Jump to content

Lisa

Advanced Members
 View Profile  See their activity

  • Posts

    8,691

  • Joined

  • Last visited

  • Days Won

    15

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Lisa

  1. Lisa
    Hello and Welcome! I'm sorry it took so long for someone to answer your post. I will try, but I don't know anything about insulin resistant issues, so you might need to edit my post to meet your needs. The blood work should not be a big issue. Make sure they do a FULL Celiac (Blood) Panel as you CONTINUE to eat gluten. They should also test your...
  2. Lisa

    ARCHIVED Dry Tongue

    Lisa replied to bossley's topic in Related Issues & Disorders

    Try some water and a good gluten free diet. You absorb 70% of the needed fluid intake in your small intestines. DRINK WATER.
  3. Lisa
    Maybe Ron, you are exposing yourself to unknown avenues. When I walk into a restaurant, I assume 100% responsibility for what I order and what I put into my mouth, especially at a fast food joint, by any name. If I get ill, the blame is mine Do you really expect that a fast food restaurant is going to be knowledgeable in gluten free training? Here...
  4. Lisa
    I'm not a teen Trick, but here is a list of Gluten Free options. Make a copy and keep it with you: Open Original Shared Link Open Original Shared Link
  5. Lisa

    ARCHIVED New Member

    Lisa replied to GwenO's topic in Introduce Yourself / Share Stuff

    Welcome Gwen! You have found a great place to settle in. Read here as much as you can and please feel free to ask any questions. It gets better, it really does.
  6. Lisa
    You say diagnosis instead of testing. ???? I did NOT have blood work before my endo. As I stated before, my endo and biopsy offered me a diagnosis. I'm certain I'm not the only one.
  7. Lisa
    I'm sorry that you find it a difficulty understanding my posts. But..to address my point.... Celiac Disease is found, often as secondary diagnosis with over 300 symptoms. No one is the same. There are no consistencies. The methods of diagnoses can vary immensely. I am not the exception. Hopefully, the testing process can be refined in the years to...
  8. Lisa
    My diagnosis, in my real, everyday world, began with an endoscopy exam. No need to be specific, when nothing is specific.
  9. Lisa
    You mean going to BBQ's? It takes a while to learn what may have gluten or not. And you have to know your environment. Generally, I would eat before you go, bring a dish to share (gluten free) or bring your own food.
  10. Lisa
    Sounds like Tom is a step a head of the PR Department.
  11. Lisa
    Rose, I'd be interested to learning more about the Celiac connection. If you can find any research or lectures from the conferences, it would be great. Thanks
  12. Lisa
    Yes, it's possible. But, first make sure you are 100% gluten free (as much as humanly possible) for some time, before you start to suspect other issues. Revisit your meds, lotions, lipstick, scratched pots and pans, shared toaster, cooking non-gluten free foods, kisses... etc. Gluten can be very sneaky!
  13. Lisa
    Hello and Welcome! I have witnessed an absence seizure in a little one in my life when she was around the same age as your son. It's pretty concerning. You may be on to something. Some days she's calm and content, other days she's hyper. She's not always gluten free at my house, but I'm thinking that will change. You sound like a great mom....
  14. Lisa
    Until full healing can take place, any kind of food may be problematic gluten free or not. And you may find that your reaction time may vary, which always make it hard to pin point an issue. Keeping a food diary might be helpful. Have you eliminated dairy? Immodium works for me when I'm in a situation with no rest room. It's also, relieves some of...
  15. Lisa
    Start her on the gluten free diet and relieve her of her pain. If she is uncomfortable, there is no need to continue on a full gluten diet just to be tests by an endoscopy. She's five And testing is not as reliable with children under the age of five. A positive result on the diet is an additional confirmation of Celiac Disease or a gluten intolerance...
  16. Lisa
    I'm about a hour and a half away, but we go to Norfolk/Chesapeake about once a week. If I can help you in any way, I'd be glad too...and Welcome!
  17. Lisa
    The gluten molecule cannot penetrate the skin. But, then, some may have a gluten allergy and can have a histamine reaction. I'm not too sure there would be enough gluten floating around at Panera to get into your nasal passages, but who knows. Disclaimer: I'm not ultra sensitive.
  18. Lisa
    Wow...that's pretty extreme. How do you "react"? BTW, I HATE the smell of donuts. Always have, even before my dx.
  19. Lisa
    Even though you had a positive blood work and endo it might be a good thing to be retested. Anytime anyone has digestive issues, it's good to re-visit from time to time. The gluten free diet is very complicated. Many people feel that just removing bread, pasta and beer from their diet is adequate. And many seem to be surprised that gluten is in lip...
  20. Lisa
    If you haven't already done this...I would recommend a full metabolic panel to check your mineral and vitamin levels. Often times, many can be deficient in B-12 and Folic Acid as well as other things due to lack of absorbing. After my diagnosis, I had B-12 shots once a week for six weeks. My improvement was extraordinary.I could walk a straight line...
  21. Lisa
    May I ask how you were diagnosed three years ago?
  22. Lisa
    I noticed your signature...if you do in fact have Celiac, it will take some time to heal. It's often recommended that people go dairy free until some healing can take place. Most times, it can be reintroduced successfully. As well, all foods can be problematic until there is healing, gluten or otherwise. Give yourself some time and avoid dairy...
  23. Lisa
    THANK YOU SO MUCH! I will pass that on. And look further.
  24. Lisa
    My brother has an ongoing issue with Interstitual Cystitus. I'm not too familiar with this. And, I was hoping that I could find someone who is knowledgeable. Can it be associated with Celaic?
  25. Lisa

    ARCHIVED Food

    Lisa replied to bossley's topic in Gluten-Free Restaurants

    Carrabas is gluten free familiar and they are very good about your meal. It's a great treat for me. But, an hour and a half away..thus the treat. I would not recommend Appleby's as being safe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.