jmryan83

I should point out that I have zero trust in my current doctor who ordered these tests. It's a long story, and I trust the opinions and knowledge of you forum moderators and participants more than my Dr. at this point.

Doc said she was running a Celiac panel. Turned out it was only 2 tests. These are the results:

Immunoglobin A, Qn, Serum - Result (264) Reference 91-414

Endomysial Antibody IgA - Result (Negative)

Everything else was in range except for my Vitamin D which was very low (14.4) Reference 30.0-100.0

My biggest question!

Are the two test she ran conclusive that I'm negative for Celiac?

Fellow celiacs has anyone experienced any problems with the plain Quaker rice cakes?

Nope no problems here. I LOVE the chocolate crunch flavor rice cakes best though.

Hi! welcome! I'm assuming you are eating gluten free? How long have you been diagnosed? What is an air popper? Have you thought about gluten-free cat food for you cat?

^ This. And what is an air popper?

Sorry I am new at the whole online chatting thing.

so I found out after 22 years of life that I was born with celiac,

and a sever grain intolerance, I am getting better but I have only

ever dated one person in my life and it lasted a month.

I can not be around air poppers and am un able to eat meat,

I also have problems with my mood after eating.

 Is there any one out there that can give me something

any thing besides ''enjoy your cat''  or ''learn  to liv with it''

 Thank you...

Celicat. Living with people who don't understand your disease or are unsympathetic is difficult. It's hard enough just wrapping your own mind about all the changes and challenges you have to face. I think by learning more about Celiac in general it will help you better understand and communicate your needs with others. Surround yourself with people who care about you and want to see you get well. Anyone else...well...they need to get over it, or you need to get over them.

Hmm. If you are eating Gluten Free the mood issues and others should start to resolve themselves (decrease) over time. So it depends how long you have been eating G.F. and if you're sure you've eliminated sources for trace gluten/cross-contamination.

You may also want to try a enzyme helping supplement. I've used Enzymedica - Digest Spectrum with really good results.

I also have a LOT of mood issues after eating. Certain foods cause certain moods, so I swing pretty bad sometimes. I totally understand how frustrating it is. It does get better though.

Please help!!

 

I have been recently diagnosed with a possible gluten intolerance, and was advised by my doctor to try a gluten-free diet.  It seems that there are thousands of websites on tips and tools of this problem, but where do I start? 

 

 

Any and all help would be greatly appreciated!!

 

Thanks so much!!

First thing I did when I decided to try gluten free was sort the kitchen. I live with people who do not cook/eat gluten free. So separating everything was a big help. I have my own corner of the kitchen cabinets where I've looked over all the labels and I know anytime I go there the food is "safe". Start with the obvious foods, but using the websites and tools you have - identify what ingredients in your food labels may contain "hidden" gluten and take it from there.

I haven't gotten so far as separate toaster, pots, pans, although I do have separate cooking utensils. I will most likely finish the job once I'm completely off my gluten challenge. 

I received my Celiacsure/Biocard test the other day and was able to take the test within a few minutes.

I had some issues getting enough blood to do the sample, but the control line did show and after the 10 minutes were up a faint but distinguishable line was also in the test window.

According to the instructions and the website, a line in the test window (no matter how faint) is still considered a positive.

Considering I didn't have a full sample of blood and was still able to get a result I'm guessing that it's a very good indicator that I might have more than a gluten intolerance and might actually have Celiac disease.

I'm going to try and get a 2nd opinion from a doctor and see if they will do proper blood tests and labs to confirm. Maybe with my Biocard test in hand as evidence they will be more open to ordering/paying for tests.

Anyone have similar results with Biocard (now known as Celiacsure) test? What was your experience with the product? Did it help you any?

hmmm at the rate celiac diagnosis is going, what if you have a family member who has silent celiac, and doesn't even know it yet?  If you show symptoms, why can't she order the test.  it's frustrating that some doctors don't want to give a simple blood test.  Yes, they won't make money off you if you just need a dietary change, but aren't they supposed to help you feel better and get to the root of the problem     do you match up with any of the symptoms here Open Original Shared Link  or on page 6 or 7 of this paper Open Original Shared Link  if yes, can you either give it another try at your doctor or go see a different one?  

 

good luck!

My biggest problem is I'm at the mercy of the public health system where I live. If she can't justify the state paying the cost of the test by more than just symptomology I don't think the cost would be covered. If I had an immediate family member who was diagnosed it would give some justification. 

I also tried explaining to her that I am adopted and I have no idea what health/risk factors I have on my paternal side, and only know a few factors on my maternal. It's not out of the realm of possibility that either could have had some gluten issue, but it wasn't enough.

The problem with assuming that a patient isn't at risk for celiac because "there is no family history of celiac" lies in the fact that

someone has to be first for it to BECOME part of the family history!

 

I was the first one in my family, and I was 53 years old, having exhibited symptoms all of my life.

It does not mean I am the only celiac. It just means I was the first one to be DIAGNOSED.

My father surely died from this thing, but it's too late for him, I'm afraid.

 

This kind of archaic thinking keeps people sick and undiagnosed.

 

I do not have any knowledge about the "celiacsure test", but you need to be consuming gluten for it to be accurate (like all celiac testing) and I did see this on the website:

 

"If you do test negative according to the Celiacsure™ Celiac Test kit, you may not have celiac disease but this is not a guarantee.

