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I was just in to see my doctor today about a similar issue I'm having.
Just over 2 weeks ago I suddenly started having GI symptoms and initially assumed an accidental glutening.,,,Then I started to worry thinking perhaps something else was going on b/c it seemed soooo long to still have symptoms. My doc assured me that it can take some people weeks to a month or more to see their symptoms diminish from a single exposure. She suggested I give it a bit more time and in the meantime take probiotics and stick to a BRAT diet til I start to feel better. I'm hoping it resolves soon!
And hope you feel better too!
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I think if your labs are positive AND you know you feel better gluten-free, the single biopsy was simply not enough to provide an accurate diagnosis.
My blood work was positive and 2 doctors diagnosed me with celiac disease. I was actually the one that insisted on pursuing an endoscopy. I was not happy that in the end he only took one biopsy though (and it was negative) but he still diagnosed me with celiac disease based on my blood work. I have been gluten-free for 4.5 months and plan to have my labs repeated at the 6 month mark to see if my antibodies are dropping.
This process can be quite frustrating if your doctors are not hearing your concerns. We've all experienced that at one point or another. Hang in there.
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My understanding is the IgA deficiency will not change. It is what it is. BUT I'm certainly hoping that my overall health will improve as my gut heals and this will make me less "sickly".
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Sorry to hear you aren't feeling well.
I read this and ran to check my cans of tuna again...they read gluten-free!
They do contain soy though. Hope you feel better soon.
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We tried them and my kids really liked them. Unfortunately, my store stopped carrying them for some reason.
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Wow, look at the difference in your eyes alone!
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- actually, you could get the IgA run. if it is low that would explain you lack of positivity on the other blood tests..
I was thinking the same. The IgA tests in the celiac panel would not be accurate if your total IgA is low or deficient.
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I keep crackers and protein bars in my car. And it has definitely come in handy at times!
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I have anxiety with OCD also and have been gluten-free since November (other than accidental glutenings early on). I had really hoped that going gluten-free would relieve my anxiety symptoms but I haven't noticed any improvement yet. Its a terrible cycle for me of stress= anxiety-> insomnia-> exhaustion-> anxiety -> etc. I want to get off this merry-go-round!
For those that have felt relief with going gluten-free, I'm wondering- was it immediately noticeable for you? I'm not a patient person but I was so hoping that things would improve by now.
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Darn! Sorry I missed this. Weekends are crazy busy with my kids and all of their activities.
I can't seem to access the transcript. When I click on the pdf link, I get a message that says I don't have permission to view it.
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Hello
Type 2 diabetes and celiac disease are also autoimmune
Type 2 is not autoimmune.
http://diabetes.niddk.nih.gov/dm/pubs/type1and2/
In rereading my earlier post, I see that my response was pretty unclear. What I was trying to say is that I am not sure if there is any connection between celiac disease (autoimmune) and Type 2 (not autoimmune). Sorry for the confusing post earlier
Dealing with both diets together is...well....challenging.
Btw cyclinglady, my family LOVES cheesy cauliflower "fake" mashed potatoes!
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I have celiac disease. It was discovered by biopsy over 2 years ago. My diet has been as gluten free as possible since that time.
A few months ago I was told I have type 2 diabetes.
Is it possible my celiac disease could have caused my diabetes?
I've looked for months and can't find a definative answer.
Anyone know with certainty?
Thanks in advance for your help.
Judi
Type 1 is autoimmune. Not sure about Type 2 and celiac disease.
Are you sure you have Type 2? It's baffling but there are still a lot of doctors out there who mistakenly diagnose Type 2 simply because you are an adult at the time of diagnosis.
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Or get a new pediatrician.
I'm thinking about it but my options are limited and not necessarily better.
This morning I was able to get the office to agree to test one of my kids (b/c she's always constipated) but I still have to fight for my other kids b/c they don't present with "symptoms". What a joke.
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I'm told it doesn't mean a whole lot but it did explain why I seem to catch every little cold my kids bring home.
"People with selective IgA deficiency are usually asymptomatic,[5][6] but can have increased frequency of infections, particularly in the respiratory, digestive and genitourinary systems, for example, sinusitis and urinary tract infections. These infections are generally mild and would not usually lead to an in-depth workup except when unusually frequent."
http://en.wikipedia.org/wiki/Selective_immunoglobulin_A_deficiency
"How common is IgA deficiency in those with celiac disease?
2-5% of those with celiac disease are IgA-deficient, and 0.5-1% of the general population. If IgA deficient, or if there is some other equivocating factor to potentially compromise the blood test, then an EMA blood test is also given."
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I hear you! I just went through a discussion with my kids' pediatrician that left me angry. He refuses to test my children for celiac disease because ~wait for it~ they don't suffer with diarrhea.
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I know it can be a pain, but
I agree with IrishHeart. Don't begin with a negative statement like that. I don't think you want to lead with a "here are my issues" type of introduction. Just save that for a time when the topic can come up more naturally. As you said, there's always meeting up for coffee.
Btw, I used to like dates (when I dated a century ago, lol) where you could do an activity on the date to take the pressure off of keeping the conversation going and yet still engage one another. Things like playing pool, bowling, going to a sporting event, etc. I'm shy so the whole introduce yourself at a table thing always stressed me out anyway.
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You don't have to stop dying your hair. I dye my graying hair all of the time!
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Hi BelleVie,
I have diabetes and I can try to explain the different types as I understand them.
Type 2 involves insulin resistance and sometimes poor insulin production. This is often diagnosed in overweight, sedentary individuals but there are certainly exceptions to this rule.
Type 1 is autoimmune and was once thought to only be found in children...this has been disproved and experts now know that Type 1 can develop in adults, too. I'm one example. I have what is called LADA (Latent Autoimmune Diabetes Adult onset) and sometimes it is coined Diabetes Type 1.5. I have the auto-antibodies of Type 1 but still just enough pancreatic function to not require insulin at the moment. My condition was discovered after many pregnancies that required insulin from just after the moment of conception...okay, maybe that parts an exaggeration
I have to run but I hth clear the difference up some.
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"Low gluten" will hurt. It's a shame but I have had to give up on taking communion, too until they come up with gluten-free alternative.
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Congrats! That's great news!
I have asthma, too. It would be terrific to see it improve as time goes on.
I hope you get the heart stuff sorted out soon. That's got to be scary stuff.
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There are so many symptoms of celiac disease that I suppose it's possible it was related. Has your thyroid been checked? A lot of people feel cold with hypothyroidism and some lucky ones report feeling symptom relief once they are gluten-free.
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I've heard of this but it's extremely difficult to meet the minimum 10% of your AGI for the deduction.
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My doctor has recommended it and I'll be starting it soon.
Did Your Vitamin D Levels Go Up?
in Post Diagnosis, Recovery & Treatment of Celiac Disease
Posted · Report to Admin
My Vit D went from the low end of insufficient (on supplements for years) to the high end of sufficient (without any supplements at all) after just 6 months gluten free. My antibodies were all down to almost nothing as well.
I was so happy that I wanted to frame that lab report!