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thegron

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  1. Hi,

    here's a list of what was causing my symptoms.

    migrains, brain fog - rice alergy, wheat/rye alergy - including inhaled wheat around bakeries, pizza places, I don't need to eat my allergens to get sick. Even someone else warming up rice gave me two days of bad migrain.

    brain fog, orthostatic hypotension - yeast overgrowth and glutenning

    fatigue - anything mentioned above plus nightshades and low blood pressure

    loss of hunger - glutening and something else I still can't figure out - seems like I only get this when my thyroid is hyperactive which usualy happens a couple of days after gluten exposure.

    Hope it helps a little. I know how hard it is to find what's causing which symptom. It took me about a year to figure the rice alergy since most of the rice products can also be cc with wheat so I always blamed cross contamination.

    It does help Pac, thank you. I'm sorry that you have so many intolerances. Hopefully, rice isn't an issue for me. I think it is uncommon to have a rice intolerance so I'm crossing my fingers. I'm just praying that what I'm going through right now is gluten and/or casein withdrawal.


  2. Hey guys and gals,

    I have been suffering from suspected food intolerances for 6 months now with chronic severe brain fog, lightheadedness, dizzy spells, depression, and dysautonomia (chronic orthostatic intolerance). I've gone on an elimination diet and that means no gluten or casein (among other things). I've been on the diet for 5 days now and feel much worse since starting. In the first couple days I maybe felt a little tiny bit better but now I feel like hell. I'm not sure if this is some kind of gluten/casein withdrawal or what but I am at the end of my rope. I don't know how much more of this I can take. Maybe 5 days isn't long enough to see progress but I lose hope very easily. I just want to get better.

    Any support/information is greatly appreciated.

    Thanks :(


  3. Hey man. Im new here too and dont know if I have celiac, so i cant really say. But my symptoms are mainly brain ones as well. I have these on your list:

    -Horrible brain fog (this is the main symptom)

    -Fatigue

    -Dysautonomia (chronic orthostatic hypotension)

    The brain fog went away after about 2 days gluten free. The fatigue as well, in a way. Leaves an empty feeling. Havent tested the last. You can read all my symptoms in my threadh in the pre testing category. See if you see other similarities.

    Good luck! :)

    Hey Johan,

    Thanks for the reply. It's great to know that someone else has experienced the same symptoms. The dysautonomia is especially rare it seems. That's great that your brain fog lifted after only 2 days gluten free! I am 5 days in and I actually feel worse. I think I could be going through withdrawal and I'm just hoping that I'll feel better within a week or two. I guess it just depends on the person. I'm very envious ;)

    Have you considered getting testing for celiac first, before stopping the gluten? It would save having to do a challenge and potentially make yourself very ill later on :)

    Hey Mushroom,

    Not to be rude, but I mentioned in the very beginning of my post that I had been tested for Celiac Disease and it was negative. I have very few GI symptoms and when I do, they are all upper GI symptoms. The majority of people who are intolerant to gluten do not have "true" Celiac Disease. Some people, like Johan and I, have purely neurological symptoms. And it absolutely sucks... :angry:


  4. Hi all,

    My first post here.

    First, I tested negative for Celiac Disease. I do think, however, that I am sensitive to gluten nonetheless. I have little to no G.I. symptoms. All of my symptoms are neurologically based. The main ones are...

    -Horrible brain fog (this is the main symptom)

    -Occasional migraine-like headaches

    -Fatigue

    -Dysautonomia (chronic orthostatic hypotension)

    -Loss of hunger (when its really bad)

    -Dizziness

    I've decided to start on an elimination diet and eat plain rice for a week or so. Then hopefully I'll see some improvement.

    I'm just wondering if anyone else out there has experienced a similar set of symptoms and could tell me their story. I'm wondering if this is 100% curable and how long it might take to get appreciably better.

    Thanks for your time and consideration.