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whitney728

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  1. Next fall I guess I will see how hard it will be to live Gluten-free and live on a meal plan. I have an apartment with a kitchen, but I unfortunately live with a kid who lives off bagel bites, pancakes and bread rolls, so cooking my own stuff will be a pain with him around (breadcrumbs on the counter and such)

    I do like hearing some of the tips people are mentioning in their posts. Tips such as talking to Dining Services at school, and bringing Gluten-free snacks with you in case its hard to find safe food, will be very useful for me. I just turned 21 and haven't started my gluten-free diet yet (even though I need to) and drinking beer at the bar this week to celebrate my birthday made me feel worse then ever. Beer has been getting to me more and more since I really got into it Freshman year of college (its Beer that really helped pinpoint the problem actually). It really has gotten to the point where I can't tolerate it at all anymore, when I used to only feel sick after too many. Bread and food haven't gotten to me much yet though, but I have severely cut down on the gluten in my diet. I think I'm starting to get more sensitive to bread and greasy foods, as I notice I have more stomach problems then ever after eating fast food. I actually have gone off eating fast food recently.

    I go for the biopsy of my small intestine soon, but I already know that my blood test showed I have Celiac pretty bad, even though I'm 6'6 250, so I can't claim that I'm malnourished. My dad got diagnosed in his mid 30's after losing a pile of weight all of a sudden, so I assume that helps explain why this disease feels like it developed in about 2 years for me.

    I will keep posting about my experiences switching to a completely gluten-free diet over the summer and how I am with keeping with that diet once Fall semester starts up again. To anyone in college with this disease, I sympathize and hope for the best. You are not alone.

    You can definitely manage cooking even though you live with roommates who don't eat gluten-free - I've done it for the past two years, and at one point I lived with 7 other girls! You just have to talk to them about your situation, and make them understand how serious it is, and stress that they need to clean up after themselves/put aluminum foil in the toaster/etc. You can also get your own pots and pans if that makes you feel better or if you don't trust your roommate to keep his dishes clean. I've managed fine, and I've never gotten sick, but I'm really careful even when I'm cooking in my own apartment. My roommate understands, but I've never really trusted any of my suitemates to keep things as clean as they should be.

    Do you have to be on a meal plan? I know that at my school if you live in an apartment style dorm you're not required to be on one, so maybe you can get off of it and just cook for yourself? It might be easier that way.

    And as for what you're saying about feeling sensitive to bread and all that, I've definitely noticed that my reactions get worse the longer I've been gluten-free. The more you heal, the more you notice when things go wrong.

    Good luck with everything!


  2. Wow, I read the label, and Frosted Flakes have Malt Flavoring, which is not good news. My dad used to eat frosted flakes a lot, and he ate gluten free for a long time (or so he thought) Come to think of it, if he did cheat and eat bread he got very sick, so I don't understand why the Frosted Flakes didn't get to him. I think it would be easier to get a list of foods that I CAN eat.

    It's kind of depressing giving up all my favorite foods, and college is full of gluten filled cheap meals.

    It is depressing at first, but you do adjust to it, I promise, and not feeling sick all the time makes up for it. As for cereal, Rice Chex are gluten-free, but this is a new thing, so you have to make sure it says gluten free on the front of the box, as some of the older ones still don't have it. There's a lot of foods you CAN have, but eating in a dining hall can be frustrating (see my other post). I've managed this for 3 years in college, feel free to ask me if you have any questions at all.


  3. Babycakes! - Gluten-free bakery on the Lower East Side. www.babycakesnyc.com. It's a cute little place with a lot of great options, and it's sugar-free and vegan as well (I promise, they still taste great). I think you take the F train to Delancey Street and walk down to Broome Street, but I would look up their address and look up the subway directions on Hopstop (see below) to be safe.

    Risotteria is my favorite restaurant, and you can also check out www.glutenfreerestaurants.org for a list of GFRAP-associated restaurants in New York City. There's also Mozzarelli's on 23rd street between Park & Madison for amazing gluten free pizza by the slice, but they're only open weekdays, and S'Mac in the east village (east 12th street between 1st and 2nd avenues) for great gluten-free mac and cheese.


