Celiac.com Sponsor (A1):

Celiac.com Sponsor (A1-m):


Advanced Members
  • Content Count

  • Joined

  • Last visited

  • Days Won


gatita last won the day on February 24 2013

gatita had the most liked content!

About gatita

  • Rank
    Star Contributor

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. Yes products can be manufactured on the same equipment or in the same facility without having to disclose it. That's voluntary.


    I've had problems with Nacho Doritos before too. Sometimes they were fine but other times not, so now I just avoid them.


    Sometimes, I do buy products that don't state what the manufacturing situation is, especially if they've been safe for me in the past.


    But I try to avoid them and if there is a certified gluten-free alternative, I will always buy that instead.

  2. I try not to let these people stop me from asking the questions I need to, but I admit I sometimes get tired of being the super-annoying one. For this reason I mostly avoided eating out for a year.


    Then recently I've had good luck at restaurants, even without raking the poor waitress over the coals. Which led me to be TOO casual about it... then guess what -- glutened. Doh.


    So I guess the bottom line is 1) eating out is always going to mean we have to ask, ask, ask; and 2) some people are going to be annoyed or even rude about it. C'est la vie!

  3. I have been diagnosed with wheat allergy although I may also have a non-celiac gluten intolerance. Diarrhea was my main symptom but I am told wheat allergy can cause that, too.


    When I eat wheat, within two hours my nose is stuffed up, my lips and face swell, and my eyes water. Not a life-threatening anaphylactic reaction, but an allergic response nonetheless. The next day I have hives on my stomach.


    If I use cosmetics on my face with wheat in them, I also get the swollen lips and face thing, stuffy nose, and teary eyes.


    But I still have severe gluten reactions in my gut, and I don't know if those are from the wheat allergy or a gluten sensitivity thing. And I get joint pain when I get accidentally glutened. Either way, I have to stay away from the stuff!! It is possible to have both an allergy and an intolerance.


    I know that in Europe, wheat starch is considered safe for celiacs, but personally, I would stay far away from it!


    ps. I don't trust allergy blood tests either. The last one said I had no problem with tree pollen, I was like really?? I go nuts when the acacias blooms here. My doctor relies on the old  tried and true elimination test for food allergies.

  4. Well, I'd have to wonder why the cat peed on the bedroom carpet. Perhaps he/she doesn't care for gluten either?

    You guys are making me miss having a cute and fuzzy, high maintenance purring machine around.


    You know, I'm thinking he doesn't like gluten either, like you and Raven suggested... his eyes are all runny today.


    I've had his kidneys checked out pretty good, he has lots of health issues but the vet agrees he pees on my carpet whenever he's mad at me. Gotta love that.


    Well, I went out and bought only food with no wheat in it for him today. Learned my lesson good!

  5. Another thing: cats like to rub their sweet little faces on things. When I'm petting mine, she does this and I can even sometimes feel a little wetness from her lips. If your cat rubbed her face against yours in the night, you probably got directly glutened.


    Wonderful little creatures, aren't they? They trip us when we are walking, they cough up hairballs on our rugs (or furniture), they have us constantly changing the litterbox, they wake us up before we're ready, they scratch us when they are in our laps and get startled when the neighbor starts their lawnmower, and they gluten us in our sleep.  


    Mine will be 14 years old in another week or so. For FOURTEEN YEARS I've been putting up with everything in the above paragraph!


    And if anything ever happened to her I'd be so lost and sad. Indoor cats can live well into their twenties. I hope mine breaks the cat longevity record. :wub:


    LOL!!! Not to mention mine peed on my bedroom carpet last night!!! First time I ever banished him from the room and he complained all night.

  6. Yeah, I def do have the allergic reaction going on. I always thought the offending item had to be ingested to get that reaction (like when I was a kid and was allergic to strawberries), but perhaps not.


    Since I do have the D, too, I figure some gluten got in my guts somehow.


    And yes, he does like to "pat" my face with his paw to wake me up! (I should make him wash HIS hands). He also like to lick the tip of my nose when I'm asleep. Scary thing to wake up to!


    I always wash my hands after I feed him or pet him, but maybe like you said I yawned or something and didn't realize it during the night. Baffling!!!

  7. For months I was careful to buy my kitty gluten-free food. But lately I've been broke and the wheat-gluten-full food was on sale and...well...


    1. Cat eats gluteny food.


    2. Cat immediately licks self all over because he likes to be clean after a meal.


    3. Cat sneaks into bed with me in the middle of the night.


    4. I wake up with swollen lips and itchy all over. Get the runs the next day.


    But seriously, is it really truly likely my cat glutened me?? I do wash my hands when I wake up, and I don't believe I lick my cat in my sleep (although he does lick me sometimes) -- so how did it happen? Or did I just get CC'd somewhere and I'm blaming my poor lil guy for nothing?



