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      Frequently Asked Questions About Celiac Disease   04/07/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About gilligan

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  1. My brother found he had it about the same time I was diagnosed. His son was diagnosed this summer 4 years after us. Mom passed recently, but we are certain she had it now that we know much more about it. A second cousin was diagnosed at 1 yr. of age about 25 years ago. My daughter was tested this summer but I'm doubtful of her negative diagnosis - she gave the family history and was told by the doctor before the test that he was sure it would be negative and not to worry about it. I'm uncertain which test was actually administered, and she refuses to do it again unfortunately. My point is to get your children tested. I think the likelihood of a few of them testing positive is high.
  2. You've received a lot of good info from other posters. A few of my favorites, including those already mentioned, are: Glutino English Muffins - my niece discovered them! Yum! Ronzoni, Barilla, and Jovial pasta - Jovial egg noodles are great! Pamelas pancake mix Glutino or Kinnikkinick sandwich cookies (very similar to Oreos) Snyders pretzels - especially honey mustard Freschetta and California Pizza Kitchen frozen pizzas Udi's muffins Udi's or Aldi's brand snickerdoodle cookies Kinnikkinick vanilla wafers Pocono Cream of Buckwheat hot cereal Kind bars - the chocolate cherry is my favorite Straw Propellar Instant Oatmeal or Muesli cups - pricey, but very yummy and quick. I keep them on hand for a quick meal, eating on the go, and traveling. Bread was the hardest thing for me to get used to. Toasting it is a game changer. *Canyon Bakehouse bread was already mentioned, but they also make very good bagels. They just came out with "Sweet Bread", similar to Hawaiian rolls. I haven't been able to find it yet. I've had great luck dining out at Outback, Chipotle, Jane Dough Deli, and Chic-Fi-La (grilled chicken sandwich, grilled chicken nuggets, and waffle fries). They always call it out and change gloves. The bun comes sealed and is served that way so only you touch it. When traveling, I always look for truck stops as they usually have individually packaged boiled eggs, sausage, cheese, fresh fruit cups, potato chips, and Kind bars.
  3. Gluten free honeymoon adventure

    It's not really out of the U.S., but I'd consider Maui or Oahu. Both islands have a good variety of gluten free food options, including a few gluten free bakeries. I've had great success at both.
  4. gluten-free coffee liquor

    They are gluten free. It's stated on their website.
  5. Overwhelmed and unable to accept

    Not to be rude, but I seriously don't get all the doom and gloom about a celiac diagnosis. Maybe I live in a bubble, but I can't recall an instance where I felt put down, humiliated, was given disgusted looks, or felt I was being treated any differently than anyone else. If it's happening, it must be that bubble thing or I'm just oblivious to it. I can't think of anyone I know who cares about what I can or cannot eat. Seriously! I eat out, go to parties and picnics, I travel, meet friends for coffee. My life has not been that greatly impacted because of food! It takes a little pre-planning of meals sometimes, but holy cow! When I was diagnosed a couple (well...4) years ago, I wasn't sad or shocked, but HAPPY that it wasn't something worse. I'l admit there's quite a learning curve to figuring it all out, and I had help from a dietician. It wasn't easy - it took me 2 1/2 yrs. of doing everything right to turn it around, but I did. And, I have never, ever cheated! It could always be worse! My nephew is diabetic, a good friend is in remission from breast cancer, another is going through screening for diabetes, my sister has lupus. There's more I could list, but I'm sure you get the point. Me? I have celiac! I can control it with food. I feel lucky!
  6. I have used 3 or 4 different brands of braces wax without any problems. Two of the brands were purchased at CVS when I left the house without the wax I got at the orthodontist's office. No problem with any of it.
  7. It's unfair to make such a general statement about ER's and hospitals. Unfortunately, I've been to the ER several times and hospitalized three times in the past few years. The staff took me seriously when I told them I had celiac. Popsicles and drinks were checked for gluten, and a good laugh took place when a nurse came in to remove the cheesecake that was brought to me when the staff found out it was our anniversary. Dietary services were called and Lucy's gluten free cookies were given to me instead. Once admitted to the hospital, a dietician was sent to my room to discuss meals and she checked back with me a couple of times. The only mistake made was the dairy free protein shakes that were delivered daily and left untouched. When dietary called my room to ask why I wasn't drinking them, my husband had to inform them to read the label as it was clearly labeled containing milk products.
  8. I love Aldi's gluten free bread and have never had a problem with it. Yes, they still make it, but it is hard to find lately. I found the bread, burger buns, and hot dog buns in Kentucky this weekend. The buns are honestly my favorite of all the brands I have tried. They show up at the stores sporadically, so my advice is to purchase as much as you can and freeze when you find them.
  9. Eyes...wow.

