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TERESE

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  1. I've been take Omegas for over a year now. I can't really tell if they have done anything but I do think most people need them. The one my Holistic Dr. has me take is Nordic Naturals Ultimate Omega. Some of us with tummy troubles have problems with burping and at least these are lemon flavored.

    Nothing like the taste of dead fish :blink:


  2. Terese,

    I read on the internet about a year or so ago that it has been discovered that even people with pernicious anemia can address the disease effectively with oral B12 taken in mega doses. I think ti was like 2000 to 4000 mcg. Apparently, even with pernicious anemia the body is still capable of assimilating some B12 from the gut, albeit a very small percentage. You might want to do some research in this area.

    Steve

    Thanks Steve, I was taking 1000 mcg in oral form before the injections and it didn't help. I'll look into this.

    Funny thing is I've not been told I have pernicious anemia but the Dr. did note on my chart that my high MCV was from a B12 deficiency.


  3. Mouse

    Nobody here will give my shots but thanks.

    KrisT

    Thank you, I know I need to relax. In the last 4 yrs. Iv'e had trouble with panic attacks. I'm going to give it a try.

    Marcia

    I was thinking I should be able to give them in my thigh but Dr. didn't tell me so didn't try! Thanks

    Oh and I had a thought ..........through the brain fog..........

    I have a hair appt. this afternoon and the gal works out of her home and is also a nurse. I'm going to bring them along and have her help me :D


  4. I know there are others on this board that give themselves B12 injections. I am having a hard time here.......

    In April after I had a vitamin deficency test that showed I was low in B12 and I was feeling like crap (chronic fatigue) (even though I'd been gluten free for 8 months) my Dr. prescribed B12 injections 3 times a week. I did ok giving them in the beginning. Well sort of I had sweaty hands, shakiness, racing heart but it got better and after a few weeks I felt GREAT.The best I'd felt in 4 years. After a while, 4 months or so, the spot that I was giving the injections got so soar (I was moving around a bit so I wasn't going to the same exact spot). Then ZOWIE........ I couldn't do it so I thought I'd wait a few days and the soar spot will go away. I waited 4 or 5 days and tried again and couldn't bring myself to try and now it's been 3 weeks and I hyperventilate just thinking about it. It's not so much the fear of needles but I think it will hurt again. BTW I have tried the sublingual B12 but it upsets my stomach and gives me a headache.

    So geez, help here. I could call the Dr. but she charges $25 - $50 for a phone consultation and I don't have insurance. I was told and shown to give them in the upper buttocks/hip area, right side. I use compounded B12 (Methylcobalamin) and a 30 gauge insulin needle.

    Q. Is there another place I can give them?

    Sure hope my insulin resistance doesn't turn into diabetes or I'd be up a creek!

    Oh Yea, I'm back to feeling like crap! :(


  5. I stink at baking bread! I can bake the best cookies, pies, cakes, I don't know what it is about bread but I can't seem to get it down. So, I bought a breadmaker, and its a godsend! I make 3 loaves a week, and they taste wonderful. I don't know about you, but I don't "literally" have the time to perfect my bread baking. I just follow the recipe, throw it in the breadmaker and walla, yummy bread....

    Julie, what recipe do you use? I sound like you :D . I just got a bread machine and I can't get the Pamela's brand mix around here so will be using another mix or maybe trying it from scratch.


  6. I have been recently taking 25mg of Trazodone for sleep and pain also. I also had the strangest dreams which unfortunately kept me awake all night. I was taking Amitriptyline 10mg before that and found that it worked ten times better than trazodone with no dream side effects. Unfortunaltely, your body tends to get used to the sedative effect within a few months so you have to adjust the dosage. The chronic pain I felt due to fibromyalgia was significantly better. I quit taking it for now because I was have heart and liver issues and I haven't slept well since. Oh well maybe something else will turn up. Good Luck!

