According to what I saw on the Kimball website their Celiac DNA test only looks for the DQ2 and DQ8 Celiac versions of the HLA-DBQ1 gene. Given your neuro symptoms, if this is indeed true, I would recommend having the DNA testing done by Enterolab where they check for not only celiac...
  7. What a thread! Is this a record? There's sure a lot of info here for those of us with neurological concerns. To elaborate on my previous suggestion of the BrainTalk forum, in spite of their cutsy "hastypastry" web address, there is a lot of info there but the site navigation is not as easy...
  8. All concerned with neurological effects of gluten may want to check out another forum: http://brain.hastypastry.net/forums/forumdisplay.php?f=141 Check out their "Gluten File" (second item on their index) for starters. I find this site an excellent complement to this one. It's more oriented...
  9. I'm an apparent non-Celiac gluten sensitive person. My symptoms include such things as osteoporosis (male dx'ed at 55), mild anemia, mild peripheral neuropathy, etc. You might want to read "Dangerous Grains..." by Braly and Hoggan, a book which focuses on gluten sensitivity without celiac disease...
  10. I never thought about a possible connection. I had an appendictomy two yrs ago at 58 yrs old. I self diagnosed my gluten sensitivity earlier this year. Subsequent testing by Enterolab found evidence of gluten sensitivity but not celiac: Hi Antigliadin IgA Hi Antitissue Transglutaminase IgA...