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ILOVEOMC

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Everything posted by ILOVEOMC

  1. ILOVEOMC
    Hi, My son is 11(almost 12) and was diagnosed back in March and has been gluten-free for 5 months now. They believe he was just starting to get celiac disease and they caught it early since he was only complaining of symptoms 4 months before diagnosis. The trouble now is that he spends a lot of time on the coach watching tv and acts like he is...
  2. ILOVEOMC
    Thanks Kate. I am not sure if we have Ikea in our area. We are in Ohio and I have not of them before.
  3. ILOVEOMC
    That's a super idea for us Celiac families. We are also big Clay Aiken fans and since he is the UNICEF ambassador both parts fit in well for us. I am glad you suggested this early so we all can get prepared. Do we need to get special boxes or brochures or anything to collect with?
  4. ILOVEOMC
    Hi! I am ready to start ordering online for some food for my son. Any of you out there with experience I would be glad to get your advice. Which sites are the best for ordering gluten-free foods? Let me know about your experiences please! Thanks so much.
  5. ILOVEOMC
    Very Happy to hear this I shop at Wal mart anyway but will continue doing so and with great appreciation.
  6. ILOVEOMC
    What is an Enterolab? Her symptoms have gotten more specific and pronounced since the testing. Before the testing when she would complian of these things I thought it was just becase her brother was getting diagnosed and there was a lot ot talk in the house of tummy aches and such. He is doing better and she is still complaining.
  7. ILOVEOMC
    She just turned 6 and she had the complete panel like my son did. If she is feeling the pain then I think there must be damage and a scope would detect that. I made an appointment with the GI but they can't see her until end of Sept.
  8. ILOVEOMC
    My son was diagnosed in March and his younger sister is complaining of things which make me think she is developing it. She had the blood panel done in May and nothing showed positive. She complains of her tummy hurting, feeling like she is gonna throw up, burping and saying it came up in her mouth, and head hurting occasionally. Do you think she has it too...
  9. ILOVEOMC
    Hi Jim, From what I understand any Gluten is too much. We are suppose to be totally gluten free because ,yes, any amount of gluten,even a crumb, is going to keep damaging the intestine. I know it isn't what you wanted to hear but hopefully it will keep you healthy
  10. ILOVEOMC
    Hi, My son has taken apple slices to dip in natural peanut butter, Enviro kids rice bars, natural applesauce, frozen blueberries, peanuts and raisins, and yogurt with chocolate chips in it. Hope this helps alittle. Also Hormell Peperoni is gluten-free and that is good for finger food!
  11. ILOVEOMC
    He did have the gene test and he did have one of the genes for celiac. He had the biopsy done first it came back with some of the damage typical of Celiac Disease.
  12. ILOVEOMC
    Prometheus Lab got these numbers on my 11 year old son. Anti-Endomysial IGA -negative Gliadin IGA 5.4 (<5 is normal) Gliadin IGG 6.1 (<10 normal) Serum IGA 194 (41-395 normal) Tissue Transglutaminase IGA .6 (<4 normal) What do you make of this?
  13. ILOVEOMC
    My son who is 11 had these blood test results Anti-Endomysial IGA-Negative Gliadin IGA- High at 5.4 (<5 is normal the range says Gliadin IGG- 6.1 (<10 normal) Serum IGA- 194 (41-395 normal) Tissue Transglutaminase IGA .6 (<4 normal) Prometheus Lab did these and he had a stomach flu and fever the week before.
  14. ILOVEOMC
    Hi Joyful Dancer, I am new too and my son was diagnosed in March of this year(now my younger daughter is voicing symptoms). We use Smuckers natural peanut butter and put in on apple slices or dip bananas in it. My son also eats gluten-free bread toasted and then put Land O'Lakes butter and cinnamon and sugar on it. The Envirokids gluten-free rice bars...
  15. ILOVEOMC
    Thank you Merika for sharing your numbers and advice. There are still times I wonder if he really has celiac disease but they think he was just starting it and we caught it early and maybe that is why the numbers were only slightly elevated. It helps to have you "experts" keep us on the straight and healthy narrow.
  16. ILOVEOMC
    This makes it so hard to know where to go for correct information. It seems like there is no one source for all the medical information or maybe it is just that there is not as of yet any real concensus on how to live gluten free and keep celiac in check so that there is no damage in the small intestine. It's hard for me to know what is a problem because...
  17. ILOVEOMC
    What does Richard have to say? Is it good or bad? Richard.....?
  18. ILOVEOMC
    Thanks for responding. Is iodized salt a bad thing? I appreciate your help.
  19. ILOVEOMC
    Celiac Sprue Association puts out a Product listing book with foods of all types included and lists pharmacies and all kinds of things that help you select gluten-free foods and products. You have to buy it, but I use it all the time.
  20. ILOVEOMC
    Hi, I have been using the CSA Product Listing Book to help guide me in selecting food for my celiac child. What is eveyone's opinion of this guide and does it help you? What other ways do you select gluten-free food?
  21. ILOVEOMC
    Hi, I have been using the CSA Product Listing Book to help guide me in selecting food for my celiac child. What is eveyone's opinion of this guide and does it help you? What other ways do you select gluten-free food?
  22. ILOVEOMC
    Thanks Kaiti, I wonder why his blood tests didn't show more elevations then only that one. Do you have any idea? He has been on th e gluten-free diet for several months now and the tummy aches have gotten a lot better. Now my daughter is complaining of her tummy all the time so I think....here we go again. I love this board though and look forward...
  23. ILOVEOMC
    Hi, This is my first post after lurking here for several months. I am impressed by the people here and have learned alot. My guestion is about my child . After stomach hurting for several months the Dr. did a scope and biopsy and diagnosed Celiac based on the findings. The only problem I have is that the week before the scope and biopsy he had the stomach...
  24. ILOVEOMC
    Hi, This is my first post after lurking here for several months. I am impressed by the people here and have learned alot. My guestion is about my child . After stomach hurting for several months the Dr. did a scope and biopsy and diagnosed Celiac based on the findings. The only problem I have is that the week before the scope and biopsy he had the stomach...
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