    I think we are all different. I know I can only take a very small dosage of most things. I tried the Amitriptyline 10mg and was hung over for 2 days! :wacko:

    Marcie, I also take 5HTP in the evening which is also suppose to help with sleep. I don't know if it will help by itself though, I've always taken it with the Trazodone. I am also taking hormones from a compouding pharmacy.


  7. I know this is a long shot, but I thought I would ask here anyway. :)

    I tried Trazodone Sunday and Monday nite because hot flashes are waking me up several times a nite. Other than the weird dreams, it worked like a charm. :P

    I was even hot flash free during the day Monday and Tuesday. :D I've been having 10 - 15 severe hot flashes a day for about a month now and I don't have to tell you that I am getting irritable. :blink:

    I hate to start taking sleep meds since I just got off the Klonopin, but I have to get some sleep.

    Any ideas ? I tried melatonin and chamomile, but the heart palpitations, adrenaline rush and sweating still woke me up. Go figure :unsure:

    Are the weird dreams as sign that I should stay away from this med ? I'd be arrested if I actually did what I dreamed about. :o:lol:

    Thanks ... Marcia

    Marcia,

    I've been taking Trazodone for about a year now (every night). I'm going through menopause too :wacko:

    I don't really get hot flashes but I do get nightsweats. Anyways, I have 50 mg tablets and I have a pill cutter and I take 1/4 to 1/2. I can fall asleep but my trouble is staying asleep. I ache all over. I'm not sure what that's all about, if it's gluten, menopause or maybe, I've been toying with this idea, cutting out nightshades.

    I don't dream much or have wild dreams like you..........darn :lol: Maybe you are taking too much, try cutting the pill in half. Good luck.


  8. I have a problem with food substances that don't need wheat or dairy in them containing it for the sake of containing it. I personally don't see why they need to add wheat to chocolate. I really do think this "adding wheat to chocolate, wheat and dairy to fries" is insane.

    On Hershey's the last two times I had Kisses I was glutened and got very ill from them. I do know many companies add wheat into the chocolate but don't list it, I have yet to find out if they do or maybe make them in a factory that has gluten in it or it could have just been my funny stomach and something else glutened me that day, anyway I will check it out.

    I just spoke to Hershey; they have guaranteed me that if there is a possibility of cross contamination or it is made in a factory where wheat or wheat gluten is it will say so on the package. She said the miniature bars in the bag or just the miniatures alone are contaminated. She is going to send me a list of gluten-free items althought it doesn not contain everything. I also pointed out on their website where they say that people with Celiac Sprue can tolerate a little bit of gluten. I told her this is untrue and they had best change it, she said she would alert them to that faux pas.

    If anyone else wants the Hershey list all you have to do is call them.

    I had a reaction from Hershey's nuggets just last week. I went first to the web site and I agree it's very misleading how it reads. I then called them, told them I'd had a reaction but was told they (milk choc w/ almonds nuggets) were gluten free. I'm pretty new to this and don't get classic celiac symptoms just feel like I've been run over by a steamroller. I'm not eating Hershey's again. :angry:


  9. Lyme testing is REALLY unreliable. The only lab I would trust is Igenex Labs in CA. www.igenex.com

    It's just like testing for celiac. Not all labs are created equal!!

    That's who my Dr. used. Thankfully I have a GREAT Dr. whos like a bloodhound. Started seeing her last year and Lyme was one of the first test she ran. I have or had alot of the symptoms on that list. She sees alot of people with Lyme as it's one of her specialties. Thanks!


  10. I have really dry skin everywhere. My heels crack too and my boss has this problem also. Her thyroid dr. told her it was because of her thyroid being out of wack. This sounds strange to me. I just try to file my heels acouple of times a week and put on a good heavy cream for feet, socks at night if it's not to hot. My hands are another story. I have also had thick weird skin on my hands that would crack easy in the winter. I have tried everything (sleeping with cotton gloves and cream most my life). Dr's all just said it was dry skin. When my boys were younger they said I had "monkey paws" :D Well my new dr. that I sarted seeing last year (who also tested me for gluten sensitivity) diagonosed it as ichthyosis vulgaris and I now use a percription cream that REALLY helps. (after 49 years!)


