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gatita

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gatita last won the day on February 24 2013

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  1. Thanks Kamma for the warm thoughts. Unfortunately, Dr. H said my brother's MRI did not appear typical for gluten ataxia, although he stressed that MRIs are not definitive. My brother's neuro has him back on gluten after several months gluten-free, because she wants to do a celiac endoscopy...
  2. Just posting an update here about my bro and thanks again to all who responded. I sure hope you all have found some relief! The bad news is my brother's condition is much worse. He is wheelchair-bound and also suffers severe "rubral" tremors (full body tremors pretty much anytime he reaches for...
  3. Thanks for all the tips! I saw Green's at my natural foods store but it was like $7a pint... I've tried New Planet and loved it. Omission was also super good. I was afraid to try it but it didn't bother me at all. I thought I was super sensitive, but it says less than 20 ppm. But if I can find...
  4. I am brand new to the whole gluten-free beer thing, since I prefer wine. But the heat wave here in Cali has me wanting to try beer again. I used to like India Pale Ales and ambers, and brands like Gordon Biersch or Sam Adams. My local Safeway has two brands: Omission (this one scares me because...
  5. Double Amen! So here's the update. Thank goodness our info was wrong about the CT scan -- it was negative. Don't know if the receptionist said something wrong or my brother misunderstood her, but we thought it was something really serious. So that's the good news. My brother started a dialysis...
  6. Thank you for this! I sure wish they could do the test now... My brother's getting some more news this afternoon, I will update soon. His neurologist said yesterday she was sure he's having an extreme autoimmune response... but now an abdominal CAT scan is showing something else. It's very scary...
  7. Frieze -- Thanks, I will look into CoQ-10. Kamma, I will ask him what the MRI showed. All I know is they said "nothing definitive." I also read in PubMed that Transglutaminase 6 antibodies are a good blood test marker for GA, but I wonder if or how anyone ever gets tested for that? It doesn...
  8. Just a quick update here... My brother still has no diagnosis as to the cause of his ataxia; they ran a full celiac blood panel and all was negative. He's getting a spinal tap today to rule out MS and some kind of cancer. It seems to be getting worse, he told me he had to crawl to the kitchen...
  9. Oh honey, try not to worry too much. If it were me, I'd get him a quick note, email or phone message mentioning in a friendly way that you recall some strange bits of conversation and just want to clarify that you respect him and are grateful for his abilities. You can use the pretext of thanking...
  10. Thank you so much for the helpful replies. I'll pass the info on to him. My bro has his MRI scheduled for this morning, so we'll see what they say. He's also requesting the celiac blood panel.
  11. My brother who was just diagnosed with ataxia (cause still unknown) wanted me to ask this so he can have a sense of what he might expect if his ataxia is indeed caused by gluten. Of course he knows everyone is different, but he still would like to get a general sense of how long it took for any...
  12. Thanks! I finally have an appointment for Jan. 30. I will ask for that test.
  13. I've been wondering all year if I also have SIBO, but my docs are taking forever to refer me to a GI. I'm going to ask for the test when I do go though, because it still seems like totally random foods set me off. Thanks for sharing your experience, I'm so glad you found something that helped...