    I had the same problem long before I knew I had celiac. Restasis did not help me at all. I was referred to an eye specialist, and he was very helpful. He said to continue with Restasis, but I told him it was a waste of time. He told me that it doesn't work for everyone. He also gave me a Bruder Mask, which is an eye mask with beads in it that you warm in the microwave. Put over your eyes 4x daily for about 10 min. Then, massage your eyes gently - the warmth melts the fat in your eye glands and massaging helps disperse it over the surface. You can also get it on Amazon or just use a warm, wet compress. I was told to use preservative free (very important) otc eye drops and a gel at bedtime. He also gave me an otc supplement called HydroEye. There are similar ones under another name - it's essentially flax oil. Also, it's important to wash your eyes daily with an otc product called OcuVue Lid Scrub. They are pricey but work well. A clean warm cloth and Johnson Baby Shampoo works as well. This has made a tremendous difference for me.
  10. It's a salad dressing with balsamic dressing as an ingredient. I've never found straight balsamic vinegar that contains gluten.
  11. Best gluten-free bread

    Schar Baguette is really good! My husband (not gluten-free) now prefers it over regular french bread.
  12. What Karen said! My sister and I eat them all the time without any issues. Any rich chocolatey candy will bother me a bit if I eat them on an stomach.
  13. I had the same problem for about three years, and finally last year I started gaining weight and am back to normal plus and feeling great. I worked with a dietician and my g.i. I used a product called Muscle Egg which is essentially liquid eggs that come in flavors. It comes in quart and gallon size and is delivered frozen. The only ones I could stand were the plain and chocolate. Google it - it's an excellent product (also pricey, so watch for free shipping specials). I drank a couple cups a day and added it to smoothies, My dr. recommended medium chain triglyceride oil. Walgreens ordered it for me. I don't remember what it's called, but they should be able to help you. It has a coconut taste and isn't bad at all. In addition, my diet was rich in tuna, salmon, olive and coconut oil, peanut and almond butter, nuts, eggs, steak and eggs for breakfast, and avocados. Steak and eggs was my "go to" meal. I tried hiding avocado in anything I could come up with. I ate so many of them that I can barely look at them now. I was dairy intolerant during this time and luckily that is no longer a problem. If you can have dairy, go for it - full fat milk, cheese, ice cream, yogurt!
  14. I've had them about six or seven times at several different Starbucks locations. My sister has, also. Neither one of us have had any signs of getting glutened. They are served in a parchment paper bag that should be handed to you straight from the oven sealed. I've heard many internet complaints about the bags being dusty, too many ingredients, unhealthy, etc., but honestly, they are pretty darned tasty! And, when you are traveling and hungry, they are even tastier. They sell out quickly at most Starbucks, but I've been able to purchase one as late at 6 p.m.
  15. Maui Hawaii Experience

    I got an email from Feast at Lele, a luau in Lahaina. They offer a sit down dinner rather than a buffet, and have prepped meals for many celiacs and other food issues. Yay for them! They cook with very little gluten, and the only thing they will not serve me is the Hawaiian sweet bread offered during the last course. Wait staff and kitchen are all given the word that they are serving a guest with celiac and cautions are put in place.