My daughter was diagnosed with celiac last year at age 7. Our whole family immediately went 100% gluten free. Her older brothers are wonderful about it (and in fact, although they are negative for celiac, one of them is clearly gluten sensitive, because his psoriasis totally cleared up when he went off gluten). At home it's not too hard, although I miss being able to go out to dinner easily, or buy convenience foods - I know they're bad for you, but we eat a very healthy diet, and it would be nice not to cook sometimes.
My daughter is very careful about her diet at school - obviously she always brings her lunch, and I'm a room parent, so I always know when cupcakes or cookies will be showing up and can make an alternative (or make all of them gluten-free for everyone). One of her friends refuses to come to our house any more because our food is "weird," but she's one ignorant second-grader out of so many others who are lovely about it. Our families are supportive and all holiday meals are totally gluten-free, and they try very hard to understand this. I can't complain.
So why am I so sad?? I feel great, not eating gluten - more energetic, "cleaner," no more bloating, etc.,, which leads me to believe I have gluten sensitivity as well. I'm just really sad that our family has to think about this 24/7. I feel like it's all I think about. Every single thing our family does has to involve a complicated calculation about food, and I HATE IT. My friends say "at least it's not something horrible, you're lucky," and YES, we're lucky she's not deathly ill, but it's SO BORING TO THINK ABOUT FOOD ALL OF THE TIME, while raising kids and trying to have them NOT worry about it all the time - I don't want to drive them crazy (but I know I drive my husband crazy about it...)
I'm sorry to vent. I know I'm a newbie, and maybe it's not appropriate, but I really had to get this out somewhere.