  11. Terese,

    I was Just reading your bio at the bottom of your post. Is your hemoglobin and hematocrit high without the B12 injections? I assume you are taking the B12 injections because you have pernicious anemia.

    Steve

    Steve, yes my hemoglobin and hematocrit are high with out the B12 injections and I've just had my blood tested again after being on the B12 for 4 months and it's still high, no change. The dr's note on the test says "probably due to low B12 & B6." I have never been told I have pernicious anemia. Do you have a clue what this means? I see others on the board have pernicious anemia. I always feel like I'm overloaded with questions and answers at the Dr's. I really like her but sometimes feel rushed.

    Thanks


  12. I've read a little bit about 5 HTP and its benefits for depression and sleep problems and wondering if anyone's got any good / bad experiences of using it. Does it interact with any other meds? (don't know whether I should wait until I'm totally off my ads to try it).

    I've been taking 50 mgs of 5-HTP every evening for a year now. I had a lot of trouble staying asleep. I also take 1/4 of a 50 mg trazodone so I'm not sure which one is helping but I sleep like a rock now. Slept through a really bad rain storm a few night ago. I haven't had any trouble with 5-HTP.


  13. I use this receipe from Gluten Free 101 and its a hit here

    1 cup Flour Blend (I use any flour blend I have on hand)

    1/2 cup sugar

    1 tsp baking powder

    1/2 tsp xanthan gum

    1/4 tsp salt

    1/4 cup cold butter or margarine

    1 large egg

    1 tsp grated lemon peel (I leave this out, as I usually dont have any on hand)

    1 tsp vanilla extract

    1/3 cup buttermilk or 1/2 tsp white vinegar plus enough milk (cow rice or soy) to equal 1/3 cup

    1 tsp sugar (to sprinkle on top of fillling)

    grease 11 x 7 inch pan. In large bowl, combine 3 cups (about 3 large) sliced fresh peaches and tbspn sugar.

    Let stand 30 minutes. Drain. Combine 1/2 cup sugar, 2 tbsp potato starch, and 1/4 tsp each cinnamon, nutmeg and salt. Toss with drained peaches and add 1 tsp almond extract. Place in prepared pan. Add cobbler topping.

    Topping:

    Preheat oven to 375. Combine dry ingredients: cut in butter. Whisk together buttermilk, egg, lemon peel, and vanilla. Stir into dry ingredients until just mixed. Drop by tablespoonfuls on filling, which will spread out as it bakes. sprinkle with sugar ( I used extra for crunchy top ) Bake in middle of oven for 35-40 minutes or until browned.

    I hope you enjoy this receipe or any of the ones you get.. I love peach cobbler!!! :)


  14. He Terese. Well, you could have rice milk (not Rice Dream, as it's not gluten-free), and Rice Dream ice cream (which is gluten-free). Or almond milk on your cereal. There are other choices, but since I am intolerant to all of them, somebody else would have more info.

    Maybe you can have soy. Many people with celiac disease are soy and dairy intolerant as well. But by far not all. First eliminate dairy, since you actually tested to be intolerant to it. If you still have stomach issues, it may be something else, and would want to then try cutting out soy.

    Thanks Ursula,

    I'll try going dairy free and hopfully soy won't be a problem.


  15. I have been gluten free for 10 months. I had neg. bloodwork but tests from Entrolab showed I am DQB1 0302 and 0501 and casein sensitive. I have yet to go dairy free but think I should as I am still having stomach issues. Can I have soy? I think I read here that soy wasn't good for people with celiac but does that go for gluten sensitivity too? What does that leave me with and far as milk for cereal and coffee and my beloved icecream?