  4. I'm heading into my senior year as well, and I was diagnosed at the end of my senior year of high school. I definitely agree with you about most people not understanding what you're going through - I've gotten the whole "if I couldn't have beer I would die" comment more times than I'd really care to count. The adjustment was pretty rough - I feel like a lot of my friends from home still think I can eat wheat, and I can't even tell you how many times I've been introduced to people as "this is Whitney, she can't eat bread."

    It does get easier though, especially once you adjust to the diet. Not having t o be on a meal plan and being able to cook for myself really helps - I was stuck with the cafeteria freshman year, because I was diagnosed the week I had to send in my housing forms and didn't think about getting an apartment-style dorm then, and it was pretty miserable. I was sick constantly, but as soon as I had more control over what I ate, it got a lot better. It gets easier though, and eating out isn't as hard as it probably seems right now.

    To answer the questions in the posts above me - Redbridge is a gluten-free beer that's manufactured by one of the mainstream companies (I'm blanking on which one at the moment) and supposedly it isn't so bad. I hadn't actually tried regular beer before I got diagnosed, so I wouldn't know the difference, but it's doable, or at least I think it is. I usually don't have a problem with vodka. And yes, I did lose weight when I was first diagnosed - I lost a lot quickly right before I was diagnosed, and then I kept losing as I was adjusting to the diet. I gained almost all of it back once I adjusted though, which was good.

    Let me know if you have any more questions!


  5. Sambuca on West 72nd street between Central Park West and Columbus Ave has a gluten-free menu, and I thought it was pretty good. You can also hop on the 1 train, get off at Christopher Street, and walk down to Risotteria (Bleecker and Morton streets) which is my favorite gluten-free restaurant in the city.


  6. I'm a junior at NYU, and I was in a traditional (no kitchen) dorm freshman year, so I was forced to be on a meal plan. While dining services said they would help me, they weren't always willing to accommodate me, so I wound up eating a lot of soup and frozen chicken nuggets from whole foods in my dorm room. I also got sick a lot when I attempted to venture to the dining hall, so I wasn't a big fan of doing that. Sophomore year, I moved to an apartment style dorm with a kitchen, went off the meal plan and began to cook for myself, so things got much better. Let me know if you have any further questions, as this is a subject I'm all too familiar with.


  7. I was the one who originally started this topic...

    Being gluten free in Prague can be a bit challenging, but if you're going for study abroad you'll be fine if you have a kitchen. A lot of drugstores (the DM chain in particular) sell Schar products. This is a great gluten-free brand, and I actually wound up bringing a lot of their pasta home in my suitcase. If you look on the Schar website, they'll tell you which stores in Prague sell the brand. I had very little luck with restaurants, so I didn't eat out a whole lot, but there's an Indian place called Bea's behind the Tyn Church in Old Town that has gluten-free dosas! I spent quite a bit of time there.

    I'm sure I'll think of more tips as time goes on, but my biggest suggestion would be that if you're going to prague, try to find some sort of living situation where you can have access to a kitchen. You'll be much better off that way.


  8. Hey!! I'm going to NYC in a few weeks, what are some good restaurants? I've been to Peters' and it was awesome.. but I was curious where else I can go!! thank you :)

    I'll just post most of an old reply I made on the travel thread...

    1. RISOTTERIA - this is an absolute must. It's by far my favorite gluten-free restaurant in the city. It's on the corner of Bleecker Street and Morton Street in the West Village (near the 1 train (Christopher Street stop) or the A,C,E,B,D,F, and V trains (W4th street stop)). It's a great little Italian place with a good selection of pizza, focaccia sandwiches, and risottos. They also have great gluten-free breadsticks (they come automatically, you don't even need to ask) and desserts. The menu automatically lists all of the gluten-free options, and they pretty much make everything in a "regular" and gluten-free version. It's my own personal version of heaven, and it's about 3 blocks from where I live in New York, so I'm here quite a bit.

    2. Babycakes! - Gluten-free bakery on the Lower East Side. www.babycakesnyc.com. It's a cute little place with a lot of great options, and it's sugar-free and vegan as well (I promise that they still taste great). I think you take the F train to Delancey Street and walk down to Broome Street, but I would look up their address and look up the subway directions on Hopstop (see below) to be safe.

    3. Mozarelli's - I just tried this the other day (23rd Street b/t Park and Madison) - it's only open on weekdays, but you can get pizza by the slice, and it's REALLY really good!

