happygirl
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Hopefully this info will help you make decisions for their products.... http://www.sodeliciousdairyfree.com/health/allergies.html
Looks okay to me. And, they advertise in gluten free publications (this month's Living Without magazine).
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You don't need both genes to have Celiac. If you had neither gene, and negative tests, then Celiac could essentially be ruled out.
I think its a small percentage of Celiacs who have both genes.
http://www.celiacdiseasecenter.columbia.edu/C_Doctors/C05-Testing.htm
http://digestive.niddk.nih.gov/ddiseases/pubs/celiactesting/index.htm#genetic
http://www.celiac.org/index.php?option=com_content&view=article&id=7&Itemid=13
http://www.celiacdisease.net/assets/pdf/CDCFactSheetsGeneticScreening4.pdf
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What a great Mother's Day present! Congratulations! She is beautiful and is lucky to have you as her mama.
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One step that you can take is ask the ped. to test him for the genes associated with Celiac - HLA DQ2 and HLA DQ8. Over 95-98% of those with Celiac has one/both of the genes, so if he tests negative, then you know his risk for Celiac is dramatically lower than someone with the gene. Of course, having the gene does not mean he has Celiac, as 30-40% of the population has the gene. But, would be a good bit of information to you to have.
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You need to be eating a normal gluten containing diet for the tests to be accurate. If you have been gluten free (generally), the tests decrease in accuracy.
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We generally switch cup for cup with Better Batter gluten free flour.
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Know this has been discussed - but I finally tried Udi's white bread.
I am quite certain it was the best ham and cheese sandwich I've had in close to 6 years----by far. (and how has it been that long?!)
Wow. All the buzz on that bread is correct.
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Of the tests you listed, the only test for Celiac is the tTG. The IgA/IgM/IgG -and IgG subclasses -(as you wrote it) are not Celiac tests per se, and are tests to see if you make enough of them or are deficient.
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See info on this website: http://glutenfreeinsd.com/manufacturers_statements.html (under general mills) about their labeling policy - should give you information to make an educated decision.
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Definitely find a new doctor!
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Could you share a few days worth of your food diary - I'm sure people can help pinpoint if there are any red flags (prob better than a nutritionist, in terms of if it is gluten-free or not).
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I will bring up both EE and CVS . . . current doctor totally poo-poos any of my suggestions. New doctor will be in May unless I decide to do something radical and go out of state.
Fire your doctor. Get a new one. :-)
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Jess: so fitting
Janet: incoming PM
Nik: happy mama's day to you!
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great.
Funny how I believe you, an anonymous being I have never seen, when it comes to questioning medical results.
<insert rant on health care system and medical education shortcomings>
Years ago (wow, years ago!) - my favorite quote, from a doctor I highly respect, when I asked him why doctors didn't do <insert multiple test names here> correctly: "They are lazy and don't want to take the time to do it right."
I have yet to figure out the point of doing something if you don't do it right.
Then, docs in general, please don't question me when I grill you as to 1) if you PLAN to do the test correctly and what the standards are and 2) if you actually DID the test correctly.
<end of rant>
Janet - will respond to PM. Enjoy your day "off"!
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In your spare time
, if you can get it and share (offline is fine) ... very few docs actually perform the testing correctly or interpret the tests correctly. Would hate for it to be ruled out if it wasn't tested accurately, ya know? Thinking of you both!
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Do you have a copy of the pathology report from when they did biopsies for EE, Janet? If not, could you get your hot little hands on it?
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You may want to check out local Celiac support groups for information, referrals, and knowledgable members that may be able to point you in the right direction.
Here are some of the national groups, with Texas pulled up:
Gluten Intolerance Group (GIG): http://www.gluten.net/branches.php#Texas
Celiac Disease Foundation: http://www.celiac.org/index.php?option=com_content&view=article&id=79&Itemid=105
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Glutino crackers.
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Not a hotline, but here are some options:
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General info:
Here is some info the help - use them all and food shopping is less confusing.
Unsafe ingredients: http://www.celiac.co...ents/Page1.html
Safe ingredients: http://www.celiac.co...ents/Page1.html
A list of companies that has a clear gluten policy. If you don't see "wheat, rye, barley, barley malt, oats" on the labels, its not there, or hidden in "flavors, starches, etc." http://www.glutenfre...lists/index.htm and http://glutenfreeins...ct_updates.html This makes shopping MUCH easier.
FDA foods are required to list wheat - it cannot be hidden.
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Triumph Dining Grocery Guide: http://www.triumphdining.com/products/gluten-free-recipe-ingredients
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Clan Thompson's Celiac lists http://www.clanthompson.com/index.php3
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Iphone app: http://www.midlifecrisisapps.com/Midlife_Crisis_Apps/Is_That_Gluten_Free.html
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Most regular ice creams are safe. Generally, it is the obvious ones - like cookies and cream, that have wheat/gluten in it. That being said, always best to read the label. Wheat is required, by FDA labeling laws, to be listed. And, if any questions, call the company!
, if you can get it and share (offline is fine) ... very few docs actually perform the testing correctly or interpret the tests correctly. Would hate for it to be ruled out if it wasn't tested accurately, ya know?
Need To Find A Dentist
in Doctors
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Yes, definitely tell them. In intake forms, they will usually ask about allergies, and you can just list it there. Then, when the dentist reviews it and brings it up, you can mention that you need to check all products before they are used on you, etc. Easy!
Good luck!