If you have been on a gluten free or gluten-reduced diet, you may not have been eaten enough wheat for a long enough time to get a positive test. You may also be a person who does not produce the IgA antibodies required for this test."

 

So, the results may leave you guessing.

 

Your doctor says "go gluten free, what could it hurt?" Well, if you DO have celiac, it is wise to know for sure so she provides necessary follow-up care. While I appreciate her open mind, she is doing you a disservice. IMHO

 

In the end, if you feel better off gluten, that speaks volumes. If you did not have a gluten sensitivity of some nature, you would not notice an improvement.

I did read up on the Celiacsure website so I know it's not a sure thing, but it may give me some insight. If I did test positive it might give me some ammunition (so to speak) so I could go back to my Dr. and get additional testing done.

I'm continuing to have gluten in my daily diet. It's very hard, but I have at least one meal a day with a hearty helping of glutenous foods.

Well I finally went to my long awaited Dr. appointment day before yesterday.

Good news is I don't have diabetes and my cholesterol levels are all normal. 

Told her all about all the unusual symptoms though and that I thought it might be Celiac or have a gluten intolerance and that I had tried going gluten free for a week and was starting to feel really good.

I asked about testing and she said I would have to pay for it out of pocket because I don't have any risk factors (ie. immediate family member who was positive). Basically, she advised me to just eat gluten-free cause "what harm can it do?" in her words.

So no real answers and I'm kinda bummed. Decided to order Celiacsure test from GlutenPro.com

It's almost like a pregnancy test but for Celiac. Has anyone had any experience with this product? It seems legit and I just want to know if it's Celiac or not so I can make the right choices.

What do you all think? Any recommendations/input?

I've been trying Gluten Free for a week now, with much success and feeling really good. 

To my question. I should probably keep glutening myself till I get tested to not affect the tests.

How much gluten do I really need to intake? (specifics please)

Also, if I take an enzyme support supplement, will that affect anything?

Thanks.

I'm still learning about all the different hidden meanings in reading food labels. So I don't have any more information to add, except if you try something (because your not sure, and think it's OK) and you have a reaction, you'll have an answer.

I suspect I have either Celiac or gluten sensitivity. I've been gluten free for a week and it's been going GREAT. I made a mistake though and ate a Kellog Rice Crispie treat today though and I didn't see "wheat" listed, I missed the "malt flavoring". I got a terrible attack. It took hours to get over it. So now I know, hard lesson, but well learned.

Thanks for everyone sharing.

I've decided I'm going to give the next 3 weeks to my G.P. visit a try gluten-free.

I'll still have a full month to re-glutenize before I see any G.I. specialist.

I wonder since I can feel such a difference in such a short time if it's gluten intolerance or if I actually have damage which I heard can take months to repair?

My topic title says it all. I feel like I'm poisoning myself everytime I eat something with Gluten in it.

Forum members recommend to keep on a regular diet until testing can be done, but I don't know if I can do it.

I ate some macaroni and cheese today and have been sick all evening. Stomach cramps, diarrhea, and extreme lethargy.

On days when I've tried eliminating gluten I feel an immediate difference in my energy levels and stomach cramps.

Worst of all is I rely on my local public health system and it takes a month just to get a GP appointment. I have one about 3 weeks from now, but then I'll have atleast another month before I can see a specialist. I just don't know what to do.

Is it dangerous to just stop eating gluten without absolutely knowing if your a Celiac patient?

What's the worst that could happen to me if I just cut out the gluten and see how I feel in a month or two? (besides possibly screwing with any test results)

HELP!!!!

Yah I'm not sure if this is relevant to your problem at all, but I had a similar problem that had been escalating and it turned out to be my gallbladder. I was in horrible pain whether I ate or not, nausea (vomitted 9hrs straight one time), weakness. I got to a point where eating was more painful than not eating so I would barely eat. Once I found out my gallbladder was the problem and I was passing stones almost constantly I was able to change my diet and it helped. Gallbladder is gone now and I'm soo much better. 

I still have a whole new host of problems mainly which I feel are Celiac related, but I've yet to be diagnosed.

Good luck. And be brave.

Don't go off of gluten until all of the testing is done.

 

No, those with celiac do not handle any trace amounts of gluten at all.

Hmm. Well if people with Celiac don't handle any gluten at all then maybe I just have a gluten intolerance. Sighs. I understand the need to be eating a regular diet before testing, but that could be weeks if not months down the road. I thought I could at least try it and see if it gives any relief. 

Hello All,

This is my first post here and I'm hoping that more self-discovery will help me find relief.

First off, I don't know if I have Celiac's Disease, but I suspect after much research and my symptoms that I might. Some of my symptoms have been so off-the-wall that I never would have associated them with anything GI related, but after reading forums and articles, they just might be.

Hopefully a doctor's appointment later this month will lead to a referral to a GI specialist so I can get confirmation.

Til then, I am desperate to find relief and am willing to give gluten-free or atleast gluten-reduced living a try to see if my symptoms abate.

The scariest thing about all of this is I love to cook, but I couldn't afford to make my whole family eat this way and I can't be constantly cooking two meals. Is it possible that minor amounts of gluten and some during cross-contamination can be tolerated?  

Thanks in advance.