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Nancym

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Latest Celiac Disease News & Research:

Everything posted by Nancym

  1. Nancym
    In San Diego the Gluten Free dining group went to that restaurant once.
  2. Nancym
    It's not all that reliable I have heard. Search on it on the Internet and read up.
  3. Nancym
    Well, a couple of ways. First pain can be referred, so it might be coming from another source but because of how nerves are laid out it can show up there. Another thought is osteoperosis, if you're not absorbing calcium and vitamin D from food. Lastly, celiac disease can injure the brain and nerves (B12 deficiency and brain lesions). And finally, you...
  4. Nancym
    Just because your villi haven't been ripped out of your gut yet doesn't mean they're not going to be eventually! Light-celiac... what a joke.
  5. Nancym
    You need to be tested for autoimmune diseases, they should run CRP ESR the tests for lupus and whatever else they can think, you should be checked for thyroid antibodies too, it is possible to have both Graves disease and Hashimotos at the same time, that could be causing some of your symtpoms. Lots of autoimmune diseases attack the eyes. And you should...
  6. Nancym
    Pet food with wheat? Bird food containing wheat? It could be something completely unrelated. Lots of autoimmune diseases have brain fog and fatigue as symptoms. Perhaps you should talk to your doctor?
  7. Nancym
    Are you going dairy free too? Looks like you've got a pretty strong positive on dairy.
  8. Nancym
    My doctor only gave it to me for 3 days, but it worked! Same dose, 3x day 200 mg I think.
  9. Nancym

    ARCHIVED Dating?

    Nancym replied to JamiD's topic in Coping with Celiac Disease

    Hi Jami, I'm single and haven't really dated in quite awhile. I think what might be a decent plan is to pick out some restaurants yourself, in advance. Ones you think you can trust. Steer your date in that direction. I'd probably get the Celiac condition out on the table early so if someone thinks they can't handle it, they can bail before anyone gets...
  10. Nancym
    Someone posted something recently that unless you have total villious atrophy there's a 33% chance your blood work will be negative for EMA and TTG.
  11. Nancym
    If you are deficient in nutrients your baby will be too. Just taking supplements isn't going to fix it, because you won't be absorbing them properly either. You need to correct your diet and get as healthy as possible before you conceive so your baby will be a little bundle of perfection. Being overweight doesn't mean you're healthy or have proper...
  12. Nancym
    This is great! I'll attempt to translate to lay-man's terms. There's a very good chance (33%) of false negative blood tests unless your intestines are in horrible shape. Never be put off by simply negative blood tests, insist on endoscopy.
  13. Nancym
    You CAN pass gliadin in breast milk, I just saw a study about this from the late 1990's. It's something I think I hear doctors saying can't happen, but that isn't the case. I would suggest going on an elimination diet to see if you can narrow down what your baby is reacting to.
  14. Nancym
    Wow! I'd consider suing them for withholding that information from you. I'm not suit happy but this is egregious! 5 years of suffering because they didn't tell you.
  15. Nancym
    You might have an IGA deficiency which would cause your negative results to tests yet positive results to the diet. And you probably have form of gluten intolerance that affects the brain more than the gut. Diary products can cause constipation, perhaps that is still lingering in your system?
  16. Nancym
    You might want to google "Small bowel bacterial overgrowth". Sometimes intolerances to starches and sugars can be caused by that. Treatment is pretty simple, just a course of antibiotics like rifamixin.
  17. Nancym
    Most autoimmune diseases are connected to Celiac as well. There's a high percentage of people without total villious atrophy that will test negative to ttg and ema. And there's a high percentage of people that are negative on biopsy that do well on the diet. IMHO the diet should be tried regardless of testing and you should go on that result.
  18. Nancym
    Dairy is being implicated in a lot of acne related issues recently. You might consider trying a dairy free run of a couple of weeks and see if that helps.
  19. Nancym
    There's a lot of fear and ignorance. I remember my Dad getting defensive when it was suggested that my brother might have inherieted his tendency to alcoholism. He seemed to feel we were blaming him somehow. Although, I suppose parents can't help but feel responsible for the things that happen to their children, so perhaps it is just a defensive mechanism...
  20. Nancym
    Give the paleo diet a try. It is a very healthy diet and certainly can't hurt. It does seem to help lots of people with autoimmune diseases.
  21. Nancym
    I also found out I've got a problem if I eat too much fiber. I have been using coconut flour which is basically just fiber, it is low carb and low fat. If I have it two days in a row, I'm a mess again. I tried some out two days this week and I'm back to the bad poopin'. Hopefully it'll go away soon.
  22. Nancym
    Only a percentage of those without total villious attrophy will have positve blood tests. If you need a doctor diagnosis you'll have to insist on an endoscopy and ample biopsy samples. And they might be able to see the damage while they're looking. Or... you could give up on the testing and just trial the diet. But you can't do both at the same time...
  23. Nancym
    I just read that without total villious atrophy 30% of blood tests are negative. More doctors are starting to become aware that IGA *is* indicative.
  24. Nancym
    Word of warning, don't cut out the gluten before your testing, you may heal enough to become a false negative. On the other hand... 30% of biopsy proven celiacs without complete villi atrophy have negative blood tests. So either way you might have a negative blood test and still have celiac disease.
  25. Nancym
    Doing the Enterolab sample thing for me was vastly funny. I took my sample... all wrapped up in 18 ways and disguised, with me to work and stored it in the freezer there until I could drop it off at the DHL place. I was sweating bullets someone would find it and investigate it, thinking it was a treat...
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