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moosemalibu

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moosemalibu last won the day on April 25 2014

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About moosemalibu

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    Moderator

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  • Gender
    Female
  • Interests
    weight lifting, cycling, swimming, kayaking
  • Location
    Northern California

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  1. I also have orthostatic hypotension and I was sedated for my endoscopies (have had 2) and colonoscopy. Certain sedatives/anesthetic drugs decrease blood pressure more than others and some have very transient changes. Discuss the anesthetic protocol concerns with your doctor. They may find a cocktail...
  2. Sorry to hear of your woes! Ask your doctor regarding tests for your gall bladder and perhaps discuss possibility of colitis? If they ran the correct Celiac panel and your biopsies look good it may not be Celiac. But 2 biopsies is not a lot but for some reason most doctors don't do a large portion...
  3. I just got a zojirushi bread maker as a wedding gift. I made my first loaf today. The flours I used were sorghum, rice bran, brown rice flour, along with corn starch, xanthan gum, yeast, molasses, honey, salt, eggs and water, vegetable oil. I used a recipe from a gluten free bread machine recipe...
  4. OMG - I don't know why I don't get notifications on comments. To answer your question - I am extremely dietery compliant and my celiac panel ran in April was totally great, all low low low. I make all my own food and I don't eat out in restaurants. Too risky for me. I have been having chronic isues...
  5. I am thinking that the inflammation in the gut alone could probably cause pain that could be interpreted as back pain. I have had back pain for a lot of my life - the only thing that helps is working out my back specifically with weights. My weight lifting and celiac diagnosis kinda coincided around...
  6. Well... yesterday I had my second endoscopy performed. My GI doctor wanted to check up on my small intestine to see how its healing, as well as check my esophagus to rule out eosinophilic esophagitis. He took multiple biopsies and said my SI looked atrophied but otherwise I looked good. The combination...
  7. I am a week into my Entocort steroid therapy for microscopic colitis. I can say that I have no discernible side effects from this drug. It has slowed down my bowel significantly. I am no longer running to the bathroom 8-10x/day. I probably go about half that amount now. The quality of the bowel movements...
  8. I started budesonide treatment today. I wrote another blog post if you are curious! ;) Thanks for asking!
  9. Thanks!! I am excited for a positive change in health status! :)
  10. I saw my GI yesterday. He and I agreed to start me on Entocort EC/Budesonide medication. It is a slow release 3mg capsule that is not dissolved by the stomach pH and instead gets broken down and absorbed in the intestines. It is supposed to have a local effect versus systemic and is considered safer...
  11. Sadly just had gluten free chicken strips and oreida fries for dinner tonight. We ran out of Thanksgiving leftovers and have yet to venture into the grocery stores to replenish.
  12. Thankfully my doctor double-booked my appointment into his schedule and will see me tomorrow!
  13. I just got the message from my doctor that I have microscopic colitis. I had a colonoscopy last month with biopsies. The colonoscopy prep was not nearly as bad as what people have told me it would be. Honestly the best part of my experience was the prep. The scope was not so great - I woke up several...
  14. thanks! I appreciate the hugs. :)
  15. Well... my diarrhea has continued and not improved despite resolution of most of my other celiac symtoms. I'm going in to be tested for microscopic colitis next month. I just want to have a normal phucking bowel movement. It's been soo long I don't even remember what one looks or feels like! Hoping...