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About bobtom

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  1. Thank you for all the responses. We go back to see the GI in 2 weeks. I have been trying to do alot of research on the topic and do ask questions here because everyone seems so knowledgeable. I have been reading the testing "algorithms" from different studies and they all seem to say to draw the ttg first, then if that is positive, draw the deamidated gliadin. In my son's case, they drew the deamidated gliadin first which then led to the ttg testing. So I am wondering if that really matters at all (which is done first). If the doc would have just run the ttg first, then he wouldn't have looked any further and thus never knowing the deamidated gliadin was even high. Just some thoughts as I try to educate myself before we see him. If his AGA levels are normal, what does the igg levels show? Thanks again for all of your help
  2. Yes, he ruled it out based on the negative ttg. My son had a total IGA drawn at the same time which was normal so he isn't deficient. Has anyone else had conflicting results like this ? The doc said the gliadin test isn't very reliable. I did tell him it was the deamidated because I believe that makes a big difference (my son's regular ped drew had that drawn just based on his symptoms)
  3. Yes, the doctor ruled it out based on the ttg. He said the gliadin test isn't very reliable. My son's total IGA was normal, so he is not IGA deficient. The doc said we don't have to test further because the ttg was negative. From everthing I have read, I'm wondering if I should ask for and endoscopy. Has anyone else had conflicting results like that?
  4. My 11 year old son with history of mild to sometimes moderate stomach aches, off and on for about a year now, had deamidated gliadin iga level of 67 (>20 positive). Was sent to GI doc and he drew ttg iga which was negative. He ruled out Celiac. Why is one test positive and the next negative? Where do I go from here? Thank you!!
  5. Thanks so much for the information. I am going to talk to the GI doc at more length about early stage celiac when we see him in November. I just think something must be going on if his gliadin IGA is high. Thanks again!!
  6. Little background. My son, 11 years old, complain of stomach aches off and on since about beginning of year. Went to pediatrician and she ordered deamidated gliadin peptide IGA result 67 (<20). Referred to GI doc. Ordered total IGA which came back 184 (64-246) and TTG which came back <1. Didn't tell me range for that but can't get much lower than 1 so I guess it doesn't matter. Anyway, they say it definitely is NOT celiac. That's great, but why is the Gliadin so high? I asked if he could be in the early stages and not show up on his TTG, and they dismissed that idea. Said the gliadin sometimes shows up in people with other underlying conditions but didn't go into what that could mean. I'm not sure where to go from here. Take it as negative and move on, or continue to persue. I just don't want to miss something and then down the road they say it's celiac which was just too early to show up, which seems to be a common thread I have been reading. Any thoughts??
  7. Thanks for your replies. He did not order any nutrient tests and he didnt offer any explanation to the high result if it isn't celiac. He pretty much blew off that he thought it could be celiac, but he said we needed to "contend" with the high DGP. He did very briefly mention that if the tTG comes back negative, he may do a biopsy, but he said it so quickly and brushed over it and on to other things. My son had his tTG drawn this weekend, I will let you know what is was. I am very interested to see what it is and where we proceed from there. Can and elevated DGP indicate anything else?? Thanks for your time!
  8. My 11 year old son has been complaining of stomach aches, off and on, for the last 8-10 months. Pediatrician ordered gliadin IGA (deamidated peptide) which came back 67 (<20 normal). Referred to GI and he said that test isn't very reliable and ordered a tTG IGA and total serum IGA (which I am assuming is normal since he had an elevated gliadin to begin with). I was under the impression from what I have been reading that the gliadin test he had done is pretty reliable. Just wondering thoughts on that and is it common to have that test be high and the tTG IGA be low? If so, what would that indicate? This is all very confusing. Thank you!!
  9. An update from last week. My 11 year old son, complaining of stomach aches for several months, to most of the year went to pediatrition last week. The only celiac test she did was Gliadin IGA antibody (deamidated peptide) with the result of 67 (<20). Got in to see GI today and he said this test is not reliable unless it is drawn with the tissue transglutiminase AB IGA and total IGA, which he will have drawn in a couple of days. So my question is, do you see many negative tTg levels with a positive gliadin IGA? and if the tTg is negative, can we pretty much rule out the celiac? I am assuming his total IGA will be within normal range since he had and elevated gliadin IGA to begin with. Any thoughts?? The GI was not very forthcoming. Thanks!!
  10. Thank you so much for the information. I think that's a great idea to have those tests done prior to seeing the GI doc. And you are also correct about the endo biopsy, it would be nice to see if there is any damage yet. His stomach aches have been going on several months, probably about most of this year off and on. He is not doubled over in pain or anything like that, but just complains alot. Do you know how long symptoms persist before any damage would be seen? With the Gliadin IGA being positive, can the other tests on the celiac be negative? Thanks again for your help. This is a great place for information.
  11. Thank you for the information. I have not tried removing gluten from his diet yet as I am trying to do some reading and research. I am a little hesitent to start a gluten free diet in case the GI doc wants to run more tests. Thanks again!! This is alot of work, doesn't seem to be very simple diagnosis.
  12. Hi. Just new to forum.. My 11 year old son has been complaining for several months of abdominal pain, off and on. I cannot pinpoint any cause or correlation to anything. Took him to his pediatrician and she said she didn't think it was Celiac, but was going to do blood tests to rule it out. Gliadin IGA 67 (<20). That was the only specific Celiac test done. CBC,TSH, and cholesterol all normal. Sending us to a pediatric GI specialist but we can't get in until middle of October. From what I have been reading, I am somewhat confused by all the different tests. Is one celiac test enough, or do you need to run all of them to have a positive diagnosis? I would prefer him not to have to go through a biopsy, but I keep reading that is the "gold standard" for a true diagnosis. He is otherwise healthy, thin, boy. Any thoughts?