    Someone took care of all the GFRAP restaurants, but I've heard a lot of those are great as well.


  9. We're going in early May to Disney World and if I weren't stressed enough...DD's blood work came back positive for Celiac. Now awaiting results from biopsy but have started gluten-free...today is day 3 and she cried before going to school (she's 9) b/c she wanted to eat lunch there. Oh, the long road ahead of us.

    Anyway...I'd like to eat outside of the park for dinner (to save money) so any suggestions would be great.

    Thank you,

    Mary

    I don't have any experience with eating outside of the park, but Disney is more than accommodating when it comes to celiac disease. (There are a lot of past threads on this board attesting to that.) A nice treat for your daughter, if she's having issues with her diagnosis, might be to have breakfast on the property somewhere...I went to a character breakfast where they made me gluten-free Mickey waffles. I think you have to call ahead, but they were incredibly helpful. I was 18 and this still made my day, so I'm sure something like this would be fun for your daughter.


  10. I was DXed at the end of my senior year of high school, and I honestly feel like it would have been easier if everyone had known all along. I have one friend with a peanut allergy, and everyone is used to dealing with that because he's had it as long as we've all known him, but I still find myself attempting to explain celiac disease to my high school friends! ("but why don't you want to go out for pizza?" is a typical conversation starter when we're planning our nights.) So yeah, I think that once you explain it to his peers, it'll be a little easier than if he was diagnosed when he was older.


  11. I studied abroad in Prague last spring, and while it was challenging, (because Czech cuisine is not the most celiac friendly,) I had a really easy time cooking for myself and eating out at non-Czech restaurants. You can find gluten-free pasta and bread and the like at health food and drug stores. Also, Prague is an incredible city, and I would definitely recommend studying there :)


  12. Yeah, I just went to their website, and they use spelt in half their stuff, and it would cost me 20 EXTRA dollars to get a dozen brownies shipped from NYC to CT. Their prices seem great for a NYC bakery if you were to walk in, but I'm not paying that for shipping! I could screw up five of my own batches of brownies for that!

    I agree with you about the shipping, but if you're ever in NYC, Babycakes is definitely worth the trip down to the lower east side!


  13. It's a fantastic piece, and I am particularly excited because our 18-year-old son is leaving for college in NYC in August, so we will be going there a lot. Although I am adjusting well to the new diet, the one thing that was really bothering me was the fact that we spend so much time vacationing in NYC and we love to eat out, and I just felt like all that would be lost to me. Well, now it just looks like we'll be finding some new places as well as eating at one of the ones we used to frequent in the past. Thanks for the info!

    I go to college in NYC and live 5 blocks from Risotteria. This place is my favorite restaurant. I've never actually been with another celiac, and everyone I go with always wants to go back...I would definitely check it out next time you're in the area!


  14. I've been seeing Dr. Green at Columbia-Presbyterian's celiac center for about two years, and I'd say I've had a fairly positive experience. My only complaint is that it's difficult to get him to call you back (if you need test results explained or something like that.)


  15. I recently flew from Prague to Paris to New York - JFK on Air France, and was provided with a gluten-free meal for the Paris-JFK leg of my trip. Granted, Air France is not a US domestic airline, but I was still impressed that I was at least offered the option. You have to call a few days before your flight to request the meal, but it was easy to do, it was marked on my ticket when I checked in, and it was also marked on the passenger list, because they came and found me before they served the meals. The food itself wasn't that great, (although from what I'm told Air France food in general is pretty good) but I didn't get sick from it, and my entire tray was wrapped in a layer of plastic (even after they had heated up the main dish) which made me feel a bit safer.


  16. I had a hydrogen breath test last Friday where you drink the lactose solution and they measure hydrogen levels in your breath. I found out I am definitely lactose intolerant, but I've been sick since saturday. I feel like heck!

    Anyone else have this happen? How long did it last?

    I had the test about two years ago, and I was really sick, but only for about 5-6 hours after I had the solution, if I remember correctly, and I'm pretty severely lactose intolerant.


  17. I had a difficult time at college freshman year (difficult enough to make me drop my meal plan for sophomore year). While NYU will work with you, I found it extremely difficult to guarantee my safety without eating the exact same thing every day. It got to the point where I was living on salad/whatever I could make in my microwave in my room.

