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      Frequently Asked Questions About Celiac Disease   04/07/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About Cderbogh

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  1. Oh bummer! Let me try to add a picture!
  2. Hello! I got tested through my doctor and was told I did not have a problem. Then, I decided to go through Cyrex Labs because I really felt something was wrong....here are my results. https://ch1prd0102.outlook.com/owa/attachment.ashx?attach=1&id=RgAAAABlJcyNs65pQI3et5rAG6R%2fBwBlvcrjRLReTJLJkUyJzUPVAAJ56yw0AAD10WI9Akc0T4PworSreU%2bRAABoeEizAAAJ&attid0=BAABAAAA&attcnt=1 I also got tested for Cross Reactive foods and this is what I discovered. I was kind of shocked to say the least! https://ch1prd0102.outlook.com/owa/attachment.ashx?attach=1&id=RgAAAABlJcyNs65pQI3et5rAG6R%2fBwBlvcrjRLReTJLJkUyJzUPVAAJ56yw0AAD10WI9Akc0T4PworSreU%2bRAABoeEizAAAJ&attid0=BAAAAAAA&attcnt=1 I really hope the links work because I'm dying to know if this means I actually have Celiac or if it is just a non-celiac sensitivity. Any help would be appreciated! Thanks!
  3. Hello! I'm looking fr a good doctor in Northern, Va. I live in Woodbridge, but would be willing to drive up around an hours distance if it means I get to be seen by a doctor who actually knows what he's talking about. Thanks!!
  4. Thank you thank you! I think I am going to try the paleo-ish diet bc another week in and I'm having trouble with dairy. It gives me terrible insomnia too �� Seems like I'm reacting to someone new every week! Hopefully just cutting it all out will help and then I won't really hafta second guess everything. I just wish I could fast forward to a time when I have this all figured out. Thanks for the help and encouragement! I'm gonna check out those recipe websites too!
  5. I did this just last weekend! I didn't have any problems, but I wasn't actually scooping the food -- I was sealing the packages and packing the boxes. The ingredients are rice, veggies, chicken and soy. I'm really sensitive to any gluten and have very bad DH but I was fine. Good luck! It's a great organization to support
  6. Thank you so much guys. I'm slowly but surely accepting this new reality. It's just hard. But it's great to have people here who understand and who have already been going through it all
  7. Please help! I was just diagnosed a few weeks ago and officially started my gluten free diet about 2 weeks ago. I noticed a difference immediately, which was very comforting. I've been extremely careful to avoid all sources of gluten and am trying my best to avoid cross contamination. Im just getting used to all of the ingredients i need to avoid to remain gluten free and its taken a lot of work and getting used to. I thought I was finally getting the hang of it, but I just discovered that I also have a reaction to corn! I started looking up ingredients that contain corn and the list is overwhelming! I am getting very discouraged as I didn't even know anything about celiac 2 months ago. I was really looking forward to my DH, bowel issues, anxiety, insomnia, irritability, brain fog, and dizziness going away for good but now I feel like I'm climbing Everest! Do I have to avoid all corn products in order for all of my symptoms to clear up? If so....what can I eat?!? It seems as though there is gluten or corn in everything! This is a lot to handle and my doctors aren't being much help. I feel like I'm alone in this!
  8. Sorry 2. Should be tissue Transglutaminase IGA
  9. So I requested my results to find out exactly which tests the doctor ordered, and there were 3 1. IGA 2. Tissue Transglutaminase 3. Gliadin IGA However I did not receive numbers....just 'negative'. Is this the full celiac panel? I emailed my doctor and asked if there was a chance it was a false negative and she said yes and to follow up with a GI. I'm sick of feeling sick! Part of me wants to just eliminate gluten and see how I feel. I'm ready for this itchy rash to go away too!
  10. Thank you for your input! I am scared to see the dermatologist and I do feel that my doctors so far have not been very knowledgable about Celiac. I have seen a gastroenterologist with Kaiser about a year ago regarding my rectal bleeding. He performed a sigmoidoscopy and told me we were going to treat it like internal hemorrhoids because I'm so young and he didn't want to believe there was anything more seriously wrong. I thought it was kind of ridiculous. I wish there was a Celiac Specialist i could see within Kaiser! I'm starting to feel like none of them believe me I'm going to try to contact my doctor tomorrow and hopefully she can refer me to a better gastro. Thanks for all the help!
  11. Hello! I'm so glad to have found this site...I swear I'm learning more from you guys than I do from my doctor! I guess I'll start by sharing my story. I'm 24 years old and was diagnosed with autoimmune hypothyroidism when I was 16. After I started taking thyroid medicine, I started to feel better and didn't really try to understand my condition much further than the medication (I was a junior in high school and it all kind of went over my head). A year later I started to have some rectal bleeding. The doctors told me I was fine. 2 years later I started to suffer from a terrible itchy rash on my scalp, back of my neck, buttocks, back and arms. The doctors have prescribed topical steroid creams and most of them help but don't get rid of it completely. Around the same time I started having anxiety problems. I had several panic attacks but never wanted to go on medication. i also started to have insomnia. The doctors thought my thyroid levels were off but I have them checked every 4 months or so and they are always normal or even low. In fact, Ive had dosage increases. About 2 years ago I started sleeping A LOT. I was always exhausted and would go to sleep at 7pm wake up at 7am and still be tired all day. After a few months of this cycle my insomnia kicked in. My body was still exhausted but I could not fall asleep (probably due to anxiety as well). I also started having stomach problems. I seemed to have to use the bathroom after every meal. Fast forward to present day and I'm still experiencing fatigue, insomnia, anxiety, skin rash, rectal bleeding (despite treating for 'hemhorroids' on multiple occasions), stomach problems and the list goes on really. I was finally alerted to celiac disease and it seemed that everything started to fall into place! I went to my endocrinologist and she ordered a celiac blood test along with several other autoimmune disorder blood tests. However, my bloodwork was all normal. The celiac test results were negative. I have Kaiser Permanente and I'm not entirely sure which celiac antibody tests they use but I do know that my doctor never contacted me I'm sure because everything was normal. But I'm almost positive my skin rash is Dermatitis Herpetiformis. Should I push for the skin biopsy and even the small intestine biopsy? Or should I just go gluten free and see if it helps me feel better? Thanks for all your help!