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  1. As I mentioned above, my son's GI doc said the breastfeeding was the best thing I could have done for my son. Some kids are susceptible to dental caries; it has nothing to do with breastfeeding. Some tout grassfed butter as something children with this issue should eat (that would also be high in fat, which is good). Have you investigated celiac or non-celiac gluten intolerance for your daughter as well? Or allergies? I think what you've done for your child has been great. She may have had even more issues without the breastfeeding. Maybe nut butters? Avocado? Greek yogurt (with honey?)


    Best of luck! I hope everything is resolved soon.

    Yes, I went to see a new pediatrician and she said that you were right that breastfeeding was the best thing for my child and I should keep going for the moment anyway. We are looking into gluten intolerance as a possibility but first we are trying to rule out a milk-protein intolerance as the cause (she was also consuming some cow's and sheep's milk products). To be honest she has some GI issues but nothing severe (although this could also be mitigated by breastfeeding) so sometimes I wonder if I am putting her through trial diets and testing etc. for nothing. The truth is though that she hardly eats anything and she is not growing/putting on weight as she should so I suppose it's worth checking it out. We'll see.

  2. Perhaps you can get your doctor to "instruct" you to try the diet for 3 months to see if there is any improvement.  If the doctor says so, maybe your family will listen.



    Thanks so much for your reply. Went to a new doctor today who was so helpful and had the same opinion as you about the positiveness of the test. However, she has told us to eat more gluten this month and no dairy whatsoever and we will re-test at the end of a month. Then we will probably have to go gluten-free. We'll see. Glad things should be getting cleared up soon though...(but not looking forward to a month of feeding my child lots of gluten.


  3. My almost 2 year old was recently diagnosed with FFT seeing a GI in April I am waiting on test results for myself. He weighs 20 pounds and is 33 inches he still breast feeds and trying to get him to eat anything is like pulling teeth.


    Sorry I can't be of any help, just wanted to say: I'm in almost exactly the same boat. My child is the same age, also 20 pounds (9 kg) and less than 33 inches (80 cms) given the label "failure to thrive", still breastfeeds and trying to get her to eat anything is as difficult as you say. She also has big dental problems, though I have avoided the dentist I can see her teeth rapidly wearing away. She will eat some things (pistachio nuts or pumpkin seeds for example) but I'm don't think these things are helping her mineral absorption for her teeth!  I know that breastfeeding her has helped her in loads of ways (she never comes down with any colds or flu), and perhaps she has some digestive disorder with which the breastmilk is helping her,  but I do seriously wonder if she would simply be a stronger child without dental problems now, if she weren't breastfeeding.  Please let us know how you get on. Sorry again that I can't shed an ounce of light.

  4. Hi GottaSki,

    Many thanks. Would ask you many more questions but on further reflection I should probably post those another time under a new heading. (If you have time though: by the time we reach adulthood do not all western adults have at least low antibodies to gluten?)

    Anyway, if I do find out more about my daughter's problems I'll try to write one more message in this thread to let you all know how it turned out.

    Going gluten free without official diagnosis would be possible but for the fact that there is quite a lot of extended family pressure to do otherwise.



  5. Hi,

    in answer to the part that I have selected below: yes, they were all blood tests. And yes, I was very surprised to find that the reference values at least for the first and third tests were "zero". (The tTG test reference range was apparently <1).

    In fact, that is really the whole reason why I have written to this forum. My lab simply told me that each lab has different reference ranges. I know that this may be true, but such low ranges are totally different from anything I can find on the internet. I'm afraid I'm tempted to think that the lab don't know what they're talking about, but then again that's a bit rich coming from a totally uninformed and non-medically educated parent!

    My child doesn't really have a lot of symptoms these days, other than that she doesn't eat well, she is often tired or daydreaming and she can get extremely irritable and clingy. And of course she is still "failure to thrive".These things could be attributed to other causes though I suppose.

    Thanks for your input, I may try to find another pediatrician round here who would be willing to let me know their mind instead of referring me constantly to gastroenterologists who are hundreds of kms from here.

    Were those tests all blood tests? I ask because those blood tests do ot usually have a reference range of zero; and you are correct in that most people will have a very low level of autoantibodies... low being the key word.  The tests most commonly go up to around 20 (usually) and the EMA test is a titre in North America (meaning they keep diluting the sample until the autoantibody can no longer be found - positive results would look like 1:20, 1:40, or 1;80... keeps doubling).

  6. Someone here will be able to help more but what I have heard is that even borderline positives typically indicates celiac. My 9 year old was recently diagnosed after borderline lab results. I would push for an endoscopy... Sunds scary but it's really a very easy procedure.

     Hi, and thanks for replying. 

    A bit of additional information: My 2 year old wasn't eating huge quantities of gluten in the weeks running up to the test,  because she basically hardly eats anything anyway! So I suppose that that may have made the result a bit weaker.

    Anyway, I hope that there might be some other replies to either back-up or otherwise what you say before I go ahead and make up my mind whether to take this further or not.

  7. Wondering if anyone can help me interpret the results of EMA and tTG and Gliadin antibody tests.


    I am living in a non-english speaking country and do not have expert advice to hand. The lab was also fairly unhelpful as they do not perform these tests regularly.


    I am wondering if my child has gluten sensitivity. She is a failure to thrive case (dropped from the top of the charts to the bottom over the course of a year. And she is extremely picky with solids.


    The results from the blood tests taken from my 2 yr old are as follows. Do they show unusual levels or are these levels quite within normal range?


    Antibodies to Gliadin:  IgM(?) (perhaps lab made mistake and these are actually IgG?) "Weak positive" 1.15

    Antibodies to Gliadin:  IgA   "negative"


    tTG IgG "borderline"  0.98

    tTG IgA  "negative"


    EMA IgG "borderline" 1.09

    EMA IgA "negative"


    I wasn't initially worried by these findings until the lab told me that the refence values for these tests were 0. That is to say that there should not be antibodies present at all. Is this really true? What I read on the internet seems to indicate otherwise.


    Any help much appreciated! Thanks.