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Renaye

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About Renaye

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  1. I have been gluten, dairy and egg free since 2011. I have been on plaquenil for possible sjogrens disease also. I recently got tested for sjogrens with a new more accurate test and tested negative so now I am trying life without plaquenil. Recently I started researching dairy with low amounts...
  2. Hello!! I have been gluten free since 2011 and today I went to my gastro, who did not see me in 2011, with my original Prometheus paper work which has high DGP's on them. Previously he brushed my verbalizations off that I had it and could not find the test in the mound of transfer papers so I presented...
  3. Thanks for the suggestions! It is difficult to travel and always raises my anxiety about eating with others. Here is what I have planned. Tomorrow I am cooking a few chicken breasts and hamburgers to take along. I have gluten-free buns. I have one taco soup in the freezer that I will possibly...
  4. Hello, everyone! I am going on a trip to watch my son play baseball this Wednesday and will be gone for 5 days. We are traveling with the team and may not know what we are doing for meals since baseball times are based on whether you win or lose. I really feel embarrassed going out with the...
  5. I saw a nurse practitioner a month after my attack (took forever to get in) and she did a SIBO test which was negative, changed my acid reflux medication and checked my lipase level. It was 220 which was the maximum number to be normal. ?? I also found out that I have bile reflux and I started carafate...
  6. I am very well aware of the difference in the organs. My gallbladder came out because it was causing problems with my pancreas. My gallbladder was not functioning normally and they suspect I had gallstones although they believed I passed them before it was taken out. Thus no evidence of gallstones...
  7. Hello! I have been gluten free for about 5 years with no official diagnosis. I have been doing good until October when I had some sort of stomach attack that took 6 weeks to fully recover. I thought it was pancreatitis which I had several years ago but the doctor has told me that I should not get...
  8. I know that there was a lot of information a few years back on this milk indicating that it was not gluten free. I am having difficulty with digesting other milks and was wondering if it is affecting anyone negatively now. Hoping not. Not sure why they still advertise gluten-free if it is not....
  9. Plaquenil helps my fatigue and joint pain. It is also supposed to slow down the progression. I see the rhuemmy every 6 months and get blood work every time. I am doing well and my doctor thinks my sicca symptoms are in remission due to the gluten-free diet. He plans on seeing me yearly after...
  10. I did not get a final biopsy report but the last one was taken in 2013 and my discharge papers indicate scalloped mucosa in duodenum and duodenal mucosal changes consistent with celiac disease. This was 2 years after going gluten free. Biopsies were taken and nurse called that they were negative...
  11. I am on plaquenil also. It is the first thing that they put you on if your symptoms are mild. Plaquenil has worked wonders for me but the only risk are eye problems which you would need to have an ophthalmologist follow you. I don't have antibodies but have a positive ANA and dry symptoms which...
  12. Back in 2011, I had a Prometheus test run which consisted of a +DGP IgG, +DGP IgA, -TTG IgA, -EMA IgA, Total IgA was normal. My gastro did a genetics test which was unable to interpret but started me on a gluten-free diet and sent me to a rhuemmy doctor. A later biopsy was negative. Now that doctor...
  13. I don't believe in weight loss products like these but wondered if anyone has used them? I noticed they have a gluten free brand, not sure about dairy. I don't need it for weight loss or energy but heard that it may help constipation and I am in desperate need of help in that area.
  14. I discovered this place last week and they have dairy free and gluten free options on their menu and website. I am anxious to try it. Has anyone had any experiences with this place? I noticed that they use a separate blender for each drink you order.
  15. I was always told to only eat Bush's beans but I notice that Aldi has naturally gluten free chili beans and refried beans in a can. Are they safe?