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cyclinglady

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About cyclinglady

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  • Gender
    Female
  • Interests
    DGP IgA positive only, Marsh Stage IIIB
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    CA

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  1. Consider prescription drugs. Almost all generics are manufactured in India and China. Are they really gluten free even if they do not list gluten as an inactive ingredient?
  2. I am sorry that your GP does not know about celiac disease or what is required for testing. With Dr. Google, there really is no excuse anymore. Celiac disease is an autoimmune disorder like lupus or rheumatoid arthritis. The difference is that the trigger is known— gluten. Damage is done to t...
  3. I know of no brand that is certified gluten free that is safe. Did you see my link to the Gluten Free Watch Dog’s website? I’d you do not like clicking on links, then consider just googling it. The problem is that legumes are mechanically sorted. Worse is that lentils (unlike chickpeas or pin...
  4. No time for me to respond well, but please, if you are going to a see a GI, make sure you are consuming gluten daily. All celiac disease testing requires you to be on a full gluten diet.
  5. A flare up is the same as your celiac disease being active. It is active when you are first diagnosed. It can take time to deactivate. Gluten is the trigger, but once set off, it is up to your body (immune system) to deactivate (stop attacking your small intestine). For a few, healing can occur...
  6. Doctors are just looking for a downward trend at the 3 to 6 month mark. I can tell you that my DGP IgA was very elevated when I had a repeat endoscopy/biopsies that revealed healthy villi. My GI was as perplexed as me. So, use it a just one tool. Look at other health markers (e.g. in my case...
  7. Her thyroid maybe functioning now (and those tests capture functionality) but not autoimmune. There are a few thyroid antibodies tests that can be ordered if symptoms arise. For example, my doctor 20+ years ago, felt my thyroid which turned out to be enlarged. Yes, he was old school and felt my...
  8. I will add that celiac disease is autoimmune. That means gluten is the trigger that sets off a flare up (those with IBD, lupus or Rheumatoid Arthritis never really know what triggers their immune system). Antibodies can take time to ramp up. So, just because gluten is physically no longer lingering...
  9. It can take a year or longer for antibodies to normalize. So, it sounds like you are on the right track. Remember, the antibodies testing was designed to help diagnose celiac disease. It was never meant to check for dietary compliance. However, it is the only non-evasive “tool-in-the-toolbox”,...
  10. I am so sorry. My doctors always blamed my life-long anemia on 1) menstrual cycles (iron-deficiency anemia) and 2) a genetic anemia called Thalassemia. I was so fortunate to have insisted on a cancer screening colonoscopy when I reached 50 years. My consulting GI took one look at my chart (history...
  11. GFInDC was right that many celiacs have elevated liver tests and those typically resolve when celiac disease goes into remission (via the gluten free diet). However, when you have one autoimmune disorder, you can develop more. Autoimmune Hepatitis is always a possibility. My hives erupted...
  12. Welcome. I am so sorry for the loss of your wife. Since your wife had small bowel cancer and the fact that your daughter has very high antibody results and a celiac gene, I would assume that your pediatrician is correct and that your daughter has celiac disease (I am not a doctor)....
  13. @Jill Harris Welcome! Have you been diagnosed with celiac disease for long? If you are new, know that most celiacs have additional food intolerances with the most common being lactose. Any food can be suspect. For example, I have issues with Xanthan Gum found in most commercially processed...
  14. These results seem to indicate that your daughter probably has celiac disease. The next step would be to biopsy the small intestine via endoscopy. Some new studies suggest that biopsies may not be necessary in children. So, talk with your doctor. Consider just a PED GI consult as he or she may...