    Note: I have a true wheat allergy along with gluten intolerance. Not allergic to cats.

  8. For me the difference between my official diagnosis of "wheat allergy" -- and not celiac -- means my insurance won't cover followup tests because they're not "medically necessary."


    That's been frustrating when I wanted my B12 and vitamin D levels tested and they wouldn't cover it.


    Although I do get classic allergy symptoms like hives, swollen lips and eyes, my main problems with wheat are severe GI issues and joint pain. So I seem to have intolerance plus a true allergy. I tested negative on all celiac tests except a high anti-gliadin antibody level once.


    Lots of cases fit no easy category, and the official diagnosis can affect the coverage of your followup treatment.

  9. Weirdly, the glutening actually turned out to be a bit of a life saver for me today, as the stomach discomfort made going without food for 12 hours before the extraction much easier and the brain fog (which, among other things, dulls most of my emotions and make things feel unreal) pretty much killed any pre-surgery jitters I would absolutely have had otherwise and made it all go even faster.


    Now that's what I call a positive attitude! Never thought there could be a bright(er) side to glutening lol.... Hope you keep feeling better...

  10. It's good to hear so many people feel better this way! I agree that nausea is the worst symptom. I still get it once in a while (from canned tuna of all things, last night) but not nearly as much.


    I have to admit I like the south beach phase one plan because you do get to eat some beans and other legumes, which I ADORE. Plus money is tight and beans are cheaper than steak!


    I'm supposed to transition soon to adding fruit and grains slowly, but I think I will start with fruit. My thinking is to have grains as only an occasional treat while knowing I might not feel so great after.

  11. I've been gluten-free for 11 months and overall am feeling much better, though not 100%. I have been battling nausea several days out of the week, and the big D still comes back every now and then.


    But I started South Beach diet (for the second time) last week and am truly amazed. It's been a week with NO nausea at all!!! This is the most peaceful my guts have felt in years, even with a lot of stress in my family life.


    Phase one is pretty much like a Paleo diet, which I know so many here swear by. No grains or even starches of any kind and it's low sugar too. (I've added just a small amount of fruit.) Whatever it is, it's a miracle for me.


    I guess you Paleo / Primal peeps were right!


    Anyway, just passing this along in case it helps someone.

  12. BZBee, so sorry you're feeling this way. I've had a few of those moments...


    I agree with some of the other posters that the more we project the idea that this isn't stopping us from living life to the fullest, the less others will freak out about it and exclude us. (I admit I am very, very blessed by friends and family who keep including me even if I can't eat their food sometimes.)


    I sure hope you can convince your family that you want to be included and that celiac is not the plague!

  13. Well, I am not diagnosed with celiac but I do have a severe gluten intolerance as well as (apparently) a wheat allergy, so take this for what it's worth.


    I had to give up on getting a definitive diagnosis.


    Yes, symptoms can vary a LOT. Consistent? Heck no. I had to do (or tried to do) two gluten challenges last year. I thought I would die since even a crumb makes me sick, usually within a few hours. The wheat allergy symptoms are almost instant. Yet in my second challenge, the pasta and bread meal I had seemed to do nothing to me. Only about 30 hours later, wham! So reactions seem to vary all the time.


    It's true you might have something else going on, but if all your doctors haven't found it yet, you might just try a reverse gluten challenge yourself. Go without it for a few weeks or months and see if you feel better. As far as convincing your husband, sometimes it's just a matter of letting others know you are serious and that you simply get very sick when you eat gluten.


    But since it sounds like you're still not sure yourself, maybe being gluten-free for awhile will settle it. That's what really worked in my case, and seeing it convinced my doctor, housemate, boyfriend and everyone else around me that WHEAT...MAKES...ME...SICK.



    PS. That doctor who yelled at you sounds like a total jerk.

  14. Hey that is a good list, thanks! I also posted on this recently and have since been testing a few.


    My faves:


    Green's -- good but even more pricy than other gluten-free beers.


    New Planet Pale Ale -- tastes exactly like a good IPA to me. My nonGF friends pronounced it very good.


    Omission also tastes great and didn't seem to bother my guts, but I'm concerned about their "gluten removal process" so I will probably avoid it.

  15. I'm pleased but a bit overwhelmed. My friend owns a classy but very busy Mexican restaurant and would like me to spend time with the cook and others so she can train staff to deal with gluten-free customers, maybe eventually offer a gluten-free menu.


    I don't know where to start! She said the chef has been there 30 years and is stuck in his ways, but she will back me up.


    I ate there last week and felt there was very little I could safely eat. The waiter seemed to be saying whatever he thought I wanted to hear about keeping corn tortillas completely separate from the flour ones. (It wasn't a language issue, the wait staff are all fluent in English and I speak Spanish anyway.)


    Still, I can tell it's going to be a real challenge! Any ideas where to begin?