    You can see an article I wrote about it for the school paper here: http://media.www.nyunews.com/media/storage...g-2396849.shtml

    On the other hand, you can see an article that someone wrote this year, with a much more positive angle:

    http://media.www.nyunews.com/media/storage...s-2398317.shtml

    I was interviewed for that one, but I wasn't quoted. I think I was much too cynical. Campus Dining Services has apparently had some staff changes, so that may have helped the situation. Dining halls still make me nervous though.

    The most allergen-friendly dining hall I've seen is at Cornell, because they label EVERYTHING.

    Personally, what I would do (i.e. what I should have done freshman year) is get some kind of option with a kitchen for freshman year if your school has it. NYU does, and I'm still not sure why I didn't do that, but I got diagnosed around the time I got my housing forms, so that may have been it. Even if you have to be on a meal plan, I would try to get some kind of kitchen access so you can cook for yourself if need be.


  18. Whitney728...thank you!!!

    Your list of restaurants and directions have been packed.

    Leaving in four days. I'm drool when I think of having panini at Risoterria.

    Don't you love Prague! I represented the United States at the World Tap Dance Championships in Lujubljana, Slovenia...and spent several days in Prague as well. It's one of my favorite cities!

    :)

    Macy

    Prague is fantastic! I can imagine that Slovenia must have been as well.

    Also, I'm not in Tisch, but feel free to PM me if you have any general NYU questions!


  19. This is the third time I've posted this info in two days, so I hope it's useful to someone :) It's basically repeating a lot of things people have said already, but with subway directions.

    I actually go to school in Manhattan (although I am studying in Prague at the moment), so you should be happy to know that you have plenty of options smile.gif

    1. RISOTTERIA - this is an absolute must. It's by far my favorite gluten-free restaurant in the city. It's on the corner of Bleecker Street and Morton Street in the West Village (near the 1 train (Christopher Street stop) or the A,C,E,B,D,F, and V trains (W4th street stop)). It's a great little Italian place with a good selection of pizza, focaccia sandwiches, and risottos. They also have great gluten-free breadsticks (they come automatically, you don't even need to ask) and desserts. The menu automatically lists all of the gluten-free options, and they pretty much make everything in a "regular" and gluten-free version. It's my own personal version of heaven, and it's about 3 blocks from where I live in New York, so I'm here quite a bit.

    2. Puff&Pao - this is relatively near Risotteria, it's on Christopher Street, between Bleecker and Hudson I think (or it's between Bleecker and 7th Ave. South...I would know this if I was there right now) - they have great gluten-free brownies and I think some of their other cookies are gluten-free as well, but the best thing to try is the paos, these little Brazilian (I think) cheese breads that are a specialty of theirs. Same subway directions as Risotteria, although the 1 train is much closer.

    3. Babycakes! - Gluten-free bakery on the Lower East Side. www.babycakesnyc.com. It's a cute little place with a lot of great options, and it's sugar-free and vegan as well (I promise, they still taste great). I think you take the F train to Delancey Street and walk down to Broome Street, but I would look up their address and look up the subway directions on Hopstop (see below) to be safe.

    http://www.glutenfreerestaurants.org/adv_s...p;submit=Search

    These are the GFRAP restaurants in New York City (including Risotteria). All of these offer gluten-free menus. I've been to Sambuca - it's quite good - but I haven't been to any of the others.

    Let's see...

    There are several Whole Foods locations. There's one in Union Square (4,5,6,N,R,Q,W,L trains to 14th St-Union Square) that's right down the block from a Trader Joe's (and a regular grocery store - the Food Emporium.) This is the one I shop at, and they have a really good selection of gluten-free items. There's also one in Columbus Circle (A,C,E,1,B,D trains to 59th St-Columbus Circle, or take the N,R,Q,W, to 57th street and walk) that's really nice. I'm not sure where the other locations are but I'm sure you can look that up on the Whole Foods website.

    Another useful website is www.hopstop.com - this isn't gluten-free related, but it's useful to look up subway and walking directions to wherever you need to go in New York (including these restaurants!)

    Overall, I've eaten out at plenty of places (and I'm fairly sensitive) and you definitely have a lot to choose from. Most of my restaurant recommendations are in the vicinity of NYU, as that's the area I know best (although Sambuca is further uptown, by Central Park) but you can definitely find something in any area of the city. Risotteria is a must though.

    Let me know if you have any other questions!