Mayasmum

It's a sugar cone - it worries me that the school was meant to be educated about this and still let this happen. I would be mad too. And as for the poster who said you were, and the world does not revolve around celiacs- shame on them -...

I would notify the head, this is unacceptable from them. My daughter's school has been amazing - it helps that her nurse and teacher are on board and they call me if something is beng offered that is questionable. They were fully informed...

Same sort of thing going on here. It annoys me so much tbh that grown adults cannot accomodate a child. Really - I would go out of my way for others if they had an allergy. Some people also think it is a "fad" uh no - it's not a fad. We...

If his IgA came back as low/deficient, then the celiac test cannot be trusted. IMHO I would keep him gluten-free. With the side effects - they can vary from person to person, and it can be very hard for a little person to tell us what is...

Quick question - how much gluten was your son ingesting before taking the test?

TBH, I decided that even though we had a negative response on the celiac test, we decided not to let the others have gluten at all, especially as a sibling has it. It may be worth looking at a comprehensive stool sample test as well - we...

And this would not be a cut and paste scenerio, as not everyone has low IgA.

http://www.nlm.nih.gov/medlineplus/ency/article/001476.htm Basically - if you have low IgA - your body will not mount a defense to the gluten, so the antibodies will not be there to test for - kwim? Hope I explained that right lol, super...

Two of mine have low IgA also - basically our doctor has said that this means any Celiac test may give false results. As their sister has confirmed celiacs, we have been advised to keep them gluten-free. A stool test showed the youngest...

Well, I spoke with her teacher, and they want me to speak with the nurse again. They do not think the other children are mature enough to deal with personal space near her...

I am going in again on Friday, so will also speak to the staff. I think part of the problem is that they know she has this, and do not want to be liable for anything as well.

I have been to lunch with her, the seats are very close. She does have other people on the table with her, just not sat directly next to her. So she is not toally isolated, that would freak me out for sure.

My 6 year old goes to a local school, and I have been told my some family members that I am being too cautious re her lunch situation. All of her other classmates eat gluten - the school menu is full of it, so, I requested that she does...

My two youngest tested negative, as did I. We had only been eating one slice of bread a day though for 2 weeks, so not sure if that was why, but my 6 year old came back very positive on that. With my youngest two, they also have low IgA...

oh good! Just saw your last update!